Search
Search
About
Log in
Join
Experiences with
Cutaneous T cell lymphoma (CTCL)
Posts
Communities
1,643 public posts
Filter results
people with Sickle Cell Trait can and do have symptoms it is not very common for instance but I have been having these symptoms for years
severe cramping in the stomach, unexplained fatigue, dizziness, problems with high altitudes, motion sickness. I think that the Sickle Cell Society should stop putting everyone in the box. They also need to update the information on people with Sickle Cell Trait. So much info on the disease and they
severe cramping in the stomach, unexplained fatigue, dizziness, problems with high altitudes, motion sickness. I think that the Sickle Cell Society should stop putting everyone in the box. They also need to update the information on people with Sickle Cell Trait. So much info on the disease and they
bambury72
in
Sickle Cell Society
11 years ago
Has any one been mistakenly diagnosed with Lymphoma? Or had swollen lymph nodes which were suspected could be Lymphoma?
I was recently diagnosed with Lymphoma after a biopsy of a swollen lymph node. I spent 6 weeks thinking l had cancer & preparing for chemo. I was then told my diagnosis was wrong. I have not been diagnosed with lupus but do have a number of the symptoms & my hematologist says that there's some sort of
I was recently diagnosed with Lymphoma after a biopsy of a swollen lymph node. I spent 6 weeks thinking l had cancer & preparing for chemo. I was then told my diagnosis was wrong. I have not been diagnosed with lupus but do have a number of the symptoms & my hematologist says that there's some sort of
timmysmom
in
LUPUS UK
11 years ago
New Drug Application Filing for Ibrutinib Accepted in Two B-cell Malignancies by the U.S. FDA
This is NOT an approval,
it is the beginning of the approval process but only for two uses or indications... previously treated mantle cell lymphoma (MCL) and previously treated chronic lymphocytic leukemia (CLL)/small lymphocytic lymphoma (SLL). http://online.wsj.com/article/PR-CO-20130829
This is NOT an approval,
it is the beginning of the approval process but only for two uses or indications... previously treated mantle cell lymphoma (MCL) and previously treated chronic lymphocytic leukemia (CLL)/small lymphocytic lymphoma (SLL). http://online.wsj.com/article/PR-CO-20130829
Cllcanada
Top Poster CURE Hero
in
CLL Support
11 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Family of Henrietta Lacks agrees to release of genomic data
"The HeLa cell line was established in 1951 from a biopsy of a cervical tumour taken from Henrietta Lacks, a working-class African-American woman living near Baltimore. The cells were taken without the knowledge or permission of her or her family, and they became the first human cells to grow well in
"The HeLa cell line was established in 1951 from a biopsy of a cervical tumour taken from Henrietta Lacks, a working-class African-American woman living near Baltimore. The cells were taken without the knowledge or permission of her or her family, and they became the first human cells to grow well in
AussieNeil
Partner
in
CLL Support
11 years ago
The Latest Developments in the AllTrials campaign
All Trials Registered | All Results Reported - The AllTrials campaign http://www.alltrials.net/blog/the-alltrials-campaign PLEASE JOIN US IN SIGNING THE PETITION: http://www.alltrials.net About the AllTrials campaign “Doctors and regulators need the results of clinical trials to make informed
All Trials Registered | All Results Reported - The AllTrials campaign http://www.alltrials.net/blog/the-alltrials-campaign PLEASE JOIN US IN SIGNING THE PETITION: http://www.alltrials.net About the AllTrials campaign “Doctors and regulators need the results of clinical trials to make informed
HAIRBEAR_UK
Administrator
in
CLL Support
11 years ago
July 2013 Trial with B + R -- Idelalisib (GS-1101) OR CAL 101 Study (III)
Live from hospital bed -->> my first cycle of Infused Bendamustine and Rituximab appears to have gone well with no side effects - except tiredness - at this stage! I have literally the last drips of Bendamustine going into my veins! I've been told I am discharged from hospital and so home for the weekend
Live from hospital bed -->> my first cycle of Infused Bendamustine and Rituximab appears to have gone well with no side effects - except tiredness - at this stage! I have literally the last drips of Bendamustine going into my veins! I've been told I am discharged from hospital and so home for the weekend
MartyR
in
CLL Support
11 years ago
Participation in clinical trials.
