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Kidney diet
Hello, this is my first post on this site. I lived with a cadaver kidney transplant for almost 30 years. I am now on hemodialysis. Does anyone know how much potassium and phosorus is recommended per day? Thank you,
Hello, this is my first post on this site. I lived with a cadaver kidney transplant for almost 30 years. I am now on hemodialysis. Does anyone know how much potassium and phosorus is recommended per day? Thank you,
Pennstate
in
Kidney Dialysis
6 years ago
Vitamin question
I was diagnosed with CLL and 2015. I am 55 years old. Want to know if it’s OK to take a vitamin B complex.
I was diagnosed with CLL and 2015. I am 55 years old. Want to know if it’s OK to take a vitamin B complex.
Breezie44
in
CLL Support
6 years ago
Newly diagnosed CLL
I am a 63 yo female just diagnosed with Stage 0 CLL after routine annual CBC. Negative CT (done because of multifactorial fatigue) and mutation profile in good prognostic category. Watch and wait ... labs in 3 months. My plan now is to improve overall health in various ways (wt loss, optimal nutrition
I am a 63 yo female just diagnosed with Stage 0 CLL after routine annual CBC. Negative CT (done because of multifactorial fatigue) and mutation profile in good prognostic category. Watch and wait ... labs in 3 months. My plan now is to improve overall health in various ways (wt loss, optimal nutrition
CLLmoxie
in
CLL Support
6 years ago
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I have CLL
I'm new I found out in Sept 2017 that I have CLL I'm 51 I am so scare I have been to two cancer doctor the first doctor said that I have had it for a while he didn't want to do any treatment right now. So my kids and husband wanted me to get a second opinion so I did and she said I was stage 1 and she
I'm new I found out in Sept 2017 that I have CLL I'm 51 I am so scare I have been to two cancer doctor the first doctor said that I have had it for a while he didn't want to do any treatment right now. So my kids and husband wanted me to get a second opinion so I did and she said I was stage 1 and she
LUCYLU51
in
CLL Support
6 years ago
Hello from Ali
Hello everyone I just came to know about this site few days ago. I was diagnosed with CLL in Feb 2017 at the age of 37. Had no visible symptoms, just the routine blood check led to this. My WBC was 23 at that time. My oncologist said that I am fine for the time being and I can eat anything I want and
Hello everyone I just came to know about this site few days ago. I was diagnosed with CLL in Feb 2017 at the age of 37. Had no visible symptoms, just the routine blood check led to this. My WBC was 23 at that time. My oncologist said that I am fine for the time being and I can eat anything I want and
alpha-b
in
CLL Support
6 years ago
Starting CAR-T therapy for my relapsing CLL
Friends and CLL Society supporters: This isn't easy. After consulting with my wife, my family, my closest friends and key supporters of the CLL Society, I decided it was best to again share details of my personal battle with CLL in a very public way. After a wonderful run of 69 months on Ibrutinib,
Friends and CLL Society supporters: This isn't easy. After consulting with my wife, my family, my closest friends and key supporters of the CLL Society, I decided it was best to again share details of my personal battle with CLL in a very public way. After a wonderful run of 69 months on Ibrutinib,
bkoffman
CLL CURE Hero
in
CLL Support
6 years ago
Adult HSP iga nephropathy
Hello So i have been given a diagnosis of adult HSP vasculitis with associated kidney damage. Current treatment is to protect the kidneys from further damage and im already hopefully modifying my diet as recommended. Ie removing salt. As this seems to be a childhood diese and short lived i wondered
Hello So i have been given a diagnosis of adult HSP vasculitis with associated kidney damage. Current treatment is to protect the kidneys from further damage and im already hopefully modifying my diet as recommended. Ie removing salt. As this seems to be a childhood diese and short lived i wondered
kc4t
in
Vasculitis UK
6 years ago
CLL just diagnosed
Hi, I am happy to have joined this group. I am also new to this site and would appreciate any guidance anyone may have. I am 44 and was diagnosed with CLL less than a month ago. I caught a virus in December and my whole neck down to my collar bone was in small painfil glands. WBC were at first 16 then
Hi, I am happy to have joined this group. I am also new to this site and would appreciate any guidance anyone may have. I am 44 and was diagnosed with CLL less than a month ago. I caught a virus in December and my whole neck down to my collar bone was in small painfil glands. WBC were at first 16 then
SaEva
in
CLL Support
6 years ago
Help please!!
