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Food for thought
So...I have been on high dose prednisone for almost 6 months, along with my 4th shot of Actemra..for PMR and GCA....I started at 60 mg pred., and have been on 35 mg for the last two weeks. Next week I start on 30 mg. So, today I decided to forgo my veggie breakfast and go out with my spouse to a restaurant
So...I have been on high dose prednisone for almost 6 months, along with my 4th shot of Actemra..for PMR and GCA....I started at 60 mg pred., and have been on 35 mg for the last two weeks. Next week I start on 30 mg. So, today I decided to forgo my veggie breakfast and go out with my spouse to a restaurant
Joseph14612
in
PMRGCAuk
2 years ago
Pregabalin/ropinirole
Hello there i haven't posted for a long time on this forum but I do read and keep an interest in other people's posts/views. I find it helps, sadly, knowing that other people are also experiencing what you are going through. so Ii have been taking Ropinirole for 18+ years. Drs decided I needed to
Hello there i haven't posted for a long time on this forum but I do read and keep an interest in other people's posts/views. I find it helps, sadly, knowing that other people are also experiencing what you are going through. so Ii have been taking Ropinirole for 18+ years. Drs decided I needed to
SilverEvie
in
Restless Legs Syndrome
2 years ago
37 and CSR for 2 years in my right eye.
Hi all, Im a male 37y and i have CSR for more than two years in my right eye. I'm from the Netherlands sorry for anny spelling mistakes. I am waiting for a fysiodyne treatment for two years now. Already have tried diarethicum pills and that didn't work. The moisture behind my retina this year did
Hi all, Im a male 37y and i have CSR for more than two years in my right eye. I'm from the Netherlands sorry for anny spelling mistakes. I am waiting for a fysiodyne treatment for two years now. Already have tried diarethicum pills and that didn't work. The moisture behind my retina this year did
Someone37
in
Macular Society
1 year ago
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Surgery
I an soon to have cataract surgery and because of arthritis problems I am having a General, but I am worried about this because of my AF. I am on warfarin and have been for several. Does anyone know how long I will need to be asleep, thank you.
I an soon to have cataract surgery and because of arthritis problems I am having a General, but I am worried about this because of my AF. I am on warfarin and have been for several. Does anyone know how long I will need to be asleep, thank you.
nemisis2
in
AF Association
2 years ago
Eye problems
Hello everyone, I had a brain hemorrhage September 2021. I have been home about a year. Does anyone else have eye problems since brain injury. In my case the sight has changed alot. I had horizontal double vision before the bleed and by having prisms in my glasses my sight was fine. However after the
Hello everyone, I had a brain hemorrhage September 2021. I have been home about a year. Does anyone else have eye problems since brain injury. In my case the sight has changed alot. I had horizontal double vision before the bleed and by having prisms in my glasses my sight was fine. However after the
Notts22
in
Headway
2 years ago
Re Hydroxy & referral to eye dept, Great News!
Went for appt this morning & the great news is I,m ok to keep taking hydroxy!! What a relief as I,m doing fine on it right now :) He said there is some deposits somewhere (I was on my own in the testing room so didnt take it all in) but it,s not caused by the drug so I,m ok to continue with it & I,m
Went for appt this morning & the great news is I,m ok to keep taking hydroxy!! What a relief as I,m doing fine on it right now :) He said there is some deposits somewhere (I was on my own in the testing room so didnt take it all in) but it,s not caused by the drug so I,m ok to continue with it & I,m
Chrt
in
NRAS
2 years ago
Sore, dry mouth
Hi, I have Fibromyalgia and ME/CFS and I suffer terribly with sore mouth, tongue and also dry mouth and throat. I’ve just been putting up with it for ages but it seems to be more constant now. I also have no idea what toothpaste or toothbrush to use as they keep making my sores worse. If anyone has
Hi, I have Fibromyalgia and ME/CFS and I suffer terribly with sore mouth, tongue and also dry mouth and throat. I’ve just been putting up with it for ages but it seems to be more constant now. I also have no idea what toothpaste or toothbrush to use as they keep making my sores worse. If anyone has
