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Experiences with
Chronic pain
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Hello
It’s about healing
chronic
pain
but it’s very scientific. They’ve had amazing results. I’m hopeful! Quite frankly, if someone told me that by standing on my head whilst sucking by thumb, would cure me, I’d probably do it! 😆😆😆. X
It’s about healing
chronic
pain
but it’s very scientific. They’ve had amazing results. I’m hopeful! Quite frankly, if someone told me that by standing on my head whilst sucking by thumb, would cure me, I’d probably do it! 😆😆😆. X
Bramble2000
in
PMRGCAuk
11 months ago
Ampyra
I have been on Ampyra/Dalfampridine for about 4 years. I am thinking of stopping as it is expensive. What effect may it have on my MS? does anyone have any thoughts?
I have been on Ampyra/Dalfampridine for about 4 years. I am thinking of stopping as it is expensive. What effect may it have on my MS? does anyone have any thoughts?
whwiechm
in
My MSAA Community
1 year ago
Increased bleeding after first scan…
hi everyone, this is my first post. First IVF cycle. I have PCOS and my bleeds are [u]extremely[/u] unpredictable. I started my current cycle with very light murky bleeding and because there was nothing else to go on and none of my bleeds are the same, we started the protocol given by our doctor.
hi everyone, this is my first post. First IVF cycle. I have PCOS and my bleeds are [u]extremely[/u] unpredictable. I started my current cycle with very light murky bleeding and because there was nothing else to go on and none of my bleeds are the same, we started the protocol given by our doctor.
IchigoKeikaku
in
Fertility Network UK
9 months ago
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Pelvic conjestion syndrome
Hello, for over a year now I've been having
chronic
pelvic
pain
, I went to the GP 4 months ago and got a ultrasound referral. They suspect it could be pelvic conjestion syndrome PCS (basically varicose veins around my ovaries) I'm struggling to find any UK based information on the condition.
Hello, for over a year now I've been having
chronic
pelvic
pain
, I went to the GP 4 months ago and got a ultrasound referral. They suspect it could be pelvic conjestion syndrome PCS (basically varicose veins around my ovaries) I'm struggling to find any UK based information on the condition.
Abarc
in
Pelvic Pain Support Network
9 months ago
DWP????
I know my working life is slowly coming to an end because of extreme fatigue and
chronic
pain
......life can be so cruel. Perhaps I can find a job where I dnt have to do too much.......any ideas😊
I know my working life is slowly coming to an end because of extreme fatigue and
chronic
pain
......life can be so cruel. Perhaps I can find a job where I dnt have to do too much.......any ideas😊
Hidden
in
Fibromyalgia Action UK
1 year ago
What kind of jobs would you recommend for chronic pain?
👋 Today on the blog, we shared the top 10 jobs for people living with
chronic
pain
, along with tips for working with
chronic
pain
. Here is the link to give it a read: www.mission-cure.org/blog/10-of-the-best-jobs-for-people-with-
chronic
-
pain
-in-2023/. But, we want to hear from you too!
👋 Today on the blog, we shared the top 10 jobs for people living with
chronic
pain
, along with tips for working with
chronic
pain
. Here is the link to give it a read: www.mission-cure.org/blog/10-of-the-best-jobs-for-people-with-
chronic
-
pain
-in-2023/. But, we want to hear from you too!
Skye_MC
Administrator
in
Chronic Pancreatitis Support
1 year ago
Great doctor!
It turns out itis a very rare condition that took years of frustration like us to be diagnosed and has left him with intense
chronic
pain
and debilitating exhaustion He can only work 3days a week and for 4 hours before having to go home to bed He has been amazingly helpful though did not know much about
It turns out itis a very rare condition that took years of frustration like us to be diagnosed and has left him with intense
chronic
pain
and debilitating exhaustion He can only work 3days a week and for 4 hours before having to go home to bed He has been amazingly helpful though did not know much about
brenanddave
in
Pernicious Anaemia Society
8 months ago
Urgent help needed. Extremely severe RLS, cannot identify cause.
It's so goddamn severe that at this point, I either have the most severe case of RLS in medical history or it's something else. I rate it 9 on the severity scale. Did every possible test related to RLS (iron, vitamin D, etc) except for for transferrin saturation and serum iron because it wasn't available
It's so goddamn severe that at this point, I either have the most severe case of RLS in medical history or it's something else. I rate it 9 on the severity scale. Did every possible test related to RLS (iron, vitamin D, etc) except for for transferrin saturation and serum iron because it wasn't available
RestlessDaily
in
Restless Legs Syndrome
9 months ago
Chronic pancreatitis sufferer
Most of the
pain
management doctors do not treat
chronic
pancreatitis
pain
with medication now. With the opiate epidemic, a lot of doctors will not prescribe the proper
pain
medicine for
chronic
pancreatitis.
