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Cutaneous T cell lymphoma (CTCL)
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CAR-T Cell Therapy
While only one type of immunotherapy, Sipuleucel-T, has yielded only modest improvements in survival most other types such as viruses, PD-1 and PD-L1 inhibitors, etc. have not been very effective, because of PCa's comparatively low mutational loads, I still have hope that immunotherapy will one day be
While only one type of immunotherapy, Sipuleucel-T, has yielded only modest improvements in survival most other types such as viruses, PD-1 and PD-L1 inhibitors, etc. have not been very effective, because of PCa's comparatively low mutational loads, I still have hope that immunotherapy will one day be
PhilipSZacarias
in
Advanced Prostate Cancer
5 years ago
Follow-up...and perhaps hope for us all
Last month I posted about my son's sudden leukemia diagnosis (see below). Although he was not well enough to make it to MD Anderson as planned in December, he did get there this week. It was anticipated that their recommendation would be either stay the course with the intense chemo that he was in the
Last month I posted about my son's sudden leukemia diagnosis (see below). Although he was not well enough to make it to MD Anderson as planned in December, he did get there this week. It was anticipated that their recommendation would be either stay the course with the intense chemo that he was in the
shueswim
in
Advanced Prostate Cancer
5 years ago
Debulking Eliminates Need for Hospitalization Prior to Initiating Venetoclax Therapy in untreated CLL pts
This is a report of Phase 3 study NCT03406156. Due to the rapid induction of cell death caused by the targeted activity of venetoclax, some patients require inpatient monitoring for tumor lysis syndrome (TLS) at initiation of therapy. In the recent CLL14 study, 64% and 22% of venetoclax-treated patients
This is a report of Phase 3 study NCT03406156. Due to the rapid induction of cell death caused by the targeted activity of venetoclax, some patients require inpatient monitoring for tumor lysis syndrome (TLS) at initiation of therapy. In the recent CLL14 study, 64% and 22% of venetoclax-treated patients
Jm954
Administrator
in
CLL Support
5 years ago
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B-PLL Lymphoma
Hi I have B-PLL lymphoma and because it is very similar to CLL I’m going to start Ibrutinib. Just wondering if anyone with lymphoma has been prescribed this drug?
Hi I have B-PLL lymphoma and because it is very similar to CLL I’m going to start Ibrutinib. Just wondering if anyone with lymphoma has been prescribed this drug?
Hidden
in
CLL Support
5 years ago
ASH 2019: A Clinical Trial of Cannabis As Targeted Therapy for Indolent Leukemic Lymphoma
"Conclusion : This study demonstrates that it is safe to administrate a single dose of Sativex to elderly patients with indolent B-cell lymphoma with regards to adverse events. We show that the cannabis compound quickly reduces lymphoma cell numbers in peripheral blood. There was no evidence of activation
"Conclusion : This study demonstrates that it is safe to administrate a single dose of Sativex to elderly patients with indolent B-cell lymphoma with regards to adverse events. We show that the cannabis compound quickly reduces lymphoma cell numbers in peripheral blood. There was no evidence of activation
avzuclav
in
CLL Support
5 years ago
Newbie
Hey CLLers, I found this website and looks like I found a new family. I'll soon turn 72. I was diagnosed for CLL in March of 2013. Did BR from October 2016 to February 2017. Currently symptom free and do monthly blood work and IGIV at oncologist. Dr. mentioned if I relapse we might try a pill. I assume
Hey CLLers, I found this website and looks like I found a new family. I'll soon turn 72. I was diagnosed for CLL in March of 2013. Did BR from October 2016 to February 2017. Currently symptom free and do monthly blood work and IGIV at oncologist. Dr. mentioned if I relapse we might try a pill. I assume
louie48
in
CLL Support
5 years ago
Update and Best Wishes
Have just got out of hospital after three days of methylprednisolone infusions. The idea was to bring me into hospital and give me a boost so I could go on a holiday. Just as well I went in because it coincided with a fairly bad attack, so hopefully I’ll be OK now for a month or so. Mid February
