I'm new here but have had Stage IV Prostate Cancer since July 2003. Originally 8 positive lymph nodes, Gleason 4+3, pT3b N1 Mx, PSA 33.5. Never have had physical symptoms but have undergone neoadjuvant hormone ablation, prostatectomy with extended lymphandectomy and then hormone ablation for 23 months. Off everything for 18 months then rising PSA up to 2.14, back on hormone ablation for 2 years plus salvage IMRT then off drugs for 36 months with 0.03 PSA for 18 of those months then creeping up to 17.77. This Second recurrence stopped with hormone ablation again as before... Bicalutamide and goserelin acetate for 15 months. Then first evidence of bone mets, PSA 0.29, Bicalutamide stopped but gaserelin acetate continued, immediately followed by Sipuleucel-T. Now 22 months later, March 2016 with 2 active lymph nodes, para-aortic and supraclavicular, and bone mets in 5 sites in spine and ribs, two within periphery of the spleen, and some concern for lung/pulmonary carcinomatosis. Starting docetaxel April and still on zoladex and zometa. Also no physical symptoms to affect quality of life. Last November did stereotactic body radiation therapy (SBRT) treatments to L3 spine but evidently that failed as bone scan still shows increased activity there. It's a hope medical science can extend my life further. If someone is on a similar journey please let me know how it's going.
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