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Cutaneous T cell lymphoma (CTCL)
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Hemoglobin, iron, and vitamin B12 deficiencies and high blood homocysteine levels in patients with anti-thyroid autoantibodies
OK - small sample. OK - selection according to relatively low incidence other disorders. OK - hypothyroidism determined by in/out of full TSH range. But... the fact that these things are even being talked about as having connections is a plus.
[i]Hemoglobin, iron, and vitamin B12 deficiencies and
OK - small sample. OK - selection according to relatively low incidence other disorders. OK - hypothyroidism determined by in/out of full TSH range. But... the fact that these things are even being talked about as having connections is a plus.
[i]Hemoglobin, iron, and vitamin B12 deficiencies and
helvella
Thyroid UK
in
Thyroid UK
8 years ago
Newbie
Hi I have been a 'browser' here for a while but never posted for personal reasons. I am 64 (65 next week) and was 32 when I was diagnosed with ET. I think I must have had every treatment available in the last 32 years; radio active phosphorus injections, interferon, Hydrea, Busulphan, Anagrelide, aspirin
Hi I have been a 'browser' here for a while but never posted for personal reasons. I am 64 (65 next week) and was 32 when I was diagnosed with ET. I think I must have had every treatment available in the last 32 years; radio active phosphorus injections, interferon, Hydrea, Busulphan, Anagrelide, aspirin
Wychwoodbabe
in
MPN Voice
8 years ago
WHO?
The 2016 revision of the World Health Organization (WHO) classification of lymphoid neoplasms is coming soon... and CLL/SLL is still a lymphoma. There are a number of changes particularly to MBL, which is now considered a precursor to CLL, in virtually all cases... but is subdivided in to high and low
The 2016 revision of the World Health Organization (WHO) classification of lymphoid neoplasms is coming soon... and CLL/SLL is still a lymphoma. There are a number of changes particularly to MBL, which is now considered a precursor to CLL, in virtually all cases... but is subdivided in to high and low
Cllcanada
Top Poster CURE Hero
in
CLL Support
8 years ago
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Do Mobile/Cell phones cause brain cancer?
With a CLL diagnosis, our increased risk secondary cancers becomes a concern. So understandably, many of us look at what we can do to reduce our risk of developing secondary cancers. This article by Simon Chapman, Emeritus Professor in Public Health, University of Sydney may prove reassuring to anyone
With a CLL diagnosis, our increased risk secondary cancers becomes a concern. So understandably, many of us look at what we can do to reduce our risk of developing secondary cancers. This article by Simon Chapman, Emeritus Professor in Public Health, University of Sydney may prove reassuring to anyone
AussieNeil
Partner
in
CLL Support
8 years ago
Allogeneic Stem Cell Transplant: Who Is It Most Appropriate For?
In this Ask the Expert segment, Frances asks, “When is the right time for an allogeneic [stem cell] transplant?” Dr. Jatin Shah of MD Anderson Cancer Center responds by discussing the controversy surrounding this difficult choice and factors that should be considered, and he stresses the need for multiple
In this Ask the Expert segment, Frances asks, “When is the right time for an allogeneic [stem cell] transplant?” Dr. Jatin Shah of MD Anderson Cancer Center responds by discussing the controversy surrounding this difficult choice and factors that should be considered, and he stresses the need for multiple
mcints
in
Myeloma America Support
8 years ago
Considering a Bone Marrow Transplant
What are the pros and cons of continuing CLL therapies versus having a bone marrow transplant (BMT)? Dr. Philip Thompson, a CLL expert from MD Anderson Cancer Center, shares his thoughts on this question. https://www.patientpower.info/video/considering-a-bone-marrow-transplant
What are the pros and cons of continuing CLL therapies versus having a bone marrow transplant (BMT)? Dr. Philip Thompson, a CLL expert from MD Anderson Cancer Center, shares his thoughts on this question. https://www.patientpower.info/video/considering-a-bone-marrow-transplant
mcints
in
CLL America Support
8 years ago
Share your story please!
