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The Ambulatory club-Delivery day
Hooray,after a 10 day delay because respiratory nurse forgot to send in Hoof form,the official club cylinders have been delivered. The nice young man from Air Liquide proudly advised me that it was his last day of service with the company and he was leaving to be a self employed electrician.Great thought
Hooray,after a 10 day delay because respiratory nurse forgot to send in Hoof form,the official club cylinders have been delivered. The nice young man from Air Liquide proudly advised me that it was his last day of service with the company and he was leaving to be a self employed electrician.Great thought
skischool
in
Lung Conditions Community Forum
7 years ago
I've just reviewed treatments and am more confused!
The range of medical opinions and videos, combined with and problems reading long posts at the moment (various reasons) are beginning to cause me some degree of anxiety, and adding to my confusion. So I'd like some straight, simple information, if possible. I'm failing to understand this completely despite
The range of medical opinions and videos, combined with and problems reading long posts at the moment (various reasons) are beginning to cause me some degree of anxiety, and adding to my confusion. So I'd like some straight, simple information, if possible. I'm failing to understand this completely despite
deveritt
in
CLL Support
7 years ago
Out of no where
Hi there, new to the community, suffered with IBS for over 4 years now and had taken Colofac Mebeverine.. I stopped taking this around 2 years ago and take a daily peppermint oil tab, up until around 2 months ago I have been mostly ibs free for over a year and one day around a couple of months ago the
Hi there, new to the community, suffered with IBS for over 4 years now and had taken Colofac Mebeverine.. I stopped taking this around 2 years ago and take a daily peppermint oil tab, up until around 2 months ago I have been mostly ibs free for over a year and one day around a couple of months ago the
Sk1nnerB
in
IBS Network
7 years ago
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Ibrutinib failure as a result of progressive CLL or Richter's Transformation
This week I'm posting another interview that took place at ASH 2016 with Dr. Adrian Wiestner from the NIH where we discussed ibrutinib failure as a result of progressive CLL or Richter's Transformation. You can view my summary, and watch the interview here: http://cllsociety.org/2017/06/ibrutinib-failure-prog-cll-rt
This week I'm posting another interview that took place at ASH 2016 with Dr. Adrian Wiestner from the NIH where we discussed ibrutinib failure as a result of progressive CLL or Richter's Transformation. You can view my summary, and watch the interview here: http://cllsociety.org/2017/06/ibrutinib-failure-prog-cll-rt
bkoffman
CLL CURE Hero
in
CLL Support
7 years ago
Insulin timings
I am 69 and insulin dependent. I have a very light breakfast but a heavy dinner and use Mixtard 20 units in the morn and 10 units of actrapid in the night. My post prandial blood sugar levels keep changing every night. Should I change anything? Thks.
I am 69 and insulin dependent. I have a very light breakfast but a heavy dinner and use Mixtard 20 units in the morn and 10 units of actrapid in the night. My post prandial blood sugar levels keep changing every night. Should I change anything? Thks.