Keswick73
in
Fibromyalgia Action UK
2 years ago
Cataract/I-stent post op blurriness
Hello all, I had cataract/I-stent surgery on my right eye November 22nd and it went great. Vision greatly improved and was clear within a few days. I then had the same thing on my left eye on December 13th and my vision has been cloudy/foggy sense then. My doctor says it could take up to 2 - 3 weeks
Hello all, I had cataract/I-stent surgery on my right eye November 22nd and it went great. Vision greatly improved and was clear within a few days. I then had the same thing on my left eye on December 13th and my vision has been cloudy/foggy sense then. My doctor says it could take up to 2 - 3 weeks
designguy
in
Glaucoma UK
2 years ago
Paying for Horizant
Arbor Pharmaceuticals, the maker of Horizant, has a patient assistance program. If you're in the US you could be paying $55 a month (plus shipping) by applying to them directly. You can be on Medicare and still get this benefit. None of the cost is reimbursable by Medicare or any other insurance program
Arbor Pharmaceuticals, the maker of Horizant, has a patient assistance program. If you're in the US you could be paying $55 a month (plus shipping) by applying to them directly. You can be on Medicare and still get this benefit. None of the cost is reimbursable by Medicare or any other insurance program
grassgree
in
Restless Legs Syndrome
1 year ago
Feeling so unwell, idk whether it's physical, mental or both. Vivid nightmares. Stuck with my life, career, development, trauma
Today i went to doctor (for my chronic runny nose because mom made me) at like 10am and i was sleepy and cold so i came back home and went to sleep. (Doc examined me for like 10mins and just told me to go to an allergy doctor). I came back at like 12 at noon and slept till like 10pm. Had really vivid
Today i went to doctor (for my chronic runny nose because mom made me) at like 10am and i was sleepy and cold so i came back home and went to sleep. (Doc examined me for like 10mins and just told me to go to an allergy doctor). I came back at like 12 at noon and slept till like 10pm. Had really vivid
Against_the_current
in
Anxiety and Depression Support
1 year ago
Waiting times in hospital dreadful for mum
Hi friends hope you are all keeping strong and hugs to you all. I know I need a big hug. I just wanted to say that mum is due cataracts surgery now in February. Before then we have been going to hospital so they can take images of her eyes. The appointments have been for half ten and eleven in the mornings
Hi friends hope you are all keeping strong and hugs to you all. I know I need a big hug. I just wanted to say that mum is due cataracts surgery now in February. Before then we have been going to hospital so they can take images of her eyes. The appointments have been for half ten and eleven in the mornings
Cinderella80
in
PSP Association
2 years ago
Blurred vision with Zanubrutinib (Brukinsa)
I wonder whether anybody who has been taking the recently-approved drug Zanubrutinib (Brukinsa) has experienced blurred vision? I started on the drug two months ago after having been obliged to stop Ibrutinib because it caused an ocular edema, the symptom of which was blurred vision. Now, two months
I wonder whether anybody who has been taking the recently-approved drug Zanubrutinib (Brukinsa) has experienced blurred vision? I started on the drug two months ago after having been obliged to stop Ibrutinib because it caused an ocular edema, the symptom of which was blurred vision. Now, two months
Snoopy234
in
CLL Support
2 years ago
Taking Flecainide even when in Permanent Afib
Am in permanent Afib since feb 2021 and after taking my second dose of pfizer vaccine. Am on 2X90 mg Dilzem and 2,5 mg Nebilt/day. MY HR is 70-73 BPM 38% of the time, 66-69 BPM 33% of the time, 74-79 BPM 19% of the time and 62-65 BPM 2% of the time. To improve these results , I suggested to stop Nebilet
Am in permanent Afib since feb 2021 and after taking my second dose of pfizer vaccine. Am on 2X90 mg Dilzem and 2,5 mg Nebilt/day. MY HR is 70-73 BPM 38% of the time, 66-69 BPM 33% of the time, 74-79 BPM 19% of the time and 62-65 BPM 2% of the time. To improve these results , I suggested to stop Nebilet
Malhouse
in
Atrial Fibrillation Support
2 years ago
Ropinirole and Pregablin
Hi first post I am so glad I have found this site it has helped me in a big way in my fight against RLS. My doctor has very limited knowledge of RLS At one time I was on 8 mg of Ropinirole extended release with no pregabalin, my doctor knew this was over the recommended dose of 6 mg but decided
