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A great success by approaching things from the other direction!
I will keep this short, so if any one wants to ask me more about this they can do so. I posted some time ago about approaching RLS from the viewpoint of fixing my sleep problems first, not the RLS. And that is what I have been doing. After more than 6 years of having great difficulty sleeping, with
I will keep this short, so if any one wants to ask me more about this they can do so. I posted some time ago about approaching RLS from the viewpoint of fixing my sleep problems first, not the RLS. And that is what I have been doing. After more than 6 years of having great difficulty sleeping, with
lauraflora
in
Restless Legs Syndrome
7 years ago
CLL in stage zero.
Hello, I am new to this group and wanted to introduce myself. I was diagnosed with CLL two years ago and remain in stage zero. I am 57 years old and they found it by chance when I was having stomach problems. My could go up and down a little but not enough for treatment. The only thing that concerns
Hello, I am new to this group and wanted to introduce myself. I was diagnosed with CLL two years ago and remain in stage zero. I am 57 years old and they found it by chance when I was having stomach problems. My could go up and down a little but not enough for treatment. The only thing that concerns
noeagaman
in
CLL Support
7 years ago
Unmutated Newbie
Hello, all ~ First off, thanks to everyone for sharing information and personal experiences with CLL! I was diagnosed in March of this year, am stage 0, normal karyotype, just barely over the cutoff between mutated/unmutated. My CLL doc considers me intermediate risk due to being unmutated (and positive
Hello, all ~ First off, thanks to everyone for sharing information and personal experiences with CLL! I was diagnosed in March of this year, am stage 0, normal karyotype, just barely over the cutoff between mutated/unmutated. My CLL doc considers me intermediate risk due to being unmutated (and positive
yazbe
in
CLL Support
7 years ago
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what is the time period for take insulin in same place in the body ?
Hi, what is the time period for take insulin in same place in body. can we continue same place everyday? my doc. suggested to take insulin 4 times a day rapid 3 time and lantuas at before bed? present i am taking rapid insulin to stomach and lantus on legs. But i found it's not affecting. can you please
Hi, what is the time period for take insulin in same place in body. can we continue same place everyday? my doc. suggested to take insulin 4 times a day rapid 3 time and lantuas at before bed? present i am taking rapid insulin to stomach and lantus on legs. But i found it's not affecting. can you please
RajpsChai
in
Diabetes India
7 years ago
Over nine years of blogging since transplant for CLL (chronic lymphocytic leukemia) on July 1, 2008
Hi, What a long strange trip it’s been. I just posted one of my old school blog post about my CLL journey: http://bkoffman.blogspot.com Some of you have been along for most of my almost 12 year CLL/ITP/ HSCT/ clinical trial journey and the last 9+ years of blogging about it, and the last 2 + years of
Hi, What a long strange trip it’s been. I just posted one of my old school blog post about my CLL journey: http://bkoffman.blogspot.com Some of you have been along for most of my almost 12 year CLL/ITP/ HSCT/ clinical trial journey and the last 9+ years of blogging about it, and the last 2 + years of
bkoffman
CLL CURE Hero
in
CLL Support
7 years ago
The CLL Tribune is full of articles written by CLL experts and fellow patients.
