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Exercising with endo
Hi all. I recently got diagnosed with endometriosis during a laparoscopy in August. This came after 4 years of drs appointments, colonoscopies, endoscopies, breath tests, FODMAP etc. My main issue is the bloating. I am bloated from the second I wake up, despite not having eaten anything. I suffer from
Hi all. I recently got diagnosed with endometriosis during a laparoscopy in August. This came after 4 years of drs appointments, colonoscopies, endoscopies, breath tests, FODMAP etc. My main issue is the bloating. I am bloated from the second I wake up, despite not having eaten anything. I suffer from
EloiseD
in
Endometriosis UK
1 month ago
Fed up feeling tired
I had a bad bout last night .... sore back and sore across abdomen. Could not get comfortable in bed .. lying on my back made me feel nauseous. Most comfortable position was onside/front. I then got leg cramps ! (coincidental I'm sure) I haven't managed to identify a food trigger (last night's dinner
I had a bad bout last night .... sore back and sore across abdomen. Could not get comfortable in bed .. lying on my back made me feel nauseous. Most comfortable position was onside/front. I then got leg cramps ! (coincidental I'm sure) I haven't managed to identify a food trigger (last night's dinner
Hayhead
in
IBS Network
1 month ago
High anterior resection due to Endometriosis
Has anyone had a bowel resection because of their endometriosis? I have a large ‘mushroom lesion’ that potentially could become an obstruction. I don’t have all the details yet but am just wondering if anyone else has had this/ had this op and could give me some insight.
Has anyone had a bowel resection because of their endometriosis? I have a large ‘mushroom lesion’ that potentially could become an obstruction. I don’t have all the details yet but am just wondering if anyone else has had this/ had this op and could give me some insight.
Adnalim
in
Endometriosis UK
1 month ago
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salvage radiation after surgery?
Hi - Shouldn’t I be doing salvage radiation or chemotherapy now? I had my surgery February 25 and Doctor wants to wait for first PSA iat end of May. However surgical pathology showed negative margins but showed intraductal, cribriform, loss of PTEN. and PNI. Even though there was no EPE, no SVI, No LVI
Hi - Shouldn’t I be doing salvage radiation or chemotherapy now? I had my surgery February 25 and Doctor wants to wait for first PSA iat end of May. However surgical pathology showed negative margins but showed intraductal, cribriform, loss of PTEN. and PNI. Even though there was no EPE, no SVI, No LVI
Granolaberry
in
Prostate Cancer Network
6 months ago
Genes affecting B12
Hi all and in response to Litatamon B12life (don’t know how to highlight names to get their attention) During a discussion recently on B2 deficiency, I mentioned genes affecting B12 and was asked what they were So sorry for delayed response : Gene MTRR - rs id - rs1801394 effect allele G (Methylation
Hi all and in response to Litatamon B12life (don’t know how to highlight names to get their attention) During a discussion recently on B2 deficiency, I mentioned genes affecting B12 and was asked what they were So sorry for delayed response : Gene MTRR - rs id - rs1801394 effect allele G (Methylation
Bacca
in
Pernicious Anaemia Society
1 month ago
PMR and change in bowel habits
Sorry it’s me again. There is just so much going on with my body at the moment! So this is day three of my bowel habits changing. Normally I open my bowels once a day first thing in the morning, over the last few days it’s been morning, noon and night. I haven’t got diarrhoea just feel like I constantly
Sorry it’s me again. There is just so much going on with my body at the moment! So this is day three of my bowel habits changing. Normally I open my bowels once a day first thing in the morning, over the last few days it’s been morning, noon and night. I haven’t got diarrhoea just feel like I constantly
Sunshine8888
in
PMRGCAuk
1 month ago
Why don’t doctors read notes properly before calling patients?
