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Experiences with
D-bifunctional protein (DBP) deficiency
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Focused ultrasound
Well, sadly,I was turned down in being part of the clinical trial for focused ultrasound. Since June I've been believing I would be part of this study, they even gave me a date for the procedure, but it wasn't to be. I told you that I'd inform you of my results. Now where do I turn? DBS? My neuro doesn't
Well, sadly,I was turned down in being part of the clinical trial for focused ultrasound. Since June I've been believing I would be part of this study, they even gave me a date for the procedure, but it wasn't to be. I told you that I'd inform you of my results. Now where do I turn? DBS? My neuro doesn't
michaela13
in
Cure Parkinson's
8 years ago
after feeling well for the first time in over a year, my blood results are back, could you please advice?
August has been the best month as I finally had energy! Since this forum's precious and irreplaceable advice, I begun supplementing with Vitamin D, C, iron, B12 and B complex, K2, and continued my HLC and pepsin, cider vinegar/lemon and probiotics. I am in 125 T4 which I take last thing at night and
August has been the best month as I finally had energy! Since this forum's precious and irreplaceable advice, I begun supplementing with Vitamin D, C, iron, B12 and B complex, K2, and continued my HLC and pepsin, cider vinegar/lemon and probiotics. I am in 125 T4 which I take last thing at night and
mii101
in
Thyroid UK
8 years ago
Gastroscopy and colonoscopy came back "normal". What now?
Some advice needed please... Almost 2 years ago I was very symptomatic (brain fogs, tiredness, mouth ulcers etc), and had a B12 reading of 127 (range 180-900). I fought hard to get B12 injections. Tests for Intrinsic Factor and Parietal Cells came back negative and the Dr and haematologist have both
Some advice needed please... Almost 2 years ago I was very symptomatic (brain fogs, tiredness, mouth ulcers etc), and had a B12 reading of 127 (range 180-900). I fought hard to get B12 injections. Tests for Intrinsic Factor and Parietal Cells came back negative and the Dr and haematologist have both
jw44
in
Pernicious Anaemia Society
8 years ago
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Which brand vitamins should I buy and how should I take them if I am starting Levo?
Hi I have been prescribed a low dose of Levo (25mg) but I am low in Ferritin (42) range is (20.00 - 204.00)). And I need to take B12 (652) as I've read I should be around 1000. Also folate is low-ish - 9.4 (3.10-20.50) Can you recommend any brand of iron, folate and b12 to buy? I've been advised not
Hi I have been prescribed a low dose of Levo (25mg) but I am low in Ferritin (42) range is (20.00 - 204.00)). And I need to take B12 (652) as I've read I should be around 1000. Also folate is low-ish - 9.4 (3.10-20.50) Can you recommend any brand of iron, folate and b12 to buy? I've been advised not
misha008
in
Thyroid UK
8 years ago
I'm a newbie!
I was diagnosed in May of 2015, at age 65, with primary progressive MS. Befor that [i]I was seeing a neurologist for Essential Tremor and considering having deep brain stimulation surgery. I had the surgery in Nov. 2015 and it made an enormous improvement in my tremor, although my right hand and
I was diagnosed in May of 2015, at age 65, with primary progressive MS. Befor that [i]I was seeing a neurologist for Essential Tremor and considering having deep brain stimulation surgery. I had the surgery in Nov. 2015 and it made an enormous improvement in my tremor, although my right hand and
bavery207
in
My MSAA Community
8 years ago
Anyone else on Thiroyd does it equate to old Levo dose?
I've been on thiroyd for about 3 months. I'm up to 3.5 grains. When I was on 2.5 I had blood tests and my FT3 was in range but low. I'd been on 100 mcg of Levo before, so if the 60mcg equivalent is anywhere near correct I was already taking the equivalent of 150mcg and still under medicated. Has anyone
I've been on thiroyd for about 3 months. I'm up to 3.5 grains. When I was on 2.5 I had blood tests and my FT3 was in range but low. I'd been on 100 mcg of Levo before, so if the 60mcg equivalent is anywhere near correct I was already taking the equivalent of 150mcg and still under medicated. Has anyone
Kathyhandis
in
Thyroid UK
8 years ago
RLS - Latest News
Doctors offered no help. I just happened upon this and it is just the ticket - IRON - even though my Iron is in the normal range "Since the 1950s, it has been known that iron therapy, even without the presence of anemia has benefits for RLS symptoms. Studies have shown a strong relation between body
Doctors offered no help. I just happened upon this and it is just the ticket - IRON - even though my Iron is in the normal range "Since the 1950s, it has been known that iron therapy, even without the presence of anemia has benefits for RLS symptoms. Studies have shown a strong relation between body
DicCarlson
in
Restless Legs Syndrome
8 years ago
B12?
