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Cutaneous T cell lymphoma (CTCL)
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My Journey
Hi i have Myeloma it was diagnosed Nov 2012 after being told on numerious occasions that i had siatica ,i was given Radiation then put on a trial drug which put me in remmision until June 2013 it had spread to my pelvis so i had to go on more medication the only problem i had no chemo for 5 months as
Hi i have Myeloma it was diagnosed Nov 2012 after being told on numerious occasions that i had siatica ,i was given Radiation then put on a trial drug which put me in remmision until June 2013 it had spread to my pelvis so i had to go on more medication the only problem i had no chemo for 5 months as
bigpants
in
Myeloma America Support
8 years ago
Are there possibilities other than stem cell transplant in Canada for CLL with 11Q deletion?
My son lives in Canada. He has CLL stage 4 with 11Q deletion. He was taken off Ibrutinib because his Neutrophils were getting low. Then he had a cold and swollen lymph nodes on his neck, and an enlarged spleen. He is now back on Ibrutinib on a reduced dosage of 2 pills/day. His doctor says that according
My son lives in Canada. He has CLL stage 4 with 11Q deletion. He was taken off Ibrutinib because his Neutrophils were getting low. Then he had a cold and swollen lymph nodes on his neck, and an enlarged spleen. He is now back on Ibrutinib on a reduced dosage of 2 pills/day. His doctor says that according
karenmarie
in
CLL Support
8 years ago
Follicular Lymphoma Patients and Caregivers Survey
Lymphoma Canada is preparing a submission to the panCanadian Oncology Drug Review (pCODR) for: Idelalisib (Zydelig) for the treatment of patients with follicular lymphoma who have received at least two prior systemic regimens and are refractory to both rituximab and an alkylating agent. You can help
Lymphoma Canada is preparing a submission to the panCanadian Oncology Drug Review (pCODR) for: Idelalisib (Zydelig) for the treatment of patients with follicular lymphoma who have received at least two prior systemic regimens and are refractory to both rituximab and an alkylating agent. You can help
LCAdmin
Lymphoma Canada
in
Lymphoma Canada
8 years ago
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New Research from USA about drugs and GCA-- some of this s quite technical but a lay person should be able to follow the gist.
Tocilizumab plus prednisolone was twice as effective as placebo plus prednisolone at inducing complete remission in patients with giant cell arteritis (GCA), and four times as effective at producing relapse-free survival in a small, phase 2, randomized, double-blind, placebo-controlled trial. Patients
Tocilizumab plus prednisolone was twice as effective as placebo plus prednisolone at inducing complete remission in patients with giant cell arteritis (GCA), and four times as effective at producing relapse-free survival in a small, phase 2, randomized, double-blind, placebo-controlled trial. Patients
Judigardener
in
PMRGCAuk
8 years ago
Books on PMR & GCA
There is a new book on the block coming out in May: Polymyalgia Rheumatica and Giant Cell Arteritis Authors: Bhaskhar Dasgutpa and Christian Dejaco. 9780198729204 Paperback 03 May 2016 Oxford Rheuumatology Library. Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide by Dr Kate Gilbert
There is a new book on the block coming out in May: Polymyalgia Rheumatica and Giant Cell Arteritis Authors: Bhaskhar Dasgutpa and Christian Dejaco. 9780198729204 Paperback 03 May 2016 Oxford Rheuumatology Library. Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide by Dr Kate Gilbert
jinasc
in
PMRGCAuk
8 years ago
Stem cell breakthrough - using fat cells to create human multipotent stem cells to regenerate body parts
Face it, given the median age for CLL diagnosis is about 72, most of us are wishing we could replace some worn out body parts... While not CLL related, the article below does touch on why bone marrow transplants work (it's stem cells that are transplanted) and why this new technique is an important
Face it, given the median age for CLL diagnosis is about 72, most of us are wishing we could replace some worn out body parts... While not CLL related, the article below does touch on why bone marrow transplants work (it's stem cells that are transplanted) and why this new technique is an important
AussieNeil
Partner
in
CLL Support
8 years ago
What now? ...after BR
My husband has his 6th round of BR chemotherapy this week...I'm wondering what happens now? Do we just go away and wait for the CLL to return? During his chemo, we have had very little input from his Consultant ..I assume he will have a CT scan ...I wonder what questions we should ask? I have been reading
My husband has his 6th round of BR chemotherapy this week...I'm wondering what happens now? Do we just go away and wait for the CLL to return? During his chemo, we have had very little input from his Consultant ..I assume he will have a CT scan ...I wonder what questions we should ask? I have been reading
alice111
in
CLL Support
8 years ago
Sooo is it a new problem to see Lymphoma cells in my blood work??