I have been on immunotherapy for 15 mths to treat 4 HCC tumours . In December 2023 my scan showed some ‘pseudo growth’ and I was given a further 3 mths treatment. Last Monday I was anxiously awaiting my results for the latest scan. The oncologist phoned and reported “no spread but some shadows a little
I have been on immunotherapy for 15 mths to treat 4 HCC tumours . In December 2023 my scan showed some ‘pseudo growth’ and I was given a further 3 mths treatment. Last Monday I was anxiously awaiting my results for the latest scan. The oncologist phoned and reported “no spread but some shadows a little
AthenaJason
in
British Liver Trust
6 months ago
Bloating
Hi, I’m experiencing a flare up, mainly problems with bloating/ trapped wind. I’ve read some articles about stomach massage being beneficial. Is this safe for IBS and anyone used it? Thanks in advance.
Hi, I’m experiencing a flare up, mainly problems with bloating/ trapped wind. I’ve read some articles about stomach massage being beneficial. Is this safe for IBS and anyone used it? Thanks in advance.
Greencat31
in
IBS Network
1 month ago
Colonoscopy June 2024 - No polyps...but
I first noticed blood in the toilet December 2023. I had my colonoscopy done June 2024, cleanest colon he's ever seen he said LOL. Yay for that! It's now August 2024, and for the last 2-3 weeks, I have had bright red blood in the toilet again, only in the morning, which is also the only time I "go
I first noticed blood in the toilet December 2023. I had my colonoscopy done June 2024, cleanest colon he's ever seen he said LOL. Yay for that! It's now August 2024, and for the last 2-3 weeks, I have had bright red blood in the toilet again, only in the morning, which is also the only time I "go
Dmarie123
in
Colon Cancer Connected
1 month ago
black bowel blood.
I’ve been diagnosed with endometriosis in my pelvis after it was found on my appendix after my appendectomy for about two years now, I’ve been bleeding from my bowels, and it really is loads with a few black clots, Now it’s around 10 + days a month ( I’m 16 years post complete hysterectomy , so no
I’ve been diagnosed with endometriosis in my pelvis after it was found on my appendix after my appendectomy for about two years now, I’ve been bleeding from my bowels, and it really is loads with a few black clots, Now it’s around 10 + days a month ( I’m 16 years post complete hysterectomy , so no
Joonaspryte
in
Endometriosis UK
1 month ago
pink bloody mucus .. hemmroid or something else?
sorry for the photo . I’ve had stomach issues for a year . I had a colonoscopy April 2023 and a sigmoidoscopy November 2023. Both clear so I was diagnosed with IBS-c. Currently I’m very constipated but haven’t passed stool only mucus . Yesterday I passed a lot of pink mucus like in photo . Some had
sorry for the photo . I’ve had stomach issues for a year . I had a colonoscopy April 2023 and a sigmoidoscopy November 2023. Both clear so I was diagnosed with IBS-c. Currently I’m very constipated but haven’t passed stool only mucus . Yesterday I passed a lot of pink mucus like in photo . Some had
jennwhite80
in
Colon Cancer Connected
1 month ago
Dull headaches
I'm on Roactemra injections now bi weekly due to low neutrophils. Question anyone else on Roactemra wake in mornings with a dull headache. I've noticed it's usually worse in the days after the injection.
I'm on Roactemra injections now bi weekly due to low neutrophils. Question anyone else on Roactemra wake in mornings with a dull headache. I've noticed it's usually worse in the days after the injection.
