Search
Search
About
Log in
Join
Experiences with
D-bifunctional protein (DBP) deficiency
Posts
Communities
2,097 public posts
Filter results
Parkinson's Disease Symptom Progression
Hi all This is a link to my vlog about Parkinson's Disease Symptom Progression - from my very first symptom through to current day, post DBS. https://www.youtube.com/watch?v=2marj7uk62k Cheers, Ian
Hi all This is a link to my vlog about Parkinson's Disease Symptom Progression - from my very first symptom through to current day, post DBS. https://www.youtube.com/watch?v=2marj7uk62k Cheers, Ian
Ianfrizell
in
Cure Parkinson's
7 years ago
How long should I have to wait for initial programming
I am having the battery pack implanted on 20 June. The initial programming of the dbs is scheduled for july7th. What do you think?
I am having the battery pack implanted on 20 June. The initial programming of the dbs is scheduled for july7th. What do you think?
eleniloporto
in
Cure Parkinson's
7 years ago
Vitamin b12 deficiency
Anyone got a vitamin b12 deficiency if so how long do you need Injections for I have just been diagnosed with it and a little bit unsure I have had a phone call from the gp surgery and they told me that I would need them for life
Anyone got a vitamin b12 deficiency if so how long do you need Injections for I have just been diagnosed with it and a little bit unsure I have had a phone call from the gp surgery and they told me that I would need them for life
Mrsb07
in
Fibromyalgia Action UK
7 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Duopa pump
My fellow Parkie's, I went to my neuro yesterday and he told my about the Duopa pump and how successful it has been. It essentially pumps a steady stream of Sinimet through a feeding tube placed in your stomach and into your small intestine. The drug is pumped during your waking hours allowing you to
My fellow Parkie's, I went to my neuro yesterday and he told my about the Duopa pump and how successful it has been. It essentially pumps a steady stream of Sinimet through a feeding tube placed in your stomach and into your small intestine. The drug is pumped during your waking hours allowing you to
Sleeplessparki
in
Cure Parkinson's
7 years ago
Floradix
Hi, I have an interactive thyroid and I have been taken thyroxine for year and half. I have now been told that my iron levels are low but not anemic but need to start taking tablets. Does anyone know if floradix is ok to use as I know that you shouldn't take iron tablets with thyroxine as the table absorbs
Hi, I have an interactive thyroid and I have been taken thyroxine for year and half. I have now been told that my iron levels are low but not anemic but need to start taking tablets. Does anyone know if floradix is ok to use as I know that you shouldn't take iron tablets with thyroxine as the table absorbs
Captain78
in
Thyroid UK
7 years ago
MMA and Homocysteine testing B12 whilst on injections...
I am 30 weeks pregnant. I am on monthly B12 injections, vitamin D pills and have had two iron infusions in the last couple of months. However, my most recent blood work (3 weeks ago) came back still showing anemia (and I am feeling pretty grotty too): Haemaglobin: 118 (range 120-150) RBC Count: 3.74
I am 30 weeks pregnant. I am on monthly B12 injections, vitamin D pills and have had two iron infusions in the last couple of months. However, my most recent blood work (3 weeks ago) came back still showing anemia (and I am feeling pretty grotty too): Haemaglobin: 118 (range 120-150) RBC Count: 3.74
jw44
in
Pernicious Anaemia Society
7 years ago
DBS One Year On
Hi all This is a link to my latest vlog about my first 12 months with DBS https://www.youtube.com/watch?v=YhuWtxed0T4 Cheers, Ian
Hi all This is a link to my latest vlog about my first 12 months with DBS https://www.youtube.com/watch?v=YhuWtxed0T4 Cheers, Ian
Ianfrizell
in
Cure Parkinson's
7 years ago
Anemia Profile: Megaloblastic
Anything unusual here? See link (https://healthunlocked.com/pasoc/posts/135301103/very-confused) for background, but as a quick summary, my B12 serum is now good after taking sublingual supplements for the last several months (>2000). Yet I am still having low B12 symptoms, particularly feeling cold
Anything unusual here? See link (https://healthunlocked.com/pasoc/posts/135301103/very-confused) for background, but as a quick summary, my B12 serum is now good after taking sublingual supplements for the last several months (>2000). Yet I am still having low B12 symptoms, particularly feeling cold
patgbreen
in
Pernicious Anaemia Society
7 years ago
DBS
Has anyone here had DBS? I have had Parkinson's for about 10 years and have run out of medication options. I am now considering DBS. Any feedback would be greatly appreciated.
Has anyone here had DBS? I have had Parkinson's for about 10 years and have run out of medication options. I am now considering DBS. Any feedback would be greatly appreciated.
Anna55
in
Parkinson's New Zealand
7 years ago
"DBS"
I have had Parkinson's for almost 10 years and have now exhausted my medication options. I am now considering "dbs". Has anyone else had this done? How successful was it? Do you have any advice?
I have had Parkinson's for almost 10 years and have now exhausted my medication options. I am now considering "dbs". Has anyone else had this done? How successful was it? Do you have any advice?