On July 3rd I attended a meeting jointly organised by a number of PD support organisations which was a truly memorable experience! It focussed on clinical trials from the perspectives of PwP (especially those with experience of trials), carers/ their families & medical professionals. The event was
On July 3rd I attended a meeting jointly organised by a number of PD support organisations which was a truly memorable experience! It focussed on clinical trials from the perspectives of PwP (especially those with experience of trials), carers/ their families & medical professionals. The event was
honeycombe3
in
Cure Parkinson's
11 years ago
FDA application made for Ibrutinib in refractory/relapsed CLL/SLL ONLY
Janssen Research & Development, LLC announced the submission of a New Drug Application for ibrutinib to the U.S. Food and Drug Administration (FDA) for its use in the treatment of previously treated patients with chronic lymphocytic leukemia (CLL)/small lymphocytic lymphoma (SLL), and for its use in
Janssen Research & Development, LLC announced the submission of a New Drug Application for ibrutinib to the U.S. Food and Drug Administration (FDA) for its use in the treatment of previously treated patients with chronic lymphocytic leukemia (CLL)/small lymphocytic lymphoma (SLL), and for its use in
Cllcanada
Top Poster CURE Hero
in
CLL Support
11 years ago
Herpetiformis Dermatitis and Non-Hodgkins Low Grade B-Cell Follicular Lymphoma
As far as I can tell, I have had HD since Christmas 2011, when I was 61 years old. It worsened in 2012, but my dermatologist (#1) resisted testing for/exploring autoimmunity (my younger brother died from complications related to JRA in 2009 so I thought there might be a link). Dermatologist #2 did all
As far as I can tell, I have had HD since Christmas 2011, when I was 61 years old. It worsened in 2012, but my dermatologist (#1) resisted testing for/exploring autoimmunity (my younger brother died from complications related to JRA in 2009 so I thought there might be a link). Dermatologist #2 did all
Zlata
in
Gluten Free Guerrillas
11 years ago
Toward Patient-Centered Drug Development in Oncology
Not CLL specific but interesting...from the NEJM Quote... 'As an oncologist, when I sit with patients to discuss starting a new chemotherapy regimen, their first questions are often “How will it make me feel?” and “How did patients like me feel with this treatment?” Regrettably, this information
Not CLL specific but interesting...from the NEJM Quote... 'As an oncologist, when I sit with patients to discuss starting a new chemotherapy regimen, their first questions are often “How will it make me feel?” and “How did patients like me feel with this treatment?” Regrettably, this information
Cllcanada
Top Poster CURE Hero
in
CLL Support
11 years ago
Ibrutinib article includes info on leukaemia and lymphoma and how lymphocytes function
Interesting Gizmag article on Ibrutinib with some good background on how lymphocytes work and how CLL and MCL differ. (Ibrutinib trials were done on both). http://www.gizmag.com/lymphoma-treatment-cancer-ibrutinib/28085/ It is worth looking through the associated pictures. The first explains
Interesting Gizmag article on Ibrutinib with some good background on how lymphocytes work and how CLL and MCL differ. (Ibrutinib trials were done on both). http://www.gizmag.com/lymphoma-treatment-cancer-ibrutinib/28085/ It is worth looking through the associated pictures. The first explains
AussieNeil
Partner
in
CLL Support
11 years ago
Bacteria causing cancer? Bacteria to Human gene transfers. Controversial but fascinating...
'There are 10 times more bacterial cells in our bodies from the microbiome than human cells. Viral DNA is known to integrate in the human genome, but the integration of bacterial DNA has not been described. Using publicly available sequence data from the human genome project, the 1000
'There are 10 times more bacterial cells in our bodies from the microbiome than human cells. Viral DNA is known to integrate in the human genome, but the integration of bacterial DNA has not been described. Using publicly available sequence data from the human genome project, the 1000
Cllcanada
Top Poster CURE Hero
in
CLL Support
11 years ago
Need help for Pancreatic Cancer
Hi there, My dad is diagnosed with pancreatic cancer which has now spread to liver, he also doesnt remember much. Doc says there isn't much hope for him... Does anyone have some other advice for me plz.... Thx for ur help.
Hi there, My dad is diagnosed with pancreatic cancer which has now spread to liver, he also doesnt remember much. Doc says there isn't much hope for him... Does anyone have some other advice for me plz.... Thx for ur help.
alisha1
in
Cancer Patients Aid Association India
11 years ago
Bad drug companies...
