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Covid - Beware Getting Treatment
it’s currently 08.30 in the morning and I have probably had the worst ordeal ever. I tested positive yesterday morning. As is the protocol I rang my Consultants Secretary, she arranged for the paperwork to West Yorks Healthcare (we live in North Yorkshire) Trust. She added to let them know as it was
it’s currently 08.30 in the morning and I have probably had the worst ordeal ever. I tested positive yesterday morning. As is the protocol I rang my Consultants Secretary, she arranged for the paperwork to West Yorks Healthcare (we live in North Yorkshire) Trust. She added to let them know as it was
Investigator1
in
Vasculitis UK
7 months ago
Provenge Completed
I got my 3rd and final Provenge infusion yesterday, the nurse told me since i hadn't had any of the flu-like side effects i probably wouldn't. she was not quite right. at 2 AM this morning i woke up with chills, then spent the rest of the night waking up about every 40 minutes with what felt like one
I got my 3rd and final Provenge infusion yesterday, the nurse told me since i hadn't had any of the flu-like side effects i probably wouldn't. she was not quite right. at 2 AM this morning i woke up with chills, then spent the rest of the night waking up about every 40 minutes with what felt like one
Tonwantonga
in
Advanced Prostate Cancer
1 year ago
Chronic shoulder pain
Was initially diagnosed with PMR in April 2022 only to be told a month later by Rheumatologist that it wasn’t PMR but a nasty viral infection. Also had long standing shoulder pain now for over 2 years and neck also very stiff.Had shoulder scanned recently shoeing no tests but SASD bursa distended consistent
Was initially diagnosed with PMR in April 2022 only to be told a month later by Rheumatologist that it wasn’t PMR but a nasty viral infection. Also had long standing shoulder pain now for over 2 years and neck also very stiff.Had shoulder scanned recently shoeing no tests but SASD bursa distended consistent
Countybowler
in
PMRGCAuk
7 months ago
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COVID!
After a couple of days feeling under the weather, I (finally) tested positive for COVID this morning. I have a headache, and stuffy nose, nothing else. My wife, from whom I probably caught it has symptoms so mild that she didn't even think to test until I came up positive. They sent her home from work
After a couple of days feeling under the weather, I (finally) tested positive for COVID this morning. I have a headache, and stuffy nose, nothing else. My wife, from whom I probably caught it has symptoms so mild that she didn't even think to test until I came up positive. They sent her home from work
jonathan7176
in
CLL Support
7 months ago
The dreaded covid
Hi Having recently come home from a holiday, both my husband and I have tested positive for covid. He’s never had it so he’s been quite poorly, I’m the one on watch and wait with CLL, I’m feeling not as rough but I’ve had it a year ago, and have had all the vaccinations offered me and so has hubby.
Hi Having recently come home from a holiday, both my husband and I have tested positive for covid. He’s never had it so he’s been quite poorly, I’m the one on watch and wait with CLL, I’m feeling not as rough but I’ve had it a year ago, and have had all the vaccinations offered me and so has hubby.
robertsw
in
CLL Support
7 months ago
Breathing becomes worse POST COVID
I have COPD without any SOB before COVID, I was infected with COVID few months back and recovered without oxygen support. I am having post Post covid symptoms such as brain fog (light dizzy throughout the day), elevated heart rate. But surprisingly my lung function FEV and FVC has increased, but feeling
I have COPD without any SOB before COVID, I was infected with COVID few months back and recovered without oxygen support. I am having post Post covid symptoms such as brain fog (light dizzy throughout the day), elevated heart rate. But surprisingly my lung function FEV and FVC has increased, but feeling
Maverick2
in
Lung Conditions Community Forum
7 months ago
Sick note
Hello, wondered if anyone could give me some advice. My husband has been off sick from work with Covid for 9 days and he has been quite poorly but back to work now. He only works 3 days a week but needs a sick note to cover him for 2 days. When contacting the GP they told him they don't give sick
Hello, wondered if anyone could give me some advice. My husband has been off sick from work with Covid for 9 days and he has been quite poorly but back to work now. He only works 3 days a week but needs a sick note to cover him for 2 days. When contacting the GP they told him they don't give sick
Newbytoasthma
in
Lung Conditions Community Forum
7 months ago
MODERNA SPIKEVAX (2022) COVID Vaccine Availability Autumn 2023 Uk
Hi all, As anyone had a Moderna COVID vaccine (2022 version Bivalent Spikevax) this autumn in the UK, I have a clinical need to avoid Pfizer and that is all that is being sent out at present. I have been in touch with UKHSA, NHS England, local Vaccine authority, Haematologist and GP without any joy.
