"DBS": I have had Parkinson's for almost 1... - Dystonia Society

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"DBS"

Anna55 profile image
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I have had Parkinson's for almost 10 years and have now exhausted my medication options. I am now considering "dbs". Has anyone else had this done? How successful was it? Do you have any advice?

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Anna55
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Ali_H profile image
Ali_H

Hi Anna,

Sorry I've no experience of DBS but wanted to let you know that there is also a Parkinson's Movement Health Unlocked group who may be able to support you - go to the top of your page and click on 'my communities' and a 'browse communitie' option should appear.

Also there is a forum on the dystonia society page -I think you can get to it by clicking on the logo above. I think there may be some talk on that about DBS.

My next suggestion may seem a bit wacky but before going down the DBS route you might look at HBOT and see if it might be something worth exploring/trying out. Over here it's relatively cheap and most MS centres have a chamber but I'm not sure of the availability in NZ. Best speak to your consultant to see what they think.

All the best

Ali

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