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It Is NOT just Prednisolone
I have just posted this on another thread. How our bodies and muscles in particular, react to this drug is critical to the way we need to address dosage and approach. Here is my take on how this condition moulds us and progresses. Confusing symptoms occur and they are similar to many conditions so
I have just posted this on another thread. How our bodies and muscles in particular, react to this drug is critical to the way we need to address dosage and approach. Here is my take on how this condition moulds us and progresses. Confusing symptoms occur and they are similar to many conditions so
cycli
in
PMRGCAuk
1 year ago
Myopic CNV | 34 yr
Hello Everyone, I found this group because I was recently( a little over a month ago) diagnosed with Myopic CNV. I'm sharing my story here as a datapoint for this group. I'm also using this post as a way for me to keep track of my progress. When I get impatient and feel that I'm going nowhere with
Hello Everyone, I found this group because I was recently( a little over a month ago) diagnosed with Myopic CNV. I'm sharing my story here as a datapoint for this group. I'm also using this post as a way for me to keep track of my progress. When I get impatient and feel that I'm going nowhere with
soywaxblend
in
Macular Society
1 year ago
Osteitis pubis
Hi just wondered if anybody with SLE and hypermobility syndrome has ever been diagnosed with this just had the results of an MRI scan of the pelvis and they've picked up this. Thanks very best wishes
Hi just wondered if anybody with SLE and hypermobility syndrome has ever been diagnosed with this just had the results of an MRI scan of the pelvis and they've picked up this. Thanks very best wishes
sunshine16
in
LUPUS UK
1 year ago
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PPPD…a Vestibular issue
🙂 Not all of us cope with Vestibular issues in addition to Cerebellar Ataxia ..it’s like a triple whammy if eyes and ears are out of sync with the Cerebellum. Today, I discussed it with a Physiotherapist, and it was a revelation having somebody understand how difficult it is to explain symptoms.
🙂 Not all of us cope with Vestibular issues in addition to Cerebellar Ataxia ..it’s like a triple whammy if eyes and ears are out of sync with the Cerebellum. Today, I discussed it with a Physiotherapist, and it was a revelation having somebody understand how difficult it is to explain symptoms.
wobblybee
in
Ataxia UK
1 year ago
my Tinnitus sounds like a chorus of crickets some nights.
I had sudden deafness happen to me about 4 years ago, age 47. No one knows why. It was bilateral so I require hearing aids now. My left ear is profoundly deaf and my right ear lost abo it 35% hearing. The bicros hearing aids I wear do the trick and help me with most daily situations. The tinnitus
I had sudden deafness happen to me about 4 years ago, age 47. No one knows why. It was bilateral so I require hearing aids now. My left ear is profoundly deaf and my right ear lost abo it 35% hearing. The bicros hearing aids I wear do the trick and help me with most daily situations. The tinnitus
Techslave
in
Tinnitus UK
1 year ago
Headaches. A Jakavi side effect?
Hello I’ve not posted before. Now I am feeling rather lost! I have been on Jakavi since August 22 after being diagnosed with MF. I had a high Sympton burden but was assured that’s not a reflection on my prognosis?! I have had constant headaches recently taking the Rux/ Jakavi 20mg twice a day. ( was
Hello I’ve not posted before. Now I am feeling rather lost! I have been on Jakavi since August 22 after being diagnosed with MF. I had a high Sympton burden but was assured that’s not a reflection on my prognosis?! I have had constant headaches recently taking the Rux/ Jakavi 20mg twice a day. ( was
Sherpa8
in
MPN Voice
1 year ago
Feeling deflated after failed FET!! 😢
Sadly yesterdays after Beta HCG blood test confirmed that our transfer was unsuccessful. Feeling sad and just deflated, I did everything I possibly could, eating an amazing diet, stopped all alcohol, exercising, acupuncture, keeping my feet warm, vitamin supplements, pruns, pineapple, meditation and
Sadly yesterdays after Beta HCG blood test confirmed that our transfer was unsuccessful. Feeling sad and just deflated, I did everything I possibly could, eating an amazing diet, stopped all alcohol, exercising, acupuncture, keeping my feet warm, vitamin supplements, pruns, pineapple, meditation and
Bunny29
in
Fertility Network UK
1 year ago
acupuncture
Hi everyone - I am starting my first round of ivf soon, and was wondering if anyone has had acupuncture alongside their treatment and did they find it helped? Thank you xx
Hi everyone - I am starting my first round of ivf soon, and was wondering if anyone has had acupuncture alongside their treatment and did they find it helped? Thank you xx
Hidden
in
Fertility Network UK
1 year ago
Pseudomonas and carpets?