Hi all, As anyone had a Moderna COVID vaccine (2022 version Bivalent Spikevax) this autumn in the UK, I have a clinical need to avoid Pfizer and that is all that is being sent out at present. I have been in touch with UKHSA, NHS England, local Vaccine authority, Haematologist and GP without any joy.
thyreoidea
in
Thyroid UK
7 months ago
covid vaccine
My Hematologist suggested I not take the flu or covid vaccine. She is concerned it will trigger another episode of low platelets. I had been in remission for 15 months last year and I thought I had beaten ITP. I got the vaccines last year then about 2 months later my platelets were back down to 1.
My Hematologist suggested I not take the flu or covid vaccine. She is concerned it will trigger another episode of low platelets. I had been in remission for 15 months last year and I thought I had beaten ITP. I got the vaccines last year then about 2 months later my platelets were back down to 1.
joecirillo
in
ITP Support Association
7 months ago
Not what I expected!
After feeling unwell, I’ve had a lousy night, tested in the early hours and have Covid! Had the booster 12 days ago and the flu jab on Saturday. it’s Sod’s Law , I was going to say a flare and low adrenal function feels like Covid with Mumps . Hopefully i can get antivirals , they wouldn’t give them
After feeling unwell, I’ve had a lousy night, tested in the early hours and have Covid! Had the booster 12 days ago and the flu jab on Saturday. it’s Sod’s Law , I was going to say a flare and low adrenal function feels like Covid with Mumps . Hopefully i can get antivirals , they wouldn’t give them
Greensleeves
in
PMRGCAuk
7 months ago
Advice please...
My fibro always gets worse in cold weather so bath soaks are my best friends at the moment, however, my boiler and heating stopped working few days ago, I called my housing association and they fixed the heaters, but for hot water I was told its not considered emergency as you can boil kettles of water
My fibro always gets worse in cold weather so bath soaks are my best friends at the moment, however, my boiler and heating stopped working few days ago, I called my housing association and they fixed the heaters, but for hot water I was told its not considered emergency as you can boil kettles of water
YMEPLEASE
in
Fibromyalgia Action UK
3 months ago
weird mouth symptoms on Sulfasalazine
Has anyone experienced anything like the following? I’ve been on Sulf for 7 weeks, max dose from 4 weeks. In the last 3 days I’ve had a sore tongue which has now settled but I’ve completely lost my sense of taste. I’ve tested and am negative for covid. I can’t think what else it could be!
Has anyone experienced anything like the following? I’ve been on Sulf for 7 weeks, max dose from 4 weeks. In the last 3 days I’ve had a sore tongue which has now settled but I’ve completely lost my sense of taste. I’ve tested and am negative for covid. I can’t think what else it could be!
