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Food Sensitivities
Any advice on working out food sensitivities? I did the “Happy Gut” diet a couple of years ago which is low FODMAP, vegan and gluten-free. I felt great on it initially and was starting to reintroduce foods when I became really anaemic and had to stop (I don’t think vegan is for me!). I have recently
Any advice on working out food sensitivities? I did the “Happy Gut” diet a couple of years ago which is low FODMAP, vegan and gluten-free. I felt great on it initially and was starting to reintroduce foods when I became really anaemic and had to stop (I don’t think vegan is for me!). I have recently
DaisyTed
in
Thyroid UK
1 year ago
A Bit Off Topic, FMT In A Single Case Report, Stopped ALS Progression And Improved Symptoms
According to the following case report, the title of this post is correct : http://www.jbr-pub.org.cn/article/doi/10.7555/JBR.36.20220088 Here is a relevant quote from the case report :
' The subsequent rescue WMTs successfully stopped the progression of the disease with quick improvement. The
According to the following case report, the title of this post is correct : http://www.jbr-pub.org.cn/article/doi/10.7555/JBR.36.20220088 Here is a relevant quote from the case report :
' The subsequent rescue WMTs successfully stopped the progression of the disease with quick improvement. The
chartist
in
Cure Parkinson's
2 years ago
Long-Term Outcomes of Bilateral Subthalamic Nucleus Deep Brain Stimulation for Patients With Parkinson's Disease: 10 Years and Beyond
https://pubmed.ncbi.nlm.nih.gov/36084204/?utm_source=dlvr.it&utm_medium=twitter Methods: We investigated all 81 patients including 37 males and 44 females who underwent bilateral STN DBS from March 2005 to March 2008 at a single institution. The current survival status of the patients was investigated
https://pubmed.ncbi.nlm.nih.gov/36084204/?utm_source=dlvr.it&utm_medium=twitter Methods: We investigated all 81 patients including 37 males and 44 females who underwent bilateral STN DBS from March 2005 to March 2008 at a single institution. The current survival status of the patients was investigated
Hidden
in
Cure Parkinson's
2 years ago
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b12 deficiency symptoms
morning everyone Just wondering if anyone else experienced issues with eyes/eyelids? I have had many neurological symptoms, many of which have reduced. Im on gluten free diet, 10 weekly injections, and self inject weekly now as was not given more frequently by surgery. Plus iron, folic acid however
morning everyone Just wondering if anyone else experienced issues with eyes/eyelids? I have had many neurological symptoms, many of which have reduced. Im on gluten free diet, 10 weekly injections, and self inject weekly now as was not given more frequently by surgery. Plus iron, folic acid however
Dancers1
in
Pernicious Anaemia Society
2 years ago
Panic (in the streets of Birmingham)
Couldn’t resist this allusion to a song by the Smiths and I do live in Birmingham (not Alabama!). I was surprised when asking for a search to be done on our site how few posts there were with Panic in the title. I’m panicking quite a lot recently due to obvious progression of the disease. I’m panicking
Couldn’t resist this allusion to a song by the Smiths and I do live in Birmingham (not Alabama!). I was surprised when asking for a search to be done on our site how few posts there were with Panic in the title. I’m panicking quite a lot recently due to obvious progression of the disease. I’m panicking
jeeves19
in
Cure Parkinson's
2 years ago
Gluten Free
I av just been advised to go on a strict gluten free diet, I know it won't be a overnight miracle but have any fellow Ataxia seen any positive outcomes over time doing a gluten free diet Thanking you 😊
I av just been advised to go on a strict gluten free diet, I know it won't be a overnight miracle but have any fellow Ataxia seen any positive outcomes over time doing a gluten free diet Thanking you 😊
claire01
in
Ataxia UK
2 years ago
DBS Surgery #2, a personal essay