Hello everyone, Several people on this forum have said some very kind things about the book I published a couple of years ago - Polymyalgia Rheumatica and Giant Cell Arteritis - a survival guide. Right now I am working on the second edition. Mostly for the 'patient experience' bit I was drawing on
Hello everyone, Several people on this forum have said some very kind things about the book I published a couple of years ago - Polymyalgia Rheumatica and Giant Cell Arteritis - a survival guide. Right now I am working on the second edition. Mostly for the 'patient experience' bit I was drawing on
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
8 years ago
My success with Imbruvica (ibrutinib
I've posted before that for almost all of 2015 I was treated for ITB. My platelet counts ranged up and down from 2 to 50 all year. In December I switched to another doctor and he did a bone marrow biopsy and told me on Christmas Eve that I have CLL. He immediately started me on FCR, but after two
I've posted before that for almost all of 2015 I was treated for ITB. My platelet counts ranged up and down from 2 to 50 all year. In December I switched to another doctor and he did a bone marrow biopsy and told me on Christmas Eve that I have CLL. He immediately started me on FCR, but after two
ohiojim
in
CLL Support
8 years ago
Progressing metastatic prostate cancer
I'm new here but have had Stage IV Prostate Cancer since July 2003. Originally 8 positive lymph nodes, Gleason 4+3, pT3b N1 Mx, PSA 33.5. Never have had physical symptoms but have undergone neoadjuvant hormone ablation, prostatectomy with extended lymphandectomy and then hormone ablation for 23 months
I'm new here but have had Stage IV Prostate Cancer since July 2003. Originally 8 positive lymph nodes, Gleason 4+3, pT3b N1 Mx, PSA 33.5. Never have had physical symptoms but have undergone neoadjuvant hormone ablation, prostatectomy with extended lymphandectomy and then hormone ablation for 23 months
Hidden
in
Advanced Prostate Cancer
8 years ago
Good Blood counts = cured?
End of 2013 I was diagnosed with MF and a few months later this was revised to MDS/MF overlap type of symdrom - this resulted in a SCT in August 2015. 8 months down the line from my SCT, my blood counts are very good - white/red/platelets haemoglobin - and have been for a few months now. Although my
End of 2013 I was diagnosed with MF and a few months later this was revised to MDS/MF overlap type of symdrom - this resulted in a SCT in August 2015. 8 months down the line from my SCT, my blood counts are very good - white/red/platelets haemoglobin - and have been for a few months now. Although my
crapaud
in
MPN Voice
8 years ago
The placebo and the nocebo effect and the ethics of pacebo use.
[i]'What are placebos?[/i]
[i]It’s important to distinguish between pure and impure placebos. A pure placebo is a straightforwardly fake treatment – a saline injection or a sugar pill, for instance, that is represented as a drug.[/i] [i]An impure placebo is a substance or treatment that does
[i]'What are placebos?[/i]
[i]It’s important to distinguish between pure and impure placebos. A pure placebo is a straightforwardly fake treatment – a saline injection or a sugar pill, for instance, that is represented as a drug.[/i] [i]An impure placebo is a substance or treatment that does
AussieNeil
Partner
in
CLL Support
8 years ago
Understanding New Myeloma Therapies and the Role of Stem Cell Transplant
Is stem cell transplant a viable treatment option? How long should maintenance therapy last? From the Myeloma 2016 meeting in Boston, Dr. Thomas Martin from UCSF Medical Center answered these questions and more related to myeloma treatment. He goes on to discuss new and upcoming myeloma treatments as
Is stem cell transplant a viable treatment option? How long should maintenance therapy last? From the Myeloma 2016 meeting in Boston, Dr. Thomas Martin from UCSF Medical Center answered these questions and more related to myeloma treatment. He goes on to discuss new and upcoming myeloma treatments as
mcints
in
Myeloma America Support
8 years ago
Stick or Twist...Not Really.
