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What should I do - follow-ups not feeling thorough
Hi everyone, before I start my question I want to send out love to everyone on here and I really wish being well for everyone. I wish there wasn’t a load of experts on here because it means we are all in this. I was diagnosed in 2022 - they thought they would find ovarian but they were surprised to
Hi everyone, before I start my question I want to send out love to everyone on here and I really wish being well for everyone. I wish there wasn’t a load of experts on here because it means we are all in this. I was diagnosed in 2022 - they thought they would find ovarian but they were surprised to
OrdinarySoul
in
My Ovacome
8 months ago
Learn CPR and Defibrillator training
More people need CPR training. Not enough people do. I am an ex Nurse and Firefighter and seen first hand the benefits of learning CPR ect. I now have my First Aid Instructor qualification and teach Basic Life Support-CPR-Defibrillator training. My own training has helped me in 2 different situations
More people need CPR training. Not enough people do. I am an ex Nurse and Firefighter and seen first hand the benefits of learning CPR ect. I now have my First Aid Instructor qualification and teach Basic Life Support-CPR-Defibrillator training. My own training has helped me in 2 different situations
Nevharris
in
British Heart Foundation
5 months ago
Neuroendocrine prostate cancer could be restored to a state that responds to treatment
[i]It may be possible to restore drug-resistant neuroendocrine prostate cancer to a state that responds to treatment by depletion of a certain protein in cancer cells. A recent study published in Communications Biology by the University of Eastern Finland found that this protein, DPYSL5, is expressed
[i]It may be possible to restore drug-resistant neuroendocrine prostate cancer to a state that responds to treatment by depletion of a certain protein in cancer cells. A recent study published in Communications Biology by the University of Eastern Finland found that this protein, DPYSL5, is expressed
Don_1213
in
Advanced Prostate Cancer
8 months ago
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Median PFS for FCR treated CLL patients with IGHV-M was 14.6 years vs 4.2 years for patients with IGHV-UM. V+O and I+R look to be superior
An update of the long-term follow-up results from the original 300-patient FCR (fludarabine, cyclophosphamide, and rituximab) study initiated at MD Anderson in 1999,
Sustained remissions in CLL after frontline FCR treatment with very-long-term follow-up,
reports ~47% of patients with mutated IGHV
An update of the long-term follow-up results from the original 300-patient FCR (fludarabine, cyclophosphamide, and rituximab) study initiated at MD Anderson in 1999,
Sustained remissions in CLL after frontline FCR treatment with very-long-term follow-up,
reports ~47% of patients with mutated IGHV
AussieNeil
Partner
in
CLL Support
3 months ago
Bad dumping incident?
Hi there. Just thought I’d reach out to see if anyone can relate to my situation. I’m over 5 months from three way Oesophageal Surgery. I was doing really well with eating and fitness levels. Then last Friday (after a Chinese takeaway which didn’t consist of more than some noodles and a bit of chicken
Hi there. Just thought I’d reach out to see if anyone can relate to my situation. I’m over 5 months from three way Oesophageal Surgery. I was doing really well with eating and fitness levels. Then last Friday (after a Chinese takeaway which didn’t consist of more than some noodles and a bit of chicken
Julieanne60
in
Oesophageal & Gastric Cancer
6 months ago
still having symptoms
Hi I posted a while ago about my son who is 23 had a fit positive test off 200 and loose bowel movements up to 6 times a day.He had a colonoscopy, it was clear, biopsies was clear too so they discharged him. He is still having symptoms and lots of blood , he also keeps getting really big ulcers in
Hi I posted a while ago about my son who is 23 had a fit positive test off 200 and loose bowel movements up to 6 times a day.He had a colonoscopy, it was clear, biopsies was clear too so they discharged him. He is still having symptoms and lots of blood , he also keeps getting really big ulcers in
Longboots7979
Caregiver
in
Colon Cancer Connected
6 months ago
Monitoring when starting Folic Acid and Ferrous fumerate
Hi guys, my Folate wa only midly low, been prescribed Folic Acid and GP just said I can make an appointment in a couple of months "if I want to" Reading on the NICE website, I see it says the following What monitoring is required after treatment for vitamin B12 or folate deficiency has started? Perform
Hi guys, my Folate wa only midly low, been prescribed Folic Acid and GP just said I can make an appointment in a couple of months "if I want to" Reading on the NICE website, I see it says the following What monitoring is required after treatment for vitamin B12 or folate deficiency has started? Perform
yewotc23
in
Thyroid UK
6 months ago
treatment side effects vs cancer side effects
”Pain” vs “discomfort” in abdomen region following radiation and on Lupron- is it side effects or the cancer itself? Dad was diagnosed November 2023 and received radiation for 5 weeks that ended Jan 3rd. Started Lupron end of November. Cancer has spread to part of hip bone and pelvic lymph nodes.
