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How to request test for chromosome 17p deletion, TP 53 mutation; unmutated immunoglobulin heavy chain variable region (IgHV) in Canada?
We live in Brampton, Ontario in Canada. My wife diagnosed with CLL in Dec 2020. We did not have the opportunity to talk to a hematologist in person and appointment only by phone and the Hematologist said it is CLL and nothing to be worried just the w & w situation. When I start questioning further
We live in Brampton, Ontario in Canada. My wife diagnosed with CLL in Dec 2020. We did not have the opportunity to talk to a hematologist in person and appointment only by phone and the Hematologist said it is CLL and nothing to be worried just the w & w situation. When I start questioning further
Sagarcanada
in
CLL Support
3 years ago
Sore scalp
Hi all Has anyone who’s on Tacrolimus suffered from an itching sore scalp? Am coming up 3 years post transplant and in good health but for past 3/4 months my scalp is really itchy
Hi all Has anyone who’s on Tacrolimus suffered from an itching sore scalp? Am coming up 3 years post transplant and in good health but for past 3/4 months my scalp is really itchy
1football
in
British Liver Trust
3 years ago
Does green tea extract (EGCG can) reduce WBC in CLL?
I have read some positive things about green tea extract to treat CLL so our Hematologist said just W & W but we could not stop and search about the CLL and its alternative methods of treatment from food and tea etc. Finally, we found that EGCG is useful to reduce the WBC or postpone development symptoms
I have read some positive things about green tea extract to treat CLL so our Hematologist said just W & W but we could not stop and search about the CLL and its alternative methods of treatment from food and tea etc. Finally, we found that EGCG is useful to reduce the WBC or postpone development symptoms
Sagarcanada
in
CLL Support
3 years ago
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Passive vaping: an impending threat to bystanders.
Electronic cigarettes (e-cigarettes), also known as vapes, are gaining popularity among youths in many parts of the world, including the US and Europe. These young vapers are often unaware their e-cigarettes contain nicotine, an addictive substance that is also present in tobacco cigarettes. Little
Electronic cigarettes (e-cigarettes), also known as vapes, are gaining popularity among youths in many parts of the world, including the US and Europe. These young vapers are often unaware their e-cigarettes contain nicotine, an addictive substance that is also present in tobacco cigarettes. Little
2greys
in
Lung Conditions Community Forum
3 years ago
Fibromyalgia vs Chronic Fatigue
Can anyone help me with identifying the differences between Fibromyalgia and Chronic Fatigue Syndrome? Are they the same thing? Can you have both? Thank You
Can anyone help me with identifying the differences between Fibromyalgia and Chronic Fatigue Syndrome? Are they the same thing? Can you have both? Thank You
Fizzwizz35
in
Fibromyalgia Action UK
3 years ago
Chlorambucil
I had Chlorambucil along with Rituximub infusions which put me in remission for 2 years. The only side effects were nausea. They tried me initially on Obinutzumib but I had anaphylaxis and it was terminated. Hope this helps. Jan x
I had Chlorambucil along with Rituximub infusions which put me in remission for 2 years. The only side effects were nausea. They tried me initially on Obinutzumib but I had anaphylaxis and it was terminated. Hope this helps. Jan x
JanChas
in
CLL Support
3 years ago
Polyp removal
Hi ladies, for anyone who had a polyp removed for ivf purposes how long did you wait for your biopsy results? I had the polyp removed 5 weeks ago. Thanks xx
Hi ladies, for anyone who had a polyp removed for ivf purposes how long did you wait for your biopsy results? I had the polyp removed 5 weeks ago. Thanks xx
slupton
in
Fertility Network UK
4 years ago
Leukemia diagnosis
I am confused .I was told I had leukemia .I now have a diagnosis of lymphoproliferative disorder .anybody got any answers please
I am confused .I was told I had leukemia .I now have a diagnosis of lymphoproliferative disorder .anybody got any answers please
Mariacat01
in
CLL Support
3 years ago
Antibody test
I just got my 2nd covid vaccination, Moderna. I would like to get an antibody test in a few weeks to make sure it did the job since they don't know yet whether the vaccine will work with CLL. Has anyone else done/ considered this idea? Is it even feasible?
I just got my 2nd covid vaccination, Moderna. I would like to get an antibody test in a few weeks to make sure it did the job since they don't know yet whether the vaccine will work with CLL. Has anyone else done/ considered this idea? Is it even feasible?
PerfectPurple
in
CLL Support
3 years ago
Any one know ......
