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Experiences with
Cutaneous T cell lymphoma (CTCL)
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Pruritus (itching) US & Eastern Canadian Resouces
Poligone is a researcher in his own field with a focus on CTCL (
Cutaneous
T
Cell
Lymphoma
) and informed me that he has a collaborative study ongoing with a prominent CLL specialist Dr. Clive Zent also at the Univ. Rochester Medical Center in NY State, Wilmot Cancer Center.
Poligone is a researcher in his own field with a focus on CTCL (
Cutaneous
T
Cell
Lymphoma
) and informed me that he has a collaborative study ongoing with a prominent CLL specialist Dr. Clive Zent also at the Univ. Rochester Medical Center in NY State, Wilmot Cancer Center.
ThreeWs
in
CLL Support
9 years ago
Why we need to register and report the results of all clinical trials
schwit1 writes in Slashdot: [i]"The requirement that medical researchers register in detail the methods they intend to use in their clinical trials, both to record their data as well as document their outcomes, caused a significant drop in trials producing positive results. From Nature: http://www.nature.com
schwit1 writes in Slashdot: [i]"The requirement that medical researchers register in detail the methods they intend to use in their clinical trials, both to record their data as well as document their outcomes, caused a significant drop in trials producing positive results. From Nature: http://www.nature.com
AussieNeil
Partner
in
CLL Support
9 years ago
Guide to buying supplements in UK
Interesting programme on TV last week, BBC's 'Trust Me I'm a Doctor', that is relevant for anyone buying supplements in the UK. http://www.bbc.co.uk/programmes/articles/4hX30rMYkMv9YjMTH38MY6/do-herbal-supplements-contain-what-they-say-on-the-label I always thought that the UK supplement industry had
Interesting programme on TV last week, BBC's 'Trust Me I'm a Doctor', that is relevant for anyone buying supplements in the UK. http://www.bbc.co.uk/programmes/articles/4hX30rMYkMv9YjMTH38MY6/do-herbal-supplements-contain-what-they-say-on-the-label I always thought that the UK supplement industry had
badpiglet
in
PBC Foundation
9 years ago
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The Anti-Inflammatory Diet
Check out this new article from Alexandra Rothwell, a registered dietitian. Inflammation is a popular “buzz word” in the world of nutrition and cancer. Foods and nutrients are touted for their “anti-inflammatory” properties, and we happily associate this with good health - as we should. However,
Check out this new article from Alexandra Rothwell, a registered dietitian. Inflammation is a popular “buzz word” in the world of nutrition and cancer. Foods and nutrients are touted for their “anti-inflammatory” properties, and we happily associate this with good health - as we should. However,
tydonald
in
Cook For Your Life
9 years ago
update on daughter
As you all know my daughter has had an on going illness that turned out to be Aplastic Anemia. She had some treatment back in April which was a cocktail of anti_biotic straight into her blood ( i believe) through an Henrick Feed, This they used for everything, Steroids etc. They were hoping this would
As you all know my daughter has had an on going illness that turned out to be Aplastic Anemia. She had some treatment back in April which was a cocktail of anti_biotic straight into her blood ( i believe) through an Henrick Feed, This they used for everything, Steroids etc. They were hoping this would
fastball
in
NRAS
9 years ago
LIKE A PHOENIX. . . . .
Hello Peops I have an update on my MF. . . . I'm sorry to say that after a year or so my Ruxo Golden Ticket Has left me on a very sticky wicket, My oversize spleen remains the same It simply hasn't played the game, The fibrosis is present within my bones And to be honest I fear these 'undertones'.
Hello Peops I have an update on my MF. . . . I'm sorry to say that after a year or so my Ruxo Golden Ticket Has left me on a very sticky wicket, My oversize spleen remains the same It simply hasn't played the game, The fibrosis is present within my bones And to be honest I fear these 'undertones'.