uuc48
in
Diabetes India
7 years ago
Monoclonal B-cell lymphocytosis or MBL and a new clinical trial for those resistant to ibrutinib and more
Hi, This week I'm posting an interview that took place at ASH 2016 with Dr. Neil Kay from the Mayo Clinic in Rochester, MN where we discussed monoclonal B-cell lymphocytosis or MBL, which is felt to be a precursor to CLL. You can view my summary, and watch the interview here: http://cllsociety.org/2017
Hi, This week I'm posting an interview that took place at ASH 2016 with Dr. Neil Kay from the Mayo Clinic in Rochester, MN where we discussed monoclonal B-cell lymphocytosis or MBL, which is felt to be a precursor to CLL. You can view my summary, and watch the interview here: http://cllsociety.org/2017
bkoffman
CLL CURE Hero
in
CLL Support
7 years ago
COPD / pancreatitis
Because I have pancreatitis and severe COPD I think I have a lot of problems in going to toilet I already use lactulose but doesn't seem to be shifting anything can this affect my breathing as I feel bloated all the time thanks everyonexxx
Because I have pancreatitis and severe COPD I think I have a lot of problems in going to toilet I already use lactulose but doesn't seem to be shifting anything can this affect my breathing as I feel bloated all the time thanks everyonexxx
foxyeric
in
Lung Conditions Community Forum
7 years ago
Ambulatory adventures
The newest member of the ambulatory o2 club Had his first visit out in years to a local pub With pass in hand he went by bus No parking worries it was a plus Some people stared at his Gadget and pipes Some even offered handy wipes But give or take a sniffle or two His Sats stayed up and he didn't turn
The newest member of the ambulatory o2 club Had his first visit out in years to a local pub With pass in hand he went by bus No parking worries it was a plus Some people stared at his Gadget and pipes Some even offered handy wipes But give or take a sniffle or two His Sats stayed up and he didn't turn
skischool
in
Lung Conditions Community Forum
7 years ago
Reassessment of Anti-CD20 Therapy in Lymphoid Malignancies: Impact, Limitations, and New Directions (Rituximab, Ofatumumab and Obinutuzumab)
[i]'The addition of anti-CD20 monoclonal antibodies to the treatment of B-cell malignancies has dramatically affected the field as well as the lives of patients. Rituximab in particular has been combined safely with conventional chemotherapy and has resulted in improved overall survival in major histologic
[i]'The addition of anti-CD20 monoclonal antibodies to the treatment of B-cell malignancies has dramatically affected the field as well as the lives of patients. Rituximab in particular has been combined safely with conventional chemotherapy and has resulted in improved overall survival in major histologic
AussieNeil
Partner
in
CLL Support
7 years ago
Peritoneal Dialysis Advice, please!
Hi, writing for my father (59) who is worried about starting dyalisis vs. waiting for a kidney transplant. He is holding out for as long as he can before starting dialysis, in hopes that a kidney will come along. He is extremely tired and can barely stay awake most days. He takes a medication called
Hi, writing for my father (59) who is worried about starting dyalisis vs. waiting for a kidney transplant. He is holding out for as long as he can before starting dialysis, in hopes that a kidney will come along. He is extremely tired and can barely stay awake most days. He takes a medication called
JDR59
in
Kidney Dialysis
7 years ago
Fruends
How do you explain to friends how severe COPD feels and effects our daily lives. When whilst sitting with no oxy on we appear quite well, I have this problem? I'm on ambulatory oxy only, was diagnosed 9 years ago any replies welcome thank you Sam
How do you explain to friends how severe COPD feels and effects our daily lives. When whilst sitting with no oxy on we appear quite well, I have this problem? I'm on ambulatory oxy only, was diagnosed 9 years ago any replies welcome thank you Sam
Samjeff
in
Lung Conditions Community Forum
7 years ago
Hello Kidney Warriors!
My name is Dave White. I'm a veteran of six years of dialysis. I received a kidney transplant from a deceased donor about two years ago, and I honor my donor and his family every day as a patient advocate and health care consultant. I joined this group because dialysis kept me alive for six years, plain
My name is Dave White. I'm a veteran of six years of dialysis. I received a kidney transplant from a deceased donor about two years ago, and I honor my donor and his family every day as a patient advocate and health care consultant. I joined this group because dialysis kept me alive for six years, plain
Hidden
in
Kidney Dialysis
7 years ago
Is this Pretibial Myxedema?
Hi all. I am still waiting for my doctor visit after getting a letter 're: thyroid function test' following my blood tests last week. I have been looking up my symptoms in relation to Hypothyroidism around the web and I seem to have several of them but one of my problems, which I have had for a while
Hi all. I am still waiting for my doctor visit after getting a letter 're: thyroid function test' following my blood tests last week. I have been looking up my symptoms in relation to Hypothyroidism around the web and I seem to have several of them but one of my problems, which I have had for a while
AngieAsh
in
Thyroid UK
7 years ago
ASH 2016: Dr. Seymour on Combination therapies with venetoclax
Hi, I am a big believer in combination therapies for CLL. This week I'm posting an interview on our nonprofit’s website http://cllsociety.org with Dr. John Seymour from the Peter MacCallum Cancer Centre in Melbourne, Australia when we talked at ASH 2016 about combination therapy with venetoclax. You
Hi, I am a big believer in combination therapies for CLL. This week I'm posting an interview on our nonprofit’s website http://cllsociety.org with Dr. John Seymour from the Peter MacCallum Cancer Centre in Melbourne, Australia when we talked at ASH 2016 about combination therapy with venetoclax. You
bkoffman
CLL CURE Hero
in
CLL Support
7 years ago
Newly diagnosed and confused about diet ckd stage 3
Can someone recommend a website that has a diet plan for stage 3 chronic kidney disease? I would appreciate any help. Thanks.