Have just got out of hospital after three days of methylprednisolone infusions. The idea was to bring me into hospital and give me a boost so I could go on a holiday. Just as well I went in because it coincided with a fairly bad attack, so hopefully I’ll be OK now for a month or so. Mid February
lesleyg
in
Behçet's UK
5 years ago
First line above at 69Y: Venetoclax vs Ibrutinib vs BR
Hello All, After consulting 3 of the best available doctors I could find all of the suggest different options and its up to us to chose. So far: 1) Venetoclax -they claim its the least side effects treatment (despite she does not have 17p deleton they say will be very effective) 2) Ibrutinib effective
Hello All, After consulting 3 of the best available doctors I could find all of the suggest different options and its up to us to chose. So far: 1) Venetoclax -they claim its the least side effects treatment (despite she does not have 17p deleton they say will be very effective) 2) Ibrutinib effective
paula_dae
in
CLL Support
5 years ago
Oxbryta Receives FDA Approval for Treating Sickle Cell Disease
On Monday, the U.S. Food and Drug Administration (FDA) announced accelerated approval of Oxbryta (voxelotor) for the treatment of sickle cell disease in patients aged 12 and above. “Oxbryta is the first approved treatment for sickle cell disease that directly inhibits the root cause of the disease,
On Monday, the U.S. Food and Drug Administration (FDA) announced accelerated approval of Oxbryta (voxelotor) for the treatment of sickle cell disease in patients aged 12 and above. “Oxbryta is the first approved treatment for sickle cell disease that directly inhibits the root cause of the disease,
RobertReny
in
Sickle Cell Society
5 years ago
Temporal Ultrasound May Be Useful in Giant Cell Arteritis Disease Monitoring (in patients paring corticosteroids with tocilizumab)
Thought this was an interesting article... wouldn't it be great if ultrasounds became the standard and most reliable source for monitoring and tracking GCA, in all patients, not just those paring their corticosteroids with tocilizumab. The more tracking/monitoring, the more data... the more data,
Thought this was an interesting article... wouldn't it be great if ultrasounds became the standard and most reliable source for monitoring and tracking GCA, in all patients, not just those paring their corticosteroids with tocilizumab. The more tracking/monitoring, the more data... the more data,
Hidden
in
PMRGCAuk
5 years ago
Bone marrow transplant number 2
BONE MARROW TRANS PLANT PART TWO! So its a go At MSGH to receiver a bone marrow transplant early this January! Thank god my sister is a match and we are a go a. A scary go at that. Meaning all that is involved with procedure! I am having this pro procedure done 2000 miles away from home base. So this
BONE MARROW TRANS PLANT PART TWO! So its a go At MSGH to receiver a bone marrow transplant early this January! Thank god my sister is a match and we are a go a. A scary go at that. Meaning all that is involved with procedure! I am having this pro procedure done 2000 miles away from home base. So this
Seifert_09
in
AMN EASIER
5 years ago
Help with a mystery needed
In August I went went to a neurologist who tested my b12 levels because of neurological symptoms. I requested the test because in 2012 when I was trying to get pregnant a naturopathic dr found that my b12 levels were 350... at the time I had no symptoms. I remember her talking about intrinsic factor
In August I went went to a neurologist who tested my b12 levels because of neurological symptoms. I requested the test because in 2012 when I was trying to get pregnant a naturopathic dr found that my b12 levels were 350... at the time I had no symptoms. I remember her talking about intrinsic factor
CW12
in
Pernicious Anaemia Society
5 years ago
Started Trial today
It was kind of a rough start. I got as far as 3.9 ml in on the O drip and I felt like I was burning from the inside out. I have been flushed before but this was 100 times worse. My vitals went south and everyone came running. They stopped the infusion and up the dosage of steroids, benedryl etc.
It was kind of a rough start. I got as far as 3.9 ml in on the O drip and I felt like I was burning from the inside out. I have been flushed before but this was 100 times worse. My vitals went south and everyone came running. They stopped the infusion and up the dosage of steroids, benedryl etc.
