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Moving on...to olaparib
I recently updated to ask about chemo options, mainly cabazitaxel with or without carboplatin, or a second round of docetaxel, this time with carboplatin. I had been discussing these with my Mayo doctors, Kwon and Orme. Then earlier this week, Dr. Orme phoned me to report that after another genetic
I recently updated to ask about chemo options, mainly cabazitaxel with or without carboplatin, or a second round of docetaxel, this time with carboplatin. I had been discussing these with my Mayo doctors, Kwon and Orme. Then earlier this week, Dr. Orme phoned me to report that after another genetic
Arcticfox44
in
Advanced Prostate Cancer
1 year ago
disappointed again
just had a phone call cancelling my counselling appointment for tomorrow, last week same thing happened which should have been my first one , so desperate to get started ime walking the walls at the moment, hate being alone haven’t found a house mate yet !!!!!
just had a phone call cancelling my counselling appointment for tomorrow, last week same thing happened which should have been my first one , so desperate to get started ime walking the walls at the moment, hate being alone haven’t found a house mate yet !!!!!
Dogloverxthree
in
British Heart Foundation
1 year ago
Feelings of loss
I had my son in October 2021 and was in an MBU for several months following that. It started with a manic episode, but then I went into a deep depression. At this point, I was so low that I would have happily traded my son to be well again and get my old life back. I was lucky and had great support from
I had my son in October 2021 and was in an MBU for several months following that. It started with a manic episode, but then I went into a deep depression. At this point, I was so low that I would have happily traded my son to be well again and get my old life back. I was lucky and had great support from
Alpav
in
Action on Postpartum Psychosis
1 year ago
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MPN Voice ‘virtual’ forum – Genetics and MPNs Thu 25 May 2023, 5 – 6.30 pm (BST)
This MPN Voice ‘virtual’ forum will focus on Genetics and MPNs, with presentations from: Dr Anna Godfrey, Cambridge University Hospitals NHS FT; Dr Jonathan Lambert, University College London Hospitals NHS FT and Dr Andrew McGregor, Newcastle-upon-Tyne NHS FT. There will be a live panel Q and A session
This MPN Voice ‘virtual’ forum will focus on Genetics and MPNs, with presentations from: Dr Anna Godfrey, Cambridge University Hospitals NHS FT; Dr Jonathan Lambert, University College London Hospitals NHS FT and Dr Andrew McGregor, Newcastle-upon-Tyne NHS FT. There will be a live panel Q and A session
Mazcd
MPNVoice
in
MPN Voice
1 year ago
Psychiatrist help
I’ve suffered from chronic anxiety and debilitating fear since childhood ( I’m now early 60s). My anxiety since lockdown has tripled in intensity and I can’t manage. I’ve tried over 18 medications non of which have been effective apart from a very low dose duloxetine ( 20 mg just about helps me function
I’ve suffered from chronic anxiety and debilitating fear since childhood ( I’m now early 60s). My anxiety since lockdown has tripled in intensity and I can’t manage. I’ve tried over 18 medications non of which have been effective apart from a very low dose duloxetine ( 20 mg just about helps me function
Hidden
in
Anxiety Support
1 year ago
LRRK2 and GBA Genetic Testing Results from PD Frontline
Hi Just to let you know I received my genetic testing results including LRRK2 and GBA back from PD Frontline today and I think if you have already given sample for that you should receive your results soon. Have a great time
Hi Just to let you know I received my genetic testing results including LRRK2 and GBA back from PD Frontline today and I think if you have already given sample for that you should receive your results soon. Have a great time
Kia17
in
Cure Parkinson's
1 year ago
Dosing levels
Is it possible to tell by the ratio of levo & lio dosing levels to the person’s height:weight alone (assuming the person’s TSH numbers have come back to euthyroid or less than euthyroid) whether that person is a good converter? I am on 150 mcg of levo and half a tablet of Thybon Henning a day and my
Is it possible to tell by the ratio of levo & lio dosing levels to the person’s height:weight alone (assuming the person’s TSH numbers have come back to euthyroid or less than euthyroid) whether that person is a good converter? I am on 150 mcg of levo and half a tablet of Thybon Henning a day and my
HowNowWhatNow
in
Thyroid UK
1 year ago
At wits end
Hi, I feel very anxious and depressed. Getting really horrible feelings. I’m on duloxetiene, and have just increased it from 30mg to 60mg a few days ago. I have just had a blood test and they say my vitamin D is borderline so I am just starting 1000 IOU’s of vitamin D tablets. I haven’t worked for almost
Hi, I feel very anxious and depressed. Getting really horrible feelings. I’m on duloxetiene, and have just increased it from 30mg to 60mg a few days ago. I have just had a blood test and they say my vitamin D is borderline so I am just starting 1000 IOU’s of vitamin D tablets. I haven’t worked for almost
Emma143
in
Anxiety Support
1 year ago
A daughter seeking knowledge on CBD and being proactive.
Hi there, my mum was diagnosed in 2020 with CBD. She is the third generation in my family to be diagnosed with a neurological degenerative disease. She is very unsteady on her feet, her speech is slurred, her sentence structure isn’t good and she has lost use of her right arm/hand. If I was to say I
Hi there, my mum was diagnosed in 2020 with CBD. She is the third generation in my family to be diagnosed with a neurological degenerative disease. She is very unsteady on her feet, her speech is slurred, her sentence structure isn’t good and she has lost use of her right arm/hand. If I was to say I
Lottie149
in
PSP Association
1 year ago
Stuck
Hello all...wishing you peace and strength. I am struggling with so many emotions....anger,frustration,sadness,completely overwhelmed. I am stuck in this situation and although I know what I need to do I am unable to do anything. I can hardly stay out of bed. So now I'm losing physical strength. All
Hello all...wishing you peace and strength. I am struggling with so many emotions....anger,frustration,sadness,completely overwhelmed. I am stuck in this situation and although I know what I need to do I am unable to do anything. I can hardly stay out of bed. So now I'm losing physical strength. All
bridgfrigo3277668
in
Anxiety and Depression Support
1 year ago
Sleep
I'm pleased to join. My child is having trouble sleeping. Just started counseling. Any tips?
