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Finally Got The Call
Hello Everyone, It’s been a while since I’ve been on here; probably about 4 years now. I think that was when I was going on APD I asked for advice. I did go on CAPD, then APD. Unfortunately, after 2 really bad peritonitis and a lot of drama, my peritoneum failed. I was immediately mapped for a fistula
Hello Everyone, It’s been a while since I’ve been on here; probably about 4 years now. I think that was when I was going on APD I asked for advice. I did go on CAPD, then APD. Unfortunately, after 2 really bad peritonitis and a lot of drama, my peritoneum failed. I was immediately mapped for a fistula
Hilly038
in
Kidney Transplant Patient Support
6 years ago
Hepatic Encepalopathy medications (Lactulose and Rifamixin OR L-ornithine and L-aspartate)
Which medication would be better to treat HE. The doctor is giving my mom L-ornithine and L-aspartate. My mom has HE and is suffering from delusions which are getting worse. I told my sister that Lactulose is a common medication to treat HE as I have read on the internet and told her to ask the doctor
Which medication would be better to treat HE. The doctor is giving my mom L-ornithine and L-aspartate. My mom has HE and is suffering from delusions which are getting worse. I told my sister that Lactulose is a common medication to treat HE as I have read on the internet and told her to ask the doctor
Dagmara
in
British Liver Trust
6 years ago
Newcomer
Hi everyone I've recently been diagnosed with cll and tomorrow..I have my ct scan...I can't help feeling I'm going to die..it came as a shock as I only went for cholesterol test. My doctor ordered more tests and within a week I had marrow biopsy and results. I have no real symptoms.. and work really
Hi everyone I've recently been diagnosed with cll and tomorrow..I have my ct scan...I can't help feeling I'm going to die..it came as a shock as I only went for cholesterol test. My doctor ordered more tests and within a week I had marrow biopsy and results. I have no real symptoms.. and work really
Feelsolow
in
CLL Support
6 years ago
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Would IT Surprise You To Know FEW Bugs Have Issues With GINGER Too
Quite a commen one being pseudomonas .... i could say something funny about that BUT all leave it to your imagination. Anyway currently am going to see if McV ginger nut biscuits 🍪 will clear up my oral thrush better than nystatin stuff THAT as been causing horrendous muscle pain By all accounts ginger
Quite a commen one being pseudomonas .... i could say something funny about that BUT all leave it to your imagination. Anyway currently am going to see if McV ginger nut biscuits 🍪 will clear up my oral thrush better than nystatin stuff THAT as been causing horrendous muscle pain By all accounts ginger
Hidden
in
Lung Conditions Community Forum
6 years ago
FDA Approves Venetoclax (VENCLEXTA) For CLL or SLL with or without 17p deletion, who have received at least one prior therapy
FDA Approves Venetoclax (VENCLEXTA) For Chronic Lymphocytic Leukemia or Small Lymphocytic Leukemia http://support.lymphoma.org/site/MessageViewer?em_id=2683.0&dlv_id=5995 On June 8, 2018, the U.S. Food and Drug Administration (FDA) approved the use of venetoclax (VENCLEXTA) for the treatment of
FDA Approves Venetoclax (VENCLEXTA) For Chronic Lymphocytic Leukemia or Small Lymphocytic Leukemia http://support.lymphoma.org/site/MessageViewer?em_id=2683.0&dlv_id=5995 On June 8, 2018, the U.S. Food and Drug Administration (FDA) approved the use of venetoclax (VENCLEXTA) for the treatment of
lankisterguy
Volunteer
in
CLL Support
6 years ago
LIVE and OBSERVE
As a CLL patient the past 6 years and reading this encouraging and productive forum the past 3 years, I keep hearing the words WATCH and WAIT. It's about time everyone with this blood disorder whether you are in treatment or not have the medical profession embrace 3 better words LIVE and OBSERVE for
As a CLL patient the past 6 years and reading this encouraging and productive forum the past 3 years, I keep hearing the words WATCH and WAIT. It's about time everyone with this blood disorder whether you are in treatment or not have the medical profession embrace 3 better words LIVE and OBSERVE for
bacimio
in
CLL Support
6 years ago
CKD 4 & Neurogenic bladder
Hello friends I wanted know if anyone of you have/been suffering from the following: - Neurogenic bladder, can't pass urine so dependent on catherisation - Kidney damage due to reflux and pressure in bladder My partner has been suffering from this for some time now and wanted to connect with someone