Chris can you comment on this..?? It it as bad as it reads..?? Three years ago, a former Cephalon manager filed a whisteblower lawsuit over alleged illegal marketing of two drugs – the Treanda treatment for chronic lymphocytic leukemia and the Fentora painkiller – prompting the
Chris can you comment on this..?? It it as bad as it reads..?? Three years ago, a former Cephalon manager filed a whisteblower lawsuit over alleged illegal marketing of two drugs – the Treanda treatment for chronic lymphocytic leukemia and the Fentora painkiller – prompting the
Kwenda
in
CLL Support
11 years ago
Complications After Kidney Transplant
After kidney transplant, the patient is very prone to infection. Three contributive factors are as following. First, the major surgery on blood vessel and urinary system temporarily decrease patient immune ability. Secondly, for kidney failure patients, their absolute immunity is low then normal person
After kidney transplant, the patient is very prone to infection. Three contributive factors are as following. First, the major surgery on blood vessel and urinary system temporarily decrease patient immune ability. Secondly, for kidney failure patients, their absolute immunity is low then normal person
Hidden
in
Early CKD Support
11 years ago
Esa Tribunal Advice
Hi guys, I am due to attend an ESA tribunal on the 5th August and am looking to get some advice as to how best approach this. My background history is as follows; (please excuse the fact that is so long!) I am 39 years old this month, and was diagnosed with Hodgins Disease in May of 1999. The cancer
Hi guys, I am due to attend an ESA tribunal on the 5th August and am looking to get some advice as to how best approach this. My background history is as follows; (please excuse the fact that is so long!) I am 39 years old this month, and was diagnosed with Hodgins Disease in May of 1999. The cancer
kjaye767
in
Lung Conditions Community Forum
11 years ago
virus or symptoms?
I know this is a silly question but I am not very well and cannot work out whether I am ill because of eating something that disagreed with me and brought on symptoms, or I have a virus. The symptoms I am having are aching bones/muscles, feeling hot and cold, nausea, lethargy/fatigue and trips to the
I know this is a silly question but I am not very well and cannot work out whether I am ill because of eating something that disagreed with me and brought on symptoms, or I have a virus. The symptoms I am having are aching bones/muscles, feeling hot and cold, nausea, lethargy/fatigue and trips to the
urbangirl
in
Gluten Free Guerrillas
11 years ago
I did It!!!!!!!! (London to Paris cycling for fundraising)
Hi all London to Paris was awesome. We had such a good time with 4 days of cycling in good weather. It was the first time Leukaemia and Lymphoma research had organised such an event and it was a massive success. 200 people set of from Greenwich Park on Thursday 6th June at 8.15 and we all arrived
Hi all London to Paris was awesome. We had such a good time with 4 days of cycling in good weather. It was the first time Leukaemia and Lymphoma research had organised such an event and it was a massive success. 200 people set of from Greenwich Park on Thursday 6th June at 8.15 and we all arrived
Hidden
in
CLL Support
11 years ago
BoneMarrow
Anyone know about a Bone Marrow Transplant? As a last resort for ITP?
Anyone know about a Bone Marrow Transplant? As a last resort for ITP?
lmc167
in
ITP Support Association
11 years ago
Some red spot in my upper mouth and coming blood after getting b12 injection
Hi, fabruary 2012 my doctor found some erosion in my duodenum, he gives me treepol therapy, ant ppi, but I filling burning in my stomach, then doctor see my b12 label it was 135, iron was 40, doctor give me b12 supplement, and iron supplement, but no major improvement, then doctor check b12 label
Hi, fabruary 2012 my doctor found some erosion in my duodenum, he gives me treepol therapy, ant ppi, but I filling burning in my stomach, then doctor see my b12 label it was 135, iron was 40, doctor give me b12 supplement, and iron supplement, but no major improvement, then doctor check b12 label
npno
in
Pernicious Anaemia Society
11 years ago
1
...
77
78
79
...
83
Next page
30
40
50
60
70
80
Filter results
Clear filters
Posted in
All communities
CLL Support
545 results
PMRGCAuk
202 results
MPN Voice
130 results
View top 10 communities
Sort by
Most Relevant
Newest