I'm pleased to join. My child is having trouble sleeping. Just started counseling. Any tips?
Teampossible22
in
Anxiety Support
1 year ago
Anxiety hurting relationship
I’ve been suffering from anxiety and depression for the last 4 or 5 years. It started with work pressure and my late mothers dementia, but it got 1000 times worse with Covid to the point I took early retirement. I tried CBT and counselling but neither really helped. It’s now affecting my relationship
I’ve been suffering from anxiety and depression for the last 4 or 5 years. It started with work pressure and my late mothers dementia, but it got 1000 times worse with Covid to the point I took early retirement. I tried CBT and counselling but neither really helped. It’s now affecting my relationship
Alan7690
in
Anxiety Support
1 year ago
idea?
husband has always reacted poorly/had weird side effects from drugs, to the point I read any new prescriptions. VA did genetic testing for reactions to 20 common drugs and I carry that with me to ask appointments. The loss of testosterone has definitely weakened him and the lupron brain fog is very real
husband has always reacted poorly/had weird side effects from drugs, to the point I read any new prescriptions. VA did genetic testing for reactions to 20 common drugs and I carry that with me to ask appointments. The loss of testosterone has definitely weakened him and the lupron brain fog is very real
Spring15-3
in
Advanced Prostate Cancer
1 year ago
New here
I have struggled with anxiety for so long it has just become a part of who I am but I don't want it to be!!! I constantly feel the need to please others which we all know is a futile effort. It annoys my husband immensely and causes us to fight. I started medication and counseling. Breathing techniques
I have struggled with anxiety for so long it has just become a part of who I am but I don't want it to be!!! I constantly feel the need to please others which we all know is a futile effort. It annoys my husband immensely and causes us to fight. I started medication and counseling. Breathing techniques
M_Bug
in
Anxiety and Depression Support
1 year ago
Newly diagnosed with BC. I am terrified but know I must remain strong to get through this long treatment.
I was diagnosed with BC six days ago and I am looking for a safe place to vent, gather information, and find support. I thought I was safe from any cancer given past genetic testing but also because both my mom and maternal grandmother died from C in their early 50's. I passed both their ages of death
I was diagnosed with BC six days ago and I am looking for a safe place to vent, gather information, and find support. I thought I was safe from any cancer given past genetic testing but also because both my mom and maternal grandmother died from C in their early 50's. I passed both their ages of death
CarpeDiem2024
in
SHARE Metastatic Breast Cancer
1 year ago
Doctors
Hey Everyone Just had my doctor's appointment different GP from normal but she was lovely. I explained how I've been feeling in the evening's and she look at my medical records and she said she wasn't surprised I feel the way I do, with everything I've been through. She has increased my anti depressants
Hey Everyone Just had my doctor's appointment different GP from normal but she was lovely. I explained how I've been feeling in the evening's and she look at my medical records and she said she wasn't surprised I feel the way I do, with everything I've been through. She has increased my anti depressants
Valentina98
in
British Heart Foundation
1 year ago
Genetic Testing
Hello my husband had heart bypass surgery last year and a heart attack after angiogram. His grandad, dad and sister all have heart conditions. The hospital said last year they would be doing genetic testing and our two children (9&12) would be tested. We still haven’t heard any and when my husband finally
Hello my husband had heart bypass surgery last year and a heart attack after angiogram. His grandad, dad and sister all have heart conditions. The hospital said last year they would be doing genetic testing and our two children (9&12) would be tested. We still haven’t heard any and when my husband finally
Ljs383
in
British Heart Foundation
1 year ago
Big Day ?
This is the first day I will have spent the whole day with friends and injected and taken SL B12 instead of skipping it. The results expected is I have a wonderful rest and do not need to recover. I know I will have a wonderful day. I am not yet sure if the reason that I am doing so much better is
This is the first day I will have spent the whole day with friends and injected and taken SL B12 instead of skipping it. The results expected is I have a wonderful rest and do not need to recover. I know I will have a wonderful day. I am not yet sure if the reason that I am doing so much better is
WIZARD6787
in
Pernicious Anaemia Society
1 year ago
Knowledge Isn't Enough
Hi Everyone! I've been reading and responding for several months, but this is my first OP. ADHD was diagnosed at 54, I'm almost 67 now. At the time, I was still working, and Vyvanse was a small miracle! After several years, I got breast cancer and stopped meds while I went through chemo and radiation
Hi Everyone! I've been reading and responding for several months, but this is my first OP. ADHD was diagnosed at 54, I'm almost 67 now. At the time, I was still working, and Vyvanse was a small miracle! After several years, I got breast cancer and stopped meds while I went through chemo and radiation
PinkPanda23
in
CHADD's Adult ADHD Support
1 year ago
Adrenal Testing and Genetic Testing
I am looking for more information about ‘myself’. So I have decided to have the above tests. Naturally I want the best and most informative ones. I see the results of the genetic one cannot be sent directly to me and Thyroid UK can provide an intermediary, who is a nutritionist. I can’t immediately
I am looking for more information about ‘myself’. So I have decided to have the above tests. Naturally I want the best and most informative ones. I see the results of the genetic one cannot be sent directly to me and Thyroid UK can provide an intermediary, who is a nutritionist. I can’t immediately
arTistapple
in
Thyroid UK
1 year ago
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