DBS Surgery #2 by Gary Turchin On Nov 12, 2020, a good eight months into the pandemic, I found myself checking in to Kaiser Hospital, Redwood City, for brain surgery. I arrived at the hospital in terrible pain. I had stopped taking my medications for Parkinson
DBS Surgery #2 by Gary Turchin On Nov 12, 2020, a good eight months into the pandemic, I found myself checking in to Kaiser Hospital, Redwood City, for brain surgery. I arrived at the hospital in terrible pain. I had stopped taking my medications for Parkinson
GaryTorch
in
Cure Parkinson's
2 years ago
I saw my first neuro after over five years
Today I saw the MDD who diagnosed me in august 2017. Before him I saw other doctors who could not figure what I had. So after over five years I saw him again. That time my score was 17 and today 23. He was surprised to find out my progression was very small. I told him I think the Thiamine helped me
Today I saw the MDD who diagnosed me in august 2017. Before him I saw other doctors who could not figure what I had. So after over five years I saw him again. That time my score was 17 and today 23. He was surprised to find out my progression was very small. I told him I think the Thiamine helped me
ion_ion
in
Cure Parkinson's
2 years ago
Coping with heat
I need your advice my friends. We live in the north of England and rarely get a heatwave but this summer we had 2 and my HWP, who is in his 29th year of diagnosis, really suffered. I looked on HU and saw this can be a problen in PD. I told him what I had read and dealt with it with fans and cold packs
I need your advice my friends. We live in the north of England and rarely get a heatwave but this summer we had 2 and my HWP, who is in his 29th year of diagnosis, really suffered. I looked on HU and saw this can be a problen in PD. I told him what I had read and dealt with it with fans and cold packs
JeanieBeanie
in
Cure Parkinson's
2 years ago
Muscle pain and DBS
Has anyone experienced muscle pain in your arms, legs, etc. after DBS? Do settings have anything to do with it?
Has anyone experienced muscle pain in your arms, legs, etc. after DBS? Do settings have anything to do with it?
Sherry1960
in
Cure Parkinson's
2 years ago
Normal Meds: is this it?!
I say normal because up until recently I’ve used a cocktail of normal (Rasagaline, Requip and Madopar) alongside Mucuna. The Mucuna was my go to stuff if I needed an immediate lift as it worked so quickly. But I promised my neuro that I’d leave it out: it’s difficult to measure and rationalise when he
I say normal because up until recently I’ve used a cocktail of normal (Rasagaline, Requip and Madopar) alongside Mucuna. The Mucuna was my go to stuff if I needed an immediate lift as it worked so quickly. But I promised my neuro that I’d leave it out: it’s difficult to measure and rationalise when he
jeeves19
in
Cure Parkinson's
2 years ago
Deep Brain Stimulation
Has anyone with Cerebellar Ataxia been treated with Deep Brain Stimulation? Was it beneficial?
Has anyone with Cerebellar Ataxia been treated with Deep Brain Stimulation? Was it beneficial?
Ostap
in
Ataxia UK
2 years ago
DBS surgery
If you have had DBS surgery, share how long it took til you got the settings right to help with the PD symptoms. Thank you!
If you have had DBS surgery, share how long it took til you got the settings right to help with the PD symptoms. Thank you!
Sherry1960
in
Cure Parkinson's
2 years ago
Anyone had IgG food intolerance tested and successfully eliminated the offenders?
I know there's questions regarding the accuracy of IgG food testing but I had the test done out of interest because I've been considering going dairy free and/or gluten free. I was diagnosed with fibromyalgia in Oct 2012 but actually believe my issues were due to poor T4>T3 conversion. I'm waiting to
I know there's questions regarding the accuracy of IgG food testing but I had the test done out of interest because I've been considering going dairy free and/or gluten free. I was diagnosed with fibromyalgia in Oct 2012 but actually believe my issues were due to poor T4>T3 conversion. I'm waiting to
FAB-jellybean
in
Thyroid UK
2 years ago
DBS for OCD?