Hi, Last week we proudly published the latest issue of The CLL Tribune (http://www.cllsociety.org/newsletter/). We're so grateful to the patients and physicians who share their experiences and expertise to enrich our CLL Society community. If you would like to share your story, or have ideas for future
Hi, Last week we proudly published the latest issue of The CLL Tribune (http://www.cllsociety.org/newsletter/). We're so grateful to the patients and physicians who share their experiences and expertise to enrich our CLL Society community. If you would like to share your story, or have ideas for future
bkoffman
CLL CURE Hero
in
CLL Support
7 years ago
2nd kidney
Hello all, I'm new to this app and wanted to see what it's all about.. I'm about to receive my second kidney transplant, in which the first one lasted me 15 years. Don't really have a lot of energy but trying to think of things I could do while at home since I'm not working and on disability. Any ideas
Hello all, I'm new to this app and wanted to see what it's all about.. I'm about to receive my second kidney transplant, in which the first one lasted me 15 years. Don't really have a lot of energy but trying to think of things I could do while at home since I'm not working and on disability. Any ideas
AlexysB
in
Kidney Dialysis
7 years ago
up date
hello again , ok Had a go at the doctor about not hearing me and what I was saying to him , He still saying that I'm not right about the B12 but he has put me in for more tests but can not work out what this is for , Can you help ?? Serum sodium level (XE2q0) 139 mmol/L [133.0-146.0] Serum potassium
hello again , ok Had a go at the doctor about not hearing me and what I was saying to him , He still saying that I'm not right about the B12 but he has put me in for more tests but can not work out what this is for , Can you help ?? Serum sodium level (XE2q0) 139 mmol/L [133.0-146.0] Serum potassium
nicky-nicky159
in
Thyroid UK
7 years ago
Upper left abdomen pain (ibs and ibs-d)
Hi there, I'm 17 and just over a year ago I was diagnosed with IBS. Just recently I've been having quite severe pain under my left breast in the abdomen area near the upper ribs. I do take colofac and buscopan and they don't seem to be helping. Also, for the past month i have been having IBSD non-stop
Hi there, I'm 17 and just over a year ago I was diagnosed with IBS. Just recently I've been having quite severe pain under my left breast in the abdomen area near the upper ribs. I do take colofac and buscopan and they don't seem to be helping. Also, for the past month i have been having IBSD non-stop
Convey
in
IBS Network
7 years ago
Chest infection
Hi everyone, Just getting over a chest infection on antibiotics and steroids. This time the nurse gave me (Braltus) tiotropium to take I don't understand why I'm on this now and have to take it for life... didn't really say why just cause I keep getting chest infections... I hadn't had one for 6 months
Hi everyone, Just getting over a chest infection on antibiotics and steroids. This time the nurse gave me (Braltus) tiotropium to take I don't understand why I'm on this now and have to take it for life... didn't really say why just cause I keep getting chest infections... I hadn't had one for 6 months
GayleM
in
Lung Conditions Community Forum
7 years ago
"New blood cancer study announces 'outstanding' results"
This discusses the results from trials over the last three years, carried out by a group headed by my former consultant: http://www2.le.ac.uk/news/blog/2017-archive/april/outstanding-results-announce-from-new-blood-cancer-study Some funding is from Gilead, as disclosed in this interview: https://medicalresearch.com
This discusses the results from trials over the last three years, carried out by a group headed by my former consultant: http://www2.le.ac.uk/news/blog/2017-archive/april/outstanding-results-announce-from-new-blood-cancer-study Some funding is from Gilead, as disclosed in this interview: https://medicalresearch.com
deveritt
in
CLL Support
7 years ago
The Ambulatory club-Delivery day
Hooray,after a 10 day delay because respiratory nurse forgot to send in Hoof form,the official club cylinders have been delivered. The nice young man from Air Liquide proudly advised me that it was his last day of service with the company and he was leaving to be a self employed electrician.Great thought
Hooray,after a 10 day delay because respiratory nurse forgot to send in Hoof form,the official club cylinders have been delivered. The nice young man from Air Liquide proudly advised me that it was his last day of service with the company and he was leaving to be a self employed electrician.Great thought
skischool
in
Lung Conditions Community Forum
7 years ago
Need advice on treatment options for relapsed SLL
I will be going for a follow-up visit with my specialist at UPENN after new blood work to check for mutations and to discuss treatment options. My questions is: Based upon my SLL parameters what drugs other than ibrutinib may be an option? I am a female 63, diagnosed in 2008 with SLL. I was treated
I will be going for a follow-up visit with my specialist at UPENN after new blood work to check for mutations and to discuss treatment options. My questions is: Based upon my SLL parameters what drugs other than ibrutinib may be an option? I am a female 63, diagnosed in 2008 with SLL. I was treated
ReneeSusan
in
CLL Support
7 years ago
I've just reviewed treatments and am more confused!
