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Is the diagnosis right?
In 2007 I found it more and more difficult to walk down stairs in the morning. I was getting stiffer and made an appointment with GP. Blood tests did not show a raised esr but none the less I was diagnosed with PMR and started on 20 mg prednisalone. This had little or no effect and was raised to 40 which
In 2007 I found it more and more difficult to walk down stairs in the morning. I was getting stiffer and made an appointment with GP. Blood tests did not show a raised esr but none the less I was diagnosed with PMR and started on 20 mg prednisalone. This had little or no effect and was raised to 40 which
Tonylynn
in
PMRGCAuk
7 years ago
Not sure how to cope without ibuprofen!?
I need some suggestions, please! I started a flare 3 or 4 days ago and I can't take ibuprofen or any NSAIDS because I have a stomach ulcer. I started 10 mg of prednisone a day but it's not helping enough with my severe arthritis pain. I see my specialist in a week, but just not sure how to function until
I need some suggestions, please! I started a flare 3 or 4 days ago and I can't take ibuprofen or any NSAIDS because I have a stomach ulcer. I started 10 mg of prednisone a day but it's not helping enough with my severe arthritis pain. I see my specialist in a week, but just not sure how to function until
Jorgenli
in
LUPUS UK
7 years ago
Back & Joint Pain - Side effect of Hypo or Levo?
Hi there helpful folks! I have been getting joint pain (hips, elbow, finger), alongside backpain (most painful in the mornings, eases on moving). I know that joint & back pain are listed as a side effect of hypothyroidism, but also, a possible reaction to Levo. How can I tell which?! Has anyone else
Hi there helpful folks! I have been getting joint pain (hips, elbow, finger), alongside backpain (most painful in the mornings, eases on moving). I know that joint & back pain are listed as a side effect of hypothyroidism, but also, a possible reaction to Levo. How can I tell which?! Has anyone else
MandShef
in
Thyroid UK
7 years ago
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I'm so tired
I don't mean to complain, it's really not in my nature, but it's been a personally horrible week. I've been in a terrible fog, nothing has been clear, things I see have not been what I thought they were, and getting my thoughts from my brain to speech has proven to be almost impossible. To be clear,
I don't mean to complain, it's really not in my nature, but it's been a personally horrible week. I've been in a terrible fog, nothing has been clear, things I see have not been what I thought they were, and getting my thoughts from my brain to speech has proven to be almost impossible. To be clear,
Poppygail
Ambassador
in
Memory Health: Alzheimer's Support Group
7 years ago
Stomach pain, steroids and methotrexate
Hello everyone First I am very grateful for having a place to get info on my questions and thank you for answering and being human and supportive. I was diagnosed with RA last month finally after 15 months of symptoms, pain and loss of hand function in particular, then knee difficulties, shoulders, elbows
Hello everyone First I am very grateful for having a place to get info on my questions and thank you for answering and being human and supportive. I was diagnosed with RA last month finally after 15 months of symptoms, pain and loss of hand function in particular, then knee difficulties, shoulders, elbows
BlightyFiveStar
in
NRAS
7 years ago
Lyme disease
Has anyone had any tests for this? Apparently, it's difficult finding a positive reading. Be interesting with the similar symptoms?
Has anyone had any tests for this? Apparently, it's difficult finding a positive reading. Be interesting with the similar symptoms?
