Several people on this forum have said some very kind things about the book I published a couple of years ago - Polymyalgia Rheumatica and Giant Cell Arteritis - a survival guide. Right now I am working on the second edition. Mostly for the 'patient experience' bit I was drawing on my own experience, but this time I would love to include a few more patient stories, about diagnosis, about treatment, and about your road to recovery - especially if there is something you feel others could learn from! If you would like to help, please email me your story or part of it (around 150-200 words please) to firstname.lastname@example.org. Please post in the subject line 'My story'. It would help if you could give me your approximate location, and let me know if you would prefer me to use a pseudonym (I will only use first names).
Unfortunately I lost some material I had collected earlier during a computer crash so the timescale is tight - if you could email me in the next week please that would be fantastic.
Thanks so much!