We are a community that supports those affected by cavernoma, otherwise known as cerebral cavernous...Read more
New to community
Djohnson2829a month ago
Just wanted to say hello to everyone and thank you for your post it helped me to join.
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Hello my name is Derek I was diagnosed in June of 08 with cavernomas in the pons area of the brain stem and it’s genetic my brother and moth...
Maggier22 months ago
I've been diagnosed with a cavernoma back in June of this year following symptoms that were believed to be a stroke . I've just heard from t...
10 Replies1 Like
Marleniroth2 months ago
Hi, I have 20 cavernoma and the Dr told me the is nothing the they can’t do. After so many evaluations. Exam.
Mood and Fatigue
screepy13 months ago
I'm new on here, but am apart of the facebook group. A bit of background about me, I had a stroke 2016, discovered I had a c...
1 Reply1 Like
Gamma Knife treatment
DumindaSA4 months ago
my wife has three angiomas, all three below 1cm . and she has a cavernous angioma in superior temporal gyrus. surgeons saying facing surg...
cavernoma with anticoagulants
Trish54 months ago
Does anyone with a cavernoma take anticoagulants for another medical condition?
Spinal Cord Cavernoma
adettee4 months ago
Hi , im adette , and i was diagnosed with T10-T11 spinal cord cavernoma😪 Since 2008.
My neurosurgeon said i have nowhere to go but surgery....
Husband to a wife with a Cavernoma
Recently did MRI found that my wife having a cavernous angioma and NS says open surgeroy would be critical.
they are suggesting GK for furthe...
Right Brainstem Cavernoma
Jimmyjg6 months ago
I am 26 years of age, i first found out that i had a cavernoma when i was 16, due to the fact that i collapsed in class, i didn't occur any ...
E---6 months ago
Hi I was diagnosed with having a cavernous at the back of my brain - this was six years ago when I was 49 years old . At the time of my MRI ...
2 Replies1 Like
Left frotal cavanoma
75john8 months ago
Im a 42 year old male who has a left frontal cavanoma.was reading a post on here about a lady same age as me who seems to have the same type...
Recently diagnosed with Cavernoma
revdaw9 months ago
Hello, I have been diagnosed with cavernoma within the right cerebellar hemisphere.
I fell on my head while running, so I went to hospital ,...
I'm a newbie
fxkk10 months ago
Is a cavernoma a tumour?
Links to Parkinsons
KCod122a year ago
Anyone know if Cavernomas can develop into Parkinsons? My first MRI resulted in the find of my Cavernoma. No symptoms and discharged. Howe...
Swapnil102a year ago
Hi i am swapniI am from india my dad is auto rickshaw driver he is suffering from this serious brain decease and which very rare in this wor...
JeanUrmstona year ago
I've been very recently diagnosed with Cavernomas following CT scan and MRI scan. I don't know exactly what type. At the moment Im waiting t...
Cavernoma and CLL
otonala year ago
Anyone know of a possible link between Chronic Lymphocytic Leukaemia Stage A and Cavernoma? Haematologist says certainly not.
Support for YOU
CAUKcommunity16a year ago
CAUK is here to support people affected by cavernoma, cavernoma.org.uk/support-fo... . You can join CAUK for free, cavernoma.org.uk/sign-up/
Manchester Young People’s CaverHub and Parent Study Afternoon
You and your child/ren are invited to attend a CAUK CaverFamilies afternoon on Friday 9 September 2016 in Manchester, funded by BBC Children...
It Runs In The Family
Re-Gen Productions presents "It Runs In the Family" by Ray Cooney in aid of CAUK. An out of control farce that is sure to tickle the funny b...
adettee2 years ago
hi im adette and i was diagnose with Thoracic Spinal Cord Cavcernoma
CAUK peer-to-peer support
CAUKcommunity162 years ago
CAUK is establishing the CaverBuddies programme to enable our members to give and receive peer-to-peer support.
Living with cavernoma can be...
CAUK is on Facebook, Twitter and Instagram.
CAUK is here to support you.
Go to facebook.com/Cavernoma.Alli... and 'like' our Facebook page.
Become a member, cavernoma.org.uk/sign-up/ an...
Join the CaverCommunity
CAUK invites you to join our CaverCommunity, it's FREE and everyone is welcome! Meet others in a similar situation and form mutual friendshi...
CAUK supports families
CaverFamilies events and meetings are exclusively for young people who have, or have had, cavernoma; their parents and siblings.
Brighton CaverCentre Meeting
CAUK is coming to Brighton on Saturday 16 July, come along and meet others affected by cavernoma, listen to Mr Mansoor Foroughi, Consultant ...
The International Cavernoma Alliance UK Forum 2016
This year’s tenth anniversary Forum will take place at the Grange Holborn Hotel on 11 June 2016 and includes Professor Salman (clinical neur...
Cavernoma Alliance UK Events are FREE!
CAUK is hosting a number of free events in the near future. Please take a look at the link and if there are any you would like to attend jus...
What do we avoid to prevent further bleeds?
babooshkah252 years ago
I just tuned 58 years old. My first bleed was in 2009, I was 51. It was pretty bad because my cavernoma was in the brain stem, near my pons...
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