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Cutaneous T cell lymphoma (CTCL)
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Don't get Fazed by Phases
With the information from the current American Society of Hematology (ASH) 2013 beginning to flood out, we'll be reading of findings in different trial phases. Your decision on whether to join a treatment trial may well be influenced by the phase of the trial, so it is well worth understanding what
With the information from the current American Society of Hematology (ASH) 2013 beginning to flood out, we'll be reading of findings in different trial phases. Your decision on whether to join a treatment trial may well be influenced by the phase of the trial, so it is well worth understanding what
AussieNeil
Partner
in
CLL Support
11 years ago
Dr Sharman explains how treatment options for the two main subtypes of the aggressive Diffuse Large B Cell Lymphoma are changing
Diffuse Large B Cell Lymphomas are aggressive lymphomas that those of us with CLL face a chance of developing in what is termed Richter's Transformation. Given the risk increases the longer we live with CLL and at between 5 and 15% is not insignificant, if you notice any bumps quickly growing, get them
Diffuse Large B Cell Lymphomas are aggressive lymphomas that those of us with CLL face a chance of developing in what is termed Richter's Transformation. Given the risk increases the longer we live with CLL and at between 5 and 15% is not insignificant, if you notice any bumps quickly growing, get them
AussieNeil
Partner
in
CLL Support
11 years ago
my wife can't concentrate, watch tv or read after Chemo therapy. Is this the chemotherapy or the cancer.
My wife has stage four Pancreatic cancer. The oncologist said we can't stop the cancer but we might slow it down. The dose was strong but after two and a half sessions the Dr decided to stop the treatment due to all the bad effects from the chemo, it knocked the hell out of her. The doctor said it was
My wife has stage four Pancreatic cancer. The oncologist said we can't stop the cancer but we might slow it down. The dose was strong but after two and a half sessions the Dr decided to stop the treatment due to all the bad effects from the chemo, it knocked the hell out of her. The doctor said it was
Libertyedition
in
Breast Cancer India
11 years ago
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Has anyone been diagnosed with mantle cell lymphoma?
I was diagnosed with Stage Three A mantle cell lyphoma . I have had two rounds of chemo so far so good.
I was diagnosed with Stage Three A mantle cell lyphoma . I have had two rounds of chemo so far so good.
islander33
in
Lymphoma Canada
11 years ago
Treatments for diabetes – the latest advances including Glifozins, Incretins, DPP-4 inhibitors & more
Treatments for diabetes – the latest advances including Glifozins, Incretins, DPP-4 inhibitors & more Shraddha Rupavate November 20, 2013 at 5:32 pm 0 Comments Diabetes innovationsTruly known as the diabetes capital of the world, India is the home land for more than 50 million diabetic individuals
Treatments for diabetes – the latest advances including Glifozins, Incretins, DPP-4 inhibitors & more Shraddha Rupavate November 20, 2013 at 5:32 pm 0 Comments Diabetes innovationsTruly known as the diabetes capital of the world, India is the home land for more than 50 million diabetic individuals
harsta
in
Diabetes India
11 years ago
Could Existing Immunotherapy Drugs Also Fight CLL? (Patient Power video with Dr John Gribben)
Andrew Schorr interviews Dr John Gribben of London's Barts Cancer Institute on the promise of drugs for PD1 and PDL1 that could train the immune system to kill cancer cells. http://www.patientpower.info/video/could-existing-immunotherapy-drugs-also-fight-cll I found this video particularly interesting
Andrew Schorr interviews Dr John Gribben of London's Barts Cancer Institute on the promise of drugs for PD1 and PDL1 that could train the immune system to kill cancer cells. http://www.patientpower.info/video/could-existing-immunotherapy-drugs-also-fight-cll I found this video particularly interesting
AussieNeil
Partner
in
CLL Support
11 years ago
Ibrutinib Slow but steady foreward movement.
