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kidney transplant support
last two years i am doing dialysis and i had a gallbladder removal surgery and Coronary artery bypass graft i am without a job for last two years i spend all my saving for dialysis and two surgery. i have to do three dialysis per week i have a donor for a kidney transplant i need some financial support
last two years i am doing dialysis and i had a gallbladder removal surgery and Coronary artery bypass graft i am without a job for last two years i spend all my saving for dialysis and two surgery. i have to do three dialysis per week i have a donor for a kidney transplant i need some financial support
Shami
in
Kidney Dialysis
5 years ago
chronic leukemia issues
I have stage 2 B chronic lymphocyte leukemia refractory, I have started chemo (leukeran) 2 months ago.2 weeks ago I started to have sharp pain in my right side, can this be cause by the chemo or the lymph nodes in my liver?
I have stage 2 B chronic lymphocyte leukemia refractory, I have started chemo (leukeran) 2 months ago.2 weeks ago I started to have sharp pain in my right side, can this be cause by the chemo or the lymph nodes in my liver?
dannydann
in
CLL Support
5 years ago
CLLSA Cambridge Members Conference Mar 2019
The first talk of the day was a team presentation from the Psycho-Oncology Service, Liaison Psychiatry, Addenbrooke’s Hospital - Approaches to Psychological health in Cancer This was followed by Jackie talking about her diagnosis and treatment under the Flair trial. This was followed by an update on
The first talk of the day was a team presentation from the Psycho-Oncology Service, Liaison Psychiatry, Addenbrooke’s Hospital - Approaches to Psychological health in Cancer This was followed by Jackie talking about her diagnosis and treatment under the Flair trial. This was followed by an update on
Myrddin
in
CLL Support
5 years ago
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Treatment ”options”
Hello all you wonderful people! I'm looking for hope and positive energy here... My dad was diagnosed with CLL just in December. He lives in Barcelona, Spain (edited as advised, thanks Bubnjay1) He was being treated as a private patient through his full comprehensive health insurance policy Very short
Hello all you wonderful people! I'm looking for hope and positive energy here... My dad was diagnosed with CLL just in December. He lives in Barcelona, Spain (edited as advised, thanks Bubnjay1) He was being treated as a private patient through his full comprehensive health insurance policy Very short
LurkerEmma
in
CLL Support
5 years ago
Curling 123
Imbruvica appears to be the preferred therapy from reading these posts. As a senior and in Ontario, I wonder if it is covered by OHIP or Ontario Drug Program. Seems drugs if not administered in hospital are not covered even though many cancer drugs are taken orally now. Anyone from Ontario with CLL,
Imbruvica appears to be the preferred therapy from reading these posts. As a senior and in Ontario, I wonder if it is covered by OHIP or Ontario Drug Program. Seems drugs if not administered in hospital are not covered even though many cancer drugs are taken orally now. Anyone from Ontario with CLL,
Curling123
in
CLL Support
5 years ago
Advagraf dosage
I reduce the dose of advagraf for 9 months after the transplant, but the level of tacrolimus does not decrease. I started with 9mg, but now I use only 5mg. Tacrolimus levels are around 11-12. My doctor recommends that I use only 3mg - is it not too small?
I reduce the dose of advagraf for 9 months after the transplant, but the level of tacrolimus does not decrease. I started with 9mg, but now I use only 5mg. Tacrolimus levels are around 11-12. My doctor recommends that I use only 3mg - is it not too small?
uking
in
Kidney Transplant Patient Support
5 years ago
I am CLL patient previusly treate with FR. I need to be treated again. I need some advice please.
I am a CLL patient. I have been previously treated with FR regimen for CLL. (Rituximaba plus Fludarabina) After 2.5 years, the WBC are around 30 K/ul, and platelets around 41 K. Doctors have decided to treat me again. Due to cost, unsufficient Insurance coverage, it is not possible to go to Imbruvica
I am a CLL patient. I have been previously treated with FR regimen for CLL. (Rituximaba plus Fludarabina) After 2.5 years, the WBC are around 30 K/ul, and platelets around 41 K. Doctors have decided to treat me again. Due to cost, unsufficient Insurance coverage, it is not possible to go to Imbruvica
tropicsurvivor
in
CLL Support
5 years ago
Living on dialysis
Hi jayhawker its Mj 1965, its been a while.b4 I started dialysis I wanted to go on haemodialysis but I was advised by my nephrologist to go on PD dialysis because if I went on haemodialysis it would make me feel worse and I would feel drained all the time. You know what its the best decision I made.
