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Has anyone stayed at a steady elevated creatinine level for a long time?
I am at 1.4 and have a creatinine clearance of 136.6 I am 22 and my doctor says my level is normal. But my creatinine has been 1.54 and 1.7 in the past. So I am confused. Any feedback is appreciated.
I am at 1.4 and have a creatinine clearance of 136.6 I am 22 and my doctor says my level is normal. But my creatinine has been 1.54 and 1.7 in the past. So I am confused. Any feedback is appreciated.
Healthylivin69
in
Early CKD Support
5 years ago
remembering Chris Dwyer
Many in our community including myself owe much to Chris Dwyer. His death came not so much as a shock to me but a sadness in losing such a fellow warrior who had been through so much while giving so much. He had been long-suffering with so many assaults from various treatments and crippling infections
Many in our community including myself owe much to Chris Dwyer. His death came not so much as a shock to me but a sadness in losing such a fellow warrior who had been through so much while giving so much. He had been long-suffering with so many assaults from various treatments and crippling infections
ThreeWs
in
CLL Support
5 years ago
PLMD worse with common cold/flu?
Does anyone experience their PLMD being worse when they have a cold/flu? I have recently had a string of colds/flu. I have taken to my bed for a week or more each time, being completely exhausted. I used to just take cold remedies and push on with my daily life, now I’m off work sick. I’m wondering
Does anyone experience their PLMD being worse when they have a cold/flu? I have recently had a string of colds/flu. I have taken to my bed for a week or more each time, being completely exhausted. I used to just take cold remedies and push on with my daily life, now I’m off work sick. I’m wondering
GreatOak
in
Restless Legs Syndrome
5 years ago
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Upcoming Educational Forums and Kipps on ROR1
I invite you to attend our free CLL Society Patient and Caregiver Educational Forums. Featured speakers will present the very latest advances in CLL research, clinical trials, treatment options including CAR-T, patient perspectives, and tips to become an effective self-advocate. I will be at all 4 of
I invite you to attend our free CLL Society Patient and Caregiver Educational Forums. Featured speakers will present the very latest advances in CLL research, clinical trials, treatment options including CAR-T, patient perspectives, and tips to become an effective self-advocate. I will be at all 4 of
bkoffman
CLL CURE Hero
in
CLL Support
5 years ago
Introducing myself
Hi everyone, I've been sitting on the sidelines here for a few months and I thought I should introduce myself. I am a 57 year old male from Australia and have had MBL for a number of years. My MBL has been monitored annually and was fairly stable, but in the last few years it started to creep up. My
Hi everyone, I've been sitting on the sidelines here for a few months and I thought I should introduce myself. I am a 57 year old male from Australia and have had MBL for a number of years. My MBL has been monitored annually and was fairly stable, but in the last few years it started to creep up. My
Skyfli
in
CLL Support
5 years ago
Need your help on out of pocket cost for treatment plus to say hi to everyone
Hello all. This is my first posting, but I have been following the daily updates and I am very thankful that there is a forum where I can possibly get answers. To set the stage my blood count was showing signs of something was not right about 3 years ago, and it wasn’t until Oct 2017 that I was diagnosed
Hello all. This is my first posting, but I have been following the daily updates and I am very thankful that there is a forum where I can possibly get answers. To set the stage my blood count was showing signs of something was not right about 3 years ago, and it wasn’t until Oct 2017 that I was diagnosed
Bowie1957
in
CLL Support
5 years ago
Trapped wind and bloating
Just out of curiosity does anyone else get very bloated under the boob area .? When i take my inhaler i always feel ive got trapped wind in middle of my chest. Burping is good but why does this happen? Ive also got gerd/ refux and wonder if that might be the cause
