Scleroderma and Non-Hodgkins Lymphoma - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Scleroderma and Non-Hodgkins Lymphoma

TraceyK55 profile image
4 Replies

My mum was diagnosed with scleroderma 18 months ago - it's confined to her (very tight) skin and her symptoms are very cold hands and feet and lack of energy/can't walk far. Just before Christmas she was diagnosed with non-Hodgkins lymphoma in her neck for which she's nearly completed chemotherapy treatment. I'm wondering if anyone else has developed lymphoma who has scleroderma or whether this is purely bad luck?

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TraceyK55 profile image
TraceyK55
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4 Replies
trunchalobesity profile image
trunchalobesity

Sorry, I don't know any one who has.  My GP told me early on in my diagnosis when I had another problem that I should always remember that I had pulled one bad straw and it was just chance but I could also pull another so if in doubt check things out.

I hope she makes a speedy recovery 

zenabb profile image
zenabb

She should contact her specialist nurse.

igulker profile image
igulker

Your question really hits home! I was diagnosed in Oct 2015 with limited scleroderma with Raynauds as well as fibromyalgia and other medical problems. My younger sister, who I had not really known until recently, had been diagnosed a few years ago with the same...limited scleroderma with Raynauds. My father was recently diagnosed with non Hodgkins lymphoma and is undergoing chemotherapy. I don't know if there is any connection, and am aware that these diseases are not supposed to be hereditary. 

Good luck to you!

snookie profile image
snookie

I am 79 years old and was diagnosed with Non-Hodgkins Lymphoma in 2002 - treated with chemotherapy and drugs - clinical trials.  Towards the end of my treatment was told I had bowel cancer.  Thanks to the skill of the consultant I survived but the cancer came back in 2011.  Throughout my  illness(es)  I knew I had Scleroderma but never associated it with these other 'things'.  However I have now been diagnosed with 2 heart problems one of which has been caused (was actually told this by the consultant)  Scleroderma.    Re: the Scleroderma my cold hands and fatigue are the worst things about it .  Please tell your Mum that despite all this I'm still here so she must think positive (am sure she already does) and remember that we're all individuals.  Hoping this helps yours sincerely 'Snookie'.

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