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Continuous Ambulatory Peritoneal Dialysis
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Update 3.3 Years Captivate trial, 4.3 years with CLL and so far so good! Now I have to worry about CV-19 ...
Hello, I am very pleased to report I am still MRD Undetectable ( UMRD) in the blood after 2 years on a Placebo!! I know it is a Placebo because the Imbruvica side effects totally went away. Imbruvica can have some side effects...:). My nails and fingertips have gotten so much better!! I am now
Hello, I am very pleased to report I am still MRD Undetectable ( UMRD) in the blood after 2 years on a Placebo!! I know it is a Placebo because the Imbruvica side effects totally went away. Imbruvica can have some side effects...:). My nails and fingertips have gotten so much better!! I am now
Hoffy
in
CLL Support
4 years ago
Stage 5 kidney disease , 81 years old and having serious problem in Dialysis
Hi, My father is 81 years old and was active, passing urine before he got to know that his creative level had reached to 9.2 . He has this issue in the past and was controlling it with medicine to keep it around 3. As doctor advised and we started dialysis but after 2 dialysis he is very fragile. Now
Hi, My father is 81 years old and was active, passing urine before he got to know that his creative level had reached to 9.2 . He has this issue in the past and was controlling it with medicine to keep it around 3. As doctor advised and we started dialysis but after 2 dialysis he is very fragile. Now
KCRG
in
Kidney Disease
4 years ago
New consultant
After all these years seeing my Lupus consultant I will see a kidney consultant on Thursday for the 1st time since starting dialysis. It'll be weird seeing someone else and talking predominantly about something else from now on rather than just how the lupus is doing. The plan was to alternate between
After all these years seeing my Lupus consultant I will see a kidney consultant on Thursday for the 1st time since starting dialysis. It'll be weird seeing someone else and talking predominantly about something else from now on rather than just how the lupus is doing. The plan was to alternate between
Hidden
in
LUPUS UK
4 years ago
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Fibro referrals
Hello everyone! Does anyone else see a rheumatologist for their fibro? This is a bit of a long story so I’ll try and make it as brief as possible...... Diagnosed with rheumatoid arthritis from a bone scan “showing widespread inflammation”. Consultant Failed to send a letter to my GP informing of new
Hello everyone! Does anyone else see a rheumatologist for their fibro? This is a bit of a long story so I’ll try and make it as brief as possible...... Diagnosed with rheumatoid arthritis from a bone scan “showing widespread inflammation”. Consultant Failed to send a letter to my GP informing of new
Bloop45
in
Fibromyalgia Action UK
4 years ago
How Do I Handle My Severe Stress?
I'm new here. My husband has diabetes and kidney disease with projected dialysis beginning in 2 to 4 years. He's been on a low carb diet, lost a lot of weight, reduced his insulin significantly, when suddenly, almost overnight, his creatinine levels went bad. Now his blood pressure is very high (200
I'm new here. My husband has diabetes and kidney disease with projected dialysis beginning in 2 to 4 years. He's been on a low carb diet, lost a lot of weight, reduced his insulin significantly, when suddenly, almost overnight, his creatinine levels went bad. Now his blood pressure is very high (200
Darlenia
in
Kidney Dialysis
4 years ago
Medicare Part B
My question today is, I'm still on my employer provided Blue Cross/Blue Shield, but a lady at the local dialysis clinic said it would also be beneficial to sign up for medicare part B (I'm already on part A as I am 66 years old). What possible charges will Medicare part B cover that my Blue Cross Blue
My question today is, I'm still on my employer provided Blue Cross/Blue Shield, but a lady at the local dialysis clinic said it would also be beneficial to sign up for medicare part B (I'm already on part A as I am 66 years old). What possible charges will Medicare part B cover that my Blue Cross Blue
RonZone
in
Kidney Dialysis
4 years ago
Diabetic nephropathy
Hi all Iam 54 and diagnosed with diabetic nephropathy 3 years ago my eGfr was around 57 and the Dr said it's border line and not to worry much. All on a sudden within a year it dropped to 36and stayed for about 6months in the same range .in the meanwhile my BP shot up and my sugar was under control.never
Hi all Iam 54 and diagnosed with diabetic nephropathy 3 years ago my eGfr was around 57 and the Dr said it's border line and not to worry much. All on a sudden within a year it dropped to 36and stayed for about 6months in the same range .in the meanwhile my BP shot up and my sugar was under control.never
Antharyami
in
Kidney Disease
4 years ago
Glad you Don't Skip
I'm 53 with congenital kidney issues. Due to my mother having childhood diabetics I was born with just one kidney & a plethora of other urinary issues. As a child I was in & out of the hospital with UTI & other related illness. I understood at a young age that eventually my single kidney would give
I'm 53 with congenital kidney issues. Due to my mother having childhood diabetics I was born with just one kidney & a plethora of other urinary issues. As a child I was in & out of the hospital with UTI & other related illness. I understood at a young age that eventually my single kidney would give
Shelbert66
in
Kidney Dialysis
4 years ago
Questions..