Hi please can someone help me! I started having lower abdo pain one month ago. Pain during sex and pink discharge. A few days later it turned to blood then brown blood. Now its red with clots sorry for tmi!! Ive got severe pain under my right rib enough to make me cry. My tummy is bloated and I can hear
Hi please can someone help me! I started having lower abdo pain one month ago. Pain during sex and pink discharge. A few days later it turned to blood then brown blood. Now its red with clots sorry for tmi!! Ive got severe pain under my right rib enough to make me cry. My tummy is bloated and I can hear
Hidden
in
My Ovacome
6 years ago
Pain after laparoscopy
Had laparoscopy and hysteroscopy + polyp removal last week. All fine (tubes ended up being clear, so no removal), but since the op, I've been experiencing some bad pain down the left wall of my vagina, plus bacterial infection symptoms seem to be returning. Starting to think I have a cyst/abscess, that
Had laparoscopy and hysteroscopy + polyp removal last week. All fine (tubes ended up being clear, so no removal), but since the op, I've been experiencing some bad pain down the left wall of my vagina, plus bacterial infection symptoms seem to be returning. Starting to think I have a cyst/abscess, that
Tomorrow_1
in
Fertility Network UK
6 years ago
Front line treatment options for wait and watch patients
I am CLL , Dx in 2013 and not yet started any treatment . My lymphocyte count has gone up to 1.50 lakhs, mild enlargement of spleen and a few lymph nodes in stomach and neck .No fever , No night sweat, No fatigue. CD 38 negative , Zap 70 negative. I am feeling very tense due to any possible damage
I am CLL , Dx in 2013 and not yet started any treatment . My lymphocyte count has gone up to 1.50 lakhs, mild enlargement of spleen and a few lymph nodes in stomach and neck .No fever , No night sweat, No fatigue. CD 38 negative , Zap 70 negative. I am feeling very tense due to any possible damage
venk_46
in
CLL Support
6 years ago
Does anyone with CLL or cancer, part of "Downwinder" radiation exposure from 1950s.
I lived in southern Utah in 1953-1954 during nuclear bomb testing by US government north of Las Vegas NV. All my family who lived with me are now deceased from cancer. US government has assistance program for those who developed cancer, but for some unknown reason exclude CLL. Maybe because there are
I lived in southern Utah in 1953-1954 during nuclear bomb testing by US government north of Las Vegas NV. All my family who lived with me are now deceased from cancer. US government has assistance program for those who developed cancer, but for some unknown reason exclude CLL. Maybe because there are
Big_Dee
in
CLL Support
6 years ago
Myasthenia Gravis or copd
Has anyone been diagnosed with copd only to later find out that you have myasthenia gravis?
Has anyone been diagnosed with copd only to later find out that you have myasthenia gravis?
Bernita
in
COPD Friends
6 years ago
Second cancer from CLL???
Hi. My name is Dianne and have had CLL for about 5 years. Thanks God no treatment needed yet. Unfortunately I also hace CLL in my linguial tonsils and just went for a check up yesterday to see how they are doing. Well I will be going for a biopsy on Monday as my doctor wants to confirm it is just the
Hi. My name is Dianne and have had CLL for about 5 years. Thanks God no treatment needed yet. Unfortunately I also hace CLL in my linguial tonsils and just went for a check up yesterday to see how they are doing. Well I will be going for a biopsy on Monday as my doctor wants to confirm it is just the
dcfrey
in
CLL Support
6 years ago
Find a Cure for Me - BBC 12 Feb
If you follow CLLSA on Facebook or Twitter or listen to BBC Radio 4 – you may already know that award-winning investigative journalist Simon Cox this week aired a report on his quest for a cure for CLL following his diagnosis at the age of 37. If you missed it, you can catch it on http://www.bbc.co.uk
If you follow CLLSA on Facebook or Twitter or listen to BBC Radio 4 – you may already know that award-winning investigative journalist Simon Cox this week aired a report on his quest for a cure for CLL following his diagnosis at the age of 37. If you missed it, you can catch it on http://www.bbc.co.uk
Myrddin
in
CLL Support
6 years ago
What is CRISPR gene editing, and how does it work?