WBC4.00 - 10.80 K/uL19.24H RBC3.85 - 5.15 M/uL 4.57 HGB12.0 - 15.3 g/dL13.3 HCT36.0 - 45.2 % 40.9 MCV81.5 - 97.5 fL 89.5 MCH27.0 - 34.0 pg 29.1 MCHC32.0 - 36.0 g/dL32.5 RDW11.5 - 15.5 % 14.3 PLATELET COUNT140 - 400 K/uL230 MPV6.6 - 11.1 fL 9.4 SEGS40 - 75 %
WBC4.00 - 10.80 K/uL19.24H RBC3.85 - 5.15 M/uL 4.57 HGB12.0 - 15.3 g/dL13.3 HCT36.0 - 45.2 % 40.9 MCV81.5 - 97.5 fL 89.5 MCH27.0 - 34.0 pg 29.1 MCHC32.0 - 36.0 g/dL32.5 RDW11.5 - 15.5 % 14.3 PLATELET COUNT140 - 400 K/uL230 MPV6.6 - 11.1 fL 9.4 SEGS40 - 75 %
goneblonder
in
CLL Support
8 years ago
Dr. Stilgenbauer: Resistance to ibrutinib in relapsed and refractory patients with 17p deletion and News about CLL Meeting across the USA
Friends, This week in the 2015 Conference Coverage section of the CLL Society website, we have posted a continuation of my interview with Dr. Stephan Stilgenbauer at the American Society of Hematology annual meeting in December 2015 in Orlando. We discussed the criteria that predict resistance to ibrutinib
Friends, This week in the 2015 Conference Coverage section of the CLL Society website, we have posted a continuation of my interview with Dr. Stephan Stilgenbauer at the American Society of Hematology annual meeting in December 2015 in Orlando. We discussed the criteria that predict resistance to ibrutinib
bkoffman
CLL CURE Hero
in
CLL Support
8 years ago
Aitl
Hello, I am a 58 year old female looking for others who have undergone a stem cell transplant. I have angioimmunoblastic T cell lymphoma which is rare. If anyone out there can share information and experiences with T cell lymphoma please write. I enjoy music listening. Kayaking and going for long walks
Hello, I am a 58 year old female looking for others who have undergone a stem cell transplant. I have angioimmunoblastic T cell lymphoma which is rare. If anyone out there can share information and experiences with T cell lymphoma please write. I enjoy music listening. Kayaking and going for long walks
Kvick
in
LGBT Cancer Community
8 years ago
NHS public consultation on Tocilizumab in GCA
Tocilizumab is one of the new generation of 'biologic' drugs which are being developed to treat a range of diseases, including inflammatory autoimmune conditions, like GCA and PMR. It has been used in a small number of GCA patients to see whether it could help reduce the risk of relapse and help reduce
Tocilizumab is one of the new generation of 'biologic' drugs which are being developed to treat a range of diseases, including inflammatory autoimmune conditions, like GCA and PMR. It has been used in a small number of GCA patients to see whether it could help reduce the risk of relapse and help reduce
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
8 years ago
High cortisol in evening yet exhausted anyone know what is going on ? blood level analysis and help required
I have Hashimotos and have just got the results of my cortisol test it states that my first three samples are normal but the one late at night is elevated normal range is 0.83-3.86 mine is 4.91 it says on the private Genova report this suggests adrenal hyperfuction what do I do with this now? Could
I have Hashimotos and have just got the results of my cortisol test it states that my first three samples are normal but the one late at night is elevated normal range is 0.83-3.86 mine is 4.91 it says on the private Genova report this suggests adrenal hyperfuction what do I do with this now? Could
spacestar
in
Thyroid UK
8 years ago
Will Oxygen help in the home when suffering from a sickle cell crisis?
Will Oxygen help in the home when suffering from a sickle cell crisis? If this is not the case why do S.C sufferers including those who are a carrier of the Gene need extra oxygen when having an operation? Any opinions and answers would be grateful.