aquafinn
in
CLL Support
5 years ago
A cautionary tale
A cautionary tale for those of us who have used or are using opiates for pain. I have several autoimmune diseases. I’ve survived leukemia with two bone marrow transplants. I have latent effects from the chemo that manifest themselves in all kinds of ways. I have herniated discs at C5-C6 and L5-
A cautionary tale for those of us who have used or are using opiates for pain. I have several autoimmune diseases. I’ve survived leukemia with two bone marrow transplants. I have latent effects from the chemo that manifest themselves in all kinds of ways. I have herniated discs at C5-C6 and L5-
Nitrobunny
in
PMRGCAuk
5 years ago
Mantle Cell Lymphoma Treatment
Just wonder if anyone participates in Window 2 clinical trial of MD Anderson where patients receive Ibrutinib in the first 4 months, combine with Rituximab and add Venetoclax in month 5. Chemo will be followed if in the medium and high risk. Then another 2-3 years in maintenance with Ibrutiniv, Venetoclax
Just wonder if anyone participates in Window 2 clinical trial of MD Anderson where patients receive Ibrutinib in the first 4 months, combine with Rituximab and add Venetoclax in month 5. Chemo will be followed if in the medium and high risk. Then another 2-3 years in maintenance with Ibrutiniv, Venetoclax
writepa
in
Non Hodgkin's Lymphoma Friends
5 years ago
Mantle Cell Lymphoma - Window 2 clinical trial
Just wonder if anyone participates in Window 2 clinical trial of MD Anderson where patients receive Ibrutinib in the first 4 months, combine with Rituximab and add Venetoclax in month 5. Chemo will be followed if in the medium and high risk. Then another 2-3 years in maintenance with Ibrutiniv, Venetoclax
Just wonder if anyone participates in Window 2 clinical trial of MD Anderson where patients receive Ibrutinib in the first 4 months, combine with Rituximab and add Venetoclax in month 5. Chemo will be followed if in the medium and high risk. Then another 2-3 years in maintenance with Ibrutiniv, Venetoclax
writepa
in
CLL Support
5 years ago
The Winter issue of Leukaemia Matters will soon be landing at your door or in your inbox!
[i]Hello,[/i] [i]Welcome to the Winter issue of our magazine![/i] http://bit.ly/LeukaemiaMattersWinter2019 [i]It’s been another busy year for Leukaemia Care as we celebrated our [/i][i]50th anniversary. We spent much of the year working harder than ever to [/i][i]provide support and advice to those
[i]Hello,[/i] [i]Welcome to the Winter issue of our magazine![/i] http://bit.ly/LeukaemiaMattersWinter2019 [i]It’s been another busy year for Leukaemia Care as we celebrated our [/i][i]50th anniversary. We spent much of the year working harder than ever to [/i][i]provide support and advice to those
HAIRBEAR_UK
in
Leukaemia Support
5 years ago
Headache and GCA
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4173245/ The article is entitled
Giant cell arteritis or tension-type headache?: A differential diagnostic dilemma
and details the presentation of an elderly lady who appeared to have a tension headache - but it was in fact GCA. It is probably a reference
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4173245/ The article is entitled
Giant cell arteritis or tension-type headache?: A differential diagnostic dilemma
and details the presentation of an elderly lady who appeared to have a tension headache - but it was in fact GCA. It is probably a reference
LilyBark
in
PMRGCAuk
5 years ago
Follicular Lymphoma Patient: 8-Year Treatment Experience
In November 2011, at the age of 64, my wife was diagnosed with follicular lymphoma Stage 4, Grade 3A. She had 50% bone marrow involvement. She is one of the 20% of follicular lymphoma patients who progress rapidly after treatments. In 4 years, she progressed after R-CHOP (6 cycles), bendamustine/rituximab
In November 2011, at the age of 64, my wife was diagnosed with follicular lymphoma Stage 4, Grade 3A. She had 50% bone marrow involvement. She is one of the 20% of follicular lymphoma patients who progress rapidly after treatments. In 4 years, she progressed after R-CHOP (6 cycles), bendamustine/rituximab
wmay13241
in
Non Hodgkin's Lymphoma Friends
5 years ago
Lung Illnesses Associated with Use of Vaping Products. FDA Warns Public to stop using those containing Tetrahydrocannabinol (THC)
Those of us wanting to quit smoking and using e-cigarettes to achieve this, or anyone vaping cannabinoids including THC (the psychoactive cannabinoid) need to be aware of recent concerns regarding their safety. [i]Both the U.S. Food and Drug Administration and the U.S. Centers for Disease Control and
Those of us wanting to quit smoking and using e-cigarettes to achieve this, or anyone vaping cannabinoids including THC (the psychoactive cannabinoid) need to be aware of recent concerns regarding their safety. [i]Both the U.S. Food and Drug Administration and the U.S. Centers for Disease Control and
AussieNeil
Partner
in
CLL Support
5 years ago
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