Slowly things move forwards… New Marketing Authorisation Application Submitted to EMA for Ibrutinib for the Treatment of Two Forms of Blood Cancer The submission is for chronic lymphocytic leukemia (CLL)/small lymphocytic lymphoma(SLL) and mantle cell lymphoma (MCL). Janssen-Cilag International NV
Slowly things move forwards… New Marketing Authorisation Application Submitted to EMA for Ibrutinib for the Treatment of Two Forms of Blood Cancer The submission is for chronic lymphocytic leukemia (CLL)/small lymphocytic lymphoma(SLL) and mantle cell lymphoma (MCL). Janssen-Cilag International NV
Kwenda
in
CLL Support
11 years ago
Update on Novel B-Cell Receptor Signaling Inhibitors from NCCN 8th Annual Congress on Hematologic Malignancies
The article below from OncLive, provides a high level overview of trials experience of the new drugs Ibrutinib, Idelalisib and IPI-145 by Jeffrey Jones, MD, from The Ohio State University to the NCCN 8th Annual Congress on Hematologic Malignancies. Brief mention is also made of the benefits observed
The article below from OncLive, provides a high level overview of trials experience of the new drugs Ibrutinib, Idelalisib and IPI-145 by Jeffrey Jones, MD, from The Ohio State University to the NCCN 8th Annual Congress on Hematologic Malignancies. Brief mention is also made of the benefits observed
AussieNeil
Partner
in
CLL Support
11 years ago
Please help us!
As I'm sure you know, this forum is run by volunteers from PMRGCAuk, the UK's national charity for support and awareness of Polymyalgia Rheumatica and Giant Cell Arteritis. What you might not know is that, at the moment, the whole charity is run by volunteers! That's website, forum, helpline, newsletter
As I'm sure you know, this forum is run by volunteers from PMRGCAuk, the UK's national charity for support and awareness of Polymyalgia Rheumatica and Giant Cell Arteritis. What you might not know is that, at the moment, the whole charity is run by volunteers! That's website, forum, helpline, newsletter
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
11 years ago
How to get on to ESA support group after passing tribunal and being put on WRG. We were late reapplying so have to start new application.
My husband has M.E severe anxiety,is recovering from chemo for Large B cell Lymphoma and also has an alcohol problem which has been exacerbated by losing his benefit which is means tested and takes my money and earnings into account. We have savings which I rely on to boost our joint income to £10000
My husband has M.E severe anxiety,is recovering from chemo for Large B cell Lymphoma and also has an alcohol problem which has been exacerbated by losing his benefit which is means tested and takes my money and earnings into account. We have savings which I rely on to boost our joint income to £10000
Dreamer49
in
PBC Foundation
11 years ago
Volunteers required for CLL research interviews of relapsed and refractory UK members.
Are you able to take part in a study on Chronic Lymphocytic Leukaemia (CLL) and Mantle Cell Lymphoma (MCL). Thanks to your help the research company have reached their quota for 'watchful waiting' patients (not currently on treatment). The researchers are now looking to schedule patients whose condition
Are you able to take part in a study on Chronic Lymphocytic Leukaemia (CLL) and Mantle Cell Lymphoma (MCL). Thanks to your help the research company have reached their quota for 'watchful waiting' patients (not currently on treatment). The researchers are now looking to schedule patients whose condition
HAIRBEAR_UK
Administrator
in
CLL Support
11 years ago
Any relation with having APS and high creatinine levels?
