Search
Search
About
Log in
Join
Experiences with
Colonic polyps
Posts
Communities
2,349 public posts
Filter results
NICE Approves Acalabrutinib (Calquence) for specified groups of CLL patients in England
Thanks to Peggy4 for posting this yesterday, here's a bit more detail. NICE has determined that Acalabrutinib will be available to CLL patients in the following groups: * previously treated CLL patients. *untreated patients with 17p deletion or TP53 mutations. *untreated patients who are unsuitable
Thanks to Peggy4 for posting this yesterday, here's a bit more detail. NICE has determined that Acalabrutinib will be available to CLL patients in the following groups: * previously treated CLL patients. *untreated patients with 17p deletion or TP53 mutations. *untreated patients who are unsuitable
Jm954
Administrator
in
CLL Support
3 years ago
Cystinosis and Fanconi syndrome
Hi, I asked this question a while ago but I thought I would try again since it’s been a while to see if there was anyone else in this community who has these illnesses. Cystinosis and Fanconi syndrome I was diagnosed when I was around 2 years old,. basically the cystine cells attack the vital organs
Hi, I asked this question a while ago but I thought I would try again since it’s been a while to see if there was anyone else in this community who has these illnesses. Cystinosis and Fanconi syndrome I was diagnosed when I was around 2 years old,. basically the cystine cells attack the vital organs
Rmatthew
in
Kidney Dialysis
3 years ago
Explosion of Data Come From Innovative Combos in CLL The progress made with novel combination regimens is unprecedented
Video recaps of significant papers presented at 25th Annual International Congress on Hematologic Malignancies: Focus on Leukemias, Lymphomas, and Myeloma https://view.email.onclive.com/?qs=ff210df8480d97f58576ac91cdadf53c1fd145046e64fc78cf45bc7553ec3156d53abae8b515df5cf36766d4c9e951bec7d45f1a446b46c0dd951e09c41d66e9ce3a477ab6193e23e24fd6710b3aa35f
Video recaps of significant papers presented at 25th Annual International Congress on Hematologic Malignancies: Focus on Leukemias, Lymphomas, and Myeloma https://view.email.onclive.com/?qs=ff210df8480d97f58576ac91cdadf53c1fd145046e64fc78cf45bc7553ec3156d53abae8b515df5cf36766d4c9e951bec7d45f1a446b46c0dd951e09c41d66e9ce3a477ab6193e23e24fd6710b3aa35f
lankisterguy
Volunteer
in
CLL Support
3 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
The Leukemia & Lymphoma Society (USA) Co-Pay Assistance Program provides up to $8,000 annually for CLL Patients' treatment expenses
http://view.e.lls.org/?qs=a2e7081f17eb653ddea40444656a1770bfdf0f4e301505d8af5f4f9cf3bf65ec8be0b13ac15508469314a0fe254f1b095390f32d492221fe510c3b354e19f49d&utm_source=sfmc&utm_medium=email&utm_campaign=CLL+Copay+Email&utm_term=Web+Version&utm_id=130124&sfmc_id=223991984 Financial Assistance with Chronic
http://view.e.lls.org/?qs=a2e7081f17eb653ddea40444656a1770bfdf0f4e301505d8af5f4f9cf3bf65ec8be0b13ac15508469314a0fe254f1b095390f32d492221fe510c3b354e19f49d&utm_source=sfmc&utm_medium=email&utm_campaign=CLL+Copay+Email&utm_term=Web+Version&utm_id=130124&sfmc_id=223991984 Financial Assistance with Chronic
lankisterguy
Volunteer
in
CLL Support
3 years ago
Cannabis and CLL?
Alternative treatment of CLL? I have been reading about the story of cannabis and its treatment on CLL. I will tell you why I am interested to know about this? since my wife is under W & W condition of CLL so I have been exploring different alternative methods so that I could stop her progression?
Alternative treatment of CLL? I have been reading about the story of cannabis and its treatment on CLL. I will tell you why I am interested to know about this? since my wife is under W & W condition of CLL so I have been exploring different alternative methods so that I could stop her progression?
