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Persistent gastrointestinal symptoms post recovery
Hi all, Any clues as to what causes, or tales of similar experiences with, persistent gastrointestinal symptoms? Diagnosed with coeliac disease 2.5 years ago I have been a strict follower of the gluten free diet. After 4 months on the gluten free diet, I hadn't experienced full recovery from my symptoms
Hi all, Any clues as to what causes, or tales of similar experiences with, persistent gastrointestinal symptoms? Diagnosed with coeliac disease 2.5 years ago I have been a strict follower of the gluten free diet. After 4 months on the gluten free diet, I hadn't experienced full recovery from my symptoms
deglutenous
in
Gluten Free Guerrillas
10 years ago
New to forum - so helpful already
Hi all, my mum was diagnosed with psp 18 mths ago but we believe she has been living with the condition for around 3 years. I was living in Australia but moved back to be my mums primary carer two months ago. Mum was living alone and was hospitalized in August due to a bad fall and I realized a few months
Hi all, my mum was diagnosed with psp 18 mths ago but we believe she has been living with the condition for around 3 years. I was living in Australia but moved back to be my mums primary carer two months ago. Mum was living alone and was hospitalized in August due to a bad fall and I realized a few months
Kelly55
in
PSP Association
10 years ago
long term help from dbs?
I would like to hear from people who have been using dbs for a long time---years. DOes it still help? How long do you see benefits from it?
I would like to hear from people who have been using dbs for a long time---years. DOes it still help? How long do you see benefits from it?
Hidden
in
Cure Parkinson's
10 years ago
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Does DBS help ability to walk?
I am scheduled for DBS soon and I am still apprehensive because my main problem is that I am losing the ability to walk. I have very little tremor. Has anyone one any experience with DBS helping or not helping their ability to move or walk? Also, in the mornings I cannot move when I wake up and my whole
I am scheduled for DBS soon and I am still apprehensive because my main problem is that I am losing the ability to walk. I have very little tremor. Has anyone one any experience with DBS helping or not helping their ability to move or walk? Also, in the mornings I cannot move when I wake up and my whole
Hidden
in
Cure Parkinson's
10 years ago
Hashimoto Blood Results
Hi everyone These are some of the blood results for my friend who has Hashimotos and Coeliac Disease. She asked me to post them as she is unfamiliar with the forums and is feeling low. She is also currently diagnosed with Fibromalgia and mild depression. She says her weight is hard to control although
Hi everyone These are some of the blood results for my friend who has Hashimotos and Coeliac Disease. She asked me to post them as she is unfamiliar with the forums and is feeling low. She is also currently diagnosed with Fibromalgia and mild depression. She says her weight is hard to control although
NadeNud
in
Thyroid UK
10 years ago
Can someone help
About 8 years ago I had bowel cancer and I was still suffering from bloating irregular bowel movements and loads of gas about 2 months ago I went on a gluten free diet and I thought it was making changes but I seem to be back where I started any advice would be fantastic. eight years seems to long
About 8 years ago I had bowel cancer and I was still suffering from bloating irregular bowel movements and loads of gas about 2 months ago I went on a gluten free diet and I thought it was making changes but I seem to be back where I started any advice would be fantastic. eight years seems to long
Struthersa
in
Gluten Free Guerrillas
10 years ago
DBS for bradykinesia
I am a non tremor bradykinestic type. My off periods are characterized by slowness and dystonia in my feet with anxiety. The neurologists thinks it's time for DBS. Does anyone have experience with similar symptoms?
I am a non tremor bradykinestic type. My off periods are characterized by slowness and dystonia in my feet with anxiety. The neurologists thinks it's time for DBS. Does anyone have experience with similar symptoms?
etterus
in
Cure Parkinson's
10 years ago
Grave's disease treatment update and question about agranulocytosis
Hello everyone, I posted on here when I was first diagnosed nearly three months ago. I was very frightened and the three treatment options offered to me all filled me with dread. I was also worried that I would have to go gluten-free to optimise the treatments. So much has happened since then. I had
Hello everyone, I posted on here when I was first diagnosed nearly three months ago. I was very frightened and the three treatment options offered to me all filled me with dread. I was also worried that I would have to go gluten-free to optimise the treatments. So much has happened since then. I had
Tenko
in
Thyroid UK
10 years ago
dbs in michigan?
Does anyone have any experience with dbs at University of Michigan? I have read everyone saying to find a good programmer but How do you know if someone is a good programmer?
Does anyone have any experience with dbs at University of Michigan? I have read everyone saying to find a good programmer but How do you know if someone is a good programmer?
Hidden
in
Cure Parkinson's
10 years ago
Help analysing test results
Greetings: I received the following results today from a fairly thorough blood test and I would like to see if I can get some advice on interpreting them. The GP said that everything falls under normal range except for Vitamin D. When I asked her about the fact that I was on the lower end on some of
Greetings: I received the following results today from a fairly thorough blood test and I would like to see if I can get some advice on interpreting them. The GP said that everything falls under normal range except for Vitamin D. When I asked her about the fact that I was on the lower end on some of
anelson411
in
Thyroid UK
10 years ago
gluyen free diet
I had googled Parkinson Disease and gluten free diet. There seems to be some correlation between the two. Some said that the gluten free diet t improved their Parkinson symptoms although nothing is proven. Does anyone have any experience with this?
