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Concernef
i had yearly mammogram June 11 was about a month late because of wreck , recalled July 2 with concerns of finding lymph node they said 4 inches but think they meant 4 cm , my concern is my sister passed away from breast cancer metastasis , is their a blood test that can show if cancer cells present
i had yearly mammogram June 11 was about a month late because of wreck , recalled July 2 with concerns of finding lymph node they said 4 inches but think they meant 4 cm , my concern is my sister passed away from breast cancer metastasis , is their a blood test that can show if cancer cells present
Rjbp1950
in
CLL Support
6 years ago
CLLSA and Leukaemia Care Joint Response to NHS England regarding Ibrutinib Prescribing as per NICE TA
This is the letter sent to Professor Peter Clarke on 2nd July 2018 for the review of Ibrutinib prescribing.
Professor Peter Clark
Chair NHS England Chemotherapy Clinical Reference Group and Clinical Lead for the Cancer Drugs Fund, Specialised Commissioning NHS England
CLLSA and Leukaemia
This is the letter sent to Professor Peter Clarke on 2nd July 2018 for the review of Ibrutinib prescribing.
Professor Peter Clark
Chair NHS England Chemotherapy Clinical Reference Group and Clinical Lead for the Cancer Drugs Fund, Specialised Commissioning NHS England
CLLSA and Leukaemia
Jm954
Administrator
in
CLL Support
6 years ago
Dual organ transplant better than one?
we've heard that, since he is diabetic, he might get a kidney transplant sooner if he gets on the list for both a pancreas and a kidney transplant. Is that true? Has anyone experienced that?
we've heard that, since he is diabetic, he might get a kidney transplant sooner if he gets on the list for both a pancreas and a kidney transplant. Is that true? Has anyone experienced that?
pdbetterhalf
in
Kidney Dialysis
6 years ago
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First follow up test.
Just got my first lab results back after being diagnosed with ckd. My first gfr was 62 but was told i'am stage 3. Maybe because i'am diabetic with heart disease. Just thought any thing above 60 was stage 2. Anyway doctor said he wants me to get blood work every month now. Ive been pretty strict this
Just got my first lab results back after being diagnosed with ckd. My first gfr was 62 but was told i'am stage 3. Maybe because i'am diabetic with heart disease. Just thought any thing above 60 was stage 2. Anyway doctor said he wants me to get blood work every month now. Ive been pretty strict this
captainlsu
in
Early CKD Support
6 years ago
Caffeine and spirometery tests
Hi everyone. Ive just been reading about the effects caffeine apparently can have on spirometry tests. Quite suprised when it stated caffeine is a bronchodialator that can last up to 4 hours after having say, a cup of tea or coffee or a coke etc so it could lead to false spirometery readings and so the
Hi everyone. Ive just been reading about the effects caffeine apparently can have on spirometry tests. Quite suprised when it stated caffeine is a bronchodialator that can last up to 4 hours after having say, a cup of tea or coffee or a coke etc so it could lead to false spirometery readings and so the
robdonn
in
Lung Conditions Community Forum
6 years ago
Too much protein??!!