Hi all, I've got APS and had two blood tests in the past month that have come back with high creatinine levels. No history of kidney disease in my family. I keep well hydrated, I'm active etc. I take warfarin and beta blockers. Anybody know if there is any link with APS that could cause high creatinine
Hi all, I've got APS and had two blood tests in the past month that have come back with high creatinine levels. No history of kidney disease in my family. I keep well hydrated, I'm active etc. I take warfarin and beta blockers. Anybody know if there is any link with APS that could cause high creatinine
Louise_Davies
in
Hughes Syndrome APS Forum
11 years ago
Basics About Diabetes, maintain Immune System with Alternative Medicines
Basics About Diabetes, maintain Immune System with Alternative Medicines What is diabetes? Diabetes is a disease in which blood glucose levels are above normal. Most of the food we eat is turned into glucose, or sugar, for our bodies to use for energy. The pancreas, an organ that lies near the stomach
Basics About Diabetes, maintain Immune System with Alternative Medicines What is diabetes? Diabetes is a disease in which blood glucose levels are above normal. Most of the food we eat is turned into glucose, or sugar, for our bodies to use for energy. The pancreas, an organ that lies near the stomach
Hidden
in
Diabetes India
11 years ago
October - Clinical trial mini-update - B + R and Idelalisib - CAL 101
Hey All, After my third (uneventful.) B + R treatment late September i have been in to see my Consultant (today -9th October.) WBC 118 / LC 115 - My doctor continues to remark about my body's excellent response to three rounds of chemo treatment and CAL 101 / Placebo. We also reviewed two CT Scans
Hey All, After my third (uneventful.) B + R treatment late September i have been in to see my Consultant (today -9th October.) WBC 118 / LC 115 - My doctor continues to remark about my body's excellent response to three rounds of chemo treatment and CAL 101 / Placebo. We also reviewed two CT Scans
MartyR
in
CLL Support
11 years ago
New treatment - tocilizumab
Hi. I have takayasu's arteritis and am treated at Addenbrooke's. I saw Dr Jayne yesterday and they've come to the conclusion that things are a bit out of control. I'm going to be started on tocilizumab as soon as they have secured funding. Does anyone on here have experience of this treatment for TAK
Hi. I have takayasu's arteritis and am treated at Addenbrooke's. I saw Dr Jayne yesterday and they've come to the conclusion that things are a bit out of control. I'm going to be started on tocilizumab as soon as they have secured funding. Does anyone on here have experience of this treatment for TAK
JElsom
in
Vasculitis UK
11 years ago
What is Immune System
What is Immune System The immune system is a network of cells, tissues, and organs that work together to defend the body against attacks by “foreign” invaders. These are primarily microbes—tiny organisms such as bacteria, parasites, and fungi that can cause infections. Viruses also cause infections,
What is Immune System The immune system is a network of cells, tissues, and organs that work together to defend the body against attacks by “foreign” invaders. These are primarily microbes—tiny organisms such as bacteria, parasites, and fungi that can cause infections. Viruses also cause infections,
Hidden
in
Diabetes India
11 years ago
The effect of antiepileptic drugs on thyroid function in children
Interactions between everything to do with thyroid (hormones, tests, etc.) and medicines has often been discussed here. I remember some specific mentions of the impact of anti-epileptics. This is just another abstract which identifies that there are potentially very significant interactions between anti-epileptics
Interactions between everything to do with thyroid (hormones, tests, etc.) and medicines has often been discussed here. I remember some specific mentions of the impact of anti-epileptics. This is just another abstract which identifies that there are potentially very significant interactions between anti-epileptics
helvella
Thyroid UK
in
Thyroid UK
11 years ago
Adrenomyeloneuropathy - does anyone have any info of specialists in the north west of the uk??
my brother-inlaw has Adrenomyeloneuropathy and the doctors around here are not really treating him very well with this as we know his cousin who lives along way from us has this condition and he gets better treatment. we have read up on him being able to have bone marrow transplant and when my husband
my brother-inlaw has Adrenomyeloneuropathy and the doctors around here are not really treating him very well with this as we know his cousin who lives along way from us has this condition and he gets better treatment. we have read up on him being able to have bone marrow transplant and when my husband
vicarl
in
AMN EASIER
11 years ago
Inspiration x
Hi all, Just thought Id check in to say hi and ask how we all are? Im having a few days off from sailing ( imaginary ship of progress) to do my cbt homework. Not a lot to report, still having my niggles to do with health x but i need to feel these things to make progress, if that makes sense
Hi all, Just thought Id check in to say hi and ask how we all are? Im having a few days off from sailing ( imaginary ship of progress) to do my cbt homework. Not a lot to report, still having my niggles to do with health x but i need to feel these things to make progress, if that makes sense
Hidden
in
Anxiety Support
11 years ago
Research: Gathering ethnicity statistics
To help us support research into ALD and AMN better, we've started to compile statistics on the different ethnicities and demographics of patients and families affected by the ALD gene. Ethnicity and demographic statistics are also fundamental in supporting families requiring a Bone Marrow Transplant
To help us support research into ALD and AMN better, we've started to compile statistics on the different ethnicities and demographics of patients and families affected by the ALD gene. Ethnicity and demographic statistics are also fundamental in supporting families requiring a Bone Marrow Transplant
Hidden
Partner
in
Leukodystrophy Support
11 years ago
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