Wondering if anyone can give some advice on how best to tackle a proctitis flare up. There is lots of info online but being a CKD-er (Chronic Kidney Disease) I've found great advice from those living with the condition on HealthUnlocked.
57 year old male. Had my first flare up perhaps 17 years ago. Had a colonoscopy and was told I'd got proctitis. It was treated with rectal foam + suppository and it went away after a month or so.
Fast forward 14 odd years. I'd gotten into eating pears like they were going out of fashion and was really windy on account of it. My back passage started feeling a bit raw and my sense was a definite association with the pears consumption. I then had a flare up: blood on stool and on loo paper and not feeling so good. I sat it out for a while but it only got worse so went to the doc who steered me to a gastroentrologist. Another colonoscopy and told "proctitis". Was given rectal foam (budesonide) and suppositories (mesalazine) and the flare cleared up after about 6 weeks (I continued the treatment for 8 weeks).
The gastro said he wanted to keep me on the mesalazine for life and I declined - one flare up in 14 years didn't strike me as warranting a life medication.
In Jan this year (3 or so years after the above flare) and at the end of a bout of Covid, there was the beginning signs of a flare: some blood on the stool and toilet paper. My doc wrote a script for the meds but before they'd arrived in the pharmacy, the blood stopped, movement was normal, so I didn't take the meds but put them on the shelf.
I mentioned CKD above. Recent science/Kidney authority recommendations indicate that a very low protein, plant-based diet slows or even halts progression of what has been considered, to date, a progressive, non-stop disease which will end in death or dialysis or transplant. About 3 months ago I embarked on such a diet and my consumption of fruit (and veg) naturally skyrocketed. Each day I'd eat plenty of fruit and for lunch would have a large fruit bowl of local/tropical fresh fruit with yoghurt. This to get calories on board. About mid June, 6 weeks or so into this diet, I got another flare. Foam and suppositories again and I'm into my 2nd month of meds as I write.
One other thing I notice from the new diet is that my movements are far softer and more frequent: perhaps 3 a day compared to the 1 morning movement before I went on this veggie/fruit diet. That might put extra "load" on the system?
My sense (and my wife's sense) is that fruit consumption is linked to flare ups. Have folk found this to be the case with proctitis? (Could it be that the Covid-flare was tied up with immune response to Covid attacking an existing weakness??)
(I've not been vaccinated, having had Covid and not quite sure how a vaccine and my kidneys will get on with each other. I read here that some say they link vaccines with a UC flare)
What is the best dietary way to help manage a flare? I'd drink beer and coffee, otherwise its just a vegan/vegatarian diet. I've reduced the amount of fruit I eat but still do eat fruit daily (apples, mixed local/tropical fruit bowl).
Anything else I can do to calm things down?
Thanks for any and all advice!