I'm 7 months post from kidney transplant, and my nurse they need to redo creatinine and GFR, and that I might have to cut back on protein. Have anyone ever heard that before? Told me if I was going to eat meat with every meal, I should cut back to 3oz, and consider the other foods with protein, like
I'm 7 months post from kidney transplant, and my nurse they need to redo creatinine and GFR, and that I might have to cut back on protein. Have anyone ever heard that before? Told me if I was going to eat meat with every meal, I should cut back to 3oz, and consider the other foods with protein, like
TamekaS
in
Kidney Transplant Patient Support
6 years ago
efsa assesses safety of green tea catechins
https://www.efsa.europa.eu/en/press/news/180418 It's been been noted here before that too much green tea may cause some liver damage. Here is a European study that verifies that. Strangely for me is that I take four capsules of 200 mg EGCG and that is the exact exact amount - 800 mg per day - the study
https://www.efsa.europa.eu/en/press/news/180418 It's been been noted here before that too much green tea may cause some liver damage. Here is a European study that verifies that. Strangely for me is that I take four capsules of 200 mg EGCG and that is the exact exact amount - 800 mg per day - the study
gemit2000
in
CLL Support
6 years ago
Newbie - Specialist testing/treatment Yorkshire
Hi, I joined the forum a month ago and have found the posts and advice really helpful. This is my first post. I have suffered from an irritable bowel for about 6 months now and my GP has ruled out IBD, Crohns, Celiac from an initial stool sample. I was initially proscribed colofac for IBS and when that
Hi, I joined the forum a month ago and have found the posts and advice really helpful. This is my first post. I have suffered from an irritable bowel for about 6 months now and my GP has ruled out IBD, Crohns, Celiac from an initial stool sample. I was initially proscribed colofac for IBS and when that
Liz1234ty
in
IBS Network
6 years ago
Bone Marrow Biopsy showing Manoclonal B Lymphocytosis
Hello My name is Gloria, My husband Angel has been fighting small B-Cell Lymphocytic Leukemia/lymphoma for more than 8 years and none of the chemotherapy has helped him. The only treatment that helped him was Imbrivica (Ibrutinib)for a year his blood levels improved almost to normal levels but, the
Hello My name is Gloria, My husband Angel has been fighting small B-Cell Lymphocytic Leukemia/lymphoma for more than 8 years and none of the chemotherapy has helped him. The only treatment that helped him was Imbrivica (Ibrutinib)for a year his blood levels improved almost to normal levels but, the
gsanchez
in
CLL Support
6 years ago
Ibrutinib response from NHSE to Vernon Coaker MP
Hi all Just a quick up date. I recieved the letter below Vernon Coaker MP recieved from NHSE 're Ibrutinib. It doesn't address the 3 year issue and I've asked him if he would write back to specifically address that point. A letter is going out today. You will also notice a slight change in attitude.
Hi all Just a quick up date. I recieved the letter below Vernon Coaker MP recieved from NHSE 're Ibrutinib. It doesn't address the 3 year issue and I've asked him if he would write back to specifically address that point. A letter is going out today. You will also notice a slight change in attitude.
Mick491
in
CLL Support
6 years ago
Here to help
Here to answer questions you might have about home dialysis and kidney transplantation. I was on dialysis for. A year and recently received a kidney transplant.
Here to answer questions you might have about home dialysis and kidney transplantation. I was on dialysis for. A year and recently received a kidney transplant.
Mirna67
in
Kidney Dialysis
6 years ago
Intal/Tilade - Medication for exercise induced asthma
I have been doing some research whilst trying to rest up after the weekend, and it seems there are some medications around which target exercise induced asthma. Generally my asthma is reasonably well controlled, but exercise remains an issue for me. For example this weekend, I used ventolin before I
I have been doing some research whilst trying to rest up after the weekend, and it seems there are some medications around which target exercise induced asthma. Generally my asthma is reasonably well controlled, but exercise remains an issue for me. For example this weekend, I used ventolin before I
-Butterfly-
in
Lung Conditions Community Forum
6 years ago
Does Vitamin C really help with CLL?
Has anyone else seen the report in the New Scientist of 25.08.17 which reported on trials involving mice and large intravenous doses of Vitamin C? I have been sent a clipping from this periodical, but I am very confused by this report. Firstly the report does not specify what type of chronic leukaemia
Has anyone else seen the report in the New Scientist of 25.08.17 which reported on trials involving mice and large intravenous doses of Vitamin C? I have been sent a clipping from this periodical, but I am very confused by this report. Firstly the report does not specify what type of chronic leukaemia
catmad1
in
CLL Support
6 years ago
Recovery after laproscopy
Hi all, I was discharged from hospital without consultation with a doctor and without a sick note for work. I had laproscopy, hysteroscopy and uterine polypectomy and am a fair amount of pain. Hoping someone on here might be able to give me advice on recovery, what I should and shouldn't do, and for
Hi all, I was discharged from hospital without consultation with a doctor and without a sick note for work. I had laproscopy, hysteroscopy and uterine polypectomy and am a fair amount of pain. Hoping someone on here might be able to give me advice on recovery, what I should and shouldn't do, and for
Hidden
in
Endometriosis UK
6 years ago
Puffy eyes?