spider555
in
Fibromyalgia Action UK
7 years ago
Useful article on diet
Hi all We recently came across a general article on diet and RA, which we thought might be of interest to you. As I mentioned in a recent post, our main article on diet is being re-written this year, but this article, written by a dietician in the US might be a useful article to take a look at in the
Hi all We recently came across a general article on diet and RA, which we thought might be of interest to you. As I mentioned in a recent post, our main article on diet is being re-written this year, but this article, written by a dietician in the US might be a useful article to take a look at in the
Victoria-NRAS
Administrator
in
NRAS
7 years ago
Updates on Lyme Disease - and new hope
I have written on here before about the devastating effects that Lyme Disease can have on an individual and how it can seriously interfere with endocrine function, including thyroid function. This is the latest article on the subject written by Dr. Mercola and is worthy of study by anybody who is still
I have written on here before about the devastating effects that Lyme Disease can have on an individual and how it can seriously interfere with endocrine function, including thyroid function. This is the latest article on the subject written by Dr. Mercola and is worthy of study by anybody who is still
janeb15
in
Thyroid UK
7 years ago
MY RA
Hi my name is Hope . I'm 52 was diagnosed with RA Aug , 2016 . I have the Paddison program and have to say it truly is remarkable . When I was diagnosed there was no damage in my joints . But I knew eventually there would be . I was more concerned with nsaids so I take instaflex and curcumin surprisingly
Hi my name is Hope . I'm 52 was diagnosed with RA Aug , 2016 . I have the Paddison program and have to say it truly is remarkable . When I was diagnosed there was no damage in my joints . But I knew eventually there would be . I was more concerned with nsaids so I take instaflex and curcumin surprisingly
Hopeyj19
in
NRAS
7 years ago
skin growth on the back of my hand
I have a point of growth on the back of my hand, I first noticed it in the eighties where a fisherman said it was a sea boil, it seemed to fester although it never comes to fruition, since then it has grown a small dry skin prominence in a matter of time, I cannot be more precise as I don't notice it
I have a point of growth on the back of my hand, I first noticed it in the eighties where a fisherman said it was a sea boil, it seemed to fester although it never comes to fruition, since then it has grown a small dry skin prominence in a matter of time, I cannot be more precise as I don't notice it
JH79
in
MY SKIN
7 years ago
Polyarthralgia?
I had a letter of my rhumy today, my Lyme disease blood tests still are not back after having them done over 2 weeks... but the rest of my test are back... he has put at the top where it says diagnosis: polyarthralgia? I have no idea what this is i have been trying to Google but not a lot seems to be
I had a letter of my rhumy today, my Lyme disease blood tests still are not back after having them done over 2 weeks... but the rest of my test are back... he has put at the top where it says diagnosis: polyarthralgia? I have no idea what this is i have been trying to Google but not a lot seems to be
Hidden
in
LUPUS UK
7 years ago
Supporting someone with Meningitis
One of my friends is currently suffering from Tuberculous Meningitis (TBM). He is currently getting the treatment but I would like to know what I can do to support him during this time. His treatment is ongoing but it seems that he worries about not being able to make it at times and is thus under a
One of my friends is currently suffering from Tuberculous Meningitis (TBM). He is currently getting the treatment but I would like to know what I can do to support him during this time. His treatment is ongoing but it seems that he worries about not being able to make it at times and is thus under a
manan01
in
Meningitis Now
7 years ago
Shingles again?