”Pain” vs “discomfort” in abdomen region following radiation and on Lupron- is it side effects or the cancer itself? Dad was diagnosed November 2023 and received radiation for 5 weeks that ended Jan 3rd. Started Lupron end of November. Cancer has spread to part of hip bone and pelvic lymph nodes.
alysona828
in
Advanced Prostate Cancer
8 months ago
Elevated Gamma-GT and gallbladder stone
I posted a while back about how my GGT value was increasing over time and with every repeat blood test it was elevated further. All other enzyme values in normal range, I had an ultrasound this week and it showed one gallbladder stone. I have no symptoms of gallbladder issues - no abdominal pain etc
I posted a while back about how my GGT value was increasing over time and with every repeat blood test it was elevated further. All other enzyme values in normal range, I had an ultrasound this week and it showed one gallbladder stone. I have no symptoms of gallbladder issues - no abdominal pain etc
kjs81
in
British Liver Trust
3 months ago
Why is iron over-range yet TIBC shows a need ro take more please?
I'm wondering if the following could be explained please?In past ferritin has been 48 ug/L & obv considered normal by Dr. On doing private iron profile results like the following have come up,on more than one occasion. Iron 24.19 (6,6,-22) Tibc 115.49 (41-77) Transferrin saturation 20.95% (20-55) Kind
I'm wondering if the following could be explained please?In past ferritin has been 48 ug/L & obv considered normal by Dr. On doing private iron profile results like the following have come up,on more than one occasion. Iron 24.19 (6,6,-22) Tibc 115.49 (41-77) Transferrin saturation 20.95% (20-55) Kind
Jo5454
in
Pernicious Anaemia Society
6 months ago
15-Year-Old daughter level 3700+
Hi there if anyone here has gotten any answers my daughter is 15 years old has been through an endoscopy colonoscopy endless blood tests And scans And we are getting absolutely nowhere the doctors are stumped the most we're getting is she has some sort of inflammation most likely being caused by a form
Hi there if anyone here has gotten any answers my daughter is 15 years old has been through an endoscopy colonoscopy endless blood tests And scans And we are getting absolutely nowhere the doctors are stumped the most we're getting is she has some sort of inflammation most likely being caused by a form
Eric_Cartman
in
Crohn's and Colitis Support
6 months ago
GP visit!
So I went to see my GP yesterday and discussed my symptoms, and asked about B12 injections. Got the same old story - test within range, symptoms aren’t bad enough, try oral B12 for three months, despite my explaining that I have low stomach acid and problems with malabsorption, which she again dismissed
So I went to see my GP yesterday and discussed my symptoms, and asked about B12 injections. Got the same old story - test within range, symptoms aren’t bad enough, try oral B12 for three months, despite my explaining that I have low stomach acid and problems with malabsorption, which she again dismissed
Chickens44
in
Pernicious Anaemia Society
6 months ago
Are endocrinologists of any help after ADT?
After ADT, my MO told me that handling things like Prolia management won't be in her bailiwick. I didn't ask about post-ADT SE's and recovery from same. Hot flashes, low T, BMD loss, and last not least sarcopenia. What is the community's experience with how post-treatment SE's are best handled? Are
After ADT, my MO told me that handling things like Prolia management won't be in her bailiwick. I didn't ask about post-ADT SE's and recovery from same. Hot flashes, low T, BMD loss, and last not least sarcopenia. What is the community's experience with how post-treatment SE's are best handled? Are
Derf4223
in
Advanced Prostate Cancer
6 months ago
Ercp.
