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Question about Sll/CLL
I am trying to figure out what the life expectancy is with Sll and CLL I’m 46 and was told I have sll a few weeks ago I have no symptoms. I have seen on the internet 2 things. Question 1. I have seen on the internet if you have a segment in chromosome 13 missing your prognosis is very good with a medium
I am trying to figure out what the life expectancy is with Sll and CLL I’m 46 and was told I have sll a few weeks ago I have no symptoms. I have seen on the internet 2 things. Question 1. I have seen on the internet if you have a segment in chromosome 13 missing your prognosis is very good with a medium
Ironj
in
CLL Support
6 years ago
New to this site
Hi everyone, Just found out about this site and I’m so happy to know I’m not alone. I was diagnosed with CLL sept 2016. Very early not even stage one but I was 40 y/o which is a little troubling. I haven’t heard much talk about marijuana as I live in a state where medical marijuana is allowed. I have
Hi everyone, Just found out about this site and I’m so happy to know I’m not alone. I was diagnosed with CLL sept 2016. Very early not even stage one but I was 40 y/o which is a little troubling. I haven’t heard much talk about marijuana as I live in a state where medical marijuana is allowed. I have
Pizzaboy
in
CLL Support
6 years ago
Clinical Trials for Blood Cancers: Webinar Wednesday, April 18, 2018 12:00 pm to 1:00 pm Eastern Time USA
How Can Participating in a Clinical Trial Help Me? http://links.leukemia-lymphoma.mkt7024.com/ctt?kn=6&ms=MzM3NjA0OTQS1&r=NzIwMTI5NTUzOTQzS0&b=0&j=MTI2MDU4NTE5MwS2&mt=1&rt=0 https://www.cancercoachlive.com/app/signup/LLS_PtEd_041818/formPage/0 The Leukemia & Lymphoma Society invites you to join a
How Can Participating in a Clinical Trial Help Me? http://links.leukemia-lymphoma.mkt7024.com/ctt?kn=6&ms=MzM3NjA0OTQS1&r=NzIwMTI5NTUzOTQzS0&b=0&j=MTI2MDU4NTE5MwS2&mt=1&rt=0 https://www.cancercoachlive.com/app/signup/LLS_PtEd_041818/formPage/0 The Leukemia & Lymphoma Society invites you to join a
lankisterguy
Volunteer
in
CLL Support
6 years ago
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I am confused on what we can post on this site.
I feel bad for all people with Cll Leukemia. I sometimes posted things that were natural should we just never post anything like that. When I see someone post something that is natural it makes me feel better that maybe one of us will be healed from God naturally. I feel really bad after someone tells
I feel bad for all people with Cll Leukemia. I sometimes posted things that were natural should we just never post anything like that. When I see someone post something that is natural it makes me feel better that maybe one of us will be healed from God naturally. I feel really bad after someone tells
hmo1
in
CLL Support
6 years ago
Kidney Transplant after Liver Transplant
HI Has anyone had to have a kidney transplant after having a new liver. My husband had a liver transplant in Nov 2017 and his kidneys do not seem to have recovered. Worst case scenario is a kidney transplant which is freaking him out. Would be grateful for any advice?
HI Has anyone had to have a kidney transplant after having a new liver. My husband had a liver transplant in Nov 2017 and his kidneys do not seem to have recovered. Worst case scenario is a kidney transplant which is freaking him out. Would be grateful for any advice?
Kimlescam
in
British Liver Trust
6 years ago
ZAP-70 information
Hi All, I am posting from the Cafe Kerouac In Columbus OH awaiting another 12 week monitoring session for my extended Clinical Trial using PCI-32765 (Ibrutinib). It has been 6 years and 9 months since I started therapy. From an anxious post by an HU CLL forum member over a high ZAP-70 report I got inspired
Hi All, I am posting from the Cafe Kerouac In Columbus OH awaiting another 12 week monitoring session for my extended Clinical Trial using PCI-32765 (Ibrutinib). It has been 6 years and 9 months since I started therapy. From an anxious post by an HU CLL forum member over a high ZAP-70 report I got inspired
ThreeWs
in
CLL Support
6 years ago
For Cas and BLF friends 🧚♀️🌈
Let’s enjoy a day with a view 🌷💕 Those pottery rabbits are shiny little guards!!😃 Aria sits behind them at night thinking they are in her way I think. The lawn in front of the block of flats is beautiful! Makes me think Wimbledon isn’t so far ahead. I am glad I have a ground floor flat so I can
Let’s enjoy a day with a view 🌷💕 Those pottery rabbits are shiny little guards!!😃 Aria sits behind them at night thinking they are in her way I think. The lawn in front of the block of flats is beautiful! Makes me think Wimbledon isn’t so far ahead. I am glad I have a ground floor flat so I can
Hidden
in
Lung Conditions Community Forum
6 years ago
Itching
Does anyone know if tramodol Pregablin or the Patch make your skin itch , I scratch like hell just wondered
Does anyone know if tramodol Pregablin or the Patch make your skin itch , I scratch like hell just wondered
beady3
in
Restless Legs Syndrome
6 years ago
Can someone give me some advice.