My mother had shingles once few years(~5) ago. She is 82 yo and was diagnosed with CLL there are 6 years. Was on Rituxan and chlorambucil combination treatment already twice (each treatment with few cycles , treatments 3 years apart) and now was prescribed and started taking ibrutinib 6 weeks ago. Her
My mother had shingles once few years(~5) ago. She is 82 yo and was diagnosed with CLL there are 6 years. Was on Rituxan and chlorambucil combination treatment already twice (each treatment with few cycles , treatments 3 years apart) and now was prescribed and started taking ibrutinib 6 weeks ago. Her
J-123
in
CLL Support
7 years ago
It's been a journey
Hi I'm new. But not new to fibromyalgia. Diagnosed 15 years ago. Now diagnosed with osteoarthritis pretty much everywhere. Greatest challenge besides the obvious has been medications. Lyrica? I'm allergic. Cymbalta? Makes me bitchy. Elavil? Made me gain 15 lbs which makes pain worse. Gabapentin? Makes
Hi I'm new. But not new to fibromyalgia. Diagnosed 15 years ago. Now diagnosed with osteoarthritis pretty much everywhere. Greatest challenge besides the obvious has been medications. Lyrica? I'm allergic. Cymbalta? Makes me bitchy. Elavil? Made me gain 15 lbs which makes pain worse. Gabapentin? Makes
AnnMarg
in
Fibromyalgia Action UK
7 years ago
TB - Meningitis - state of coma
Hello , My mother is 56 yrs old and just 12 days ago she had severe headache , and after 2 days of severe headache her condition got more worsen and admitted to hospital , she was diagnosed to be suffering from TBM and medication and treatment for TBM was started , after admission her condition got
Hello , My mother is 56 yrs old and just 12 days ago she had severe headache , and after 2 days of severe headache her condition got more worsen and admitted to hospital , she was diagnosed to be suffering from TBM and medication and treatment for TBM was started , after admission her condition got
Kunalshamija
in
Meningitis Now
7 years ago
Staying positive after bacterial meningitis
Hi everyone. Nearly all the stories I've read on here have been very upsetting and I really feel for the people involved. It is life changing but I'm writing this to try and give people some hope and to let you know that if you're lucky and with support you can recover from this horrendous illness.
Hi everyone. Nearly all the stories I've read on here have been very upsetting and I really feel for the people involved. It is life changing but I'm writing this to try and give people some hope and to let you know that if you're lucky and with support you can recover from this horrendous illness.
Garfy123
in
Meningitis Now
7 years ago
No treatment options available to me
I was diagnosed recently with Hughes/Lupus & Sjogrens and they tried me on Plaquanil and the side effects and reaction was too profound, I had a letter today saying that mepacrine could be an option but it is much less likely to work and I could suffer similar adverse effects. And due to the fact that
I was diagnosed recently with Hughes/Lupus & Sjogrens and they tried me on Plaquanil and the side effects and reaction was too profound, I had a letter today saying that mepacrine could be an option but it is much less likely to work and I could suffer similar adverse effects. And due to the fact that
riannabri
in
LUPUS UK
7 years ago
Pain on left side waist area
Hi! I wonder if anyone can relate to this. I have been suffering from RA (Sero Neg) for about 6 years. After 4 years of trying all the usual meds with no success I have for the past 2 years been on Tocilizamab and my obvious RA symptoms are in remission. However it has left me with lots of other pain
Hi! I wonder if anyone can relate to this. I have been suffering from RA (Sero Neg) for about 6 years. After 4 years of trying all the usual meds with no success I have for the past 2 years been on Tocilizamab and my obvious RA symptoms are in remission. However it has left me with lots of other pain
Lynnels
in
NRAS
7 years ago
Viral meningitis post 10 years.
Hi everyone. I had VM about ten years ago which left me in the hospital month. Docs said the first two days were 50/50 I'm would survive because I was also diagnosed with HIV/Aids at the same time. So I kinda got the double whammy. I was always the type that thought nothing would ever happen to me but
Hi everyone. I had VM about ten years ago which left me in the hospital month. Docs said the first two days were 50/50 I'm would survive because I was also diagnosed with HIV/Aids at the same time. So I kinda got the double whammy. I was always the type that thought nothing would ever happen to me but
dobguy1
in
Meningitis Now
7 years ago
Low results on nerve conduction test. Meaning?
I went in today for a NCV, and and EMG. The nvc showed that my nerves in both my legs had a "slower then we like" results. The EMG showed no pinching or cutting into my nerves were happining. He also had me run blood work today also, lyme disease was included. What could be causing this? I was shocked
I went in today for a NCV, and and EMG. The nvc showed that my nerves in both my legs had a "slower then we like" results. The EMG showed no pinching or cutting into my nerves were happining. He also had me run blood work today also, lyme disease was included. What could be causing this? I was shocked
DestinyFox
in
Pain Concern
7 years ago
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