Hi all, my mum was diagnosed with psp 18 mths ago but we believe she has been living with the condition for around 3 years. I was living in Australia but moved back to be my mums primary carer two months ago. Mum was living alone and was hospitalized in August due to a bad fall and I realized a few months to visit a year was not enough. Tbh I'm struggling a bit at the moment, mum had a PA who came in for an hour 5 days a week but hasn't been in for 3 weeks. Mum and I are both so tired and she has been struggling with pain and a few other issues lately. Anyhow, not to waffle on, thanks for the advice of ginger for excessive phlegm. Mum has really had a few bad days with this and her mood was very low. So far the ginger seems to help. And the thick n easy mixes in okay, perhaps doctors should be told to encourage this treatment?
Just wondering if any other people with psp have had issues with losing the use of their arm? Mum is in chronic pain and can no longer use it properly... deep heat and paracetamol do little. I also recently discovered mum appears to sleep so much better on a good mattress. Her ones from OT have not really helped but after staying in premier inn we noticed she was up less in the night. Have now ordered her a Hypnos mattress via P.I. website as discounted. Fingers crossed it really does help!
Um anyway, glad invaluable forums like this exist. Thanks all