Sagarcanada
in
CLL Support
3 years ago
CLL under W&W and Covid Vaccine
I live in B.C. Canada and I am trying to figure out if I qualify for the Covid vaccine at the time of the "clinically extremely vulnerable" phase. I have CLL and I am on W&W. Under the clinically extremely vulnerable it says "People with cancers of the blood or bone marrow such as leukemia, lymphoma
I live in B.C. Canada and I am trying to figure out if I qualify for the Covid vaccine at the time of the "clinically extremely vulnerable" phase. I have CLL and I am on W&W. Under the clinically extremely vulnerable it says "People with cancers of the blood or bone marrow such as leukemia, lymphoma
TheMah
in
CLL Support
3 years ago
BRUIN Study: phase 1/2 study of Pirtobrutinib (formerly Loxo 305) in relapsed or refractory B-cell malignancies
Patients discontinue BTKi's due to resistance and intolerance. We evaluated the safety and efficacy of Pirtobrutinib (working name; formerly known as LOXO-305), a highly selective, reversible BTK inhibitor, in these patients. The study started recruiting November 16, 2018 and follow up is expected to
Patients discontinue BTKi's due to resistance and intolerance. We evaluated the safety and efficacy of Pirtobrutinib (working name; formerly known as LOXO-305), a highly selective, reversible BTK inhibitor, in these patients. The study started recruiting November 16, 2018 and follow up is expected to
Jm954
Administrator
in
CLL Support
3 years ago
CLL FISH tests results
I have been diagnosed and joined the CLL club recently. I have been doing my research here and also with Dr. Google etc. I just got my FLOW and FISH test results and it is very complicated. I am hoping someone here can give me the layman terms and what the results mean. I have a follow up appointment
I have been diagnosed and joined the CLL club recently. I have been doing my research here and also with Dr. Google etc. I just got my FLOW and FISH test results and it is very complicated. I am hoping someone here can give me the layman terms and what the results mean. I have a follow up appointment
controlsct
in
CLL Support
3 years ago
First Time Post: CLL in full relapse mode + vaccines and Calquence next line of defense.
Hi all - my name is Tim and Im from Seattle. This is my first post here though I’ve been following HealthUnlocked for my CLL diagnosis back in 2018. Unfortunately my leukemia is back after nearly 2 years of remission with FCR. I’ve undergone the typical CLL tests and was ‘relieved’ to find it had not
Hi all - my name is Tim and Im from Seattle. This is my first post here though I’ve been following HealthUnlocked for my CLL diagnosis back in 2018. Unfortunately my leukemia is back after nearly 2 years of remission with FCR. I’ve undergone the typical CLL tests and was ‘relieved’ to find it had not
TimDeeSeattle
in
CLL Support
3 years ago
Ricther Transformation - Derek May has left us.
Hello everyone. It is always my turn to deliver the bad news. Tonight Derek May left us. Two weeks ago Derek made the difficult decision to continue treatment or discontinue it. Derek underwent a cell transplant and had graft-versus-host complications. He was in treatment but his body could not bear
Hello everyone. It is always my turn to deliver the bad news. Tonight Derek May left us. Two weeks ago Derek made the difficult decision to continue treatment or discontinue it. Derek underwent a cell transplant and had graft-versus-host complications. He was in treatment but his body could not bear
Priss69
in
CLL Support
3 years ago
Possible Richter’s Transformation?
My husband had tonsilitis In late December early January and seems to have recover from that. Then, unfortunately, he was in contact with someone positive for Covid and contracted It. He had a difficult time of it he wasn’t hospitalized but came close. During his quarantine, when he was almost finished
My husband had tonsilitis In late December early January and seems to have recover from that. Then, unfortunately, he was in contact with someone positive for Covid and contracted It. He had a difficult time of it he wasn’t hospitalized but came close. During his quarantine, when he was almost finished
hsouter
in
CLL Support
3 years ago
COPD & Showers
Thank you everyone for your repsonses, I am most grateful for your taking time to respond. It's almost a relief to know that I am not alone in finding water vapour in the bathroom, and the outdoors an issue. I am not sure whether that this is something that the medical profession are aware of, or even
Thank you everyone for your repsonses, I am most grateful for your taking time to respond. It's almost a relief to know that I am not alone in finding water vapour in the bathroom, and the outdoors an issue. I am not sure whether that this is something that the medical profession are aware of, or even
philipjr
in
Lung Conditions Community Forum
3 years ago
How to request test for chromosome 17p deletion, TP 53 mutation; unmutated immunoglobulin heavy chain variable region (IgHV) in Canada?
