Any clues as to what causes, or tales of similar experiences with, persistent gastrointestinal symptoms? Diagnosed with coeliac disease 2.5 years ago I have been a strict follower of the gluten free diet. After 4 months on the gluten free diet, I hadn't experienced full recovery from my symptoms and was concerned because I didn't know if I was still somehow eating gluten or if it was something else, so the dietitian followed this course of action (after a bowel cancer screening);
1. Put me on a Low FODMAP diet ( deglutenous.com/being-glute... ), with no relief in symptoms - ruling out IBS at that point.
2. Trial a Low FODMAP (just to be sure) and elimination diet ( sswahs.nsw.gov.au/rpa/aller... ) in conjunction, this provided some relief but was not extensive.
3. We hit Christmas and I gave up, it is was bad enough being my first gluten free at Christmas, let alone Low FODMAP and elimination diet!
1.5 years after diagnosis, my follow-up endoscopy came back all clear, in fact the doctor was very impressed with my recovery, despite the severe villious atrophy upon diagnosis.
About 12 months later, I was still experiencing stomach pain, bloating and irritable bowel. So the course of action was;
1. I started the strict elimination diet on my own, determined to find the cause of my problems.
2. Consulted the dietitian when I didn't have enough reduction in symptoms to start challenging foods.
3. I was placed on a dual Low FODMAP/elimination diet and symptoms worsened.
4. I was instructed removed anything too high in fat (full fat dairy, plain crisps, excessive cooking oil etc.).
5. 10 weeks in pain has subsided a little but bloating and irritable bowel is still present.
Has anyone had similar persistent gastro issues? I am sick of the pain, discomfort and effect this has on my life. I want to find the cause so I can eliminate the problem. The only research I have found is this paper - Predictors of persistent symptoms and reduced quality of life in treated coeliac disease patients: a large cross-sectional study ( biomedcentral.com/1471-230X... ).
I understand that coeliac disease often occurs in conjunction with other food, digestive and autoimmune issues but what is it for me? I would love to hear from you.