Hi, PaulaS suggested that I write and let people who know me on here know how I'm doing. She suggested it quite a long time ago, but I didn't know how I was doing until today. I have just had the consultation post chemotherapy and have been told that I have achieved full remission, which is good news
Hi, PaulaS suggested that I write and let people who know me on here know how I'm doing. She suggested it quite a long time ago, but I didn't know how I was doing until today. I have just had the consultation post chemotherapy and have been told that I have achieved full remission, which is good news
zentangle
in
CLL Support
8 years ago
Weekly Clinical Trial Spotlight
We firmly believe clinical trials are a great way to get tomorrow's medicine today so each week, we will be featuring a clinical trial from our partner, SparkCures. SparkCures is a clinical trial finder tool and we encourage you to check them out! ********************Myeloma Clinical Trial**********
We firmly believe clinical trials are a great way to get tomorrow's medicine today so each week, we will be featuring a clinical trial from our partner, SparkCures. SparkCures is a clinical trial finder tool and we encourage you to check them out! ********************Myeloma Clinical Trial**********
tclementi
in
Myeloma America Support
8 years ago
Scleroderma and Non-Hodgkins Lymphoma
My mum was diagnosed with scleroderma 18 months ago - it's confined to her (very tight) skin and her symptoms are very cold hands and feet and lack of energy/can't walk far. Just before Christmas she was diagnosed with non-Hodgkins lymphoma in her neck for which she's nearly completed chemotherapy treatment
My mum was diagnosed with scleroderma 18 months ago - it's confined to her (very tight) skin and her symptoms are very cold hands and feet and lack of energy/can't walk far. Just before Christmas she was diagnosed with non-Hodgkins lymphoma in her neck for which she's nearly completed chemotherapy treatment
TraceyK55
in
Scleroderma & Raynaud's UK (SRUK)
8 years ago
My ET Has Progressed to MF: Am I a Candidate for Stem Cell Transplant?
In this Ask the Expert segment, Patient Power community member, Betty’s essential thrombocythemia (ET) has transformed to myelofibrosis (MF) and she wants to know, “What are the general considerations or criteria for putting patients on a stem cell transplant (SCT) list?” Dr. Naveen Pemmaraju responds
In this Ask the Expert segment, Patient Power community member, Betty’s essential thrombocythemia (ET) has transformed to myelofibrosis (MF) and she wants to know, “What are the general considerations or criteria for putting patients on a stem cell transplant (SCT) list?” Dr. Naveen Pemmaraju responds
mcints
in
Fight MPN
8 years ago
I was dx 4 years ago with Cll at 48 and had a quadruple bypass last year. Blood thinners?
A quick question. As I am taking blood thinners, could this affect me going on a clinical trial in the future?
A quick question. As I am taking blood thinners, could this affect me going on a clinical trial in the future?
Pinno
in
CLL Support
8 years ago
Waldenstrom’s Macroglobulinemia Patient & Caregiver Surveys
If you have Waldenstrom’s Macroglobulinemia (Lymphoplasmacytic Lymphoma), we need your help. Lymphoma Canada, in partnership with the Canadian Organization for Rare Disorders (CORD) is preparing a submission to the panCanadian Oncology Drug Review (pCODR) for: Ibrutinib (Imbruvica) for patients with
If you have Waldenstrom’s Macroglobulinemia (Lymphoplasmacytic Lymphoma), we need your help. Lymphoma Canada, in partnership with the Canadian Organization for Rare Disorders (CORD) is preparing a submission to the panCanadian Oncology Drug Review (pCODR) for: Ibrutinib (Imbruvica) for patients with
LCAdmin
Lymphoma Canada
in
Lymphoma Canada
8 years ago
Coffee Intake Reduced Colorectal Cancer Risk
[i]Drinking coffee resulted in a more than 25% decreased risk for developing colorectal cancer, according to the results of a study published in Cancer, Epidemiology, Biomarkers & Prevention.[/i] : [i]“This large case–control study (coffee intake and colorectal cancer occurrence in 5,145 cases and 4,097
[i]Drinking coffee resulted in a more than 25% decreased risk for developing colorectal cancer, according to the results of a study published in Cancer, Epidemiology, Biomarkers & Prevention.[/i] : [i]“This large case–control study (coffee intake and colorectal cancer occurrence in 5,145 cases and 4,097
AussieNeil
Partner
in
CLL Support
8 years ago
Is the Use of a JAK inhibitor Prior to Stem Cell Transplant Recommended?
Is there a positive correlation between the use of a JAK Inhibitor and stem cell transplant (SCT)? UK viewer, Peter, asks about the recommended use of a JAK inhibitor prior to having a SCT. Dr. Naveen Pemmaraju from MD Anderson Cancer Center responds with a discussion of two studies on this subject
Is there a positive correlation between the use of a JAK Inhibitor and stem cell transplant (SCT)? UK viewer, Peter, asks about the recommended use of a JAK inhibitor prior to having a SCT. Dr. Naveen Pemmaraju from MD Anderson Cancer Center responds with a discussion of two studies on this subject
mcints
in
Fight MPN
8 years ago
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