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ATTENTION CLL + SLL PATIENTS AND CAREGIVERS
Lymphoma Canada and the CLL Patient Advocacy Group (CLLPAG) is preparing a submission for the pan¬Canadian Oncology Drug Review (pCODR) for: Venetoclax for the treatment of patients with relapsed/refractory chronic lymphocytic leukemia (CLL) or small lymphocytic lymphoma (SLL). The surveys provide
Lymphoma Canada and the CLL Patient Advocacy Group (CLLPAG) is preparing a submission for the pan¬Canadian Oncology Drug Review (pCODR) for: Venetoclax for the treatment of patients with relapsed/refractory chronic lymphocytic leukemia (CLL) or small lymphocytic lymphoma (SLL). The surveys provide
LCAdmin
in
CLL Support
7 years ago
Just saying Hello
It's been a while since I've posted. Just wanted to say hello! It's been 3 months since my COPD diagnosis. My first and so far only exacerbation lasted a while. My doctor changed some meds. I have a new inhaler Anoro Ellipta that seems to work amazingly. He also prescribed Montelukast Sodium. Still doing
It's been a while since I've posted. Just wanted to say hello! It's been 3 months since my COPD diagnosis. My first and so far only exacerbation lasted a while. My doctor changed some meds. I have a new inhaler Anoro Ellipta that seems to work amazingly. He also prescribed Montelukast Sodium. Still doing
Cherrhea60
in
Lung Conditions Community Forum
7 years ago
Need Suggestions - high platelets, ALP and Creatinine
I have just had my latest blood tests and my platelets are 505, Alkaline Phosphatase 143U/L and Serum Creatinine 1.29 mg/dl, What you will suggest for me, Should I be worried?
I have just had my latest blood tests and my platelets are 505, Alkaline Phosphatase 143U/L and Serum Creatinine 1.29 mg/dl, What you will suggest for me, Should I be worried?
javedsiddiqui
in
CLL Support
7 years ago
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12 hour inhalers ??
Hi are there any comments on any new inhalers that don't have glycomium bromide in them . I have broncheatasis and emphysema excuse spellings if I've got them wrong xx
Hi are there any comments on any new inhalers that don't have glycomium bromide in them . I have broncheatasis and emphysema excuse spellings if I've got them wrong xx
carolg1
in
Lung Conditions Community Forum
7 years ago
Need to say this about anti-depressants and anti-anxiety meds.
There are many people who die from respiratory distress from taking these medications. Such as Celexa, Lexapro, Prozac, or Xanax, Klonopin, Valium., etc. They do suppress our breathing guys!! My husband and I ran across this while researching COPD. I fully realize the benefit one might have from
There are many people who die from respiratory distress from taking these medications. Such as Celexa, Lexapro, Prozac, or Xanax, Klonopin, Valium., etc. They do suppress our breathing guys!! My husband and I ran across this while researching COPD. I fully realize the benefit one might have from
phyllis_liberty
in
COPD Friends
7 years ago
I'm a Diabetic Patient & now my sugar p.p. is 324.
I take glynase mf tablet once a day. Now for my high sugar which medicine can I take?
I take glynase mf tablet once a day. Now for my high sugar which medicine can I take?
Sougata
in
Diabetes India
7 years ago
Copd
Hi every1 Haven't posted on here for a while, hope every1 is doing ok Well I was suppose to go for my aficial breath test on the 9th to properly diagnose my copd The Sergary rang the other day to say they had to put it off cos the nurse was on annual leave so the only appointment I could make was in
Hi every1 Haven't posted on here for a while, hope every1 is doing ok Well I was suppose to go for my aficial breath test on the 9th to properly diagnose my copd The Sergary rang the other day to say they had to put it off cos the nurse was on annual leave so the only appointment I could make was in
Gazbaz2
in
Lung Conditions Community Forum
7 years ago
Australian CLL patients and carers
Australian CLL and SLL patients we need your help. Would anyone be interested in attending a meeting with AbbieVie staff on Monday the 15th of May in Sydney. The company are keen to learn more about how Australians live with CLL and SLL. Lymphoma Australia, The Leukaemia Foundation and another patient
Australian CLL and SLL patients we need your help. Would anyone be interested in attending a meeting with AbbieVie staff on Monday the 15th of May in Sydney. The company are keen to learn more about how Australians live with CLL and SLL. Lymphoma Australia, The Leukaemia Foundation and another patient
lymphomaoz
in
CLL Support
7 years ago
My dads cll
Thanks to everyone on here for all your support just an update: my dad has CLL but it got worse he had to have a blood transfusion. Well his treatment started with Chlorambucil tablets he took 11 each morning for so long and he didn't have any side effects. Then on 27th April he went into City Hospital
Thanks to everyone on here for all your support just an update: my dad has CLL but it got worse he had to have a blood transfusion. Well his treatment started with Chlorambucil tablets he took 11 each morning for so long and he didn't have any side effects. Then on 27th April he went into City Hospital
Julie_kerry
in
CLL Support
7 years ago
Skin issues with CLL and Ibrutinib
I have been on Ibrutinib for over a year. Dosage was reduced because of some side effects, I get petechiae on my arm and under one eye. Has anyone found a remedy for skin issues related to ibrutinib?
I have been on Ibrutinib for over a year. Dosage was reduced because of some side effects, I get petechiae on my arm and under one eye. Has anyone found a remedy for skin issues related to ibrutinib?
doris33
in
CLL Support
7 years ago
Exercise
What exercises is everyone doing that is helping them with breathing problems I find myself really breathless on exertion . I was put on a different inhaler yesterday. Seebri breezhaler in place of my tiotropium has anyone had any good results from this.
