Update: NEPC Treatment

[antisocialsocialwrkr]

A few people messaged me regarding updates about my dad’s participation in Duke CHAMP trial for small cell/NEPC. He was admitted into trial Dec ‘23 and received 3 immunotherapy infusions until he had a very severe allergic reaction causing intense itching and grade 4 red rash all over his body. He admitted to hospital at Duke and although adverse skin reactions are common with immunotherapy, they’re still “new” and treatment protocol isn't widely studied, so it took 5 million doctors and NPs and PAs to confirm what was happening. Dr. Armstrong advised him he couldn’t continue immunotherapy portion but could continue chemo portion (Cabaxitazel & Carboplatin). He had a scan right after that third immunotherapy infusion and being released from hospital in February and there was little change to size of liver tumors but doc said with immunotherapy, the tumors (or parts of them) in the scan may actually be “dead” cells so scan can be misleading. In addition, immunotherapy continues to work after administered so he will have a scan next week on April 18 to confirm 🤞🏼🤞🏼

[God_Loves_Me]

Great Can you share Clinical URL ? I will connect as well.

[Tall_Allen]

Thanks for the update! Did you ask Armstrong about his DLL3 trial?

[skiingfiend]

Thanks for the update. I'm really interested in your progess since I also have Small Cell liver mets and am currently undergoing platinum chemo.

[MoonRocket in reply to skiingfiend]

How are you doing?...I look forward to your posts and haven't seen one in a bit. I guess skiing season is over. Wishing you the best with your treatments.

[RindaMan]

May your dad get better soon.

[j-o-h-n]

Don't be so anti..........respond to us....... (btw Three cheers for Keytruda)..........

Give your dear Dad our fondest regards....

Good Luck, Good Health and Good Humor.

j-o-h-n