To help us support research into ALD and AMN better, we've started to compile statistics on the different ethnicities and demographics of patients and families affected by the ALD gene. Ethnicity and demographic statistics are also fundamental in supporting families requiring a Bone Marrow Transplant (BMT), as donors for certain ethnicities can be difficult.
If you can spare a few moments, please help us by completing the short survey:
What's your view on Lorenzo's Oil?
I hate to ask but i need to know…how long after the disease sets in do male children have before they lose the battle with this disease?