My mother is cirrhosis patient and due to minor bleeding spot under her stomach doctor recommend ERCP to heal the bleeding spots. I am worried because i search about ercp and google shows horrible things. Is it safe to do ercp? Please do reply
My mother is cirrhosis patient and due to minor bleeding spot under her stomach doctor recommend ERCP to heal the bleeding spots. I am worried because i search about ercp and google shows horrible things. Is it safe to do ercp? Please do reply
Javi234
in
British Liver Trust
3 months ago
some PBC general pieces of information
Facts at-a-Glance Primary Biliary Cholangitis (PBC) affects mostly women, but more men are now being diagnosed. Primary Biliary Cholangitis (PBC) is a chronic disease in which the small bile ducts in the liver become injured and inflamed and are eventually destroyed. Researchers estimate that in the
Facts at-a-Glance Primary Biliary Cholangitis (PBC) affects mostly women, but more men are now being diagnosed. Primary Biliary Cholangitis (PBC) is a chronic disease in which the small bile ducts in the liver become injured and inflamed and are eventually destroyed. Researchers estimate that in the
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Swollen hand
swollen painful hand ( just the one thank goodness) any connection with steroid reduction? Any thoughts? Doctor eliminated carpel tunnel, being sent for blood test for rheumatoid arthritis but I have noticed it is worse when I have just reduced by 1mg my dose of prednisolone which I take for PMR. It
swollen painful hand ( just the one thank goodness) any connection with steroid reduction? Any thoughts? Doctor eliminated carpel tunnel, being sent for blood test for rheumatoid arthritis but I have noticed it is worse when I have just reduced by 1mg my dose of prednisolone which I take for PMR. It
peggy1920
in
PMRGCAuk
6 months ago
Use hormone therapy or not with Proton therapy
Hi All, Question, doctor is suggesting hormone therapy along with proton therapy (28 treatments of radiation) my gleason score went from 3+3 to 4+3 last year and psa doubled from 10 to 20. I tried to get in to this study to determine the genetics of tumor but they said tumor sample was bad. should
Hi All, Question, doctor is suggesting hormone therapy along with proton therapy (28 treatments of radiation) my gleason score went from 3+3 to 4+3 last year and psa doubled from 10 to 20. I tried to get in to this study to determine the genetics of tumor but they said tumor sample was bad. should
jbsnv
in
Prostate Cancer Network
8 months ago
Chronic pain after prostatectomy
My friend had robotic prostatectomy in May 2019. In the almost 5 years since he has experienced daily abdominal pain. He has seen numerous doctors but none of them have been able to diagnose the source of the pain. He is an invalid due to this problem. Does anyone else know of a similar case? Any
My friend had robotic prostatectomy in May 2019. In the almost 5 years since he has experienced daily abdominal pain. He has seen numerous doctors but none of them have been able to diagnose the source of the pain. He is an invalid due to this problem. Does anyone else know of a similar case? Any
Sineah
in
Advanced Prostate Cancer
8 months ago
diarrhoea and constipation
I’ve had ibs since in my thirties now 69.I had a flare up Friday ,terrible pains but had job to go to loo.The next day my stools were lose,and I began to feel better yesterday had a job to go again.even though I fell like I want to go today,can’t .I go most days .Pains have come back,which is relieved
I’ve had ibs since in my thirties now 69.I had a flare up Friday ,terrible pains but had job to go to loo.The next day my stools were lose,and I began to feel better yesterday had a job to go again.even though I fell like I want to go today,can’t .I go most days .Pains have come back,which is relieved
mousey1
in
IBS Network
6 months ago
TruQap progress-lower TM
I posted about beginning this newly approved FDA drug in December. My blood tests last week showed that my TM dropped by 135 points. This is added to the Fulvestrant jabs I started around spring 2023. The combination seems to be going well so far. I was previously on Ibrance for several years until
I posted about beginning this newly approved FDA drug in December. My blood tests last week showed that my TM dropped by 135 points. This is added to the Fulvestrant jabs I started around spring 2023. The combination seems to be going well so far. I was previously on Ibrance for several years until
Yikes123
in
SHARE Metastatic Breast Cancer
8 months ago
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