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Cavernoma Alliance UK
352 members103 posts
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Keep thinking

Hi i had surgery to remove a cavernoma that had bled in my brain stem on the 17t...

First cavernoma and so many questions

Hi, 5 days ago my husband, 35 years old and I went to the emergency. My husband...

Our story

Hi my husband was diagnosed with a brainstem cavernoma in March 2015 and suffere...

Advise please: CAVERNOMA

My 20 years old son was just diagnosed of Cavernoma. He has 3 seizures right in ...

Feeling Better thank God

Just wanted to say that since I had my bleed I have been taking these products f...
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We are a community that supports those affected by cavernoma, otherwise known as cerebral cavernous malformati... Read more
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