There's been considerable interest in the potential for gene editing for curing diseases such as CLL, so this article by Merlin Crossley, Deputy Vice-Chancellor Academic and Professor of Molecular Biology, UNSW should be of interest: https://theconversation.com/what-is-crispr-gene-editing-and-how-does-it-work
There's been considerable interest in the potential for gene editing for curing diseases such as CLL, so this article by Merlin Crossley, Deputy Vice-Chancellor Academic and Professor of Molecular Biology, UNSW should be of interest: https://theconversation.com/what-is-crispr-gene-editing-and-how-does-it-work
AussieNeil
Partner
in
CLL Support
6 years ago
Treatment for cll stage 4 with 17p deletion for 63 year old women?
Hello my mother diagnosed with cll stage 4 with 17p deletion in December 2017. She is taking chlorambucil. But in the blood test lymphocytes are increased. Physician said her survival is only 1 year. I'm much worried. She also recommended ibrutinib. But very expensive. Actually I cannot afford. Shall
Hello my mother diagnosed with cll stage 4 with 17p deletion in December 2017. She is taking chlorambucil. But in the blood test lymphocytes are increased. Physician said her survival is only 1 year. I'm much worried. She also recommended ibrutinib. But very expensive. Actually I cannot afford. Shall
Poojaa
in
CLL Support
6 years ago
Cancer-Related Fatigue: Syndrome Not Symptom- by Leukemia & Lymphoma Society
The Leukemia & Lymphoma Society http://www.lls.org/ has published an excellent audio cast on fatigue, that has a different perspective than many of the Patient Power and ONCLive videos on CLL & Fatigue and many suggestions of what we can do to improve our fatigue without pharmaceuticals: (LLS is a USA
The Leukemia & Lymphoma Society http://www.lls.org/ has published an excellent audio cast on fatigue, that has a different perspective than many of the Patient Power and ONCLive videos on CLL & Fatigue and many suggestions of what we can do to improve our fatigue without pharmaceuticals: (LLS is a USA
lankisterguy
Volunteer
in
CLL Support
6 years ago
MTX 20mg feeling sick
Hi there, I’m 43 and been on MTX since Sept but only just on higher dose of 20mg. Have felt nauseaous all week, not just on Tuesdays. Is this normal or do I have a bug? I’ve been popping pills Lansoprazole and Colofac in the hope it will make me feel better. But keeps coming back. Any advice would be
Hi there, I’m 43 and been on MTX since Sept but only just on higher dose of 20mg. Have felt nauseaous all week, not just on Tuesdays. Is this normal or do I have a bug? I’ve been popping pills Lansoprazole and Colofac in the hope it will make me feel better. But keeps coming back. Any advice would be
WozzaM
in
NRAS
6 years ago
A wee drink i found after exercise to help my COPD and mucous
Since having COPD diagnosed 24 months ago i was already 3 months of the cigarettes before the diagnosis which now means i am 27 month smoke free. Since that time i have attempted to live a fitter life and it is only now coming together, anyone who thinks two years quit, is fantastic, it is for your health
Since having COPD diagnosed 24 months ago i was already 3 months of the cigarettes before the diagnosis which now means i am 27 month smoke free. Since that time i have attempted to live a fitter life and it is only now coming together, anyone who thinks two years quit, is fantastic, it is for your health
Boab
in
COPD Friends
6 years ago
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