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CLL Society Alert July 24, 2018 - Video Dr. Kipps on Cirmtuzumab - Paid Survey for USA CLL patients - Local support group meetings
http://campaign.r20.constantcontact.com/render?m=1120967015548&ca=2bc67386-01ab-40da-a13a-283e8f894e92 Hello, Friends and Supporters of the CLL Society. At every opportunity, we strive to bring you the latest announcements for upcoming Support Group meetings, special events, and other learning resources
http://campaign.r20.constantcontact.com/render?m=1120967015548&ca=2bc67386-01ab-40da-a13a-283e8f894e92 Hello, Friends and Supporters of the CLL Society. At every opportunity, we strive to bring you the latest announcements for upcoming Support Group meetings, special events, and other learning resources
lankisterguy
Volunteer
in
CLL Support
6 years ago
Treatment going ahead for antibody mediated rejection!!
So lady’s and gents, some may remember my post a few weeks ago about being treated with a form of dialysis for antibody mediated rejection, the docs decided to send me home and watch how I go with my tacrolimus levels being high, this has caused a bit of damage to my kidneys and my bloods are much worse
So lady’s and gents, some may remember my post a few weeks ago about being treated with a form of dialysis for antibody mediated rejection, the docs decided to send me home and watch how I go with my tacrolimus levels being high, this has caused a bit of damage to my kidneys and my bloods are much worse
littleleah86
in
British Liver Trust
6 years ago
Secondary cancer
Wrote a week ago about secondary cancer and had a diagnostic mammogram and ultrasound now I wait to have a needle biopsy on my breast. I am3 months into my treatment with Ibrutinib and Venetoclax with amazing results. I am hoping this lesion is not cancer and I can continue my trial. Very concerned
Wrote a week ago about secondary cancer and had a diagnostic mammogram and ultrasound now I wait to have a needle biopsy on my breast. I am3 months into my treatment with Ibrutinib and Venetoclax with amazing results. I am hoping this lesion is not cancer and I can continue my trial. Very concerned
Ninagram
in
CLL Support
6 years ago
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Miltion
Hello: I am a 64 year old male. I was diagnosed with Non-Hodgkin's Lymphoma cll in August of 2017. My doctor put me on Improvica. I had some pretty nasty side effects for the first 5 months. I have not had any since early January. My blood work is always good. How long can you live with this? Is there
Hello: I am a 64 year old male. I was diagnosed with Non-Hodgkin's Lymphoma cll in August of 2017. My doctor put me on Improvica. I had some pretty nasty side effects for the first 5 months. I have not had any since early January. My blood work is always good. How long can you live with this? Is there
larry54
in
CLL Support
6 years ago
Venetoclax/Ibrutinib update
Hi I wanted to follow up with everyone. I started the V&I clinical trial Oct 2017. When i started my cancer was at 30% infiltration in my bone marrow. I just recieved my last BMB results and i am now at 0.01%. Im in remission!!!!! Dr. Thompson at MDA says my next BMB results should show MRD!!! If you
Hi I wanted to follow up with everyone. I started the V&I clinical trial Oct 2017. When i started my cancer was at 30% infiltration in my bone marrow. I just recieved my last BMB results and i am now at 0.01%. Im in remission!!!!! Dr. Thompson at MDA says my next BMB results should show MRD!!! If you
BCTexas
in
CLL Support
6 years ago
Recurrence of nodes in treatment of CML
I am on imatnib for last 4 months for treatment of CML. But for last few days am feeling lymph nodes are back in my neck.my recent cbc has no anomailies .I am not able to predict wether they are actually lymph nodes or my fear.sometimes even i dont feel them .Plz advise me how serious is this or what
I am on imatnib for last 4 months for treatment of CML. But for last few days am feeling lymph nodes are back in my neck.my recent cbc has no anomailies .I am not able to predict wether they are actually lymph nodes or my fear.sometimes even i dont feel them .Plz advise me how serious is this or what
Prakash2512
in
CLL Support
6 years ago
Deciding on CLL Therapy and When to Treat- ONCLive Video discussion Drs. Wierda, Lamanna, Ma, Davids, Coutre
This has been discussed often- when to start treatment. There are many exceptions and special conditions, but the only agreement is not to treat on White Blood Count. https://youtu.be/A66CR1ubb-c Transcript: William G. Wierda, MD, PhD: So, let’s move on to treatment. We’ll start the discussion,
This has been discussed often- when to start treatment. There are many exceptions and special conditions, but the only agreement is not to treat on White Blood Count. https://youtu.be/A66CR1ubb-c Transcript: William G. Wierda, MD, PhD: So, let’s move on to treatment. We’ll start the discussion,
lankisterguy
Volunteer
in
CLL Support
6 years ago
Switching to another insulin
Can anyone tell actrapid and humulin r similar type of insulins and if some one has to switch from actrapid to humumlin r will ir affec
Can anyone tell actrapid and humulin r similar type of insulins and if some one has to switch from actrapid to humumlin r will ir affec
Nav07
in
Diabetes India
6 years ago
7 to 10 bowel movements per day. But still constipated
Is there any way I can stop having this amount of bowel movements per day. Been to see the doctor, she said that there was nothing she could give me for my frequent bowel movements and prescribed me with some Colofac (Mebeverine). And some Biocare probiotics 30 billion.
