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Any opinions on these results before I see the specialist next week?
[i]I had a bone marrow biopsy done and the flow cytometry results were posted on the hospital website today. I don't see my doctor until next week so I thought that I would post the results here to get some opinions before I see him. I know that the CD38 positive at 41% is not good. Anything else
[i]I had a bone marrow biopsy done and the flow cytometry results were posted on the hospital website today. I don't see my doctor until next week so I thought that I would post the results here to get some opinions before I see him. I know that the CD38 positive at 41% is not good. Anything else
hhk50
in
CLL Support
6 years ago
Interesting comment
"I had a routine medical last month, which I was sure would be OK. But the blood test results showed that I have chronic kidney disease, stage 3a. I'm 60. Will I eventually need to have dialysis and a kidney transplant? Do I need treatment to prevent my kidneys deteriorating further? I have never had
"I had a routine medical last month, which I was sure would be OK. But the blood test results showed that I have chronic kidney disease, stage 3a. I'm 60. Will I eventually need to have dialysis and a kidney transplant? Do I need treatment to prevent my kidneys deteriorating further? I have never had
Cruze44
in
Early CKD Support
6 years ago
My new CLL Treatment
My oncologist is recommending a drip of Rituxan and Bendamustine for my CLL treatment to replace Imbruvica since I had heart issues with this drug. Is anyone else getting this treatment? If so, any serious side effects?
My oncologist is recommending a drip of Rituxan and Bendamustine for my CLL treatment to replace Imbruvica since I had heart issues with this drug. Is anyone else getting this treatment? If so, any serious side effects?
umpireman
in
CLL Support
6 years ago
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Finally having Lap!!!
Hi Guys. I've been struggling for two years with severe lower abdominal pain and nausea but in the last 6 months periods have been horrendously heavy and painful and then I feel sick most of the month as well. Went to my GP in London a couple of times, requested blood tests and ultra sound, nothing came
Hi Guys. I've been struggling for two years with severe lower abdominal pain and nausea but in the last 6 months periods have been horrendously heavy and painful and then I feel sick most of the month as well. Went to my GP in London a couple of times, requested blood tests and ultra sound, nothing came
Porter85
in
Endometriosis UK
6 years ago
CLL Society Alert- Toronto Support Group Poll, Dr. Hallek interview, European Hematology Assoc. & Patient meetings in person and online.
While the CLL Society has a USA foundation ( just as the HU CLL SA started in UK) this month's email update has some articles that may be of interest to Canadian and European readers: http://campaign.r20.constantcontact.com/render?m=1120967015548&ca=6fce9f05-a2ef-417d-ac35-2545753a8d95 https://cllsociety.org
While the CLL Society has a USA foundation ( just as the HU CLL SA started in UK) this month's email update has some articles that may be of interest to Canadian and European readers: http://campaign.r20.constantcontact.com/render?m=1120967015548&ca=6fce9f05-a2ef-417d-ac35-2545753a8d95 https://cllsociety.org
lankisterguy
Volunteer
in
CLL Support
6 years ago
Mbl cll like
Hello ! This is my first post !! 1 and a half year ago at the age of 29 i had a blood test that showed my wbc around 13000 and alc around 7000. After a flow cytometry test i was diagnosed with monoclonal b lympocytosis (mbl cll like). I have no other symptoms till then only raised wbc and alc. I do
Hello ! This is my first post !! 1 and a half year ago at the age of 29 i had a blood test that showed my wbc around 13000 and alc around 7000. After a flow cytometry test i was diagnosed with monoclonal b lympocytosis (mbl cll like). I have no other symptoms till then only raised wbc and alc. I do
Ioti
in
CLL Support
6 years ago
Finally Got The Call
Hello Everyone, It’s been a while since I’ve been on here; probably about 4 years now. I think that was when I was going on APD I asked for advice. I did go on CAPD, then APD. Unfortunately, after 2 really bad peritonitis and a lot of drama, my peritoneum failed. I was immediately mapped for a fistula
