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Cutaneous T cell lymphoma (CTCL)
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My Myeloma
I'm new here but have been sending in reports via stuff.co.nz from there go to stuff nation and find me reviewing Elton John albums alongside my cancer treatment. An unrelated distraction. I am up to week 16. Hoping for a stem cell transplant in September, cheers to everyone. Bruce
I'm new here but have been sending in reports via stuff.co.nz from there go to stuff nation and find me reviewing Elton John albums alongside my cancer treatment. An unrelated distraction. I am up to week 16. Hoping for a stem cell transplant in September, cheers to everyone. Bruce
offthecush
in
Myeloma America Support
8 years ago
Ibrutinib/Imbruvica brings hope to stem cell transplant patients with chronic graft-versus-host-disease
[i]'FDA granted a fourth Breakthrough Therapy Designation (BTD) for ibrutinib (IMBRUVICA®) as a potential treatment of chronic graft-versus-host-disease (cGVHD) after failure of one or more lines of systemic therapy. The FDA also granted the therapy Orphan Drug Designation for the condition. cGVHD is
[i]'FDA granted a fourth Breakthrough Therapy Designation (BTD) for ibrutinib (IMBRUVICA®) as a potential treatment of chronic graft-versus-host-disease (cGVHD) after failure of one or more lines of systemic therapy. The FDA also granted the therapy Orphan Drug Designation for the condition. cGVHD is
AussieNeil
Partner
in
CLL Support
8 years ago
End of an Era (July 7, 2016)
Hi, Today, in another personal blog post on http://bkoffman.blogspot.com , I share the news of the official end of my allogeneic hematopoietic stem cell transplant story that started 8 years ago and ended with a rejected graft and a quick relapse. I am officially now and probably have been for years
Hi, Today, in another personal blog post on http://bkoffman.blogspot.com , I share the news of the official end of my allogeneic hematopoietic stem cell transplant story that started 8 years ago and ended with a rejected graft and a quick relapse. I am officially now and probably have been for years
bkoffman
CLL CURE Hero
in
CLL Support
8 years ago
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Need a bit of cheering up
hi ladies feeling a bit of a wobble coming on. A potted history to date. 2011 diagnosed oc surgery then 6 rounds carbo taxol. Staged 1c grade 2 mucinous ardenocarcinoma. 2014 recurred pelvic wall same site surgery not all got out. No chemo refused radio therapy due to bowel complications during surgery
hi ladies feeling a bit of a wobble coming on. A potted history to date. 2011 diagnosed oc surgery then 6 rounds carbo taxol. Staged 1c grade 2 mucinous ardenocarcinoma. 2014 recurred pelvic wall same site surgery not all got out. No chemo refused radio therapy due to bowel complications during surgery
knoxie42
in
My Ovacome
8 years ago
Chemo done..scans tonight
I finished BR in May and the doctors at both OSU and Cleveland Clinic say I did "spectacular". My numbers are perfect. I'm having a full body scan today at Cleveland Clinic to see if there is anything still enlarged inside. The dr says that sometimes people can have great numbers but still have issues
I finished BR in May and the doctors at both OSU and Cleveland Clinic say I did "spectacular". My numbers are perfect. I'm having a full body scan today at Cleveland Clinic to see if there is anything still enlarged inside. The dr says that sometimes people can have great numbers but still have issues
momof12
in
CLL Support
8 years ago
What to do?
Hi all, I have a decision to make and would like your feedback. I read the posts regularly but don't post much. So, I was diagnosed with CLL last year 6/15 at age 65 (though I suspect it really started around 2009 when I had a slightly elevated absolute lymphocyte count and a swollen lymph node in
Hi all, I have a decision to make and would like your feedback. I read the posts regularly but don't post much. So, I was diagnosed with CLL last year 6/15 at age 65 (though I suspect it really started around 2009 when I had a slightly elevated absolute lymphocyte count and a swollen lymph node in
SandiC
in
CLL Support
8 years ago
Failed Bone Marrow Biopsy
Well it's just typical... after having an allergic reaction to contrast from the body scan, I then had a bone marrow biopsy on Tuesday. The doctors was fab, talked me through the whole thing...lots of tugging pulling etc... she then told me..after 20 mins.. that she was really struggling to get a
Well it's just typical... after having an allergic reaction to contrast from the body scan, I then had a bone marrow biopsy on Tuesday. The doctors was fab, talked me through the whole thing...lots of tugging pulling etc... she then told me..after 20 mins.. that she was really struggling to get a
Bethan49
in
CLL Support
8 years ago
CLL/SLL Patient Survey
If you have CLL or SLL and have been treated with venetoclax we need your help. Lymphoma Canada is preparing a submission for the panCanadian Oncology Drug Review (pCODR) for: —Venetoclax for the treatment of patients with chronic lymphocytic leukemia (CLL)/small lymphocytic lymphoma (SLL) who have
If you have CLL or SLL and have been treated with venetoclax we need your help. Lymphoma Canada is preparing a submission for the panCanadian Oncology Drug Review (pCODR) for: —Venetoclax for the treatment of patients with chronic lymphocytic leukemia (CLL)/small lymphocytic lymphoma (SLL) who have
LCAdmin
Lymphoma Canada
in
Lymphoma Canada
8 years ago
I’m new here ...just diagnosed with AMN
Hello! I am 38 years old woman from Latvia and it looks like I am the only one with AMN here. I was so glad I found this site!!! Here is my story. (sory for my english :)) Three months ago our son, our sweet 7 years old boy was diagnosed with ALD... and it was too late for stem cell transplantation.
