Stick or Twist...Not Really.

[zentangle]

Hi,

PaulaS suggested that I write and let people who know me on here know how I'm doing. She suggested it quite a long time ago, but I didn't know how I was doing until today. I have just had the consultation post chemotherapy and have been told that I have achieved full remission, which is good news. I now proceed to the second part of my treatment, an autologous stem cell transplant, which commences on May 4th. For those people who don't know me and read this, I have CLL and Mantle Cell Lymphoma and am being treated for both, but the MCL is leading the treatment protocol. I was told ASCTs have become unfashionable for CLL, mainly because of the fludarabine used in previous treatments not leaving the bone marrow in a very good state, so I shall be happy to report if the CLL has been eradicated by the ASCT as well. (I had the Nordic Protocol, by the way, and it has rendered my bone marrow clear of both CLL and MCL.  It consists of 3xMaxi RCHOP and 3x Cytarabine.)

Regards,

Steve

zentangle

[Justasheet1]

God bless and be strong. Keep us updated as you see fit. 🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻

Jeff 

[zentangle in reply to Justasheet1]

Cheers, Jeff. Will do.

[wiganfan]

Best Wishes Steve,    Wiganfan

[june65]

That's fantastic news Steve, are you still under the care of Dr Bloor, my husband goes to see him on 6th May. Good luck with the stem cell treatment. X

[zentangle in reply to june65]

Hi June,

Yes, saw him today. He's been great. Hope all goes well with your husband. x

[wroxham-gb]

Great to hear how you are getting on Steve. All the best for 4/5.

Take care.

Sue

[zentangle in reply to wroxham-gb]

Thanks, Sue.

[Oleboyredw-uk]

Great news Steve, well done and best wishes for the future.  Thank you for the update.  

(Same consultant as me).

Regards, rob

[zentangle in reply to Oleboyredw-uk]

Thanks, Rob,

How are you getting on?

[Oleboyredw-uk in reply to zentangle]

Steve, I'm good thanks.  Just got back from GP yearly review of my hypertension and that seems to be under good control since my drug change in Jan.  

Next scheduled review in the Christie is in July.  Hoping for good review there as well.

Stay safe and well, rob

[Cammie]

Great news Steve!

Onwards and upwards!

Geoff

[zentangle in reply to Cammie]

Thanks very much, Geoff. How are you getting on?

[Cammie in reply to zentangle]

Doing well my friend!

Just 12 months since finishing FCR everything normal except platelets which are still hovering around 100 but have always been low.

Having checks at moment due to sinus/ throat catarrh which may be an allergic problem but other than that everything is good!

Playing golf three times a week weather permitting and looking forward to a trip to Portugal shortly.

Had a Basel cell carcinoma cut out in January all ok now 

Wishing you all the best mate !

I'll be thinking about you!

[zentangle in reply to Cammie]

Great to hear Geoff. Enjoy your holiday, and wear a big hat!!

[prosecco1]

Congratulations, that's great news.

Keep us updated with how get on, if/when you can.

Take care

Elle 

[Elizabetha]

Excellent news! I suspect that this will be encouraging for many.  Hope all goes well with the ASCT Steve x

[Newdawn Administrator]

It's sounding mighty positive Steve and that's excellent news!

All the very best for the next stage.

Warm regards,

Newdawn 

[debs24]

Great news! Things are looking good for you😊 Best wishes for the next stage!

Debs.

[keepfit123]

Good luck for the future.

          Cheers,

                    keepfit123

[CLLCalifornia-USA]

Good news makes me smile☺️ Congratulations! Sally

[terryI_uk]

The remission is great news Steve, hope the transplant is a success and you'll have no further need of sites like this, Terry

[Bubnojay]

Great to have the good news update Steve.  All best wishes for a successful outcome of the Transplant. 

Be thinking of you.

Bubnjay1

[PaulaS Volunteer]

Thanks for the update, Steve.  Delighted to hear about the full remission.  

Wishing you all the best for May 4th!  

Paula

P.S.  Great to see how many are encouraged by your news and wish you well... 

[zentangle in reply to PaulaS]

Thanks, Paula, keep in touch.

[thompsonellen]

Best wishes. Keep us updated, and stay strong.

[Jill4]

Thank you for your strength in going through what you did and the Hope you have given us.  So happy for you.

[nvp815]

Steve,

Congratulations on your remission and wishing you the very best of luck as you move forward with the transplant.  Sending good thoughts and massive amounts of support.

Nan 

[Soosie16-USA]

Steve, Hope all goes well with the next phase - it sounds like you are in the perfect place and conditiion to take the next step!  Best, Best Wishes!!!

Susan

[sumok]

all the best for your HSCT!!

my husband is just over a year post on his allo HSCT.  CLL is gone! just the GVH to deal with mainly now and that you should not get, i would think, with an auto. success and good health to you!

[zentangle in reply to sumok]

Great news for you and your husband.

[Ausrine]

Hi I had my allo mini transplant 7 days ago. I don't understand why doctors didn't suggest you mini allo transplant with a chance of a cure?

[zentangle in reply to Ausrine]

Hi, Glad to hear that your mini allo has gone well. It was a matter of risk for first treatment: auto carrying less.

[Peggy4]

This is all looking very positive.  Very best wishes to you.

Peggy

[NooNoo14]

Thanks for the update Steve - much appreciated.

Best wishes for the next stage.

Take care

NooNoo

[Loves2walk]

Wonderful news! Thanks for sharing. I'm new to this site, and am so encouraged by all the positive news.  (My husband was diagnosed two months ago.)

[PaulaS Volunteer]

So how did it go, Steve?  Have you had the transplant?  

Best wishes, 

Paula

[zentangle in reply to PaulaS]

Hi Paula,

Great to hear from you. I'm on the second day of conditioning chemotherapy prior to the transplant next Tuesday. I feel okay, but it's early days yet, I know. I had a central line put in yesterday, and that was the most traumatic and painful experience I've had since beginning treatment. It's okay now, but was unexpectedly dramatic in its insertion. Write back soon, as I have at least three weeks in hospital!

Regards

Steve

[Justasheet1 in reply to zentangle]

Steve,

You're in my 🙏🏻. 

Jeff 

[zentangle in reply to Justasheet1]

Thanks Jeff. Much appreciated.

[PaulaS Volunteer in reply to zentangle]

So, the process has begun, Steve...  Three weeks in hospital - that's a long time -  I presume in a single room, which can feel quite lonely. 

Sorry to hear how traumatic the central line insertion was...  I suppose it saves traumas later on, but not nice all the same.  Keep  your chin up, and keep us in touch... 

Wishing you all the best, 

Paula