Hi I haven't been feeling myself for about 3 months, feeling very moody, emotional, out of breath, bloated stomach and have put a stone in weight on, electric shock sensations in my head, I have had blood tests which showed MCV as 98.3 and MCH as 32.6, does anyone know if these are classed as high.
Hi I haven't been feeling myself for about 3 months, feeling very moody, emotional, out of breath, bloated stomach and have put a stone in weight on, electric shock sensations in my head, I have had blood tests which showed MCV as 98.3 and MCH as 32.6, does anyone know if these are classed as high.
gillyjohnny
in
Pernicious Anaemia Society
8 years ago
PD and DBS Surgery
Hello everyone! I have been diagnosed with PD for thirteen years (at age 33) and have undergone deep brain stimulation surgery. I would happy to share experieneces Reza
Hello everyone! I have been diagnosed with PD for thirteen years (at age 33) and have undergone deep brain stimulation surgery. I would happy to share experieneces Reza
Rezaazad2050
in
Cure Parkinson's
8 years ago
please can someone help me with my iron results.. struggling x
hi.. i have hashimotos.. been diagnosed a year. my problem, apart from my t4 taking time to kick in, is my iron levels. i asked my doc in july to test my iron panel.. here are the results iron 18 (5-33) transferrin 2.77 (2.15-3.8) % iron saturation 29 (15-50) ferritin 37. (10-291) folate 13.26 (5.4-24
hi.. i have hashimotos.. been diagnosed a year. my problem, apart from my t4 taking time to kick in, is my iron levels. i asked my doc in july to test my iron panel.. here are the results iron 18 (5-33) transferrin 2.77 (2.15-3.8) % iron saturation 29 (15-50) ferritin 37. (10-291) folate 13.26 (5.4-24
grumpyoldbean
in
Thyroid UK
8 years ago
Blue Horizons Thyroid Check +10, advice pls on ferritin test
Hiya. I'm thinking of ordering this test so I don't have to schlep off to town to have the blood taken. Will the ferritin result tell me if I need iron supplements? (Tbh it's something I've never understood, why you need a test for iron and ferritin.) http://homebloodtest.co.uk/product/home-blood-test-thyroid-check-plus
Hiya. I'm thinking of ordering this test so I don't have to schlep off to town to have the blood taken. Will the ferritin result tell me if I need iron supplements? (Tbh it's something I've never understood, why you need a test for iron and ferritin.) http://homebloodtest.co.uk/product/home-blood-test-thyroid-check-plus
puncturedbicycle
in
Thyroid UK
8 years ago
Anaemia
Wondering if this is happening to others and what's been found to be the cause. I seem to be yo yo ing between anaemia and no anaemia. Take iron tablets it improves, after a few months anaemia returns. Diet good as on slimming world diet so plenty meat, green leafy vegetables, salad etc. I have had gastroscopies
Wondering if this is happening to others and what's been found to be the cause. I seem to be yo yo ing between anaemia and no anaemia. Take iron tablets it improves, after a few months anaemia returns. Diet good as on slimming world diet so plenty meat, green leafy vegetables, salad etc. I have had gastroscopies
Cagsie
in
NRAS
8 years ago
More work progress
Today was great like yesterday . Done 10 mintutes of bench sitting with a boy . Was harder to get up today . Gonna apply more jel to my knees when I get in . Got my DBS back . Gave over my bank details . Got some form to fill out and bring in tomorrow . Should get a contract soon now that I have given
Today was great like yesterday . Done 10 mintutes of bench sitting with a boy . Was harder to get up today . Gonna apply more jel to my knees when I get in . Got my DBS back . Gave over my bank details . Got some form to fill out and bring in tomorrow . Should get a contract soon now that I have given
LouLamb
in
LUPUS UK
8 years ago
Advanced Parkinsons treatment
I have had pd for at at least twenty years. After dx I had been put on Cabaser by a neurologist who then retired and my gp informed me that there were insufficient funds to replace him. He would just keep prescribing this med. and I would just continue without a Neuro. Cabaser turned out to be particularly
I have had pd for at at least twenty years. After dx I had been put on Cabaser by a neurologist who then retired and my gp informed me that there were insufficient funds to replace him. He would just keep prescribing this med. and I would just continue without a Neuro. Cabaser turned out to be particularly