Hello Everyone, It’s been a while since I’ve been on here; probably about 4 years now. I think that was when I was going on APD I asked for advice. I did go on CAPD, then APD. Unfortunately, after 2 really bad peritonitis and a lot of drama, my peritoneum failed. I was immediately mapped for a fistula
Hilly038
in
Kidney Transplant Patient Support
6 years ago
Hepatic Encepalopathy medications (Lactulose and Rifamixin OR L-ornithine and L-aspartate)
Which medication would be better to treat HE. The doctor is giving my mom L-ornithine and L-aspartate. My mom has HE and is suffering from delusions which are getting worse. I told my sister that Lactulose is a common medication to treat HE as I have read on the internet and told her to ask the doctor
Which medication would be better to treat HE. The doctor is giving my mom L-ornithine and L-aspartate. My mom has HE and is suffering from delusions which are getting worse. I told my sister that Lactulose is a common medication to treat HE as I have read on the internet and told her to ask the doctor
Dagmara
in
British Liver Trust
6 years ago
Would IT Surprise You To Know FEW Bugs Have Issues With GINGER Too
Quite a commen one being pseudomonas .... i could say something funny about that BUT all leave it to your imagination. Anyway currently am going to see if McV ginger nut biscuits 🍪 will clear up my oral thrush better than nystatin stuff THAT as been causing horrendous muscle pain By all accounts ginger
Quite a commen one being pseudomonas .... i could say something funny about that BUT all leave it to your imagination. Anyway currently am going to see if McV ginger nut biscuits 🍪 will clear up my oral thrush better than nystatin stuff THAT as been causing horrendous muscle pain By all accounts ginger
Hidden
in
Lung Conditions Community Forum
6 years ago
Newcomer
Hi everyone I've recently been diagnosed with cll and tomorrow..I have my ct scan...I can't help feeling I'm going to die..it came as a shock as I only went for cholesterol test. My doctor ordered more tests and within a week I had marrow biopsy and results. I have no real symptoms.. and work really
Hi everyone I've recently been diagnosed with cll and tomorrow..I have my ct scan...I can't help feeling I'm going to die..it came as a shock as I only went for cholesterol test. My doctor ordered more tests and within a week I had marrow biopsy and results. I have no real symptoms.. and work really
Feelsolow
in
CLL Support
6 years ago
FDA Approves Venetoclax (VENCLEXTA) For CLL or SLL with or without 17p deletion, who have received at least one prior therapy
FDA Approves Venetoclax (VENCLEXTA) For Chronic Lymphocytic Leukemia or Small Lymphocytic Leukemia http://support.lymphoma.org/site/MessageViewer?em_id=2683.0&dlv_id=5995 On June 8, 2018, the U.S. Food and Drug Administration (FDA) approved the use of venetoclax (VENCLEXTA) for the treatment of
FDA Approves Venetoclax (VENCLEXTA) For Chronic Lymphocytic Leukemia or Small Lymphocytic Leukemia http://support.lymphoma.org/site/MessageViewer?em_id=2683.0&dlv_id=5995 On June 8, 2018, the U.S. Food and Drug Administration (FDA) approved the use of venetoclax (VENCLEXTA) for the treatment of
lankisterguy
Volunteer
in
CLL Support
6 years ago
LIVE and OBSERVE
As a CLL patient the past 6 years and reading this encouraging and productive forum the past 3 years, I keep hearing the words WATCH and WAIT. It's about time everyone with this blood disorder whether you are in treatment or not have the medical profession embrace 3 better words LIVE and OBSERVE for
As a CLL patient the past 6 years and reading this encouraging and productive forum the past 3 years, I keep hearing the words WATCH and WAIT. It's about time everyone with this blood disorder whether you are in treatment or not have the medical profession embrace 3 better words LIVE and OBSERVE for
bacimio
in
CLL Support
6 years ago
CKD 4 & Neurogenic bladder
Hello friends I wanted know if anyone of you have/been suffering from the following: - Neurogenic bladder, can't pass urine so dependent on catherisation - Kidney damage due to reflux and pressure in bladder My partner has been suffering from this for some time now and wanted to connect with someone
Hello friends I wanted know if anyone of you have/been suffering from the following: - Neurogenic bladder, can't pass urine so dependent on catherisation - Kidney damage due to reflux and pressure in bladder My partner has been suffering from this for some time now and wanted to connect with someone
morsh
in
Early CKD Support
6 years ago
ASH 2017: Dr. Richard Furman on the importance of MCL-1 in CLL (chronic lymphocytic leukemia)