Is there any way I can stop having this amount of bowel movements per day. Been to see the doctor, she said that there was nothing she could give me for my frequent bowel movements and prescribed me with some Colofac (Mebeverine). And some Biocare probiotics 30 billion.
IBSsufferer_26
in
IBS Network
6 years ago
Update on Oxycodone
Hello all my restless friends. I said I would let you know how I fared with starting oxycodone. I have now been taking 5 mg. Longtec (oxycodone) for two weeks. This tablet is slow release over 12 hours. For the first few days I played about with the time of taking and have now settled on 8.00 p.m
Hello all my restless friends. I said I would let you know how I fared with starting oxycodone. I have now been taking 5 mg. Longtec (oxycodone) for two weeks. This tablet is slow release over 12 hours. For the first few days I played about with the time of taking and have now settled on 8.00 p.m
Jelbea
in
Restless Legs Syndrome
6 years ago
the Journey of the KidneyBoy209
Hi, been here silent this whole time getting blood sucked and pumped and watching the screens (Simpsons in Clinic, Computer at home)(and ohh phone everywhere else ryt? ) And now im Transplanted and got this energy that keeps on getting stronger and stronger with each like, im just out trying to get the
Hi, been here silent this whole time getting blood sucked and pumped and watching the screens (Simpsons in Clinic, Computer at home)(and ohh phone everywhere else ryt? ) And now im Transplanted and got this energy that keeps on getting stronger and stronger with each like, im just out trying to get the
KidneyBoy209
in
Kidney Transplant Patient Support
6 years ago
11 Q deletion? Mutated or unmutated?
I asked our CLL doctor if my husband with 11 q deletion was unmutated which is what I had assumed, but he said he was mutated. I am confused. He also tested positive for ZAP 70. I got his FISH results, but that did not clear this up. Help??
I asked our CLL doctor if my husband with 11 q deletion was unmutated which is what I had assumed, but he said he was mutated. I am confused. He also tested positive for ZAP 70. I got his FISH results, but that did not clear this up. Help??