I had googled Parkinson Disease and gluten free diet. There seems to be some correlation between the two. Some said that the gluten free diet t improved their Parkinson symptoms although nothing is proven. Does anyone have any experience with this?
Eileen9
in
Cure Parkinson's
10 years ago
DBS Surgery
Had DBS in July this year. Seen Dr. twice for tweaking of the electrical currant. So far it seems to be a trade off of symptoms. Controls tremors (a blessing) but now having trouble walking, some slurred speech, ridigity. All of these were in the backgroud and minimal before. Also having trouble
Had DBS in July this year. Seen Dr. twice for tweaking of the electrical currant. So far it seems to be a trade off of symptoms. Controls tremors (a blessing) but now having trouble walking, some slurred speech, ridigity. All of these were in the backgroud and minimal before. Also having trouble
jebbers
in
Cure Parkinson's
10 years ago
DBS - Criteria of Suitability of Patients in NHS care
For PD patients, what symptoms and any other relevant criteria are considered before a PD patient to be considered a good or suitable candidate for a DBS operation on the NHS? Also I wonder how that varies with a country / health care system that is funded privately?
For PD patients, what symptoms and any other relevant criteria are considered before a PD patient to be considered a good or suitable candidate for a DBS operation on the NHS? Also I wonder how that varies with a country / health care system that is funded privately?
Pete-1
in
Cure Parkinson's
10 years ago
Gluten free and withdrawal symptoms
Hi just started gluten free 4 days ago and feeling really lethargic . Has anyone experienced withdrawal symptoms when starting on a gluten free diet .
Hi just started gluten free 4 days ago and feeling really lethargic . Has anyone experienced withdrawal symptoms when starting on a gluten free diet .
Sandra49
in
Thyroid UK
10 years ago
Azilect
Azilect I recommend you all try it within the first two days I had an amazing improvement in my symptoms "on"all day no "off" times at all tremor settled down cancelled my DBS surgery felt so good still having great results after using Azilect for 3 months little bit of Dyskenesia but manageable hope
Azilect I recommend you all try it within the first two days I had an amazing improvement in my symptoms "on"all day no "off" times at all tremor settled down cancelled my DBS surgery felt so good still having great results after using Azilect for 3 months little bit of Dyskenesia but manageable hope
Sunnysky
in
Cure Parkinson's
10 years ago
Has anyone had the "Intrepid" DBS done? I need feedback. it's a programmable device with a rechargeable battery.Trail done already in europe
Wife to have it on 10/07/14 at UCSF, by Boston Scientific Neuromodulation. A new "8 prong" device "The Vercise" over the standard "4 prong" device the existing "Medtronic" It has a hand held programmable remote control unit with a rechargeable portable charging system. A implantable pulse generator
Wife to have it on 10/07/14 at UCSF, by Boston Scientific Neuromodulation. A new "8 prong" device "The Vercise" over the standard "4 prong" device the existing "Medtronic" It has a hand held programmable remote control unit with a rechargeable portable charging system. A implantable pulse generator
Sauslimos
in
Cure Parkinson's
10 years ago
DBS- pulge generator popping out
My wife got the DBS surgery done in January 2011. Since then the battery/pulse genset has come out 4 times. The 5th time, within one month o the surgery. Any one had similar problem ? Any suggestions pl?
My wife got the DBS surgery done in January 2011. Since then the battery/pulse genset has come out 4 times. The 5th time, within one month o the surgery. Any one had similar problem ? Any suggestions pl?
anbu
in
Cure Parkinson's
10 years ago
I have read so much about migraine/headaches on the site, I have not yet seen anything regarding a PFO. I know your pain. I suffered from
. migraine since I was a child. I had the 'aura', vomiting, hated noise and bright lights. I fainted a few times over the years, heavy nose bleeds etc. I had the attacks two/three times a week. At that time it was take a headache pill and carry on. So I carried on. I carried on working, I could not afford
. migraine since I was a child. I had the 'aura', vomiting, hated noise and bright lights. I fainted a few times over the years, heavy nose bleeds etc. I had the attacks two/three times a week. At that time it was take a headache pill and carry on. So I carried on. I carried on working, I could not afford
Vivante
in
National Migraine Centre
10 years ago
Gluten-free bread. Anyone got any recommendations?
Battling through the early stages of a gluten-free diet. My experiences of gluten-free bread have so far been rather grim! Anyone got any recommendations as to products that they have found palatable? Suspect I am going to end up making my own bread and have also noticed some gluten-free bread mixes
Battling through the early stages of a gluten-free diet. My experiences of gluten-free bread have so far been rather grim! Anyone got any recommendations as to products that they have found palatable? Suspect I am going to end up making my own bread and have also noticed some gluten-free bread mixes
MacG
in
Thyroid UK
10 years ago
Results! Help
Hi, I previously posted a lonnnnggg post about my recent health troubles and I received some excellent feedback from the people on here :). I have had the results from my previous bloods (5th Sept) and here they are, there are a lot of results so I won't mention them all as I don't know what they are
Hi, I previously posted a lonnnnggg post about my recent health troubles and I received some excellent feedback from the people on here :). I have had the results from my previous bloods (5th Sept) and here they are, there are a lot of results so I won't mention them all as I don't know what they are
Sjp88
in
Thyroid UK
10 years ago
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