Just watched a video on MCL-1 and thought our group might be interested (if not already aware!). From the CLL Society website: As good as venetoclax is as a single agent, there are now many studies that show even more remarkable responses occur when it is used in combination with ibrutinib or rituximab
Just watched a video on MCL-1 and thought our group might be interested (if not already aware!). From the CLL Society website: As good as venetoclax is as a single agent, there are now many studies that show even more remarkable responses occur when it is used in combination with ibrutinib or rituximab
hsouter
in
CLL Support
6 years ago
So Very Blessed
Good Morning fellow CLL sufferers , I have recently received the results from my latest six month blood work and exam. My white count only went from 29,000 to 33,000 so no where near doubling. Doc said my other numbers are all still looking good. He had told me six months ago that we might be looking
Good Morning fellow CLL sufferers , I have recently received the results from my latest six month blood work and exam. My white count only went from 29,000 to 33,000 so no where near doubling. Doc said my other numbers are all still looking good. He had told me six months ago that we might be looking
BlueGillfisherman
in
CLL Support
6 years ago
Peritoneal Dialysis : Leg pain and Back pain
My Father is undergoing Peritoneal Dialysis for the last 1 Year and Half and he is having leg pain and back pain... He is 66 Years old can anyone share your advise on how to get rid of this and live a simple healthy life
My Father is undergoing Peritoneal Dialysis for the last 1 Year and Half and he is having leg pain and back pain... He is 66 Years old can anyone share your advise on how to get rid of this and live a simple healthy life
Balaji1981
in
Kidney Dialysis
6 years ago
Need Help Understanding New Gene Mutation in CLL/SLL
Hello to everyone! Thanks to all for providing a safe, positive place to read about like souls sharing this same nasty journey. Every time I feel a cancer panic coming on, this is the first place I turn for comfort. I am a long time lurker but first time poster. I was first diagnosed with CLL/SLL in
Hello to everyone! Thanks to all for providing a safe, positive place to read about like souls sharing this same nasty journey. Every time I feel a cancer panic coming on, this is the first place I turn for comfort. I am a long time lurker but first time poster. I was first diagnosed with CLL/SLL in
PCara90
in
CLL Support
6 years ago
New Clinical Trial of Ibrutinib + Venetoclax for people relapsing on Ibrutinib
Yesterday I started a new clinical trial at UCSD for people that have relapsed on Ibrutinib. I had been a part of the RESONATE trial and have been on Ibrutinib for 4 1/2 years. Early this year began a trend of increasing ALC and enlarging lymph nodes. A next Gen Sequencing test showed a mutation in
Yesterday I started a new clinical trial at UCSD for people that have relapsed on Ibrutinib. I had been a part of the RESONATE trial and have been on Ibrutinib for 4 1/2 years. Early this year began a trend of increasing ALC and enlarging lymph nodes. A next Gen Sequencing test showed a mutation in
Teegolf47
in
CLL Support
6 years ago
Gazyva (obinutuzumab) treatment
My Doctor is recommending Gazyva (obinutuzumab) treatment for my CLL. I heard that some people had good outcomes. How long would one expect to be Cancer free after treatment before a relapse? (Example 1 year?, 2 years?, 3 years, etc.) Any information will be helpful. Thanks
My Doctor is recommending Gazyva (obinutuzumab) treatment for my CLL. I heard that some people had good outcomes. How long would one expect to be Cancer free after treatment before a relapse? (Example 1 year?, 2 years?, 3 years, etc.) Any information will be helpful. Thanks
WinJ3
in
CLL Support
6 years ago
Change from adeport to envarsus
So this evening marks 3 weeks since hubby's liver transplant, however Tuesday he was readmitted to hospital after blood tests revealed potassium was too high. Today his adeport was changed to envarsus which is taken once a day as it is slow release & he was discharged. Just wondering if anyone else has
So this evening marks 3 weeks since hubby's liver transplant, however Tuesday he was readmitted to hospital after blood tests revealed potassium was too high. Today his adeport was changed to envarsus which is taken once a day as it is slow release & he was discharged. Just wondering if anyone else has
Adelou
in
British Liver Trust
6 years ago
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