kathymac52
in
CLL Support
6 years ago
Concern about another cancer
On trial of Ibrutinib and venetoclax for 3 months. Very concerned because I got called to have a diagnostic mammogram and ultrasound after my routine mammogram. Is it common to have another cancer with Cll. Thank you
On trial of Ibrutinib and venetoclax for 3 months. Very concerned because I got called to have a diagnostic mammogram and ultrasound after my routine mammogram. Is it common to have another cancer with Cll. Thank you
Ninagram
in
CLL Support
6 years ago
Medicinal cannabis
I’ve been told by my GP that he can no longer prescribe Fentanyl lozenges for my breakthrough pain. I’ve always known they are palliative care drugs. They worked for me. Now I’m stressed about how I’ll cope when my last two are gone. Has anyone else had medicinal cannabis prescribed? If so did it work
I’ve been told by my GP that he can no longer prescribe Fentanyl lozenges for my breakthrough pain. I’ve always known they are palliative care drugs. They worked for me. Now I’m stressed about how I’ll cope when my last two are gone. Has anyone else had medicinal cannabis prescribed? If so did it work
Rob395
in
Lung Conditions Community Forum
6 years ago
New 17P- w questions about EGCG and normal 2nd 17th chromosome
Hello, Thank you all for your insightful posts and support! I'm relatively new to this forum- diagnosed in April 2018 with 17P- CLL on abnormal bloodwork. Initially saw my internist, then a private hematologist. Subsequently had CT and new bloodwork at UC Health (Colorado) and on their recommendation
Hello, Thank you all for your insightful posts and support! I'm relatively new to this forum- diagnosed in April 2018 with 17P- CLL on abnormal bloodwork. Initially saw my internist, then a private hematologist. Subsequently had CT and new bloodwork at UC Health (Colorado) and on their recommendation
TJG_CLL17P-
in
CLL Support
6 years ago
Financial help from LLS for US patients
Hi, Got this today from friends at LLS These funds open and close quickly at time, so if you qualify and have the need, move fast. This is for Medicare and private insurance. Very good news. See below for details. Stay strong. We are all in this together. Brian http://cllsociety.org Dear Health Care
Hi, Got this today from friends at LLS These funds open and close quickly at time, so if you qualify and have the need, move fast. This is for Medicare and private insurance. Very good news. See below for details. Stay strong. We are all in this together. Brian http://cllsociety.org Dear Health Care
bkoffman
CLL CURE Hero
in
CLL Support
6 years ago
Dr. Wiestner on Combos and fixed duration ibrutinib (he doesn't like the idea) and a webinar with Dr. Byrd and me
Hi everyone, Dr. Wiestner always has a fresh perspective on CLL treatment, and my interview at ASH was no exception. I+V in the CAPTIVATE trial is looking very potent and quite safe and the data from EHA was amazing. On Aug 15, at 2 PM ET, Dr. Byrd and I will be doing an innovative free webinar on CLL
Hi everyone, Dr. Wiestner always has a fresh perspective on CLL treatment, and my interview at ASH was no exception. I+V in the CAPTIVATE trial is looking very potent and quite safe and the data from EHA was amazing. On Aug 15, at 2 PM ET, Dr. Byrd and I will be doing an innovative free webinar on CLL
bkoffman
CLL CURE Hero
in
CLL Support
6 years ago
Trying to become pregnant and CKD
Hello! I am in my 30s and was recently diagnosed with CKD3 caused by IgA nephropathy. I would like to become pregnant in the next year. Does anyone have experience they can share with fertility and CKD? Is it possible to become pregnant? What should I be considering? Thanks in advance!
Hello! I am in my 30s and was recently diagnosed with CKD3 caused by IgA nephropathy. I would like to become pregnant in the next year. Does anyone have experience they can share with fertility and CKD? Is it possible to become pregnant? What should I be considering? Thanks in advance!
twolittlebeans
in
Early CKD Support
6 years ago
Bone barrow biopsy in cml
I am describing my fathers report below can anyone tell me what that mean Microscopic Description: Bone marrow biopsy : Hypercellular bone marrow showing myeloid preponderance with adequate maturation. Megakaryocytes are increased and shows dyspoietic changes included micromegakaryocytes. Erythroid
I am describing my fathers report below can anyone tell me what that mean Microscopic Description: Bone marrow biopsy : Hypercellular bone marrow showing myeloid preponderance with adequate maturation. Megakaryocytes are increased and shows dyspoietic changes included micromegakaryocytes. Erythroid
sumit-dubey
in
CLL Support
6 years ago
One Million CLL Society Website Page-views! CLL Society in person support groups
Dear Friends and Supporters of the CLL Society, On July 2nd the CLL Society website surpassed 1 million page-views. You searched. We delivered. Thank you for your continued confidence in our work! Please check out the good health news about Brian's CAR-T treatment here. https://cllsociety.org/
Dear Friends and Supporters of the CLL Society, On July 2nd the CLL Society website surpassed 1 million page-views. You searched. We delivered. Thank you for your continued confidence in our work! Please check out the good health news about Brian's CAR-T treatment here. https://cllsociety.org/
lankisterguy
Volunteer
in
CLL Support
6 years ago
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