Today I saw the MDD who diagnosed me in august 2017. Before him I saw other doctors who could not figure what I had. So after over five years I saw him again. That time my score was 17 and today 23. He was surprised to find out my progression was very small. I told him I think the Thiamine helped me but he did not buy it. I told him I feel much better than five years ago except the tremor which is a little more intense and for which the C/L does almost nothing. He recommended to take 2x100/25 C/L pills three times a day instead 1x100/25 for five or six times a day. I taught by taking smaller quantity of medication spread on smaller intervals of time assure a constant level of medication in the blood and prevents dyskinesia without affecting the results.
Is anyone taking more pills at once at bigger intervals of time? Is that helping with the results?
I asked him about FUS and he presented a very negative opinion based on some data he had. He said the results are mediocre and that’s why FDA did not approved it, which actually is false. I tried to explain him Sonimodul and USA FDA approved procedure are using different targets but the guy just did not listen. The data he had was from FUS in USA and he was not impressed by what I said about Sonimodul. I asked him to look on their website after he was telling me the procedure is for ET and not PD. So I gave up after I noticed the minimum lack of interest to spend five minutes reading about Sonimodul.
But he insisted on DBS which gives 99% positive results without side effects.