Hello! I am 38 years old woman from Latvia and it looks like I am the only one with AMN here. I was so glad I found this site!!! Here is my story. (sory for my english :)) Three months ago our son, our sweet 7 years old boy was diagnosed with ALD... and it was too late for stem cell transplantation.
zane_a
in
AMN EASIER
8 years ago
Physical activity may lower risk of some cancers
[i]'Being physically active during leisure time may lower a person’s risk of certain cancers, according to a new study. A high level of physical activity was associated with a 20% lower risk of myeloid leukemia, a 17% lower risk of myeloma, a 9% lower risk of non-Hodgkin lymphoma, and a 7% lower risk
[i]'Being physically active during leisure time may lower a person’s risk of certain cancers, according to a new study. A high level of physical activity was associated with a 20% lower risk of myeloid leukemia, a 17% lower risk of myeloma, a 9% lower risk of non-Hodgkin lymphoma, and a 7% lower risk
AussieNeil
Partner
in
CLL Support
8 years ago
Will B12 skew PC and IF results
Hi, I have been having injections of hydroxocobalamin from my doctor every 3 months since I was diagnosed in 2011 with PA, level was 140. At my injection 3 months ago, the nurse told me that the doctors want all their B12 injection patients to have a parietal cell antibody test. This came back negative
Hi, I have been having injections of hydroxocobalamin from my doctor every 3 months since I was diagnosed in 2011 with PA, level was 140. At my injection 3 months ago, the nurse told me that the doctors want all their B12 injection patients to have a parietal cell antibody test. This came back negative
rw1001
in
Pernicious Anaemia Society
8 years ago
SCT go ahead
Hi MPN friends, I just wanted to let you know that I will be starting the process of a stem cell transplant next weds 22 June. I live in France and will be having the treatment in Montpellier. I have a femal German donor 10/10 match. Words cannot express my gratitude at the gift of her stem cells. At
Hi MPN friends, I just wanted to let you know that I will be starting the process of a stem cell transplant next weds 22 June. I live in France and will be having the treatment in Montpellier. I have a femal German donor 10/10 match. Words cannot express my gratitude at the gift of her stem cells. At
Jane65
in
MPN Voice
8 years ago
Myeloma relapse.