Does anyone know if Pseudomonas is in carpets? I tore out 2 rooms a few yrs ago and put Laminate in and so glad i did it but still have carpeting in my bedroom and office in my house and wonder if maybe Pseudomonas is in it as I have had 6 courses of Iv antibiotics for colonized Pseudomonas this year
Does anyone know if Pseudomonas is in carpets? I tore out 2 rooms a few yrs ago and put Laminate in and so glad i did it but still have carpeting in my bedroom and office in my house and wonder if maybe Pseudomonas is in it as I have had 6 courses of Iv antibiotics for colonized Pseudomonas this year
Lapis5
in
Lung Conditions Community Forum
1 year ago
Small Vestibular Schwannoma
On 12/21/22, I was sitting at home and my left ear suddenly began to ring. It did not stop, so the next morning I called my doctor and set up an appointment. He wanted to make sure that I didn't have a sinus issue, so he put my on some common sinus medication for two weeks and told me to advise
On 12/21/22, I was sitting at home and my left ear suddenly began to ring. It did not stop, so the next morning I called my doctor and set up an appointment. He wanted to make sure that I didn't have a sinus issue, so he put my on some common sinus medication for two weeks and told me to advise
DBC82
in
Acoustic Neuroma Support
1 year ago
Sad day..negative 2nd ivf cycle😭😭😭😭
Its my 2nd cycle ivf with icsi, uterus scratching and accupuncture.I dont know why my embreyo did not stick.😭😭😭😭😭😭.. From the beginning i didnt feel anything side effect from medicine or anything even after egg retrival got a little bloated and everything is fine..then during the fresh embreyo
Its my 2nd cycle ivf with icsi, uterus scratching and accupuncture.I dont know why my embreyo did not stick.😭😭😭😭😭😭.. From the beginning i didnt feel anything side effect from medicine or anything even after egg retrival got a little bloated and everything is fine..then during the fresh embreyo
PrayingforMyBaby
in
Fertility, Miscarriage & IVF Support
2 years ago
Help & Advice needed please, feeling desperate after another failed cycle (8th transfer but first with donor egg)
Hello. Sorry for the lengthy post. I'm looking for advice to move forward after yet another failed round. I feel so numb, I haven't even cried that much this time which is very unlike me. I do have an awful headache and can feel the stress running through my body. 8dp5dt and 9dp5dt pregnancy tests are
Hello. Sorry for the lengthy post. I'm looking for advice to move forward after yet another failed round. I feel so numb, I haven't even cried that much this time which is very unlike me. I do have an awful headache and can feel the stress running through my body. 8dp5dt and 9dp5dt pregnancy tests are
TTCs
in
Fertility Network UK
2 years ago
head tingling
Since having viral encephalitis and meningitis 18 months ago i have made a good recovery, however, i am still left with a few symptoms which im struggling to shrug off. The main symptom i still struggle with his the constant tingling of my scalp. This has been diagnosed as cranial muscular tension due
Since having viral encephalitis and meningitis 18 months ago i have made a good recovery, however, i am still left with a few symptoms which im struggling to shrug off. The main symptom i still struggle with his the constant tingling of my scalp. This has been diagnosed as cranial muscular tension due
rhols96
in
Encephalitis International
2 years ago
PELVIC MRI RESULTS
Hi, I have just received my pelvic MRI results back which I had done to see if I had endometriosis on my bowel- I have received the results today by a letter and it states on there “The MRI has demonstrated residual focal endometriosis and adhesions on the bowel and bladder” Does any one know what
Hi, I have just received my pelvic MRI results back which I had done to see if I had endometriosis on my bowel- I have received the results today by a letter and it states on there “The MRI has demonstrated residual focal endometriosis and adhesions on the bowel and bladder” Does any one know what
courtneyhatts
in
Endometriosis UK
1 year ago
Confabulation