Hello friends I wanted know if anyone of you have/been suffering from the following: - Neurogenic bladder, can't pass urine so dependent on catherisation - Kidney damage due to reflux and pressure in bladder My partner has been suffering from this for some time now and wanted to connect with someone
morsh
in
Early CKD Support
6 years ago
ASH 2017: Dr. Richard Furman on the importance of MCL-1 in CLL (chronic lymphocytic leukemia)
Just watched a video on MCL-1 and thought our group might be interested (if not already aware!). From the CLL Society website: As good as venetoclax is as a single agent, there are now many studies that show even more remarkable responses occur when it is used in combination with ibrutinib or rituximab
Just watched a video on MCL-1 and thought our group might be interested (if not already aware!). From the CLL Society website: As good as venetoclax is as a single agent, there are now many studies that show even more remarkable responses occur when it is used in combination with ibrutinib or rituximab
hsouter
in
CLL Support
6 years ago
So Very Blessed
Good Morning fellow CLL sufferers , I have recently received the results from my latest six month blood work and exam. My white count only went from 29,000 to 33,000 so no where near doubling. Doc said my other numbers are all still looking good. He had told me six months ago that we might be looking
Good Morning fellow CLL sufferers , I have recently received the results from my latest six month blood work and exam. My white count only went from 29,000 to 33,000 so no where near doubling. Doc said my other numbers are all still looking good. He had told me six months ago that we might be looking
BlueGillfisherman
in
CLL Support
6 years ago
Peritoneal Dialysis : Leg pain and Back pain
My Father is undergoing Peritoneal Dialysis for the last 1 Year and Half and he is having leg pain and back pain... He is 66 Years old can anyone share your advise on how to get rid of this and live a simple healthy life
My Father is undergoing Peritoneal Dialysis for the last 1 Year and Half and he is having leg pain and back pain... He is 66 Years old can anyone share your advise on how to get rid of this and live a simple healthy life
Balaji1981
in
Kidney Dialysis
6 years ago
Need Help Understanding New Gene Mutation in CLL/SLL
Hello to everyone! Thanks to all for providing a safe, positive place to read about like souls sharing this same nasty journey. Every time I feel a cancer panic coming on, this is the first place I turn for comfort. I am a long time lurker but first time poster. I was first diagnosed with CLL/SLL in
Hello to everyone! Thanks to all for providing a safe, positive place to read about like souls sharing this same nasty journey. Every time I feel a cancer panic coming on, this is the first place I turn for comfort. I am a long time lurker but first time poster. I was first diagnosed with CLL/SLL in
PCara90
in
CLL Support
6 years ago
New Clinical Trial of Ibrutinib + Venetoclax for people relapsing on Ibrutinib
Yesterday I started a new clinical trial at UCSD for people that have relapsed on Ibrutinib. I had been a part of the RESONATE trial and have been on Ibrutinib for 4 1/2 years. Early this year began a trend of increasing ALC and enlarging lymph nodes. A next Gen Sequencing test showed a mutation in
Yesterday I started a new clinical trial at UCSD for people that have relapsed on Ibrutinib. I had been a part of the RESONATE trial and have been on Ibrutinib for 4 1/2 years. Early this year began a trend of increasing ALC and enlarging lymph nodes. A next Gen Sequencing test showed a mutation in
Teegolf47
in
CLL Support
6 years ago
Gazyva (obinutuzumab) treatment
My Doctor is recommending Gazyva (obinutuzumab) treatment for my CLL. I heard that some people had good outcomes. How long would one expect to be Cancer free after treatment before a relapse? (Example 1 year?, 2 years?, 3 years, etc.) Any information will be helpful. Thanks
My Doctor is recommending Gazyva (obinutuzumab) treatment for my CLL. I heard that some people had good outcomes. How long would one expect to be Cancer free after treatment before a relapse? (Example 1 year?, 2 years?, 3 years, etc.) Any information will be helpful. Thanks
WinJ3
in
CLL Support
6 years ago
Change from adeport to envarsus
So this evening marks 3 weeks since hubby's liver transplant, however Tuesday he was readmitted to hospital after blood tests revealed potassium was too high. Today his adeport was changed to envarsus which is taken once a day as it is slow release & he was discharged. Just wondering if anyone else has