Hi due to have my pneumonia vacination next week it's been 8 years since my last vaccination back in 2013 and they only gave me the adult one pneumovax 23 ( pnn23) then I phoned up my GPs to book this and Spoke to the practice nurse explained it's been 8 years since my last one and I wanted the
Hi due to have my pneumonia vacination next week it's been 8 years since my last vaccination back in 2013 and they only gave me the adult one pneumovax 23 ( pnn23) then I phoned up my GPs to book this and Spoke to the practice nurse explained it's been 8 years since my last one and I wanted the
stewie
in
CLL Support
3 years ago
Hello from CT
Newly diagnosed 50 year old male from Connecticut with CLL. Awaiting the results of the FISH test. Just wanted to thank everyone for the knowledge here as I have been reading and reading non stop. I am sure I will be asking many questions as I move forward but right now trying to learn everything I
Newly diagnosed 50 year old male from Connecticut with CLL. Awaiting the results of the FISH test. Just wanted to thank everyone for the knowledge here as I have been reading and reading non stop. I am sure I will be asking many questions as I move forward but right now trying to learn everything I
controlsct
in
CLL Support
3 years ago
CAPD and PAIN
Hi My First post here, sorry if I screw up. I had a standard CAPD line inserted and then all training and a Baxter machine to receive APD. But the line never worked very well. The doctors decided that it was because I am so tall (6'2" is not that unusual?) Anyway the faulty line was removed and a
Hi My First post here, sorry if I screw up. I had a standard CAPD line inserted and then all training and a Baxter machine to receive APD. But the line never worked very well. The doctors decided that it was because I am so tall (6'2" is not that unusual?) Anyway the faulty line was removed and a
GeoffJ
in
Kidney Dialysis
3 years ago
Richter's Transformation
Hi Andreag555, Sorry to hear about your father RT diagnosis. Quick background on myself. Dx'd with CLL in 2014. Various lines of treatment. Heavely treated with about 6 treatments one after the other(Sorry chemo brain keeps me from remembering all of them!) Was on Venetolclax in 2018. Diagnosed with
Hi Andreag555, Sorry to hear about your father RT diagnosis. Quick background on myself. Dx'd with CLL in 2014. Various lines of treatment. Heavely treated with about 6 treatments one after the other(Sorry chemo brain keeps me from remembering all of them!) Was on Venetolclax in 2018. Diagnosed with
Feisal
in
CLL Support
4 years ago
Update on my ABCDE minus L diet for fighting CLL
Four months ago, I posted that I was embarking on, what I called the "ABCDE minus L diet" for fighting CLL. See: https://healthunlocked.com/cllsupport/posts/144613625/the-abcde-minus-l-diet-for-fighting-cll Briefly. I am at the "watch and worry" stage with my CLL. I am eating and drinking the following
Four months ago, I posted that I was embarking on, what I called the "ABCDE minus L diet" for fighting CLL. See: https://healthunlocked.com/cllsupport/posts/144613625/the-abcde-minus-l-diet-for-fighting-cll Briefly. I am at the "watch and worry" stage with my CLL. I am eating and drinking the following
HowardR
in
CLL Support
4 years ago
Lupus life insurance is it possible!
Hi everyone, it’s been a very long time since I’ve posted anything on this forum. Hope you’re all as well as you can possibly be, if not I hope you feel better soon. I have a question for you all and although it’s through the possible worst pandemic this country has been through, I would like to ask
Hi everyone, it’s been a very long time since I’ve posted anything on this forum. Hope you’re all as well as you can possibly be, if not I hope you feel better soon. I have a question for you all and although it’s through the possible worst pandemic this country has been through, I would like to ask
Wolf_1
in
LUPUS UK
3 years ago
Has anyone had more than one FISH test?
I’ve been on IB for two years and 17p deleted and was wondering if the genetic mutations could change? I asked my oncologist and he said if I did the stem cell transplant he would request it but have any of you had a second test?
I’ve been on IB for two years and 17p deleted and was wondering if the genetic mutations could change? I asked my oncologist and he said if I did the stem cell transplant he would request it but have any of you had a second test?
steve_canada
in
CLL Support
4 years ago
Covid trial in UK examines mixing different vaccines
A UK trial has been launched to see if giving people different Covid vaccines for their first and second doses works as well as the current approach of using the same type of vaccine twice. The idea is to provide more flexibility with vaccine rollout and help deal with any potential disruption to supplies
A UK trial has been launched to see if giving people different Covid vaccines for their first and second doses works as well as the current approach of using the same type of vaccine twice. The idea is to provide more flexibility with vaccine rollout and help deal with any potential disruption to supplies
Jm954
Administrator
in
CLL Support
4 years ago
Strange case of CLL remission
Hello wonderful people! I have shared my father's second treatment of CLL with BR over a year ago. His case was interesting and i would like to share what happened and if anyone can comment or shed some light on it. He was diagnosed with CLL in 2007. W&W till early 2011. He was supposed to do the regular
Hello wonderful people! I have shared my father's second treatment of CLL with BR over a year ago. His case was interesting and i would like to share what happened and if anyone can comment or shed some light on it. He was diagnosed with CLL in 2007. W&W till early 2011. He was supposed to do the regular
mkawass
in
CLL Support
4 years ago
Webinar - Living well with CLL - 3.30pm Monday 15th Feb
Lymphoma Action and Leukaemia Care are back with their next joint webinar on Monday 15th February 2021 at 3,30pm Please join to explore strategies that may aid you to live well with a CLL diagnosis, regardless of what stage of the journey you may be at. The experienced panel of clinicians and patients
Lymphoma Action and Leukaemia Care are back with their next joint webinar on Monday 15th February 2021 at 3,30pm Please join to explore strategies that may aid you to live well with a CLL diagnosis, regardless of what stage of the journey you may be at. The experienced panel of clinicians and patients
Jm954
Administrator
in
CLL Support
4 years ago
How long after hysteroscopy did you start treatment?
Morming lovelys for anyone who had a polyp removal before next cycle how long did you wait for your biopsy results? My clinic wont let me start untill i have the results. Also how long after your hysteroscopy did you work out? I'm desperate to go for a run. Thanks guys xxx
Morming lovelys for anyone who had a polyp removal before next cycle how long did you wait for your biopsy results? My clinic wont let me start untill i have the results. Also how long after your hysteroscopy did you work out? I'm desperate to go for a run. Thanks guys xxx
slupton
in
Fertility Network UK
4 years ago
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