Cavernoma Alliance UK | HealthUnlocked

Cavernoma Alliance UK

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Life Insurance?

Hello, does anyone know of any insurers who cover non removed cavernomas for lif...

Travel insurance

Hi, I was recently diagnosed with a cavernoma. I've been told by the doctor that...
dellis53 profile image

Cavernoma causing auras? Or not?

Hello, I have just joined this community and am hoping someone can tell me what ...

Anyone??

Hi wondered if anyone was available to chat who had a similar experience. I feel...
Mitzy-33 profile image

Asparin and vaccine

Is it right people on asparin won't get covid jab

Living with Cavernomas

Hi I have multiple Cavernomas the one in my brain stem has had quite a few bleed...
Mitzy-33 profile image

Is it safe to fly with a brain stem Cavernoma?

My fist and last bleed was in 2015 and it hasn't bled since. I was wondering if ...
Happy759 profile image

Recently diagnosed

Following a year of migraine like symptoms, my Neurologist called me yesterday a...
LunaL profile image

sudden and stabbing pain in the eyes

Did anyone has sudden and stabbing pain in the eyes that the light propagates in...
AntonellaS profile image

Newly diagnosed

I have a cavernoma in my fourth ventricle, which was discovered a month ago afte...

Brainstem cavernoma

Got a brain stem cavernous angioma like many here. Inoperable apparently, I’m in...

Stents

I have had 2 stents fitted 5weeks ago I woke this morning with a pain in my righ...
flowers24 profile image

Airtravel

I was diagnosed with a carvanova at the back of my brain I haven’t had a bleed b...
flowers24 profile image

Keep thinking

Hi i had surgery to remove a cavernoma that had bled in my brain stem on the 17t...

First cavernoma and so many questions

Hi, 5 days ago my husband, 35 years old and I went to the emergency. My husband...
Lojziz profile image

Our story

Hi my husband was diagnosed with a brainstem cavernoma in March 2015 and suffere...
Tanp65 profile image

Advise please: CAVERNOMA

My 20 years old son was just diagnosed of Cavernoma. He has 3 seizures right in ...
Brooksideng profile image

Feeling Better thank God

Just wanted to say that since I had my bleed I have been taking these products f...

12th International Forum

In case you hadn’t heard, our annual Forum is fast approaching. We will be in M...

Wishing you all a wonderful, warm Wednesday

Can those of you with cavernoma, or indeed other vascular/neurological condition...

Pontine Cavernoma

Hi Everyone, my sister suddenly got paralysis and after the CT and MRI scan doct...
sriramkumar profile image

Newly diagnosed spinal cord cavernoma

just been diagnosed with a spinal cord cavernoma , had a bleed in November, apar...
DanTomo profile image

Happy Easter!

Wishing all of our members and followers a very HAPPY EASTER If you or someone ...

Migraine - so scarey after bleed.

I have just had my first migraine, around 2 years after a bleed around my Pontin...
Slharris profile image

Cavernoma newly diagnosed

My daughter is 46 and has short term memory due to treatment for brain tumor 23 ...
Wilkofc profile image

Intermittent "migraine" in back of head for months following car accident

Pain and headaches in back of head started after car accident and has been recu...

Hello! Coming to terms and Options

Hello everyone First time posting and apologies in advance if it's a little lon...
LunWong84 profile image

Djohnson2829

Hello my name is Derek I was diagnosed in June of 08 with cavernomas in the pons...
Djohnson2829 profile image

Newly diagnosed

I've been diagnosed with a cavernoma back in June of this year following symptom...
Maggier2 profile image

Carvanomas.

Hi, I have 20 cavernoma and the Dr told me the is nothing the they can’t do. Aft...
Marleniroth profile image
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About us

We are a community that supports those affected by cavernoma, otherwise known as cerebral cavernous malformati...

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