Hey all just came back to work and university which has been helping me distract myself. Thank you all for the kind messages. Now I have a question. My mom was told she had multifocal invasive breast cancer, and they also told us it was a rare type. Oncologist says it is kind of random how she was checked
Hey all just came back to work and university which has been helping me distract myself. Thank you all for the kind messages. Now I have a question. My mom was told she had multifocal invasive breast cancer, and they also told us it was a rare type. Oncologist says it is kind of random how she was checked
janeths466
in
SHARE Metastatic Breast Cancer
4 years ago
CPAP machineto help breathing with coronavirus
I’m new here.. I’m over 70 with reduced lung capacity/pulmonary hypertension. Worried about the effects of covid19 I wonder if there would be any benefit in using my CPAP machine to assist my breathing if I get the virus. The CPAP machine is to prevent sleep apnoea and just pumps air (not oxygen) into
I’m new here.. I’m over 70 with reduced lung capacity/pulmonary hypertension. Worried about the effects of covid19 I wonder if there would be any benefit in using my CPAP machine to assist my breathing if I get the virus. The CPAP machine is to prevent sleep apnoea and just pumps air (not oxygen) into
Dilly1234
in
AF Association
4 years ago
CPAP and ozone
I bought a CPAP ozone cleaning machine. I used this machine Saturday to clean cpap. Shortly after i woke up on sunday i notice that the right side of my face below my ear was swollen. anybody know if this could have been from the ozone? Thank you for any info you might have on this.
I bought a CPAP ozone cleaning machine. I used this machine Saturday to clean cpap. Shortly after i woke up on sunday i notice that the right side of my face below my ear was swollen. anybody know if this could have been from the ozone? Thank you for any info you might have on this.
larry54
in
CLL Support
4 years ago
Question
Does dialysis remove psych meds out of your system when you have it or do they stay?
Does dialysis remove psych meds out of your system when you have it or do they stay?
S_dillow
in
Kidney Disease
4 years ago
Transportation
What do you wish transportation drivers would know about dialysis and/or your health?Tell us here via this survey link: https://www.surveymonkey.com/r/J2PLTJX
What do you wish transportation drivers would know about dialysis and/or your health?Tell us here via this survey link: https://www.surveymonkey.com/r/J2PLTJX
KelliC_NKF
in
Kidney Dialysis
4 years ago
My dad has CKD stage 4.
Hi, I’m so glad to have found this group. My dad has been told today that his kidney disease has gone from stage 3 to stage 4. The doctor said that he thinks my dad will need dialysis in up to a year if things continue. He is 56 and a smoker. I and all the family are absolutely devastated and doing our
Hi, I’m so glad to have found this group. My dad has been told today that his kidney disease has gone from stage 3 to stage 4. The doctor said that he thinks my dad will need dialysis in up to a year if things continue. He is 56 and a smoker. I and all the family are absolutely devastated and doing our
Danidan25
in
Kidney Dialysis
4 years ago
I'm new here
I'm nearing renal failure again & have no wish to restart dialysis. The few loved ones that I've told did not take it well & I'm feeling a bit selfish. I can't seem to find the right way to explain that this is my choice while trying to also comfort them. Any one have any words of wisdom?
I'm nearing renal failure again & have no wish to restart dialysis. The few loved ones that I've told did not take it well & I'm feeling a bit selfish. I can't seem to find the right way to explain that this is my choice while trying to also comfort them. Any one have any words of wisdom?
theresathomas
in
Kidney Dialysis
4 years ago
Starting PD dialysis
Can anyone tell me what to expect with PD dialysis? I am close to starting dialysis. Does your hair fall out and does your skin blister? Thank you.
Can anyone tell me what to expect with PD dialysis? I am close to starting dialysis. Does your hair fall out and does your skin blister? Thank you.
huskiesarenumberone
in
Early CKD Support
4 years ago
CAPD and night sweats
I have been on peritoneal dialysis for nearly two months. While things are going well in general, I am suffering from occasional excessive sweats. I wake up with soaking bedsheets and pillow, soggy hair and general sticky, sweaty body. Can anyone throw light on this condition?
I have been on peritoneal dialysis for nearly two months. While things are going well in general, I am suffering from occasional excessive sweats. I wake up with soaking bedsheets and pillow, soggy hair and general sticky, sweaty body. Can anyone throw light on this condition?
Hypochondriac123
in
Kidney Dialysis
4 years ago
My mom is needing a kidney
My mother has been on dialysis for 4 years. I am needing help to get it out there that we are needing living donor. Can someone help me ?
My mother has been on dialysis for 4 years. I am needing help to get it out there that we are needing living donor. Can someone help me ?
erica406
in
Kidney Disease
4 years ago
I’m Worried
Last Year March 1 2019 To Be Precise, My Hypertensive Daddy Was Very Sick. We Got To The Hospital. The Doctors ran a test on him, his urinalysis was ok. But his ultrasound showed “diminished corticomedullary” and They Said It Was CKD and his Egfr was 35. Then He Did Dialysis Once And After 3 Months
Last Year March 1 2019 To Be Precise, My Hypertensive Daddy Was Very Sick. We Got To The Hospital. The Doctors ran a test on him, his urinalysis was ok. But his ultrasound showed “diminished corticomedullary” and They Said It Was CKD and his Egfr was 35. Then He Did Dialysis Once And After 3 Months
xyz96211
in
Kidney Disease
4 years ago
Soclean 2 cpap Sanitiser
https://www.amazon.co.uk/SoClean-Sanitiser-Equipment-Chemical-Activated/dp/B00FK79XFQ?ref_=ast_sto_dp. Anyone ever heard of or used this sanitiser. There is no way to get it through the NHS, I have asked my consultants to be told NHS would not recommend this because it's not known how it works to sanitise
https://www.amazon.co.uk/SoClean-Sanitiser-Equipment-Chemical-Activated/dp/B00FK79XFQ?ref_=ast_sto_dp. Anyone ever heard of or used this sanitiser. There is no way to get it through the NHS, I have asked my consultants to be told NHS would not recommend this because it's not known how it works to sanitise
LawH1512
in
Asthma Community Forum
4 years ago
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