Cavernoma Alliance UK | HealthUnlocked

Hello, does anyone know of any insurers who cover non removed cavernomas for life insurance policies? Thank you! David

Hi, I was recently diagnosed with a cavernoma. I've been told by the doctor that I can travel but wondering if anyone has any tips/ recommendations around...

Hello, I have just joined this community and am hoping someone can tell me what this finding might mean, on my recent MRI. "a small hypointense 4mm nodular...

Hi wondered if anyone was available to chat who had a similar experience. I feel so alone and as though no one understands what I am going through, they...

Is it right people on asparin won't get covid jab

Hi I have multiple Cavernomas the one in my brain stem has had quite a few bleeds over the years it started when I was 14 I am now 33 the bleeds have left me...

My fist and last bleed was in 2015 and it hasn't bled since. I was wondering if it would be safe due to cabin pressure as hopefully I will be able to travel...

Following a year of migraine like symptoms, my Neurologist called me yesterday and told me I had one raspberry shaped cavernoma which was picked up in my MRI...

Did anyone has sudden and stabbing pain in the eyes that the light propagates inside the light with strong headache and a sense of nausea for few minutes...

I have a cavernoma in my fourth ventricle, which was discovered a month ago after a bleed. I was discharged from hospital after 2 days with an MRI arranged and...

Got a brain stem cavernous angioma like many here. Inoperable apparently, I’m in Switzerland not the UK but we don’t have an alliance like you guys. I wish...

I have had 2 stents fitted 5weeks ago I woke this morning with a pain in my right arm shooting down to my fingers ... should I be worried

I was diagnosed with a carvanova at the back of my brain I haven’t had a bleed but I have had 2 TIAs can anyone tell me will I be ok to travel by plane...

Hi i had surgery to remove a cavernoma that had bled in my brain stem on the 17th may 2018. Since then i have had a repeat MRI and there is evidence of some...

Hi, 5 days ago my husband, 35 years old and I went to the emergency. My husband then had a terrible headache, pain in all of his body and doublevision. When...

Hi my husband was diagnosed with a brainstem cavernoma in March 2015 and suffered a major bleed which resulted in lots of physio to get him walking again plus...

My 20 years old son was just diagnosed of Cavernoma. He has 3 seizures right in front of me. MRI says it's just one & its right in front of the head. I really...

Just wanted to say that since I had my bleed I have been taking these products from this site, now I’m not making any claim but they are all natural and I have...

In case you hadn’t heard, our annual Forum is fast approaching. We will be in MANCHESTER on JUNE 2nd and we invite you to come along and enjoy a day with...

Can those of you with cavernoma, or indeed other vascular/neurological conditions relate?

Hi Everyone, my sister suddenly got paralysis and after the CT and MRI scan doctors confirmed that its Pontine Cavernoma. Which changed all our lives, entire...

just been diagnosed with a spinal cord cavernoma , had a bleed in November, apart from a funny feeling in my head and neck I go on as normal .Anyone who's got...

Wishing all of our members and followers a very HAPPY EASTER If you or someone you know requires more information and/or support - please join us at CAUK....

I have just had my first migraine, around 2 years after a bleed around my Pontine cavernoma and it has, quite frankly, left me terrified 😯. It was a full on...

My daughter is 46 and has short term memory due to treatment for brain tumor 23 years ago. Now, after all these years, she has a vascular cavernoma. I...

Pain and headaches in back of head started after car accident and has been recurrent ever since ( 7 months). Son hit back of head on head rest after being...

Hello everyone First time posting and apologies in advance if it's a little long-winded..! I am 33 years old, originally from South East London but am...

Hello my name is Derek I was diagnosed in June of 08 with cavernomas in the pons area of the brain stem and it’s genetic my brother and mother have the same...

I've been diagnosed with a cavernoma back in June of this year following symptoms that were believed to be a stroke . I've just heard from the consultant today...

Hi, I have 20 cavernoma and the Dr told me the is nothing the they can’t do. After so many evaluations. Exam.