JediReject
in
MPN Voice
9 years ago
Checkpoint Inhibitors - the Programmed Death 1 and Ligand (PD-1/PD-L1) checkpoints and their promise for CLL/SLL
In the last few years, we've seen amazing advances in the approvals of safer, more effective non chemo treatments for CLL/SLL. That momentum doesn't look as if it will stop any time soon, which is a huge improvement on the situation of just a few years ago, when FCR was the only improved treatment to
In the last few years, we've seen amazing advances in the approvals of safer, more effective non chemo treatments for CLL/SLL. That momentum doesn't look as if it will stop any time soon, which is a huge improvement on the situation of just a few years ago, when FCR was the only improved treatment to
AussieNeil
Partner
in
CLL Support
9 years ago
Joining the anxiety of parents
It's good to read about people sharing useful info.I've been dealing with this problem for 7 years when.n my son who is 8 now was diagnosed with IT and has had 3 bone marrow tests so far.I ve been told the only cure is bone marrow transplant but I'm not sure how far that can be successful. I have to
It's good to read about people sharing useful info.I've been dealing with this problem for 7 years when.n my son who is 8 now was diagnosed with IT and has had 3 bone marrow tests so far.I ve been told the only cure is bone marrow transplant but I'm not sure how far that can be successful. I have to
S38abcd
in
ITP Support Association
9 years ago
In the beginning...
...There was smoking, and obesity and .... well you know the rest. A trip down AML lane led to a bone marrow transplant and all seemed well until COPD came along. So, if the one doesn't get you the other one will - only slower! I am late in years now. Started out as a journalist (sorry people) and then
...There was smoking, and obesity and .... well you know the rest. A trip down AML lane led to a bone marrow transplant and all seemed well until COPD came along. So, if the one doesn't get you the other one will - only slower! I am late in years now. Started out as a journalist (sorry people) and then
Timberman
in
Lung Conditions Community Forum
9 years ago
Transplant coming soon!
I have been fighting cll/stage 4 for seven years with little success. Have had all standard chemo and have been in two clinical trials (ibrutnib and ABT199). The ibrutnib worked great for about a year and a half. When it failed it was fast! Then I tried ABT199 which helped save my life, but was short
I have been fighting cll/stage 4 for seven years with little success. Have had all standard chemo and have been in two clinical trials (ibrutnib and ABT199). The ibrutnib worked great for about a year and a half. When it failed it was fast! Then I tried ABT199 which helped save my life, but was short
Hidden
in
CLL Support
9 years ago
Hopeful
Hey everyone, Today has been one of them achy hurting day's, so hubby went into town and brought me a massive tub of Epsom salts and magnesium citrate - never tried these before. So even though today sucks I'm feeling hopeful these will work/help? Plus side I'm enjoying a lazy day and had a not so pleasant
Hey everyone, Today has been one of them achy hurting day's, so hubby went into town and brought me a massive tub of Epsom salts and magnesium citrate - never tried these before. So even though today sucks I'm feeling hopeful these will work/help? Plus side I'm enjoying a lazy day and had a not so pleasant
Keeleybee
in
Fibromyalgia Action UK
9 years ago
Hodgkin's Disease
Pet-Ct Impression after 3 Chemotherapy Cycles: 1.Scan doesnot reveal any abnormal hypermetabolic lesion anywhere in the entire torso. 2.Mild Splenomegaly. 3. Only non FDG- avid small nodes noted in the cervical,axillary, mediastinal & abdominal region. 4. No other evidence of metabolically active disease
Pet-Ct Impression after 3 Chemotherapy Cycles: 1.Scan doesnot reveal any abnormal hypermetabolic lesion anywhere in the entire torso. 2.Mild Splenomegaly. 3. Only non FDG- avid small nodes noted in the cervical,axillary, mediastinal & abdominal region. 4. No other evidence of metabolically active disease
babu57
in
Breast Cancer India
9 years ago
Stem cell transplants
This was on the ACOR list today. I found it fascinating. Jeff "Date: Thu, 11 Jun 2015 06:51:53 -0500 From: Dennis Pinkard <pinkardd@CHARTER.NET> Subject: Researchers identify patients at risk for stem cell transplant complications Phase 2 clinical trial. http://www.sciencedaily.com/releases
This was on the ACOR list today. I found it fascinating. Jeff "Date: Thu, 11 Jun 2015 06:51:53 -0500 From: Dennis Pinkard <pinkardd@CHARTER.NET> Subject: Researchers identify patients at risk for stem cell transplant complications Phase 2 clinical trial. http://www.sciencedaily.com/releases
Justasheet1
in
CLL Support
9 years ago
Large B Cell lymphoma and Grave Disease
I have read that thyroid disease is a B cell auto immune disorder and am wondering if there is a link? I beat lymphoma and two years into remission am told I may have Graves. Little nervous...