I got on this forum because of my niece. She is the one that has the kidneys failing. She is in the hospital and just started dialysis. The dialysis is not cleaning her blood. They want to do a blood transfusion. The question is will this change the results of a kidney transplant, will the new kidney
I got on this forum because of my niece. She is the one that has the kidneys failing. She is in the hospital and just started dialysis. The dialysis is not cleaning her blood. They want to do a blood transfusion. The question is will this change the results of a kidney transplant, will the new kidney
Garianne
in
Dialysis Support
6 years ago
LLS Webinar: What’s on the Horizon for Chronic Lymphocytic Leukemia (CLL)?
Thursday, May 8, 2018, 12-130 PM. Details are available at www.LLS.org/programs Presented by: Matthew S. Davids, MD, MMSc Assistant Professor of Medicine, Harvard Medical School Director, Lymphoma BioBank Associate Director, CLL Center Dana-Farber Cancer Institute Boston, MA
Thursday, May 8, 2018, 12-130 PM. Details are available at www.LLS.org/programs Presented by: Matthew S. Davids, MD, MMSc Assistant Professor of Medicine, Harvard Medical School Director, Lymphoma BioBank Associate Director, CLL Center Dana-Farber Cancer Institute Boston, MA
wmay13241
in
CLL Support
6 years ago
grateful for advice on hospital discharge where Mum requires possible nursing care rather than residential care
Happy Belated Easter everyone from Sue in New Zealand Can I ask a question? Does anyone know anything about how a hospital discharge works My lovely Mum is in hospital following 2 falls with a variety of complaints including newly diagnosed COPD, a broken shoulder and cellulitis . Do you know whether
Happy Belated Easter everyone from Sue in New Zealand Can I ask a question? Does anyone know anything about how a hospital discharge works My lovely Mum is in hospital following 2 falls with a variety of complaints including newly diagnosed COPD, a broken shoulder and cellulitis . Do you know whether
suebelle
in
Lung Conditions Community Forum
6 years ago
Round and round, hi!
Ever increasing/decreasing circles? Been suffering with coughs for around 3-4 years now. Around 1.5 years ago I was referred to ENT where I was diagnosed with nasal polyps, 1 septoplasty and polypectomy later and I get diagnosed with asthma!!! My symptoms start as a cough, leading to a crackle and wheeze
Ever increasing/decreasing circles? Been suffering with coughs for around 3-4 years now. Around 1.5 years ago I was referred to ENT where I was diagnosed with nasal polyps, 1 septoplasty and polypectomy later and I get diagnosed with asthma!!! My symptoms start as a cough, leading to a crackle and wheeze
m0bnd
in
Lung Conditions Community Forum
6 years ago
A global snapshot of leukemia incidence
FROM THE LANCET HAEMATOLOGY: [i]"Chronic lymphocytic leukemia incidence was highest for men in Canada (4.5 per 100,000), Ireland and Lithuania (4.4), and Slovakia (4.3). The incidence was highest for women in Lithuania (2.5), Canada (2.3), and Slovakia and Denmark (2.1). Incidence in the United States
FROM THE LANCET HAEMATOLOGY: [i]"Chronic lymphocytic leukemia incidence was highest for men in Canada (4.5 per 100,000), Ireland and Lithuania (4.4), and Slovakia (4.3). The incidence was highest for women in Lithuania (2.5), Canada (2.3), and Slovakia and Denmark (2.1). Incidence in the United States
AussieNeil
Partner
in
CLL Support
6 years ago
CAR-T update and more
Hi, Been busy and tired, trying to get ahead of what I need to do while spending many hours at the hospital at the Seattle Cancer Care Alliance (SCCA). Writing this with fludarabine and cyclophosphamide running through my PICC line to make room for the CAR-T cells on March 22. I have tried to keep the
Hi, Been busy and tired, trying to get ahead of what I need to do while spending many hours at the hospital at the Seattle Cancer Care Alliance (SCCA). Writing this with fludarabine and cyclophosphamide running through my PICC line to make room for the CAR-T cells on March 22. I have tried to keep the
bkoffman
CLL CURE Hero
in
CLL Support
6 years ago
Food vs supplements
My oncologist agrees with Green tea and turmeric being beneficial for CLL but she prefers using turmeric powder in food and drinking green tea as opposed to supplements that may not have contents regulated and also contain questionable fillers etc. I had purchased 1 bottle of DECAFFEINATED green tea
My oncologist agrees with Green tea and turmeric being beneficial for CLL but she prefers using turmeric powder in food and drinking green tea as opposed to supplements that may not have contents regulated and also contain questionable fillers etc. I had purchased 1 bottle of DECAFFEINATED green tea
CLLmoxie
in
CLL Support
6 years ago
Chronic fatigue trial results 'not robust', new study says
Just seen this article on the BBC News site - I imagine there will be similar on other sites.