Can someone recommend a website that has a diet plan for stage 3 chronic kidney disease? I would appreciate any help. Thanks.
Grandma1053
in
Early CKD Support
7 years ago
CLLSA Members Meeting March 2017 - Dr Follows presentation available
The meeting was opened by David Innes as chairman of the CLLSA. This was followed by a presentation by Dr Follows talking about CLL - The disease and its treatment in 2017 and beyond. The afternoon session started with facilitated small group discussions. An opportunity to share tips for coping with
The meeting was opened by David Innes as chairman of the CLLSA. This was followed by a presentation by Dr Follows talking about CLL - The disease and its treatment in 2017 and beyond. The afternoon session started with facilitated small group discussions. An opportunity to share tips for coping with
Myrddin
in
CLL Support
7 years ago
BGR-34 use and feedback ( effective )
Dear all, I had been on NOVOMIX 30 insulin 20 in the morning and insulin 18 at night and had changed to glynase MF one tablet in the morning and one in the night. Still my sugar levels were fluctuating between 280-377........(fasting ) I have been using BGR-34 which I ordered through Amazon with some
Dear all, I had been on NOVOMIX 30 insulin 20 in the morning and insulin 18 at night and had changed to glynase MF one tablet in the morning and one in the night. Still my sugar levels were fluctuating between 280-377........(fasting ) I have been using BGR-34 which I ordered through Amazon with some
Gopish
in
Diabetes India
7 years ago
In Scotland ; SMC approves Ibrutinib
Apologies for my tardy post but the Scottish Medicines Consortium has mimicked the earlier NICE decision to approve Ibrutinib as a second line treatment. See extract from their April newsletter: "Also accepted through the PACE process was ibrutinib (Imbruvica). Ibrutinib can be used to treat chronic
Apologies for my tardy post but the Scottish Medicines Consortium has mimicked the earlier NICE decision to approve Ibrutinib as a second line treatment. See extract from their April newsletter: "Also accepted through the PACE process was ibrutinib (Imbruvica). Ibrutinib can be used to treat chronic
Mild-Rover
in
CLL Support
7 years ago
ATTENTION CLL + SLL PATIENTS AND CAREGIVERS
Lymphoma Canada and the CLL Patient Advocacy Group (CLLPAG) is preparing a submission for the pan¬Canadian Oncology Drug Review (pCODR) for: Venetoclax for the treatment of patients with relapsed/refractory chronic lymphocytic leukemia (CLL) or small lymphocytic lymphoma (SLL). The surveys provide
Lymphoma Canada and the CLL Patient Advocacy Group (CLLPAG) is preparing a submission for the pan¬Canadian Oncology Drug Review (pCODR) for: Venetoclax for the treatment of patients with relapsed/refractory chronic lymphocytic leukemia (CLL) or small lymphocytic lymphoma (SLL). The surveys provide
LCAdmin
in
CLL Support
7 years ago
Just saying Hello
It's been a while since I've posted. Just wanted to say hello! It's been 3 months since my COPD diagnosis. My first and so far only exacerbation lasted a while. My doctor changed some meds. I have a new inhaler Anoro Ellipta that seems to work amazingly. He also prescribed Montelukast Sodium. Still doing
It's been a while since I've posted. Just wanted to say hello! It's been 3 months since my COPD diagnosis. My first and so far only exacerbation lasted a while. My doctor changed some meds. I have a new inhaler Anoro Ellipta that seems to work amazingly. He also prescribed Montelukast Sodium. Still doing
Cherrhea60
in
Lung Conditions Community Forum
7 years ago
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