Hi first post I am so glad I have found this site it has helped me in a big way in my fight against RLS. My doctor has very limited knowledge of RLS At one time I was on 8 mg of Ropinirole extended release with no pregabalin, my doctor knew this was over the recommended dose of 6 mg but decided
jmnw15359
in
Restless Legs Syndrome
2 years ago
glaucoma and cataracts
can anyone share your experience with being diagnosed with cataracts whist also having glaucoma? I have been diagnosed with a fast growing cataract in my right eye, which is my very poor sight eye. Many thanks
can anyone share your experience with being diagnosed with cataracts whist also having glaucoma? I have been diagnosed with a fast growing cataract in my right eye, which is my very poor sight eye. Many thanks
Nala2509
in
Glaucoma UK
2 years ago
More bad news
do I had pressure test again ( 3rd. In as many weeks gone up to 40 both eyes has Felix tests basically eyes are not doing so well . I was put on steroids for an infection I had which raised pressure too much so now specialist has put me on diamond pills and alphagan drops including drops I’m already
do I had pressure test again ( 3rd. In as many weeks gone up to 40 both eyes has Felix tests basically eyes are not doing so well . I was put on steroids for an infection I had which raised pressure too much so now specialist has put me on diamond pills and alphagan drops including drops I’m already
pinks223
in
Glaucoma UK
2 years ago
Has anyone used the medication 'Hyalofemme'
I have been given this product for Vaginal Atrophy and Vaginal dryness. Unlike the 'Yes Vaginal Moisturiser', it claims to repair the skin, and give it back it's own natural moisture. It also says it has been clinically proven to be as effective as hormone cream containing 0.1 % oestriol. Also claims
I have been given this product for Vaginal Atrophy and Vaginal dryness. Unlike the 'Yes Vaginal Moisturiser', it claims to repair the skin, and give it back it's own natural moisture. It also says it has been clinically proven to be as effective as hormone cream containing 0.1 % oestriol. Also claims
Otter53
in
Pelvic Pain Support Network
2 years ago
Buprenorphine Naloxone dose
Hello again! I have had RLS for most of my life. I was taking 6mg Pramipexol per day until given better advice here on the site. I used 100 MG of Tramadol per day and in 18 months managed to cut down to .25mg Pramipexol. Then I got stuck and couldn't cut down any more. I found a Neurologist who prescribed
Hello again! I have had RLS for most of my life. I was taking 6mg Pramipexol per day until given better advice here on the site. I used 100 MG of Tramadol per day and in 18 months managed to cut down to .25mg Pramipexol. Then I got stuck and couldn't cut down any more. I found a Neurologist who prescribed
welschrispy
in
Restless Legs Syndrome
2 years ago
higher risk of Down’s syndrome
After going through three rounds of ivf with pgd for a genetic condition I have we got our risk for downs back after combined test Nt = 1.5 (normal) Papp-a = 0.86 mom ( normal) Free beta hcg = 6.9 mom (elevated) Risk = 1:51 Anyone also had normal measurements other than the hcg? And what was the
After going through three rounds of ivf with pgd for a genetic condition I have we got our risk for downs back after combined test Nt = 1.5 (normal) Papp-a = 0.86 mom ( normal) Free beta hcg = 6.9 mom (elevated) Risk = 1:51 Anyone also had normal measurements other than the hcg? And what was the
sj482
in
Pregnancy and Parenting Support
2 years ago
Perspective: The High-Folate–Low-Vitamin B-12 Interaction Is a Novel Cause of Vitamin B-12 Depletion with a Specific Etiology—A Hypothesis
Note: This paper is presented by its own authors as a [u]hypothesis[/u] rather than a wholly proved and accepted theory. However, excess folic acid has been identified as an issue many times. Typically, a GP prescribes 5 milligram doses, every day, and the patient continues taking that indefinitely
Note: This paper is presented by its own authors as a [u]hypothesis[/u] rather than a wholly proved and accepted theory. However, excess folic acid has been identified as an issue many times. Typically, a GP prescribes 5 milligram doses, every day, and the patient continues taking that indefinitely
helvella
Thyroid UK
in
Thyroid UK
2 years ago
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