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Richter’s Transformation - Results of my Pseudo Richter Human Genome study
Hi. As I mentioned earlier, Professor Elias Campo did a study of my Ricther to try to understand the behavior I copy and paste the result Our cases are helping that Richter's transformation is not the great unknown within the world of CLL. We have sequenced the entire genome of the CLL and the lymph
Hi. As I mentioned earlier, Professor Elias Campo did a study of my Ricther to try to understand the behavior I copy and paste the result Our cases are helping that Richter's transformation is not the great unknown within the world of CLL. We have sequenced the entire genome of the CLL and the lymph
Priss69
in
CLL Support
4 years ago
Self-introduction
Hi, I'm a 72-year-old USA male, no symptoms, but diagnosed a month ago with CLL through routine blood workup (plus the usual FISH-followup after high WBC noted). So I've been reading assiduously, and trying to figure out when/how to assemble a team. For me it's W&W, with another blood assay in 3 months
Hi, I'm a 72-year-old USA male, no symptoms, but diagnosed a month ago with CLL through routine blood workup (plus the usual FISH-followup after high WBC noted). So I've been reading assiduously, and trying to figure out when/how to assemble a team. For me it's W&W, with another blood assay in 3 months
Felixgratus
in
CLL Support
4 years ago
Surgery soon
Hi guys, I've got a hysteroscopy booked for Friday for polyp removal and biopsy. I've just been told its a general anesthetic and im now panicking. Please if any of you have had the same under general please let me know thanks xx
Hi guys, I've got a hysteroscopy booked for Friday for polyp removal and biopsy. I've just been told its a general anesthetic and im now panicking. Please if any of you have had the same under general please let me know thanks xx
slupton
in
Fertility Network UK
4 years ago
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Richter's Syndrome! One pill, Triple Combination Therapy is in clinical trial for Richter’s Transformation & De Novo Large B-Cell Lymphoma
Richter's Syndrome! One pill, Triple Combination Therapy is in clinical trial for Richter’s Transformation and De Novo Large B-Cell Lymphoma with impressive results. In this ASH 2020 In this video Dr. Mato tells us that his clinical trial introduces the concept of “synthetic lethality,” where multiple
Richter's Syndrome! One pill, Triple Combination Therapy is in clinical trial for Richter’s Transformation and De Novo Large B-Cell Lymphoma with impressive results. In this ASH 2020 In this video Dr. Mato tells us that his clinical trial introduces the concept of “synthetic lethality,” where multiple
bkoffman
CLL CURE Hero
in
CLL Support
4 years ago
Bladder Cancer with CLL
CLL since 2012 ( Ibrutinib 5 years , Gayzva 6 months , Acalabrutinib 2 years ) now bladder cancer , high grade , no wall penetration .... advised to take BCG for 6 weeks every 3 months for a year ... anyone shed light on what I can physically expect from the BCG ?
CLL since 2012 ( Ibrutinib 5 years , Gayzva 6 months , Acalabrutinib 2 years ) now bladder cancer , high grade , no wall penetration .... advised to take BCG for 6 weeks every 3 months for a year ... anyone shed light on what I can physically expect from the BCG ?
fish61
in
CLL Support
4 years ago
Richter Syndrome
Hello Everybody, My boyfriend was just diagnosed with Richter Syndrome about 2 hours ago. Those have been 2 hours where I have felt myself losing my mind! They told him not to google anything in regards to the diagnosis as they are doing more tests. Of course, I didn’t listen! Everything I have read
Hello Everybody, My boyfriend was just diagnosed with Richter Syndrome about 2 hours ago. Those have been 2 hours where I have felt myself losing my mind! They told him not to google anything in regards to the diagnosis as they are doing more tests. Of course, I didn’t listen! Everything I have read
Bee4028
in
CLL Support
4 years ago
Advice required - New to thyroid problems
I experienced a rectal bleed in 2016 and was found to have
colonic
polyps
and diverticulitis. A video capsule endoscopy early this year revealed biliary gastritis. My joint pain continued together with the other symptoms . Now my joint pain is worse, particularly in my feet and hands .
