If you follow CLLSA on Facebook or Twitter or listen to BBC Radio 4 – you may already know that award-winning investigative journalist Simon Cox this week aired a report on his quest for a cure for CLL following his diagnosis at the age of 37. If you missed it, you can catch it on bbc.co.uk/programmes/b09qcybv or listen to BBC Radio 4 at 21:00 hrs on Monday 12th February when the report will be repeated.
The report is well worth a listen. As well as detailing Simon's diagnosis, he interviews Prof. Peter Hillmen who provides details of the CLARITY trial – which has been described as producing "remarkable" results and a "paradigm shift" in treatment. Simon's 30-minute report has helped to shine a light on CLL and has attracted a great response from many people on social media who have either been diagnosed with CLL themselves or have loved ones living with the disease.
A BBC article accompanies the broadcast which you can read at bbc.co.uk/news/stories-4292...
Since the broadcast, we have been in touch with Simon to identify his interest in meeting and explore ways in which we might be able to work together to continue to highlight the needs of people with CLL.
The CLARITY trial detailed in the report is being led by Prof. Peter Hillmen who will be speaking at our Leeds members conference on 23rd March. The conference is now full but if you'd like to join a waiting list for cancellations please either login to our website where you can add your name to the waiting list or email firstname.lastname@example.org with your name and the name of anyone who will be attending with you and details of any special dietary requirements.
If you are unable to get a place at the conference we will be filming the presentations and hope to be able to post them on our website soon after the conference.