Hello, all ~
First off, thanks to everyone for sharing information and personal experiences with CLL!
I was diagnosed in March of this year, am stage 0, normal karyotype, just barely over the cutoff between mutated/unmutated. My CLL doc considers me intermediate risk due to being unmutated (and positive for the usual associated wonky blood stuff). I'm very strong physically (been a yoga instructor since 1979, always been a clean eater, overall healthy lifestyle) ~ as such, my doc thinks it's likely I may avoid treatment for 10 years!
Even with things being in an early stage, my concern is my unmutated status ~ I'm pretty young to have CLL (57), so even if I'm able to hold off treatment for 10 years, I'll still be a pretty young CLL'er at 67, yes?
So, here's my question ~ does anyone know of someone with unmutated CLL who never needed treatment?
Thanks in advance for your input!