Cavernoma Alliance UK | HealthUnlocked

Cavernoma Alliance UK

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Anyone??

Hi wondered if anyone was available to chat who had a similar experience. I feel...

Asparin and vaccine

Is it right people on asparin won't get covid jab

Living with Cavernomas

Hi I have multiple Cavernomas the one in my brain stem has had quite a few bleed...

Is it safe to fly with a brain stem Cavernoma?

My fist and last bleed was in 2015 and it hasn't bled since. I was wondering if ...

Recently diagnosed

Following a year of migraine like symptoms, my Neurologist called me yesterday a...

sudden and stabbing pain in the eyes

Did anyone has sudden and stabbing pain in the eyes that the light propagates in...

Newly diagnosed

I have a cavernoma in my fourth ventricle, which was discovered a month ago afte...

Brainstem cavernoma

Got a brain stem cavernous angioma like many here. Inoperable apparently, I’m in...

Stents

I have had 2 stents fitted 5weeks ago I woke this morning with a pain in my righ...

Airtravel

I was diagnosed with a carvanova at the back of my brain I haven’t had a bleed b...

Keep thinking

Hi i had surgery to remove a cavernoma that had bled in my brain stem on the 17t...

First cavernoma and so many questions

Hi, 5 days ago my husband, 35 years old and I went to the emergency. My husband...

Our story

Hi my husband was diagnosed with a brainstem cavernoma in March 2015 and suffere...

Advise please: CAVERNOMA

My 20 years old son was just diagnosed of Cavernoma. He has 3 seizures right in ...

Feeling Better thank God

Just wanted to say that since I had my bleed I have been taking these products f...

12th International Forum

In case you hadn’t heard, our annual Forum is fast approaching. We will be in M...

Wishing you all a wonderful, warm Wednesday

Can those of you with cavernoma, or indeed other vascular/neurological condition...

Pontine Cavernoma

Hi Everyone, my sister suddenly got paralysis and after the CT and MRI scan doct...

Newly diagnosed spinal cord cavernoma

just been diagnosed with a spinal cord cavernoma , had a bleed in November, apar...

Happy Easter!

Wishing all of our members and followers a very HAPPY EASTER If you or someone ...

Migraine - so scarey after bleed.

I have just had my first migraine, around 2 years after a bleed around my Pontin...

Cavernoma newly diagnosed

My daughter is 46 and has short term memory due to treatment for brain tumor 23 ...

Intermittent "migraine" in back of head for months following car accident

Pain and headaches in back of head started after car accident and has been recu...

Hello! Coming to terms and Options

Hello everyone First time posting and apologies in advance if it's a little lon...

Djohnson2829

Hello my name is Derek I was diagnosed in June of 08 with cavernomas in the pons...

Newly diagnosed

I've been diagnosed with a cavernoma back in June of this year following symptom...

Carvanomas.

Hi, I have 20 cavernoma and the Dr told me the is nothing the they can’t do. Aft...

Mood and Fatigue

Hello Everyone, I'm new on here, but am apart of the facebook group. A bit of b...

Gamma Knife treatment

hi my wife has three angiomas, all three below 1cm . and she has a cavernous an...

cavernoma with anticoagulants

Does anyone with a cavernoma take anticoagulants for another medical condition? ...
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About us

We are a community that supports those affected by cavernoma, otherwise known as cerebral cavernous malformati...

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