Just out of curiosity does anyone else get very bloated under the boob area .? When i take my inhaler i always feel ive got trapped wind in middle of my chest. Burping is good but why does this happen? Ive also got gerd/ refux and wonder if that might be the cause
Janrose
in
Lung Conditions Community Forum
5 years ago
Self help
One year in from diagnosis of severe COPD and my husband is still stubbornly refusing to consider Pulmonary Rehab. Having suffered with anxiety and depression for over forty years he regards any form of group involvement as counseling, which did nothing for him in the 1970s. With no transport of our
One year in from diagnosis of severe COPD and my husband is still stubbornly refusing to consider Pulmonary Rehab. Having suffered with anxiety and depression for over forty years he regards any form of group involvement as counseling, which did nothing for him in the 1970s. With no transport of our
Pippers
in
Lung Conditions Community Forum
5 years ago
imbruvica/gazyva or imbruvica/venclexta
I am b-pll. i am p17 deletion and p53 mutated. I get treated like advanced CLL because there are so few b-pll patients not enough to get drug indications approved. Conventional pre novel drug era drugs are mostly resistant. i have been on Imbruvica for 3 months and have had dramatic improvement. I
I am b-pll. i am p17 deletion and p53 mutated. I get treated like advanced CLL because there are so few b-pll patients not enough to get drug indications approved. Conventional pre novel drug era drugs are mostly resistant. i have been on Imbruvica for 3 months and have had dramatic improvement. I
Hidden
in
CLL Support
5 years ago
Wondering about protein in urine
Hi, I have been loosing anywhere from 300mg to 800mg of protein in my urine per 24 hours for about 4 years now. My creatinine and GFR and all other markers are always perfect (thank God). I'm wondering how my kidneys are showing damage (by the proteinuria) but my blood tests are always perfect. I do
Hi, I have been loosing anywhere from 300mg to 800mg of protein in my urine per 24 hours for about 4 years now. My creatinine and GFR and all other markers are always perfect (thank God). I'm wondering how my kidneys are showing damage (by the proteinuria) but my blood tests are always perfect. I do
treesarecoo
in
Early CKD Support
5 years ago
Need to know about any DSide Effects when on Venetalax/ rituximab
Hi Everyone. Seems I have the P53 gene deletion. I will be commencing on a regime of Venetaclax/ rituximab in late may- will be monitored for 3 days each week for 5 weeks as an inpatient. I would like to hear from people who have been on this medication regime to please tell me about side effects they
Hi Everyone. Seems I have the P53 gene deletion. I will be commencing on a regime of Venetaclax/ rituximab in late may- will be monitored for 3 days each week for 5 weeks as an inpatient. I would like to hear from people who have been on this medication regime to please tell me about side effects they
roszika
in
CLL Support
5 years ago
Been awhile!
USA: 2014 - present 2014: Spleen upper limits of normal; Liver mild enlargement; shotty lymph nodes at axillary and mediastinal; multiple renal cyst seen bilaterally; diverticulosis in the sigmoid colon without vidence of inflammation; Zap-70+; deletions at 11q24 and 13q14; unmutated IgVH. WBC from Aug
USA: 2014 - present 2014: Spleen upper limits of normal; Liver mild enlargement; shotty lymph nodes at axillary and mediastinal; multiple renal cyst seen bilaterally; diverticulosis in the sigmoid colon without vidence of inflammation; Zap-70+; deletions at 11q24 and 13q14; unmutated IgVH. WBC from Aug
tedrog
in
CLL Support
5 years ago
No endometrosis found
Hi I've never posted before but I was just looking for some advice. I recently had a laparoscopy and abdominal myomectomy and another procedure to thinnin the lining (Sorry can't remember the name) they removed alot of scar tissue from my abdomin. They said the scar tissue was from when i had ruptured
Hi I've never posted before but I was just looking for some advice. I recently had a laparoscopy and abdominal myomectomy and another procedure to thinnin the lining (Sorry can't remember the name) they removed alot of scar tissue from my abdomin. They said the scar tissue was from when i had ruptured
Cecex
in
Endometriosis UK
5 years ago
Has anyone been on the combination therapy of Venetoclax, Ibrutinib and Obinutuzumab?