I have read that thyroid disease is a B cell auto immune disorder and am wondering if there is a link? I beat lymphoma and two years into remission am told I may have Graves. Little nervous...
suky58
in
Lymphoma Canada
9 years ago
Vigorous physical activity may lower risk of NHL
CLL/SLL is classified as one of the many Non Hodgkin's Lymphomas (NHL), so I was interested to read that people that engage in vigorous physical activity may have a lower risk of developing NHL: http://www.hematologytimes.com/p_article.do?id=5072 [i]“We know that being physically active reduces the risk
CLL/SLL is classified as one of the many Non Hodgkin's Lymphomas (NHL), so I was interested to read that people that engage in vigorous physical activity may have a lower risk of developing NHL: http://www.hematologytimes.com/p_article.do?id=5072 [i]“We know that being physically active reduces the risk
AussieNeil
Partner
in
CLL Support
9 years ago
Should GCA sufferers take the shingles vaccine?
http://consumer.healthday.com/senior-citizen-information-31/misc-aging-news-10/study-ties-shingles-virus-to-dangerous-blood-vessel-disease-in-elderly-696591.html “…The researchers looked for links between the condition and the chickenpox/shingles virus because of the unusual way that it replicates in
http://consumer.healthday.com/senior-citizen-information-31/misc-aging-news-10/study-ties-shingles-virus-to-dangerous-blood-vessel-disease-in-elderly-696591.html “…The researchers looked for links between the condition and the chickenpox/shingles virus because of the unusual way that it replicates in
Asbeck
in
PMRGCAuk
9 years ago
Blood counts from 11-th may
Hy everyone, My last results :WBC 67.1;LYM 87%;ALC 58;Hb 12.7;PLT 233;only one aria with swollen lymph node (the right size of my neck), small skin infections. My Doc said to prepare for treatment, and ask me my opinion about a monotherapy with Rithuximab.Please yours comments. Thanks all for a prompt
Hy everyone, My last results :WBC 67.1;LYM 87%;ALC 58;Hb 12.7;PLT 233;only one aria with swollen lymph node (the right size of my neck), small skin infections. My Doc said to prepare for treatment, and ask me my opinion about a monotherapy with Rithuximab.Please yours comments. Thanks all for a prompt
lilica955
in
CLL Support
9 years ago
Going off Ibrutinib: should we be worried?
Hi everyone. My husband was due to go in for a stem cell transplant this week but it has been delayed as he wasn't well on the day. Due to a theatre being unavailable for the donor (for taking cells from bone marrow), it's been put back two weeks. This means my husband will now be off Ibrutinib for
Hi everyone. My husband was due to go in for a stem cell transplant this week but it has been delayed as he wasn't well on the day. Due to a theatre being unavailable for the donor (for taking cells from bone marrow), it's been put back two weeks. This means my husband will now be off Ibrutinib for
MJN44
in
CLL Support
9 years ago
Novel Biologic Agents for Non-HL and CLL — Part 2: Adoptive Cellular Immunotherapy, Small-Molecule Inhibitors, and Immunomodulation
Tanya Siddiqi, MD and Steven T. Rosen, MD complete their comprehensive review in part 2: [i]"In this two-part review, we discuss biologic therapies classified by their targets and mechanisms of action that have received US Food and Drug Administration (FDA) approval for the treatment of non-Hodgkin lymphoma
Tanya Siddiqi, MD and Steven T. Rosen, MD complete their comprehensive review in part 2: [i]"In this two-part review, we discuss biologic therapies classified by their targets and mechanisms of action that have received US Food and Drug Administration (FDA) approval for the treatment of non-Hodgkin lymphoma
AussieNeil
Partner
in
CLL Support
9 years ago
It’s Time to Tackle the Evidence Gap in Lymphoid Cancers - Ahmad Halwani, MD
Ahmad Halwani, Assistant Professor, Division of Hematology and Hematologic Malignancies, Huntsman Cancer Institute, University of Utah Healthcare, Salt Lake City, USA, examines the [i]"mostly unmet need for research that aims to further our understanding of the comparative effectiveness of cancer treatments
Ahmad Halwani, Assistant Professor, Division of Hematology and Hematologic Malignancies, Huntsman Cancer Institute, University of Utah Healthcare, Salt Lake City, USA, examines the [i]"mostly unmet need for research that aims to further our understanding of the comparative effectiveness of cancer treatments
AussieNeil
Partner
in
CLL Support
9 years ago
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