Anna55
in
Dystonia Society
7 years ago
Parsing Parkinson's
APRIL 25, 2017 PARSING PARKINSON’S Parkinson’s disease is characterized as a movement disorder identified by specific physical and cognitive characteristics. No biomarkers have been identified that determine whether or not a person has Parkinson’s. Often dementia-causing Lewy bodies are discovered
APRIL 25, 2017 PARSING PARKINSON’S Parkinson’s disease is characterized as a movement disorder identified by specific physical and cognitive characteristics. No biomarkers have been identified that determine whether or not a person has Parkinson’s. Often dementia-causing Lewy bodies are discovered
NanCyclist
in
Understanding Clinical Trials
7 years ago
Parsing Parkinson's
APRIL 25, 2017 PARSING PARKINSON’S Parkinson’s disease is characterized as a movement disorder identified by specific physical and cognitive characteristics. No biomarkers have been identified that determine whether or not a person has Parkinson’s. Often dementia-causing Lewy bodies are discovered
APRIL 25, 2017 PARSING PARKINSON’S Parkinson’s disease is characterized as a movement disorder identified by specific physical and cognitive characteristics. No biomarkers have been identified that determine whether or not a person has Parkinson’s. Often dementia-causing Lewy bodies are discovered
NanCyclist
in
Cure Parkinson's
7 years ago
Anaemia
Hi am in a position of not knowing what to do I have ongoing anaemia which is probably being caused by the RA and am taking iron liquid every day my go wants me to have a colonostomy and am really worried having this done probably for no reason as I have no trouble in that region has anyone else had
Hi am in a position of not knowing what to do I have ongoing anaemia which is probably being caused by the RA and am taking iron liquid every day my go wants me to have a colonostomy and am really worried having this done probably for no reason as I have no trouble in that region has anyone else had
14penny
in
NRAS
7 years ago
Follow up from my GP appointment
Hi all, just an update from my GP appointment yesterday. Well as expected he was quite insistent after looking at my blood test results from St Thomas' that I don't have a B12 deficiency, I asked him to explain how 187ng/L is normal but 186ng/L is deficient! and he couldn't. I took my son with me for
Hi all, just an update from my GP appointment yesterday. Well as expected he was quite insistent after looking at my blood test results from St Thomas' that I don't have a B12 deficiency, I asked him to explain how 187ng/L is normal but 186ng/L is deficient! and he couldn't. I took my son with me for
Cali25
in
Pernicious Anaemia Society
7 years ago
Neo cytamen
My b12 injections were changed to cobalamin h 12 weeks ago but I have a reaction to them. My doctor tried to print a prescription for neo cytamen but his computer said he could no longer issue this on NHS. Does anyone know why? I live in Scotland.
My b12 injections were changed to cobalamin h 12 weeks ago but I have a reaction to them. My doctor tried to print a prescription for neo cytamen but his computer said he could no longer issue this on NHS. Does anyone know why? I live in Scotland.
Maadkins
in
Pernicious Anaemia Society
7 years ago
Please Help :(
Can anyone please help... I'm really suffering from RLS at mo, in my legs and arms. I have a few factors which I think contribute to it but not sure there's much I can do about them. I'm looking for help, tips, things that I can try that others have said really help. 1) I'm on 20mg fluoxetine and I
Can anyone please help... I'm really suffering from RLS at mo, in my legs and arms. I have a few factors which I think contribute to it but not sure there's much I can do about them. I'm looking for help, tips, things that I can try that others have said really help. 1) I'm on 20mg fluoxetine and I
yuna1971
in
Restless Legs Syndrome
7 years ago
Advice please
Just got my surgery to give me copies of my last few blood test results as I was curious to see if it show my b12/iron dipping for a long time or suddenly and my blood test from February 2016 when I was taken into a&e with acidosis shows my b12 at 128 & folate at 2.4 , do you think acidosis could of
Just got my surgery to give me copies of my last few blood test results as I was curious to see if it show my b12/iron dipping for a long time or suddenly and my blood test from February 2016 when I was taken into a&e with acidosis shows my b12 at 128 & folate at 2.4 , do you think acidosis could of
mand82
in
Pernicious Anaemia Society
7 years ago
How long to recover from 'not-anaemia'?
Hi there, new to the forum and have been reading some posts from users here since being found to be B12 deficient. I was having serious issues with fatigue, muscle weakness, and an inability to gain weight over several years. By the time it was diagnosed I was experiencing severe bouts of dizziness,
Hi there, new to the forum and have been reading some posts from users here since being found to be B12 deficient. I was having serious issues with fatigue, muscle weakness, and an inability to gain weight over several years. By the time it was diagnosed I was experiencing severe bouts of dizziness,
ecp-swuk
in
Pernicious Anaemia Society
7 years ago
Borderline high globulin
Morning all In my most recent blood test, my globulin came back as 31.2 (normal range 25 - 32). The albumin was 41, making an A/G ratio of 1.3, which also appears to be normal. Although it seems my lab uses different ranges to most I've found on the internet (most labs seem to have the upper value of
Morning all In my most recent blood test, my globulin came back as 31.2 (normal range 25 - 32). The albumin was 41, making an A/G ratio of 1.3, which also appears to be normal. Although it seems my lab uses different ranges to most I've found on the internet (most labs seem to have the upper value of
ElizabethM
in
Thyroid UK
7 years ago
For All Those With High Ferritin (and possibly low iron)
http://pubs.rsc.org/en/content/articlehtml/2014/mt/c3mt00347g If I'm reading this correctly, serum ferritin is a benign substance in our bodies, as long as it's bound to iron molecules. Without iron it is hypothesized that it becomes toxic. I guess doctors see this in chronic disease states. I know
http://pubs.rsc.org/en/content/articlehtml/2014/mt/c3mt00347g If I'm reading this correctly, serum ferritin is a benign substance in our bodies, as long as it's bound to iron molecules. Without iron it is hypothesized that it becomes toxic. I guess doctors see this in chronic disease states. I know
Hidden
in
Restless Legs Syndrome
7 years ago
1
...
68
69
70
...
100
Next page
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Cure Parkinson's
775 results
Thyroid UK
638 results
Pernicious Anaemia Society
294 results
View top 10 communities
Sort by
Most Relevant
Newest