The range of medical opinions and videos, combined with and problems reading long posts at the moment (various reasons) are beginning to cause me some degree of anxiety, and adding to my confusion. So I'd like some straight, simple information, if possible. I'm failing to understand this completely despite
The range of medical opinions and videos, combined with and problems reading long posts at the moment (various reasons) are beginning to cause me some degree of anxiety, and adding to my confusion. So I'd like some straight, simple information, if possible. I'm failing to understand this completely despite
deveritt
in
CLL Support
7 years ago
Out of no where
Hi there, new to the community, suffered with IBS for over 4 years now and had taken Colofac Mebeverine.. I stopped taking this around 2 years ago and take a daily peppermint oil tab, up until around 2 months ago I have been mostly ibs free for over a year and one day around a couple of months ago the
Hi there, new to the community, suffered with IBS for over 4 years now and had taken Colofac Mebeverine.. I stopped taking this around 2 years ago and take a daily peppermint oil tab, up until around 2 months ago I have been mostly ibs free for over a year and one day around a couple of months ago the
Sk1nnerB
in
IBS Network
7 years ago
Ibrutinib failure as a result of progressive CLL or Richter's Transformation
This week I'm posting another interview that took place at ASH 2016 with Dr. Adrian Wiestner from the NIH where we discussed ibrutinib failure as a result of progressive CLL or Richter's Transformation. You can view my summary, and watch the interview here: http://cllsociety.org/2017/06/ibrutinib-failure-prog-cll-rt
This week I'm posting another interview that took place at ASH 2016 with Dr. Adrian Wiestner from the NIH where we discussed ibrutinib failure as a result of progressive CLL or Richter's Transformation. You can view my summary, and watch the interview here: http://cllsociety.org/2017/06/ibrutinib-failure-prog-cll-rt
bkoffman
CLL CURE Hero
in
CLL Support
7 years ago
Insulin timings
I am 69 and insulin dependent. I have a very light breakfast but a heavy dinner and use Mixtard 20 units in the morn and 10 units of actrapid in the night. My post prandial blood sugar levels keep changing every night. Should I change anything? Thks.
I am 69 and insulin dependent. I have a very light breakfast but a heavy dinner and use Mixtard 20 units in the morn and 10 units of actrapid in the night. My post prandial blood sugar levels keep changing every night. Should I change anything? Thks.
uuc48
in
Diabetes India
7 years ago
Monoclonal B-cell lymphocytosis or MBL and a new clinical trial for those resistant to ibrutinib and more
Hi, This week I'm posting an interview that took place at ASH 2016 with Dr. Neil Kay from the Mayo Clinic in Rochester, MN where we discussed monoclonal B-cell lymphocytosis or MBL, which is felt to be a precursor to CLL. You can view my summary, and watch the interview here: http://cllsociety.org/2017
Hi, This week I'm posting an interview that took place at ASH 2016 with Dr. Neil Kay from the Mayo Clinic in Rochester, MN where we discussed monoclonal B-cell lymphocytosis or MBL, which is felt to be a precursor to CLL. You can view my summary, and watch the interview here: http://cllsociety.org/2017
bkoffman
CLL CURE Hero
in
CLL Support
7 years ago
COPD / pancreatitis
Because I have pancreatitis and severe COPD I think I have a lot of problems in going to toilet I already use lactulose but doesn't seem to be shifting anything can this affect my breathing as I feel bloated all the time thanks everyonexxx
Because I have pancreatitis and severe COPD I think I have a lot of problems in going to toilet I already use lactulose but doesn't seem to be shifting anything can this affect my breathing as I feel bloated all the time thanks everyonexxx
foxyeric
in
Lung Conditions Community Forum
7 years ago
Ambulatory adventures
The newest member of the ambulatory o2 club Had his first visit out in years to a local pub With pass in hand he went by bus No parking worries it was a plus Some people stared at his Gadget and pipes Some even offered handy wipes But give or take a sniffle or two His Sats stayed up and he didn't turn
The newest member of the ambulatory o2 club Had his first visit out in years to a local pub With pass in hand he went by bus No parking worries it was a plus Some people stared at his Gadget and pipes Some even offered handy wipes But give or take a sniffle or two His Sats stayed up and he didn't turn
skischool
in
Lung Conditions Community Forum
7 years ago
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