Hello everyone. I have been diagnosed with IGA nephropathy (CKD3) earlier this year. I have been retaining a lot of fluid and in particular, have very puffy eyes (worse in the morning but puffy throughout the day). I have tried cooling eye masks, cold tea bags, ice, puffy eye cream. All with no improvement
Hello everyone. I have been diagnosed with IGA nephropathy (CKD3) earlier this year. I have been retaining a lot of fluid and in particular, have very puffy eyes (worse in the morning but puffy throughout the day). I have tried cooling eye masks, cold tea bags, ice, puffy eye cream. All with no improvement
twolittlebeans
in
Early CKD Support
6 years ago
Gazyva again?
Hi All, Has anyone had Gazyva for second line treatment? I had Gazyva in late 2016, was only in remission for a few months and then the lymphoma started coming back again in my parotid gland. I've been in W&W since but my blood numbers have been going down in the past few months. Platelets have gone
Hi All, Has anyone had Gazyva for second line treatment? I had Gazyva in late 2016, was only in remission for a few months and then the lymphoma started coming back again in my parotid gland. I've been in W&W since but my blood numbers have been going down in the past few months. Platelets have gone
skinkade
in
CLL Support
6 years ago
Any opinions on these results before I see the specialist next week?
[i]I had a bone marrow biopsy done and the flow cytometry results were posted on the hospital website today. I don't see my doctor until next week so I thought that I would post the results here to get some opinions before I see him. I know that the CD38 positive at 41% is not good. Anything else
[i]I had a bone marrow biopsy done and the flow cytometry results were posted on the hospital website today. I don't see my doctor until next week so I thought that I would post the results here to get some opinions before I see him. I know that the CD38 positive at 41% is not good. Anything else
hhk50
in
CLL Support
6 years ago
Interesting comment
"I had a routine medical last month, which I was sure would be OK. But the blood test results showed that I have chronic kidney disease, stage 3a. I'm 60. Will I eventually need to have dialysis and a kidney transplant? Do I need treatment to prevent my kidneys deteriorating further? I have never had
"I had a routine medical last month, which I was sure would be OK. But the blood test results showed that I have chronic kidney disease, stage 3a. I'm 60. Will I eventually need to have dialysis and a kidney transplant? Do I need treatment to prevent my kidneys deteriorating further? I have never had
Cruze44
in
Early CKD Support
6 years ago
My new CLL Treatment
My oncologist is recommending a drip of Rituxan and Bendamustine for my CLL treatment to replace Imbruvica since I had heart issues with this drug. Is anyone else getting this treatment? If so, any serious side effects?
My oncologist is recommending a drip of Rituxan and Bendamustine for my CLL treatment to replace Imbruvica since I had heart issues with this drug. Is anyone else getting this treatment? If so, any serious side effects?
umpireman
in
CLL Support
6 years ago
Finally having Lap!!!
Hi Guys. I've been struggling for two years with severe lower abdominal pain and nausea but in the last 6 months periods have been horrendously heavy and painful and then I feel sick most of the month as well. Went to my GP in London a couple of times, requested blood tests and ultra sound, nothing came
Hi Guys. I've been struggling for two years with severe lower abdominal pain and nausea but in the last 6 months periods have been horrendously heavy and painful and then I feel sick most of the month as well. Went to my GP in London a couple of times, requested blood tests and ultra sound, nothing came
Porter85
in
Endometriosis UK
6 years ago
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