Diagnosed with MM in 2006. My symptoms where only foggy vision. After 9 months and multiple tests it was a diagnoses of Multiple Myeloma. three years of quarterly blood work checks I was prepared for a stem cell transplant. Fortunately I used my own stem cells. Hospitalized for 3 weeks, full remission
Diagnosed with MM in 2006. My symptoms where only foggy vision. After 9 months and multiple tests it was a diagnoses of Multiple Myeloma. three years of quarterly blood work checks I was prepared for a stem cell transplant. Fortunately I used my own stem cells. Hospitalized for 3 weeks, full remission
MargaretG
in
Myeloma America Support
8 years ago
Allogeneic Transplantation for Chronic Lymphocytic Leukemia in the Age of Novel Treatment Strategies
Given we currently have a few members going through bone marrow transplants, this review article in CancerNetwork by Mark-Alexander Schwarzbich, MD, Fabienne McClanahan, MD, PhD, and John Gribben, MD, DSc should be of interest: http://www.cancernetwork.com/oncology-journal/allogeneic-transplantation-chronic-lymphocytic-leukemia-age-novel-treatment-strategies
Given we currently have a few members going through bone marrow transplants, this review article in CancerNetwork by Mark-Alexander Schwarzbich, MD, Fabienne McClanahan, MD, PhD, and John Gribben, MD, DSc should be of interest: http://www.cancernetwork.com/oncology-journal/allogeneic-transplantation-chronic-lymphocytic-leukemia-age-novel-treatment-strategies
AussieNeil
Partner
in
CLL Support
8 years ago
MPN Voice Nottingham Support Group - Wednesday 15th June - speaker is the bone marrow transplant nurse specialist
We are very pleased to announce that the speaker for the meeting on Wednesday 15th June will be Lynne Watson, the bone marrow transplant specialist nurse. The meeting starts at 6 pm and ends at approximately 7.30 pm. Everyone who is affected by a MPN is welcome to come along, there is no fee to attend
We are very pleased to announce that the speaker for the meeting on Wednesday 15th June will be Lynne Watson, the bone marrow transplant specialist nurse. The meeting starts at 6 pm and ends at approximately 7.30 pm. Everyone who is affected by a MPN is welcome to come along, there is no fee to attend
Mazcd
MPNVoice
in
MPN Voice
8 years ago
Plymouth Devon & Cornwall PMR/GCA meet up 15th June 10.30
Re: - Polymyalgia Rheumatica – Giant Cell Arteritis – Temporal Arteritis support meeting for the Devon & Cornwall Area PMRGCA UK is holding their next support group meeting in the Plymouth area for anyone with PMR or their carers To be held in room 3 Saltash Wesley Methodist Church Callington
Re: - Polymyalgia Rheumatica – Giant Cell Arteritis – Temporal Arteritis support meeting for the Devon & Cornwall Area PMRGCA UK is holding their next support group meeting in the Plymouth area for anyone with PMR or their carers To be held in room 3 Saltash Wesley Methodist Church Callington
Hidden
in
PMRGCAuk
8 years ago
How Often Should I Have Checkups Post-Stem Cell Transplant?
Patient Power community member, Johnny asks, “I had a stem cell transplant (SCT) five years ago. How often should I be having checkups?” Dr. Jatin Shah of MD Anderson Cancer Center shares his recommendation and sums everything up with stressing the need to watch your disease closely. https://www.patientpower.info
Patient Power community member, Johnny asks, “I had a stem cell transplant (SCT) five years ago. How often should I be having checkups?” Dr. Jatin Shah of MD Anderson Cancer Center shares his recommendation and sums everything up with stressing the need to watch your disease closely. https://www.patientpower.info
mcints
in
Myeloma America Support
8 years ago
Younger age GCA data?
I've just bought the new collection of articles by Dasgupta and Dejaco, 'Polymyalgia Rheumatica and Giant Cell Arteritis', published by OUP last month. I was very disappointed to see on the first page of this brand-new book that the authors state in the 'Preface' that PMR and GCA are 'exclusively occurring
I've just bought the new collection of articles by Dasgupta and Dejaco, 'Polymyalgia Rheumatica and Giant Cell Arteritis', published by OUP last month. I was very disappointed to see on the first page of this brand-new book that the authors state in the 'Preface' that PMR and GCA are 'exclusively occurring
CloudGazer6
in
PMRGCAuk
8 years ago
Donating blood
Report reveals 'unfair survival odds' for BAME blood cancer patients due to lack of donor diversity http://www.nhsbt.nhs.uk/news-and-media/…/news_2016_05_19.asp This is an issue which affects sickle cell, too. Many people who live with sickle cell are black, and require repeated blood transfusions
Report reveals 'unfair survival odds' for BAME blood cancer patients due to lack of donor diversity http://www.nhsbt.nhs.uk/news-and-media/…/news_2016_05_19.asp This is an issue which affects sickle cell, too. Many people who live with sickle cell are black, and require repeated blood transfusions
SCSZoe
Administrator
in
Sickle Cell Society
8 years ago
Circulating Tumor Cells Linked to Worse Prognosis (BREASTCANCER.ORG)...
Circulating tumor cells (CTCs) are cells that break off from a cancer tumor and move into the blood stream. Doctors sometimes test for CTCs to see if breast cancer cells are active in areas of the body besides the breast. Several previous studies have linked the number of CTCs to the prognosis of metastatic
Circulating tumor cells (CTCs) are cells that break off from a cancer tumor and move into the blood stream. Doctors sometimes test for CTCs to see if breast cancer cells are active in areas of the body besides the breast. Several previous studies have linked the number of CTCs to the prognosis of metastatic
Dil2310
in
Breast Cancer India
8 years ago
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