Hi jayhawker its Mj 1965, its been a while.b4 I started dialysis I wanted to go on haemodialysis but I was advised by my nephrologist to go on PD dialysis because if I went on haemodialysis it would make me feel worse and I would feel drained all the time. You know what its the best decision I made.
Mj1965
in
Kidney Dialysis
5 years ago
Creatinine level
My friend already went for Bypass three years back.his sugar level is under well controlled.now his creatinine level is 5.2.but he has no symptoms of kidney failure.he is doing his normal work.he is taking tablets for reducing the level.but it is not under control.can anybody help him
My friend already went for Bypass three years back.his sugar level is under well controlled.now his creatinine level is 5.2.but he has no symptoms of kidney failure.he is doing his normal work.he is taking tablets for reducing the level.but it is not under control.can anybody help him
Lakshmanan1954
in
Diabetes India
5 years ago
CLL apricot kernels and green tea extract.
I am newly diagnosed. White cells were 3.2L. In Ontario top of range is 2.9. I hope it is decided I am wait and see for now. I am taking for now two dried bitter apricot kernels. Read in many posts from US that they reduce white cells, plus green tea extract 750mg. Anyone else familiar with this or taking
I am newly diagnosed. White cells were 3.2L. In Ontario top of range is 2.9. I hope it is decided I am wait and see for now. I am taking for now two dried bitter apricot kernels. Read in many posts from US that they reduce white cells, plus green tea extract 750mg. Anyone else familiar with this or taking
Curling123
in
CLL Support
5 years ago
Rafixamin ..
Hi there everybody. My specialist put me on rifixamin thursday. Iv been totally zonked since. Also put on senna tablets along with all the lactulose and laxido i already take. Got to have camera up my bum. After the senna. My insides where in excruitiating pain. Is this normal?? Any advice??
Hi there everybody. My specialist put me on rifixamin thursday. Iv been totally zonked since. Also put on senna tablets along with all the lactulose and laxido i already take. Got to have camera up my bum. After the senna. My insides where in excruitiating pain. Is this normal?? Any advice??
Tormented
in
British Liver Trust
5 years ago
Sinus surgery anyone?
Hi all, I hope you are well. **(just a quick warning,some of this post has graphic descriptions.)** So I’m really struggling at the moment,since being diagnosed 3 years ago with asthma/chronic sinus issues plus polyps, I have lost my sense of smell completely and taste is next to nothing, I also can
Hi all, I hope you are well. **(just a quick warning,some of this post has graphic descriptions.)** So I’m really struggling at the moment,since being diagnosed 3 years ago with asthma/chronic sinus issues plus polyps, I have lost my sense of smell completely and taste is next to nothing, I also can
Matilda1
in
Asthma Community Forum
5 years ago
A New Thyroid Subset For Chronic Fatigue Syndrome (ME/CFS)? The Low T3 Syndrome Group by Cort Johnson www.prohealth.com
Do problems with the gas pedal of the body – the thyroid – play more of a role in ME/CFS than most doctors think? By Cort Johnson • www.ProHealth.com. March 13, 2019 I found this to be a really interesting well written article referencing other aspects of low T3. https://www.prohealth.com/library/new-thyroid-subset-chronic-fatigue-syndrome-cfs-low-t3
Do problems with the gas pedal of the body – the thyroid – play more of a role in ME/CFS than most doctors think? By Cort Johnson • www.ProHealth.com. March 13, 2019 I found this to be a really interesting well written article referencing other aspects of low T3. https://www.prohealth.com/library/new-thyroid-subset-chronic-fatigue-syndrome-cfs-low-t3
mourneadventurer
in
Thyroid UK
5 years ago
Concerned
My son is 3 years post kidney transplant & his creatinine has never been really stable. He starts to creep up & they do a biopsy & everything is normal. He drinks a gallon of water a day. He will end up going back down only to go up again. Anybody else seen this?