"Confabulation happens when your brain creates scenarios that did not occur to make up for gaps in your memory. It can happen as a result of various memory disorders or an injury to the brain". Healthline.co.uk (2017). The elderly gentleman I care for full time confabulates in almost every conversation
"Confabulation happens when your brain creates scenarios that did not occur to make up for gaps in your memory. It can happen as a result of various memory disorders or an injury to the brain". Healthline.co.uk (2017). The elderly gentleman I care for full time confabulates in almost every conversation
Unusual1
in
Headway
1 year ago
Vertigo
I have had episodes of vertigo for the last 12 years now. But they weren't very often. Recently they have increased in occurrence. They seem to happen when I get tired - even just a little tired rather than exhausted! I'm getting them several times per week now and they really are debilitating!
I have had episodes of vertigo for the last 12 years now. But they weren't very often. Recently they have increased in occurrence. They seem to happen when I get tired - even just a little tired rather than exhausted! I'm getting them several times per week now and they really are debilitating!
ww-wibblywobbly
in
Ataxia UK
1 year ago
Sciatica and Acupuncture
Following on from my post about having severe sciatica, has anyone tried acupuncture for relief from it, I'm always dubious about acupuncture, I worry about them putting a needle in the wrong place, lol, I know probably stupid, I also wonder how you find one you can trust to be experienced enough. I
Following on from my post about having severe sciatica, has anyone tried acupuncture for relief from it, I'm always dubious about acupuncture, I worry about them putting a needle in the wrong place, lol, I know probably stupid, I also wonder how you find one you can trust to be experienced enough. I
TG58
in
Lung Conditions Community Forum
2 years ago
Legs pain 😞
Hi everyone, Tuesday I had one of the worst day in my life, I had legs pain from hips down, I felt my legs are heavy and 1000 needles pricking my skin and burning inside .. I am back an forward to the Gp but is no action taken and I have the feeling that is not believing me.. I am so disappointed
Hi everyone, Tuesday I had one of the worst day in my life, I had legs pain from hips down, I felt my legs are heavy and 1000 needles pricking my skin and burning inside .. I am back an forward to the Gp but is no action taken and I have the feeling that is not believing me.. I am so disappointed
Alice2004
in
Fibromyalgia Action UK
2 years ago
Long haul flight uk to Vancouver
I fly out to Vancouver at 2.00 pm so I can take my usual two doses of Gabapentin on the flight, I will land at about 4.00 pm Canadian time. Any suggestions to how I can manage the time change would be very welcome. The thought of jet lag combined with out of control RLS is frightening. I tried to discuss
I fly out to Vancouver at 2.00 pm so I can take my usual two doses of Gabapentin on the flight, I will land at about 4.00 pm Canadian time. Any suggestions to how I can manage the time change would be very welcome. The thought of jet lag combined with out of control RLS is frightening. I tried to discuss
Elsie77
in
Restless Legs Syndrome
1 year ago
Second egg collection and second failed fertilisation - do I now need to consider donor eggs? I have one round left….
hi As my question states, I have just had the call to let me know that our second round of natural modified IVF has failed as the egg did not fertilise. We have paid for a three round package, that was our second round, we now only have one left. We already have a beautiful daughter together through
hi As my question states, I have just had the call to let me know that our second round of natural modified IVF has failed as the egg did not fertilise. We have paid for a three round package, that was our second round, we now only have one left. We already have a beautiful daughter together through
Luamber
in
Fertility Network UK
2 years ago
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