Will Oxygen help in the home when suffering from a sickle cell crisis? If this is not the case why do S.C sufferers including those who are a carrier of the Gene need extra oxygen when having an operation? Any opinions and answers would be grateful.
cazzera
in
Sickle Cell Society
8 years ago
Trisomy 12
Hi everyone. I saw my consultant on Thursday with the results of my recent blood test and PET scan. The PET scan only showed the enlarged lymph nodes that I knew about in my neck. None in my chest or abdomen which was good news. He told me I have the chromosome abnormality trisomy 12. He said it's not
Hi everyone. I saw my consultant on Thursday with the results of my recent blood test and PET scan. The PET scan only showed the enlarged lymph nodes that I knew about in my neck. None in my chest or abdomen which was good news. He told me I have the chromosome abnormality trisomy 12. He said it's not
Cindy1462
in
CLL Support
8 years ago
Living with Metastatic Prostate Cancer
My story starts with a colonoscopy in 2008. A small lump was discovered on my prostate so I went to an Urologist who recommended a biopsy. My PSA at the time was 2.1. At that time I did what the doctor ordered. The biopsy was perform in his office and was extremely painful to me. I do believe that
My story starts with a colonoscopy in 2008. A small lump was discovered on my prostate so I went to an Urologist who recommended a biopsy. My PSA at the time was 2.1. At that time I did what the doctor ordered. The biopsy was perform in his office and was extremely painful to me. I do believe that
skateguy
in
Advanced Prostate Cancer
8 years ago
Please Tell me about Immunotherapy.
My Mother (56) was diagnosed with Breast Cancer of Stage 3. 11 out of 17 lymp nodes positive. ER and PR positive and Her2 negative. She underwent Mastectomy, Chemotherapy. Now her Radiotherapy will start in 2-3 days. Our oncologist told us that in third stage there are high chances of relapse in future
My Mother (56) was diagnosed with Breast Cancer of Stage 3. 11 out of 17 lymp nodes positive. ER and PR positive and Her2 negative. She underwent Mastectomy, Chemotherapy. Now her Radiotherapy will start in 2-3 days. Our oncologist told us that in third stage there are high chances of relapse in future
Coolsingh
in
Breast Cancer India
8 years ago
Engineered immune cells yield "unprecedented" results in early cancer trials
T-Cell therapy has delivered promising results in early trials involving patients with acute lymphoblastic leukemia. Removing immune cells, training them to attack cancer and then reintroducing them into the body has emerged as a promising approach to overcoming the deadly disease. And researchers are
T-Cell therapy has delivered promising results in early trials involving patients with acute lymphoblastic leukemia. Removing immune cells, training them to attack cancer and then reintroducing them into the body has emerged as a promising approach to overcoming the deadly disease. And researchers are
shubhac
in
Breast Cancer India
9 years ago
Hope is on the way.
This morning's news should give us all cause to smile and to keep hope alive. http://www.mirror.co.uk/news/technology-science/science/doctors-battling-stop-cancer-hail-7377474 However, does T cell immunotherapy work on B cell leukemia? This question is above my pay grade. Still, this breakthrough
This morning's news should give us all cause to smile and to keep hope alive. http://www.mirror.co.uk/news/technology-science/science/doctors-battling-stop-cancer-hail-7377474 However, does T cell immunotherapy work on B cell leukemia? This question is above my pay grade. Still, this breakthrough
RK66
in
CLL Support
9 years ago
Bone Marrow Biopsy ?
My husband is about to have round 5 of BR chemotherapy tomorrow ...after his CT scan last week his Consultant said blood results, lymph nodes , spleen are all good ...I asked approximately how long patients usually have before they need more treatment and she said about 2 to 4 years ( I hoped it would
My husband is about to have round 5 of BR chemotherapy tomorrow ...after his CT scan last week his Consultant said blood results, lymph nodes , spleen are all good ...I asked approximately how long patients usually have before they need more treatment and she said about 2 to 4 years ( I hoped it would
alice111
in
CLL Support
9 years ago
Causes of GCA?????????
Thought others might like to read this which I found when searching for a link between RA and GCA Rheumatoid arthritis and giant cell arteritis linked with solar cycles https://www.sciencedaily.com/releases/2015/06/150615142841.htm
Thought others might like to read this which I found when searching for a link between RA and GCA Rheumatoid arthritis and giant cell arteritis linked with solar cycles https://www.sciencedaily.com/releases/2015/06/150615142841.htm
PMRpro
Ambassador
in
PMRGCAuk
8 years ago
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