My son is 3 years post kidney transplant & his creatinine has never been really stable. He starts to creep up & they do a biopsy & everything is normal. He drinks a gallon of water a day. He will end up going back down only to go up again. Anybody else seen this?
Wheeling
in
Kidney Transplant Patient Support
5 years ago
New compendium of quality CLL resources for patients + your hematologist
I am sharing a collection of high quality CLL resources for both patients and hematologists. First, the patient resources which include: patient checklist doctor visit checklist building your CLL team financial support tracking lab reports. These important resources are from leading
I am sharing a collection of high quality CLL resources for both patients and hematologists. First, the patient resources which include: patient checklist doctor visit checklist building your CLL team financial support tracking lab reports. These important resources are from leading
GlennSabin
in
CLL Support
5 years ago
Looking for CLL specialist in Denver, CO
Hi, so my hematologist has said I need to start chemo , undergoing lymph node biopsy tomorrow to make sure its CLL and not lymphoma since I was dx only on blood work, but before I actually start chemo was thinking I should see a CLL specialist (esp. because you all have recommended it). Does anyone
Hi, so my hematologist has said I need to start chemo , undergoing lymph node biopsy tomorrow to make sure its CLL and not lymphoma since I was dx only on blood work, but before I actually start chemo was thinking I should see a CLL specialist (esp. because you all have recommended it). Does anyone
jgamberg
in
CLL Support
5 years ago
Post Liver Transplant
My name is Iskandar, from Tajikistan post liver transplant patient. I was under treatment from march 2018 until January 2019. My transplant surgery was done in April 2018.. Now I am on recovery period, I feel weak with Osteoporosis because of much steroids and kidney stones. Any Transplant Doctor Reco
My name is Iskandar, from Tajikistan post liver transplant patient. I was under treatment from march 2018 until January 2019. My transplant surgery was done in April 2018.. Now I am on recovery period, I feel weak with Osteoporosis because of much steroids and kidney stones. Any Transplant Doctor Reco
Jazzy_Jazz
in
British Liver Trust
5 years ago
Anniversary QEH Hospital Visit
Just a quick message to express relief after my first anniversary visit, all is still going really well and my anti immune drugs have been stopped, so down to just 3 prograf a day, plus asprin. I feel so lucky and will have some thoughts and thanks to my donor, and make sure I take advantage of the precious
Just a quick message to express relief after my first anniversary visit, all is still going really well and my anti immune drugs have been stopped, so down to just 3 prograf a day, plus asprin. I feel so lucky and will have some thoughts and thanks to my donor, and make sure I take advantage of the precious
Hidden
in
British Liver Trust
5 years ago
Article linking ME/CFS to Thyroid issues
Anyone seen this? I was particularly interested in the HHV-6 virus, which I haven't heard about before. I'm also interested in a possible link between ME/CFS as 3 of my kid's friends have it. It makes me so cross that none of them are getting any better after years! A New Thyroid Subset For Chronic
Anyone seen this? I was particularly interested in the HHV-6 virus, which I haven't heard about before. I'm also interested in a possible link between ME/CFS as 3 of my kid's friends have it. It makes me so cross that none of them are getting any better after years! A New Thyroid Subset For Chronic
Winegum2
in
Thyroid UK
5 years ago
CG-806... starts the long trek..
Aptose Biosciences announced that it has submitted an Investigational New Drug (IND) application for CG-806 to the U.S. Food and Drug Administration (FDA) requesting approval to initiate its Phase 1 clinical trial program. CG-806 is an oral, first-in-class small molecule inhibitor of all known forms
Aptose Biosciences announced that it has submitted an Investigational New Drug (IND) application for CG-806 to the U.S. Food and Drug Administration (FDA) requesting approval to initiate its Phase 1 clinical trial program. CG-806 is an oral, first-in-class small molecule inhibitor of all known forms
Cllcanada
Top Poster CURE Hero
in
CLL Support
5 years ago
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