What exercises is everyone doing that is helping them with breathing problems I find myself really breathless on exertion . I was put on a different inhaler yesterday. Seebri breezhaler in place of my tiotropium has anyone had any good results from this.
maas
in
Lung Conditions Community Forum
7 years ago
TTI 621 trial
Refractory, 3rd time after 10 mos ibrutinib. Now enrolled in clinical trial w Trillium's TTI 621, expansion phase, no rituxan. My lymph nodes after week three are growing, not shrinking. Any experience w this drug? Best to all. Thank you
Refractory, 3rd time after 10 mos ibrutinib. Now enrolled in clinical trial w Trillium's TTI 621, expansion phase, no rituxan. My lymph nodes after week three are growing, not shrinking. Any experience w this drug? Best to all. Thank you
MelindaBates
in
CLL Support
7 years ago
Newly diagnosed Cll B cell
Hi I was recently diagnosed with Cll B cell I have deletion of the Tp53 and 17p13.1 I am very confused very uncertain and all the info I'm reading I don't really understand. Although I know my Fish test results are unfavorable. Any advise would be greatly appreciated. Stacy
Hi I was recently diagnosed with Cll B cell I have deletion of the Tp53 and 17p13.1 I am very confused very uncertain and all the info I'm reading I don't really understand. Although I know my Fish test results are unfavorable. Any advise would be greatly appreciated. Stacy
StacyA
in
CLL Support
7 years ago
Salt-losing nephropathy in hypothyroidism
Just how many hypo- issues did this patient have? The paper does support the idea that sodium, potassium, magnesium, calcium, phosphate and chloride can all be affected by hypothyroidism. Also wonder, as kidneys perform at least some conversion of T4 to T3, do kidney issues contribute to overall inadequate
Just how many hypo- issues did this patient have? The paper does support the idea that sodium, potassium, magnesium, calcium, phosphate and chloride can all be affected by hypothyroidism. Also wonder, as kidneys perform at least some conversion of T4 to T3, do kidney issues contribute to overall inadequate
helvella
Thyroid UK
in
Thyroid UK
7 years ago
I have had GAD, MDD, and Insomnia before COPD and have read about most medications for these conditions What helps you?
Some of the meds I take have shortness of breath as a side-effect. Benzos all have a risk I took Restoril for 2 days last week and couldn't breathe and had to go back on oxygen. I take a TCA for depression and they too cause SOB and SSRI's are better. Can anyone tell me what they are using for these
Some of the meds I take have shortness of breath as a side-effect. Benzos all have a risk I took Restoril for 2 days last week and couldn't breathe and had to go back on oxygen. I take a TCA for depression and they too cause SOB and SSRI's are better. Can anyone tell me what they are using for these
vmrdoug
in
COPD Friends
7 years ago
Results of stools and bloods
Hello All, I have been suffering for sometime now and finally went to the drs for further tests. They did blood tests and a calprotectin test on my stools. Bloods all came back normal, no celiac, iron levels fine, red count fine, white count fine, thyroid fine. Calprotectin test showed levels of 20.
Hello All, I have been suffering for sometime now and finally went to the drs for further tests. They did blood tests and a calprotectin test on my stools. Bloods all came back normal, no celiac, iron levels fine, red count fine, white count fine, thyroid fine. Calprotectin test showed levels of 20.
Hidden
in
IBS Network
7 years ago
FCR, IBRUTINIB, VENETOCLAX what next...Stem Cell or CAR-T
Happy Easter everyone! So on this journey since Dec. 2010 and we can't seem to hit that remission "sweet spot" that we read about in the stats or trials - is it us or just the reality of how everyone's battle is unique in the world of CLL? We started V at the end of Feb. 2017 (as I posted our experience
Happy Easter everyone! So on this journey since Dec. 2010 and we can't seem to hit that remission "sweet spot" that we read about in the stats or trials - is it us or just the reality of how everyone's battle is unique in the world of CLL? We started V at the end of Feb. 2017 (as I posted our experience
NMMP
in
CLL Support
7 years ago
My BG Test after 3 months
Today I went for my regular sugar checkup. I was very much surprised as everything was under control. As I was not hoping the results to be that much good. HBA1C is 5.6(last time it was 6.1). Creatinine is normal and Urine test is also normal. I was so happy that I had a cup of
rasmalai
today.
Today I went for my regular sugar checkup. I was very much surprised as everything was under control. As I was not hoping the results to be that much good. HBA1C is 5.6(last time it was 6.1). Creatinine is normal and Urine test is also normal. I was so happy that I had a cup of
rasmalai
today.
xxxy2j
in
Diabetes India
7 years ago
Add on
At the moment I'm on fostair 200/6 atrovent ventolin montelukast for my asthma I've just had a new medication prescribed Uniphyllin as an other add on has anyone any views on it. Thanks
At the moment I'm on fostair 200/6 atrovent ventolin montelukast for my asthma I've just had a new medication prescribed Uniphyllin as an other add on has anyone any views on it. Thanks
Lyngal
in
Lung Conditions Community Forum
7 years ago
IBS and Stress
I suffer with both diverticular disease and IBS I have just finished a course of anti biotics for my diverticular and when they were almost done my IBS kicked in Lucky me I am now going through the usual cramps,wind,diareoha and constipation alternately I am taking Colofac and paracetamol A hot water
I suffer with both diverticular disease and IBS I have just finished a course of anti biotics for my diverticular and when they were almost done my IBS kicked in Lucky me I am now going through the usual cramps,wind,diareoha and constipation alternately I am taking Colofac and paracetamol A hot water
SillySally68
in
IBS Network
7 years ago
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