I was wondering if I could hear from someone who has had the combination of Venetoclax, Ibrutinib and Obinutuzumab (Gazyva). My CLL is completely resistant to Chemo and actually continued to spread while I was on FCR. Basically I have a rare c-myc mutation for CLL that has a poor prognosis. I have
I was wondering if I could hear from someone who has had the combination of Venetoclax, Ibrutinib and Obinutuzumab (Gazyva). My CLL is completely resistant to Chemo and actually continued to spread while I was on FCR. Basically I have a rare c-myc mutation for CLL that has a poor prognosis. I have
Time17
in
CLL Support
5 years ago
what does p53 abnormal 50 percent mean
does it mean 50 percent missing? i have p17 deleted but p53 says abnormal 50 percent. does that mean mutated or missing I had fish,flow, and immunohistochemical. the above was under FISH. And as i've said before they decided on b-pll by process of elimination of others. my b-pll diagnosis was not
does it mean 50 percent missing? i have p17 deleted but p53 says abnormal 50 percent. does that mean mutated or missing I had fish,flow, and immunohistochemical. the above was under FISH. And as i've said before they decided on b-pll by process of elimination of others. my b-pll diagnosis was not
Hidden
in
CLL Support
5 years ago
Cll and my mutation
I switched doctors after 8 years of recurring cll....imbruvica zydelig rhituxin with all plus others...just wasn’t working (for me). My new doctor was surprised that the old never did a bone marrow test (it doesn’t hurt like the old days). Well that and a genetic test revealed I had tp53 mutated gene
I switched doctors after 8 years of recurring cll....imbruvica zydelig rhituxin with all plus others...just wasn’t working (for me). My new doctor was surprised that the old never did a bone marrow test (it doesn’t hurt like the old days). Well that and a genetic test revealed I had tp53 mutated gene
chemosuxs
in
CLL Support
5 years ago
New to this site. Introduction
I was diagnosed with CLL 6 years ago. I am watching and waiting. I just found this forum last week and started really looking at things today. I was diagnosed when I was 36 I am now 42. Needles to say that I have been trying to live life right. Eating and exercising while watching my WBC steadily increase
I was diagnosed with CLL 6 years ago. I am watching and waiting. I just found this forum last week and started really looking at things today. I was diagnosed when I was 36 I am now 42. Needles to say that I have been trying to live life right. Eating and exercising while watching my WBC steadily increase
Tdcpride
in
CLL Support
5 years ago
Worried about financial ruin...
New here - freshly diagnosed, glad to find this resource. My only real concern (more like terror, actually) is financial. I'll get to that in a moment... So, I've been self-watching my condition for a while now. In the fall of 2017 I suddenly developed a WBC of 13.5 and abs lymphocytes of 8250 at
New here - freshly diagnosed, glad to find this resource. My only real concern (more like terror, actually) is financial. I'll get to that in a moment... So, I've been self-watching my condition for a while now. In the fall of 2017 I suddenly developed a WBC of 13.5 and abs lymphocytes of 8250 at
TampaSteve
in
CLL Support
5 years ago
How much patience do we need?!
I went for my baseline scan this week to check I’m okay post-OHSS and get a plan for when to start FET following the abandoned fresh cycle. Sadly, I’ve grown ANOTHER uterine polyp so no FET until they’ve removed it. This will be my third polyp removal and the process will be about 3-4 months until I
I went for my baseline scan this week to check I’m okay post-OHSS and get a plan for when to start FET following the abandoned fresh cycle. Sadly, I’ve grown ANOTHER uterine polyp so no FET until they’ve removed it. This will be my third polyp removal and the process will be about 3-4 months until I
Hidden
in
Fertility Network UK
5 years ago
Rebooting the San Diego CLL Support Group this Wednesday, April 3
Hi, We are pleased to announce that Wednesday April 3rd, 2019 at 4 PM we will have the first San Diego CLL Society Support and Education Meeting at the public Library in University City, see the address below: 4155 Governor Drive San Diego, CA 92122 https://www.sandiego.gov/public-library/locations
Hi, We are pleased to announce that Wednesday April 3rd, 2019 at 4 PM we will have the first San Diego CLL Society Support and Education Meeting at the public Library in University City, see the address below: 4155 Governor Drive San Diego, CA 92122 https://www.sandiego.gov/public-library/locations
bkoffman
CLL CURE Hero
in
CLL Support
5 years ago
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