Hi - I suffer from OCD, but I am also a physician. I'm looking to interview patients who have gotten DBS for OCD to better understand what the experience is like, and to be able to better describe it to the medical community. If you've gotten DBS for OCD and are willing to talk anonymously about it,
Hi - I suffer from OCD, but I am also a physician. I'm looking to interview patients who have gotten DBS for OCD to better understand what the experience is like, and to be able to better describe it to the medical community. If you've gotten DBS for OCD and are willing to talk anonymously about it,
RHCPfan
in
My OCD Community
2 years ago
RA and Microscopic Colitis
I was diagnosed with RA 5 years ago, however I have recently been diagnosed with Microscopic Colitis too! I have also been tested for Coeliac disease and my blood results came back as 0.3u/ml which was the low end of the reference scale (I believe this result is possibly bordering a low immunoglobulin
I was diagnosed with RA 5 years ago, however I have recently been diagnosed with Microscopic Colitis too! I have also been tested for Coeliac disease and my blood results came back as 0.3u/ml which was the low end of the reference scale (I believe this result is possibly bordering a low immunoglobulin
Sallyb828
in
NRAS
2 years ago
Efficacy & Acceptability of Dietary Therapies in Non-Constipated IBS: A Randomized Trial of Traditional Dietary Advice, the Low FODMAP...
Complete title of this research: Efficacy and Acceptability of Dietary Therapies in Non-Constipated Irritable Bowel Syndrome: A Randomized Trial of Traditional Dietary Advice, the Low FODMAP Diet, and the Gluten-Free Diet Source: https://www.cghjournal.org/article/S1542-3565(22)00202-6/fulltext PDF-file
Complete title of this research: Efficacy and Acceptability of Dietary Therapies in Non-Constipated Irritable Bowel Syndrome: A Randomized Trial of Traditional Dietary Advice, the Low FODMAP Diet, and the Gluten-Free Diet Source: https://www.cghjournal.org/article/S1542-3565(22)00202-6/fulltext PDF-file
Meleber
in
IBS Network
2 years ago
“How Does Deep Brain Stimulation Change the Course of Parkinson's Disease?”
This very recent (May 2022) review was posted elsewhere (FB) and after reading it myself (it's open access) I thought it worth re-posting here on HU - for those interested in learning more on long-term DBS outcomes. https://movementdisorders.onlinelibrary.wiley.com/doi/10.1002/mds.29052?fbclid=IwAR3EaJVE5QUEQ165u7wKsneu2V3JHhs36YuQCiRHxjSrbhUXHTkr31qCafU
This very recent (May 2022) review was posted elsewhere (FB) and after reading it myself (it's open access) I thought it worth re-posting here on HU - for those interested in learning more on long-term DBS outcomes. https://movementdisorders.onlinelibrary.wiley.com/doi/10.1002/mds.29052?fbclid=IwAR3EaJVE5QUEQ165u7wKsneu2V3JHhs36YuQCiRHxjSrbhUXHTkr31qCafU
Kevin51
in
Cure Parkinson's
2 years ago
Can we use paracetamol for menstrual cramps???
Hi All , last year I had laproscopy surgery for my endometriosis and removal of cyst . Before surgery whenever I'm in pain I used to manage without painkiller but after surgery now I'm getting lower back pain and I'm taking paracetamol for pain relief.Is it safe to use paracetamol for period pain and
Hi All , last year I had laproscopy surgery for my endometriosis and removal of cyst . Before surgery whenever I'm in pain I used to manage without painkiller but after surgery now I'm getting lower back pain and I'm taking paracetamol for pain relief.Is it safe to use paracetamol for period pain and
Chotu5
in
Endometriosis UK
2 years ago
Latest tests,advice needed before endo appointment
I have just had my latest test results back, and am confused and would really appreciate some advice. TSH: 2.92 mU/l (Range 0.3 - 4.5) 62.38% FT4: 1.1 ng/dl (Range 0.8 - 1.8) 30.00% FT3: 4.3 pmol/l (Range 3 - 6.5) 37.14% I'm on tirosint 25mcg daily. I have an appointment with the endo next
I have just had my latest test results back, and am confused and would really appreciate some advice. TSH: 2.92 mU/l (Range 0.3 - 4.5) 62.38% FT4: 1.1 ng/dl (Range 0.8 - 1.8) 30.00% FT3: 4.3 pmol/l (Range 3 - 6.5) 37.14% I'm on tirosint 25mcg daily. I have an appointment with the endo next
Kriticat
in
Thyroid UK
2 years ago
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