batwing
in
Cure Parkinson's
8 years ago
First Day Completed
On the way home now . First day wasn't to bad . They didn't ask for my bank details or my DBS . I asked the teachers classroom who I'm in and she said they will probably do it Monday . I hope so . I learn how to do resuscitation . I was bit worried because I haven't got a lot of strength in my hands
On the way home now . First day wasn't to bad . They didn't ask for my bank details or my DBS . I asked the teachers classroom who I'm in and she said they will probably do it Monday . I hope so . I learn how to do resuscitation . I was bit worried because I haven't got a lot of strength in my hands
LouLamb
in
LUPUS UK
8 years ago
Work
After being messed around with my apprenticeship . I start tomorrow . It's only an inset day so no children until Monday . Hopefully they will give me the details of when I get paid what my hours will be and so on . This school is one of the most unorganised ever . They told me to email though the holidays
After being messed around with my apprenticeship . I start tomorrow . It's only an inset day so no children until Monday . Hopefully they will give me the details of when I get paid what my hours will be and so on . This school is one of the most unorganised ever . They told me to email though the holidays
LouLamb
in
LUPUS UK
8 years ago
Manchester Young People’s CaverHub and Parent Study Afternoon
You and your child/ren are invited to attend a CAUK CaverFamilies afternoon on Friday 9 September 2016 in Manchester, funded by BBC Children in Need. The afternoon will be from 12:00 to 17:00 and is split into two parts. Please arrive for lunch by 12.00. For the Parents: Organised by Dr Grace Vassallo
You and your child/ren are invited to attend a CAUK CaverFamilies afternoon on Friday 9 September 2016 in Manchester, funded by BBC Children in Need. The afternoon will be from 12:00 to 17:00 and is split into two parts. Please arrive for lunch by 12.00. For the Parents: Organised by Dr Grace Vassallo
CAUKcommunity16
Administrator
in
Cavernoma Alliance UK
8 years ago
Thyroid and low haemoglobin
I have been reading this forum but this is my post. I am in 200mcg of Thyroxine and still feel pretty dreadful and have researching on this forum about how to improve. However last week, I went to donate blood and (for the third time) was refused due to too low haemoglobin - so low they told me to go
I have been reading this forum but this is my post. I am in 200mcg of Thyroxine and still feel pretty dreadful and have researching on this forum about how to improve. However last week, I went to donate blood and (for the third time) was refused due to too low haemoglobin - so low they told me to go
Pipplater
in
Thyroid UK
8 years ago
Information about B12 deficiency from Stichting B12 Tekort and the B12 Research Institute
Serious caution note about the use of B12 (sublingual) tablets, sprays and patches https://b12-institute.nl/caution-note-about-oral-supps/ Testing B12 during treatment: http://stichtingb12tekort.nl/wetenschap/stichting-b12-tekort-artikelen/english/testing-b12-during-treatment/ British Committee for Standards
Serious caution note about the use of B12 (sublingual) tablets, sprays and patches https://b12-institute.nl/caution-note-about-oral-supps/ Testing B12 during treatment: http://stichtingb12tekort.nl/wetenschap/stichting-b12-tekort-artikelen/english/testing-b12-during-treatment/ British Committee for Standards
PAS-admin
Administrator
in
Pernicious Anaemia Society
8 years ago
Mums volunteers needed
Hello mums, As a crucial part of my Master's Degree in Child Developmental Psychology at University College London I need to observe the parent (or any significant caregiver) and the baby interaction in their homes in one of the compulsory modules of the course. The observations are weekly and last
Hello mums, As a crucial part of my Master's Degree in Child Developmental Psychology at University College London I need to observe the parent (or any significant caregiver) and the baby interaction in their homes in one of the compulsory modules of the course. The observations are weekly and last
victorianicolodi
in
Pregnancy and Parenting Support
8 years ago
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