I experienced a rectal bleed in 2016 and was found to have
colonic
polyps
and diverticulitis. A video capsule endoscopy early this year revealed biliary gastritis. My joint pain continued together with the other symptoms . Now my joint pain is worse, particularly in my feet and hands .
Ophelia1
in
Thyroid UK
4 years ago
CEV letter v2.0, NI edition.
So lots of posts on here from people getting CEV letters again. Mostly England I think however our wee country got to deal with the serious arguments about transfer tests (I guess they are, not if you're youngest is 20 though) before they issue the guidance and letters. Just yesterday, Friday 8th I received
So lots of posts on here from people getting CEV letters again. Mostly England I think however our wee country got to deal with the serious arguments about transfer tests (I guess they are, not if you're youngest is 20 though) before they issue the guidance and letters. Just yesterday, Friday 8th I received
Belfastbees
in
CLL Support
4 years ago
Polyp removal soon
Hi you lovely ladies, so I finally have a date for my polyp removal its in 17 days! I can start my cycle after hopefully. Im really nervous if anyones had a polyp removed please let me know how it went and how soon you could start the treatment? Thank you xx
Hi you lovely ladies, so I finally have a date for my polyp removal its in 17 days! I can start my cycle after hopefully. Im really nervous if anyones had a polyp removed please let me know how it went and how soon you could start the treatment? Thank you xx
slupton
in
Fertility Network UK
4 years ago
Expert Answers to Frequently Asked Questions About Chronic Lymphocytic Leukemia and COVID-19, including vaccination
Interesting 'conversation' with CLL experts on a variety of topics including: Do patients with CLL have worse outcomes if they develop COVID‑19? Are data available on COVID-19 outcomes in younger patients with CLL? Would it be possible for CLL-associated lymphocytosis to counteract COVID-19–associated
Interesting 'conversation' with CLL experts on a variety of topics including: Do patients with CLL have worse outcomes if they develop COVID‑19? Are data available on COVID-19 outcomes in younger patients with CLL? Would it be possible for CLL-associated lymphocytosis to counteract COVID-19–associated
Jm954
Administrator
in
CLL Support
4 years ago
Immune suppressants?
Im not seeking any medical advice with this question. Do any of you know why some of us, post transplant, take different immune suppressants? I take 2 mg of Advagraf (slow relase) once a day. Others that i have met on the liver unit that were transplanted around the same time as me, December 2019, or
Im not seeking any medical advice with this question. Do any of you know why some of us, post transplant, take different immune suppressants? I take 2 mg of Advagraf (slow relase) once a day. Others that i have met on the liver unit that were transplanted around the same time as me, December 2019, or
MarthaRock
in
British Liver Trust
4 years ago
Temgesic or Subutex
I have an appointment next week at an addiction clinic, even though I am not an addict. I have restless legs and chronic back pain. I went to this particular clinic a couple of months ago to request a script for Subutex. The doctor said he wouldn’t prescribe it because I would have to report to a
I have an appointment next week at an addiction clinic, even though I am not an addict. I have restless legs and chronic back pain. I went to this particular clinic a couple of months ago to request a script for Subutex. The doctor said he wouldn’t prescribe it because I would have to report to a
Mickmaur
in
Restless Legs Syndrome
4 years ago
Good end to a bad year... My MRD Results are in!
As many of you know, I enrolled in a clinical trial for experimental treatment with the goal to reduce MRD to zero. (Minimal (or Measurable) residual disease Description:Minimal residual disease is the name given to small numbers of leukaemic cells that remain in the person during treatment, or after
As many of you know, I enrolled in a clinical trial for experimental treatment with the goal to reduce MRD to zero. (Minimal (or Measurable) residual disease Description:Minimal residual disease is the name given to small numbers of leukaemic cells that remain in the person during treatment, or after
MikeHoff
in
CLL Support
4 years ago
CLL and Roundup lawsuit
For those living in the U.S. there's a time sensitive deadline—12/31/2020, I think—to initiate a new legal action brewing against the makers of Roundup for people who have, or have had, CLL. Check out this site: https://justicecounts.com/roundup/roundup-settlement-amounts/ Even more importantly, here's
For those living in the U.S. there's a time sensitive deadline—12/31/2020, I think—to initiate a new legal action brewing against the makers of Roundup for people who have, or have had, CLL. Check out this site: https://justicecounts.com/roundup/roundup-settlement-amounts/ Even more importantly, here's
Pogee
in
CLL Support
4 years ago
COLOFAC
I wonder whether anyone else has experienced problems with Colofac. Although it was helpful with the pain and distension it always culminated in faecal impaction. Merbentyl was found to be more satisfactory but it was removed from my list of medications because of its inhibitive cost. I have managed
I wonder whether anyone else has experienced problems with Colofac. Although it was helpful with the pain and distension it always culminated in faecal impaction. Merbentyl was found to be more satisfactory but it was removed from my list of medications because of its inhibitive cost. I have managed
