ITS BEEN A WHILE: I haven't been here... - PKD Charity for A...

PKD Charity for Autosomal Dominant PKD

1,167 members263 posts

ITS BEEN A WHILE

PaigeyPaigeForLife profile image

I haven't been here in a while, dealing with extreme fatigue, I was being tested for everything and reason. The last test I did was a sleep test which came back saying I had mild sleep apnea, I still haven't spoken to my doctor about the result.

I had an appointment with my Nephrologist yesterday, so the day before I called and asked if my doctor was going to perform any physical examination on me or if it was just going to be verbal, and could we do it over the phone, so we did.

Update on Jynarque: I have been taking 45mg and 15mg 11/30/2019 twice a day. I have adjusted well no problems with side effects and my labs are great yay! Yesterday we discuss moving to a higher dosage of 60mg and 30mg. I will start when I receive them.

I hope with Covid 19 spreading, I hope that you guys are taking the necessary precaution as we have a chronic disease, some of us on dialysis and dealing with other illnesses, please be careful. I had labs this morning so I went in very early to avoid the large crowds the did a little shopping then home. Get as much information as possible.

Written by
PaigeyPaigeForLife profile image
PaigeyPaigeForLife
To view profiles and participate in discussions please or .
Read more about...

Not what you're looking for?

You may also like...

Hi Its Snow Castles Here after 3 years.

Lots has happened in the last 3 years since I was last on here. Thought I'd write again just to let...
snowcastles profile image

MY LIFE IN PKD📸

Let me state firstly this is my journey and i am just sharing my experience. A month ago while i...

Due to see a genetics councilor on the 6th October. Feeling scared and confused.

Hi I'm new here. I'll start with some background and I apologise as this may be long winded. I came...

Please Help Me

I’m sorry if this is the wrong forum, I just picked the first one because I’m in agony and can’t...
Wanheda242 profile image

Not a Death Sentence!

I just wanted to give you recently diagnosed PKDers some hope and assurance that this is not a...
JDelve profile image

Moderation team

Susan_101 profile image
Susan_101Moderator
PKDC-Admin profile image
PKDC-AdminPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.