[i]Chronic fatigue trial results 'not robust', new study says[/i]
[i]Fresh analysis of a controversial study, which recommended exercise and psychological therapy for people with chronic fatigue syndrome
Just seen this article on the BBC News site - I imagine there will be similar on other sites.
[i]Chronic fatigue trial results 'not robust', new study says[/i]
[i]Fresh analysis of a controversial study, which recommended exercise and psychological therapy for people with chronic fatigue syndrome
helvella
Thyroid UK
in
Thyroid UK
6 years ago
What a day
Hi all, well what a nightmare day today. Work was very busy today and stupidly I helped a little more than I should, lifted a box I would have had no problem with 6 months ago. Ended up sat in the office for 3 hours gasping for air, inhalers did nothing and the panic did not help in the slightest. Frightened
Hi all, well what a nightmare day today. Work was very busy today and stupidly I helped a little more than I should, lifted a box I would have had no problem with 6 months ago. Ended up sat in the office for 3 hours gasping for air, inhalers did nothing and the panic did not help in the slightest. Frightened
keith9876
in
Lung Conditions Community Forum
6 years ago
Paper showing low T3 in Chronic Fatigue Syndrome
A new paper in full showing that in CFS there is often low FT3. Suggests trying T3 supplementation to see if this helps. More grist to the mill. Front. Endocrinol., 20 March 2018 | https://doi.org/10.3389/fendo.2018.00097 Higher Prevalence of “Low T3 Syndrome” in Patients With Chronic Fatigue Syndrome
A new paper in full showing that in CFS there is often low FT3. Suggests trying T3 supplementation to see if this helps. More grist to the mill. Front. Endocrinol., 20 March 2018 | https://doi.org/10.3389/fendo.2018.00097 Higher Prevalence of “Low T3 Syndrome” in Patients With Chronic Fatigue Syndrome
diogenes
in
Thyroid UK
6 years ago
Help with understanding my results please
Hi, finally had my blood work results. GP says my results are not normal but they’re fine... Any help/advice/analysis would be greatly appreciated; Serum Creatinine 56 umol/L (60-100) CRP 20mg/L (0-6) FT4 16.6 (12.0-22.0) TSH 0.76mU/L (0.27-4.20) Vitamin D 31 nmol/L (30-170) ANA positive low titre 1/
Hi, finally had my blood work results. GP says my results are not normal but they’re fine... Any help/advice/analysis would be greatly appreciated; Serum Creatinine 56 umol/L (60-100) CRP 20mg/L (0-6) FT4 16.6 (12.0-22.0) TSH 0.76mU/L (0.27-4.20) Vitamin D 31 nmol/L (30-170) ANA positive low titre 1/
Pepperpatty
in
Thyroid UK
6 years ago
Wife of CLL husband
My husband was diagnosed with CLL 7 years ago And went in remission after receiving chemo for six months The leukemia came back last year and now he is on the oral drug and he has had numerous respiratory infections and is receiving the IG factor monthly It is hard living like this not knowing if the
My husband was diagnosed with CLL 7 years ago And went in remission after receiving chemo for six months The leukemia came back last year and now he is on the oral drug and he has had numerous respiratory infections and is receiving the IG factor monthly It is hard living like this not knowing if the
Marn1
in
CLL Support
6 years ago
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