So this evening marks 3 weeks since hubby's liver transplant, however Tuesday he was readmitted to hospital after blood tests revealed potassium was too high. Today his adeport was changed to envarsus which is taken once a day as it is slow release & he was discharged. Just wondering if anyone else has
Adelou
in
British Liver Trust
6 years ago
adenomyosis sufferer
suffering today feeling like i'm going threw labour all over again adenomyosis is awful, i have a 3 procedure operation on 30th may, laparoscopy, histeroscopy polypectomy, has anybody els had this? x #adenomyosis
suffering today feeling like i'm going threw labour all over again adenomyosis is awful, i have a 3 procedure operation on 30th may, laparoscopy, histeroscopy polypectomy, has anybody els had this? x #adenomyosis
kellymiddleton130811
in
Adenomyosis Advice Association
6 years ago
Managing the Complications of Chronic Lymphocytic Leukemia (CLL) Online Program by The CancerCare Education Department (USA)
We appreciate your participation in Managing the Complications of Chronic Lymphocytic Leukemia (CLL), which took place on May 17. We hope you found this workshop informative and look forward to your feedback. If you were not able to attend this workshop, it is available on telephone replay 24 hours a
We appreciate your participation in Managing the Complications of Chronic Lymphocytic Leukemia (CLL), which took place on May 17. We hope you found this workshop informative and look forward to your feedback. If you were not able to attend this workshop, it is available on telephone replay 24 hours a
lankisterguy
Volunteer
in
CLL Support
6 years ago
What is Chronic Kidney Disease
Chronic Kidney Disease, which is always shorted as CKD, is a medical term used to describe the progressive loss of kidney function over several months or years. CKD in early stage is not deadly and also it causes no obvious discomforts. However, without effective and timely control, it progresses over
Chronic Kidney Disease, which is always shorted as CKD, is a medical term used to describe the progressive loss of kidney function over several months or years. CKD in early stage is not deadly and also it causes no obvious discomforts. However, without effective and timely control, it progresses over
Bangjun
in
Early CKD Support
6 years ago
Getting better
I have been too slow in sharing good news. Last week I learned that my bone marrow biopsy done 28 days after getting my CAR-T cells showed no copies of the DNA signature of my CLL- this is at least one log lower than the usual MRD testing by flow cytometry finding one cell in 100,000. More details on
I have been too slow in sharing good news. Last week I learned that my bone marrow biopsy done 28 days after getting my CAR-T cells showed no copies of the DNA signature of my CLL- this is at least one log lower than the usual MRD testing by flow cytometry finding one cell in 100,000. More details on
bkoffman
CLL CURE Hero
in
CLL Support
6 years ago
My cancer is in remission – what does this mean?
[i]"In the 1970s, only one cancer patient in three made it through the first five years after diagnosis. Today, this figure is around 70%, and exceeds 85% for some cancers that were previously fatal. So, remission might mean cure but we only know that over time." [/i] So concludes Ian Olver, Director
[i]"In the 1970s, only one cancer patient in three made it through the first five years after diagnosis. Today, this figure is around 70%, and exceeds 85% for some cancers that were previously fatal. So, remission might mean cure but we only know that over time." [/i] So concludes Ian Olver, Director
AussieNeil
Partner
in
CLL Support
6 years ago
Letter to my MP regarding funding of Ibrutinib
Dear Mrs Hobhouse, I am a cancer patient and under treatment from the RUH since 2006 when I was first diagnosed with CLL. The disease is a slowly progressing one, and in 2010 after four years of ‘watch and wait’ I had six months of chemotherapy, and then another six months of chemotherapy in 2015. Last
Dear Mrs Hobhouse, I am a cancer patient and under treatment from the RUH since 2006 when I was first diagnosed with CLL. The disease is a slowly progressing one, and in 2010 after four years of ‘watch and wait’ I had six months of chemotherapy, and then another six months of chemotherapy in 2015. Last
Ruhi9
in
CLL Support
6 years ago
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