We live in Brampton, Ontario in Canada. My wife diagnosed with CLL in Dec 2020. We did not have the opportunity to talk to a hematologist in person and appointment only by phone and the Hematologist said it is CLL and nothing to be worried just the w & w situation. When I start questioning further
We live in Brampton, Ontario in Canada. My wife diagnosed with CLL in Dec 2020. We did not have the opportunity to talk to a hematologist in person and appointment only by phone and the Hematologist said it is CLL and nothing to be worried just the w & w situation. When I start questioning further
Sagarcanada
in
CLL Support
3 years ago
Does green tea extract (EGCG can) reduce WBC in CLL?
I have read some positive things about green tea extract to treat CLL so our Hematologist said just W & W but we could not stop and search about the CLL and its alternative methods of treatment from food and tea etc. Finally, we found that EGCG is useful to reduce the WBC or postpone development symptoms
I have read some positive things about green tea extract to treat CLL so our Hematologist said just W & W but we could not stop and search about the CLL and its alternative methods of treatment from food and tea etc. Finally, we found that EGCG is useful to reduce the WBC or postpone development symptoms
Sagarcanada
in
CLL Support
3 years ago
Sore scalp
Hi all Has anyone who’s on Tacrolimus suffered from an itching sore scalp? Am coming up 3 years post transplant and in good health but for past 3/4 months my scalp is really itchy
Hi all Has anyone who’s on Tacrolimus suffered from an itching sore scalp? Am coming up 3 years post transplant and in good health but for past 3/4 months my scalp is really itchy
1football
in
British Liver Trust
3 years ago
Passive vaping: an impending threat to bystanders.
Electronic cigarettes (e-cigarettes), also known as vapes, are gaining popularity among youths in many parts of the world, including the US and Europe. These young vapers are often unaware their e-cigarettes contain nicotine, an addictive substance that is also present in tobacco cigarettes. Little
Electronic cigarettes (e-cigarettes), also known as vapes, are gaining popularity among youths in many parts of the world, including the US and Europe. These young vapers are often unaware their e-cigarettes contain nicotine, an addictive substance that is also present in tobacco cigarettes. Little
2greys
in
Lung Conditions Community Forum
3 years ago
Polyp removal
Hi ladies, for anyone who had a polyp removed for ivf purposes how long did you wait for your biopsy results? I had the polyp removed 5 weeks ago. Thanks xx
Hi ladies, for anyone who had a polyp removed for ivf purposes how long did you wait for your biopsy results? I had the polyp removed 5 weeks ago. Thanks xx
slupton
in
Fertility Network UK
3 years ago
Fibromyalgia vs Chronic Fatigue
Can anyone help me with identifying the differences between Fibromyalgia and Chronic Fatigue Syndrome? Are they the same thing? Can you have both? Thank You
Can anyone help me with identifying the differences between Fibromyalgia and Chronic Fatigue Syndrome? Are they the same thing? Can you have both? Thank You
Fizzwizz35
in
Fibromyalgia Action UK
3 years ago
Chlorambucil
I had Chlorambucil along with Rituximub infusions which put me in remission for 2 years. The only side effects were nausea. They tried me initially on Obinutzumib but I had anaphylaxis and it was terminated. Hope this helps. Jan x
I had Chlorambucil along with Rituximub infusions which put me in remission for 2 years. The only side effects were nausea. They tried me initially on Obinutzumib but I had anaphylaxis and it was terminated. Hope this helps. Jan x
JanChas
in
CLL Support
3 years ago
Leukemia diagnosis
I am confused .I was told I had leukemia .I now have a diagnosis of lymphoproliferative disorder .anybody got any answers please
I am confused .I was told I had leukemia .I now have a diagnosis of lymphoproliferative disorder .anybody got any answers please
Mariacat01
in
CLL Support
3 years ago
1
...
26
27
28
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
1439 results
Lung Conditions Community Forum
217 results
Diabetes India
81 results
View top 10 communities
Sort by
Most Relevant
Newest