Charlongo79
in
NRAS
5 months ago
Flue or RLS
as I mentioned a day or so back I had my flue jab last Sunday 1st October and my RLS has got progressively worse Monday and Tuesday virtually all day and constant headaches. Went to bed at 9.45 Monday night woke at 11.30 pm had to get up and walk around tried to go back to sleep by gave up till 6am went
as I mentioned a day or so back I had my flue jab last Sunday 1st October and my RLS has got progressively worse Monday and Tuesday virtually all day and constant headaches. Went to bed at 9.45 Monday night woke at 11.30 pm had to get up and walk around tried to go back to sleep by gave up till 6am went
HipHop1972
in
Restless Legs Syndrome
7 months ago
COVID-19 immune cell vaccine eases SLE symptoms in girl: Report
Therapy helped 13-year-old by increasing immune tolerance, researchers say
A personalized vaccine kit designed to prevent COVID-19 infection eased systemic lupus erythematosus (SLE) manifestations in an adolescent girl in Indonesia whose symptoms had not been well-controlled with immunosuppressive
Therapy helped 13-year-old by increasing immune tolerance, researchers say
A personalized vaccine kit designed to prevent COVID-19 infection eased systemic lupus erythematosus (SLE) manifestations in an adolescent girl in Indonesia whose symptoms had not been well-controlled with immunosuppressive
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
7 months ago
A very special interview with Dr Patrick Harrington regarding Covid vaccines and MPN patients
In this interview Dr Patrick Harrington, Consultant Haematologist, Guy’s & St Thomas’ Hospital, talks to Nona about Covid vaccines for MPN patients, he starts off by describing the research he carried out at the start of the Covid pandemic, with Covid being a new condition it was an area that needed
In this interview Dr Patrick Harrington, Consultant Haematologist, Guy’s & St Thomas’ Hospital, talks to Nona about Covid vaccines for MPN patients, he starts off by describing the research he carried out at the start of the Covid pandemic, with Covid being a new condition it was an area that needed
Mazcd
MPNVoice
in
MPN Voice
7 months ago
Finally some progress
Those who followed our Journey, know this is such a painful process of grief. Two weeks ago, the hospital wrote it would not change the factual information in my wife's chart. In her chart it had been written she had Biopys proven Nash Cirrhosis, which led doctors looking at ultrasounds that said
Those who followed our Journey, know this is such a painful process of grief. Two weeks ago, the hospital wrote it would not change the factual information in my wife's chart. In her chart it had been written she had Biopys proven Nash Cirrhosis, which led doctors looking at ultrasounds that said
Wolivere
in
British Liver Trust
8 months ago
First Post
Hi all, although this is my first post I have visited this site for the last 2 1/2 years. I was diagnosed with RA. Just as covid hit, I went from a healthy 52 year old to literally not being able to get out of bed overnight. I have never experienced pain like it, and I spiralled quickly in to a very
Hi all, although this is my first post I have visited this site for the last 2 1/2 years. I was diagnosed with RA. Just as covid hit, I went from a healthy 52 year old to literally not being able to get out of bed overnight. I have never experienced pain like it, and I spiralled quickly in to a very
Ryshta
in
NRAS
7 months ago
Drew Weissman, Katalin Karikó win Nobel in medicine for enabling mRNA COVID vaccines
[i]
A screen at the Karolinska Institute shows this year's laureates Katalin Kariko of Hungary (L) and Drew Weissman of the US during the announcement of the winners of the 2023 Nobel Prize in Physiology or Medicine at the Karolinska Institute in Stockholm on October 2, 2023.(Jonathan Nackstrand/AFP
[i]
A screen at the Karolinska Institute shows this year's laureates Katalin Kariko of Hungary (L) and Drew Weissman of the US during the announcement of the winners of the 2023 Nobel Prize in Physiology or Medicine at the Karolinska Institute in Stockholm on October 2, 2023.(Jonathan Nackstrand/AFP
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
7 months ago
PBC and nails / gel polish / acrylic
hi everyone, just a quick question.. I wondered has anyone had any issues with having their nails done with gel polish. I had to switch from gel polish to acrylic as my nails kept having a reaction to the gel - and often developed a fungal infection. Once I switched to acrylic they were much better
hi everyone, just a quick question.. I wondered has anyone had any issues with having their nails done with gel polish. I had to switch from gel polish to acrylic as my nails kept having a reaction to the gel - and often developed a fungal infection. Once I switched to acrylic they were much better
Deemum
in
PBC Foundation
3 months ago
me again with the shingles questions! A specific one this time…
how long did you stop your arthritis meds when you had shingles? The a and e doc told me I could restart the Rinvoq once the blisters had crusted over…I’m keen not to be off it for too long … Thanks in advance all Bon X
how long did you stop your arthritis meds when you had shingles? The a and e doc told me I could restart the Rinvoq once the blisters had crusted over…I’m keen not to be off it for too long … Thanks in advance all Bon X
Bon1
in
NRAS
9 months ago
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