Experiences with

Cogan's syndrome

There are around 500 cases of this in the world, so is extremely rare, which means diagnosis becomes even more difficult. CG as its referred to is a form of multi vessel vasculitis so symptons end up pretty broad. Why so few cases is a lot of researchers believe there a lot of undiagnosed cases out

I wanted to ask if anyone had to contemplate FET cycle that falls over Christmas? I had failed FET in January it took 12 months to reach this point because I decided to go attend RIF clinic but all the waiting time then treatment to hopefully deal with implant failure has meant my next cycle can start

Part of AI's response to "acetyl-l-leucine anxiety" Elevated lactate levels in the brain can occur with several neurological disorders, including anxiety, major depressive disorder, and Parkinson's disease. High levels of lactate can lower the brain's pH, which can affect neuronal activity and the

Bit of a random question. For the past few days I’ve had painful gums in one area, to the point where I went to the dentist today to get it looked at. She thinks it could be gum related and possibly due to additional hormones I’m taking. I was wondering whether anyone else has experienced this? I’ve

since having a total hysterectomy in 2019 for very early stage cancer which cured it I have developed nagging pain near the perineum which at times feels as if I’ve been kicked in that area. I also developed urge incontinence and changes to bowel function. Recently I saw a physiotherapist who specialised

I have had PBC since 2000 and coped well so it didn`t stop me doing anything I wanted to do. 10 years ago I was diagnosed with Sjogrens because of symptons I had at that time. 9 years passed without a worry but last year I started with Sjogren problems. It is now difficult to work out whether the issues

Hi I hope someone can help. I have been struggling a while, I had a scan which revealed thyroiditis and a small grade 2 cyst. Drs won't give me any support as bloods are normal. I went back again, after prodding and poking my neck which was uncomfortable suddenly I am on the pathway for throat cancer

Hi All, I just found out last week my first FET failed. I couldn't get my lining up above 6.3mm and the clinic were happy to go ahead as I had a lovely triple line and even during my egg collection my lining only made it to 6.8mm. I was taking pomegranate juice and l-arginine throughout to hopefully

Hi i would like to know if anyone alsof experiencing extreme lockjaw, tetanus with fnd? I have this for several years and i was diagnosed with fnd last year. Symptoms spams, tics, walking difficulties. But i try to find out if the lockjaw was an early sign.

I want everyone to have the choice of trying anything they like - so long as they are fully informed and all information is readily accessible. Trouble is, a lot of information is hard to access for many reasons including language, paywalls, time, and having the required time and skills to get to the

As you all know I have been on low dose buprenorphine tablets for one year & I simply cannot believe I have been free of the dreaded RLS for 12 whole months after 40 years of suffering.However, as we have all discussed I am invariably wide awake during 🤨the night & by the afternoons I simply have to

Question for those using Kevzara: We’re going to be going on a couple of trips and I’m wondering how to deal with my used syringes. What they send me are not the pen type of injection, but a syringe that has ‘finger grips’ that are 1.5 inch wide. They don’t fit in all sharps disposal containers because

I wondered if anyone has applied for pip. My auto immune thyroiditis caused me to leave my career in nursing . As my intermittent brain fogs caused me to worry I would make a mistake . Thank fully I left before I did. I now find I can only work part time and I work from home 15 hours minimum wage .

when I have a GCA flare 3 months later my hair comes out and grows back really dry and I cannt do anything with it . I went to a dermatologist who recommended , I take viviscal hair tablets ( not cheap) biotin tablets and then on prescription extrovex shsmpoo. Plus every other night I go to bed with

Hello, after my cancelled egg collection I am now going privately. During this time I’ve read ‘it starts with the egg’ and as I am 33 with an AFC of 4 and AMH of 3. something I started taking everything! Now I’m worried it is a bit overkill and also it’s really expensive. I know it’s hard for someone

I have found the occasional use of an Aleve helps so much with pain when I am decreasing the prednisone. Most of my pain comes from my back fractures. As I reduce the pred. My back aches get worse. Does anyone know why an Aleve would be worse for me than some of the meds they suggest that have much

So today I took 0.2 mg of Buprenorphine, thinking it was better to start low. The effect was incredible. My legs didn't move at all. In fact, the effect was so effective that I even got scared. My body was so relaxed. I got a little anxious that I may not wake up if I felt sleep. I layed there amazed

Hi, I hope you can advise. Since November 2023 I have had Raynaud's, then December Severe Dry Eyes and mouth, In May 2023 landed up with medication for Sicca Sjogren's (Cyclosporine & Pilocarpine). Blood test done at the appointment showed Systemic Sclerosis (anti TH/TO) as well. I was advised of this

I started tapering prednisone 10 one day 5 the next for 4 weeks starting 25/6 and since Thursday all of my symptoms are back well my pleural effusion is definitely back with a vengeance. Could this be down to the reduction? Sorry my heads all over the place, my breathing hurts and I’m in so much pain

Been on buprenorphine patches & have noticed head hair loss.Now changing from 5mg to 15 mg shortly as 5 mg doesn't work on me nor does 10mg. Not clumps of hair more like loose strands of hair. Anyone else having these issues etc I'm male by the way. Kindest Regards