theomus
in
IBS Network
4 years ago
2 Physicians with CLL! Join CLL Society for a CLL Society/ FaceBook Live event Dec. 16 and hear their stories live!
2 Physicians with CLL! Join us for a CLL Society/ Facebook Live Event Wednesday Dec. 16. Watch Dr. Brian Koffman and a fellow physician, both with CLL, share stories of the impact of their diagnosis and the strategies they implemented for increasing their knowledge about CLL and arranging proper care
2 Physicians with CLL! Join us for a CLL Society/ Facebook Live Event Wednesday Dec. 16. Watch Dr. Brian Koffman and a fellow physician, both with CLL, share stories of the impact of their diagnosis and the strategies they implemented for increasing their knowledge about CLL and arranging proper care
bkoffman
CLL CURE Hero
in
CLL Support
4 years ago
Best use of time while waiting on FISH panel
Hello all, I just found this group, and am so grateful for this type of resource! My husband (41) of 2 months was diagnosed with cll on Friday. I'm so overwhelmed with the terms and information and I don't know where to begin. He is going in this week for the FISH test. My question is, what can we do
Hello all, I just found this group, and am so grateful for this type of resource! My husband (41) of 2 months was diagnosed with cll on Friday. I'm so overwhelmed with the terms and information and I don't know where to begin. He is going in this week for the FISH test. My question is, what can we do
MrsCc6
in
CLL Support
4 years ago
American Society of Hematology (ASH) 2020 Virtual meeting key updates in the treatment of CLL
The Virtual 62nd Annual American Society of Hematology (ASH) meeting has showcased key updates in the treatment and management of hematological malignancies.
The content of VJHemOnc is intended for healthcare professionals- so these presentations are in "Med-Speak"
Overview of all 20 video
The Virtual 62nd Annual American Society of Hematology (ASH) meeting has showcased key updates in the treatment and management of hematological malignancies.
The content of VJHemOnc is intended for healthcare professionals- so these presentations are in "Med-Speak"
Overview of all 20 video
lankisterguy
Volunteer
in
CLL Support
4 years ago
Polyp removal
Hey is anyone else waiting for polyp removal before next round? Covid has pushed my op back even further I have been waiting for 4 months! My consultant will not let me proceed with it out the removal as she seems quite concerned about it even mentioned it could be something nasty. But my dr and the
Hey is anyone else waiting for polyp removal before next round? Covid has pushed my op back even further I have been waiting for 4 months! My consultant will not let me proceed with it out the removal as she seems quite concerned about it even mentioned it could be something nasty. But my dr and the
slupton
in
Fertility Network UK
4 years ago
CLL Society ASH 2020 Day 4 Updates and Wrap-Up Less fun! No hugs. But we are leaving with a lot of treats!
CLL Society ASH 2020 Day 4 Updates and Wrap-Up Dec. 8th was the 4th and final day of ASH 2020, the American Society of Hematology Annual meeting and Exposition. Less fun! No hugs. But we are leaving with a lot of treats and the promise of much more to come. Here is some of what I am taking away from
CLL Society ASH 2020 Day 4 Updates and Wrap-Up Dec. 8th was the 4th and final day of ASH 2020, the American Society of Hematology Annual meeting and Exposition. Less fun! No hugs. But we are leaving with a lot of treats and the promise of much more to come. Here is some of what I am taking away from
bkoffman
CLL CURE Hero
in
CLL Support
4 years ago
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