Headpain24
in
PMRGCAuk
1 month ago
Acalabrutinib
I just started my treatment about a week and a half ago. So far doing great. Very minor diarrhea one day and several minor headaches. My question is about drug storage. If you go to calquence dot com it says to store at 66 to 77 degrees f. What do you do if you go on a multiple day trip and everything
I just started my treatment about a week and a half ago. So far doing great. Very minor diarrhea one day and several minor headaches. My question is about drug storage. If you go to calquence dot com it says to store at 66 to 77 degrees f. What do you do if you go on a multiple day trip and everything
1reb
in
CLL Support
1 month ago
Diverticula Disease
I have recently been diagnosed with Diverticula Disease, March 2024 and I had never had symptoms my whole life. Since then I have had 3 epidodes in the last 5 weeks and I am devastated. The pain is terrible and the diarrhea is the worst I've had in my life. Can someone give me hope, please
I have recently been diagnosed with Diverticula Disease, March 2024 and I had never had symptoms my whole life. Since then I have had 3 epidodes in the last 5 weeks and I am devastated. The pain is terrible and the diarrhea is the worst I've had in my life. Can someone give me hope, please
alice1125
in
Bowel Disease Support
1 month ago
Spirulina
Hi, my husband was diagnosed with PSC 2 years ago and has since been further diagnosed with colitis, IBD, early stage crohns and is also type 2 diabetic (a lot going on!) has anyone tried spirulina? I've read that it's effective for bringing down cholesterol and stabilising blood sugars but not if you
Hi, my husband was diagnosed with PSC 2 years ago and has since been further diagnosed with colitis, IBD, early stage crohns and is also type 2 diabetic (a lot going on!) has anyone tried spirulina? I've read that it's effective for bringing down cholesterol and stabilising blood sugars but not if you
PSCsupport
in
British Liver Trust
1 month ago
Latest BT results
Morning, could anyone give me some advice on latest BT results please. I take 150 Levothyroxine ( 75 prescribed by gp, the other 75 I have sourced myself). Still feeling tired all the time, brain fog, & all the other usual symptoms. I take vit D+k, B complex, magnesium glycinate & folate. Many Thanks
Morning, could anyone give me some advice on latest BT results please. I take 150 Levothyroxine ( 75 prescribed by gp, the other 75 I have sourced myself). Still feeling tired all the time, brain fog, & all the other usual symptoms. I take vit D+k, B complex, magnesium glycinate & folate. Many Thanks
Bright-eyes
in
Thyroid UK
1 month ago
Colon cancer symptoms but ended up being intestinal parasites.
I would like to tell my story in hopes that it might help someone. About 7 yrs ago I started getting really sharp pains in my lower leftside of my stomach. As time went by "when I say time went by, I mean 3 years" the sharp pains started to become more frequent and a lot more painful. Sometimes dropping
I would like to tell my story in hopes that it might help someone. About 7 yrs ago I started getting really sharp pains in my lower leftside of my stomach. As time went by "when I say time went by, I mean 3 years" the sharp pains started to become more frequent and a lot more painful. Sometimes dropping
Phuckengroovn
in
Colon Cancer Connected
1 month ago
Update: NEPC Treatment
A few people messaged me regarding updates about my dad’s participation in Duke CHAMP trial for small cell/NEPC. He was admitted into trial Dec ‘23 and received 3 immunotherapy infusions until he had a very severe allergic reaction causing intense itching and grade 4 red rash all over his body. He admitted
A few people messaged me regarding updates about my dad’s participation in Duke CHAMP trial for small cell/NEPC. He was admitted into trial Dec ‘23 and received 3 immunotherapy infusions until he had a very severe allergic reaction causing intense itching and grade 4 red rash all over his body. He admitted
antisocialsocialwrkr
in
Advanced Prostate Cancer
6 months ago
Dicotyl/docusate and or mebedeverine for bowel issues
Does anyone else use dicotyl/docusate and or mebedeverine for bowel issues? The GP has prescribed them to me and I'm pretty apprehensive about taking more meds on top of the naproxen and omeprazole I'm regularly taking, plus the doxycyclidine and metronidazole antibiotics the hospital sent me home with
Does anyone else use dicotyl/docusate and or mebedeverine for bowel issues? The GP has prescribed them to me and I'm pretty apprehensive about taking more meds on top of the naproxen and omeprazole I'm regularly taking, plus the doxycyclidine and metronidazole antibiotics the hospital sent me home with
Malachitegoose
in
Endometriosis UK
1 month ago
Bloomberg News wants to talk with you
Malecare has had excellent experience with patient advocacy articles written by Bloomberg News reporters Please consider contributing your thoughts to Fiona Rutherford’s story, described below Be sure to mention that you are a member of this Malecare online support community !!! “We're working on
Malecare has had excellent experience with patient advocacy articles written by Bloomberg News reporters Please consider contributing your thoughts to Fiona Rutherford’s story, described below Be sure to mention that you are a member of this Malecare online support community !!! “We're working on
Darryl
Partner
in
Advanced Prostate Cancer
1 month ago
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