Most of the
pain
management doctors do not treat
chronic
pancreatitis
pain
with medication now. With the opiate epidemic, a lot of doctors will not prescribe the proper
pain
medicine for
chronic
pancreatitis.
Pancreatitis000
in
Chronic Pancreatitis Support
1 year ago
Endo history lesson!!!!
On a bored afternoon today, i thought i'd look up when Endo was first diagnosed. It was about 1860, here in England. I wonder how women coped then???. Was it getting drunk that helped numb the pain, cos there were no painkillers like we have today i think. I have endo at the minute, it feels like
On a bored afternoon today, i thought i'd look up when Endo was first diagnosed. It was about 1860, here in England. I wonder how women coped then???. Was it getting drunk that helped numb the pain, cos there were no painkillers like we have today i think. I have endo at the minute, it feels like
valgal76
in
Endometriosis UK
9 months ago
37 M, Functional Tremor, with hyperreflexia, dysphagia, SBD, and urinary incontinence. All diagnosed.
How can I have so many positive neurological findings and tests and be told that all of the stiffness/rigid feeling that has slowly developed and worsened the past 3 years be entirely FND? I was under the impression that FND, not just functional tremor, required a lack of positive neurogenic findings
How can I have so many positive neurological findings and tests and be told that all of the stiffness/rigid feeling that has slowly developed and worsened the past 3 years be entirely FND? I was under the impression that FND, not just functional tremor, required a lack of positive neurogenic findings
Hidden
in
Functional Neurological Disorder - FND Hope
9 months ago
nerve pain
Hi, does anyone else suffer with
chronic
nerve
pain
? I’ve suffered with this in the past but now it’s come back out of nowhere my intestines feel like they are burning it is horrific I had surgery nearly 3 weeks ago so I don’t understand why this has come on now and pain relief doesn’t stop it.
Hi, does anyone else suffer with
chronic
nerve
pain
? I’ve suffered with this in the past but now it’s come back out of nowhere my intestines feel like they are burning it is horrific I had surgery nearly 3 weeks ago so I don’t understand why this has come on now and pain relief doesn’t stop it.
MyStar86
in
IBS Network
7 months ago
chronic fatigue, pain in hips and thighs
I now have same level of
pain
in hips/thighs but main issue is
chronic
fatigue. I am sleeping almost around the clock, fall asleep if I sit down, I’m unable to function normally and at times feel unable to walk across the lounge. My question is, is this normal?
I now have same level of
pain
in hips/thighs but main issue is
chronic
fatigue. I am sleeping almost around the clock, fall asleep if I sit down, I’m unable to function normally and at times feel unable to walk across the lounge. My question is, is this normal?
Scarysit
in
PMRGCAuk
11 months ago
Recovery time
Hello folks, it's been a while since I posted, or had anything to post about. I have to retire to my bed or any horizontal surface these days as my fractured vertebrae are soon put to the test and become uncomfortable if I'm sitting or standing for a while. Speed bumps are a menace and I always have
Hello folks, it's been a while since I posted, or had anything to post about. I have to retire to my bed or any horizontal surface these days as my fractured vertebrae are soon put to the test and become uncomfortable if I'm sitting or standing for a while. Speed bumps are a menace and I always have
Gandalf2
in
Encephalitis Society
10 months ago
Ankle Fusion wahey
i am in hospital after an an ankle fusion yesterday. Great fun. Lovely nurses 🤪 just going home. And I've had my second Oxy pill. Oh my! Do watch Painkiller if you have Netflix. It's evil big pharma and so on. This was going on when I was living in California.... Awful sights... 9mg and I'm doing
i am in hospital after an an ankle fusion yesterday. Great fun. Lovely nurses 🤪 just going home. And I've had my second Oxy pill. Oh my! Do watch Painkiller if you have Netflix. It's evil big pharma and so on. This was going on when I was living in California.... Awful sights... 9mg and I'm doing
Hidden
in
PMRGCAuk
10 months ago
Progress update - Pirtobrutinib triple trial for treatment naive
I finished Cycle 4 of the fixed duration Pirtobrutinib combo trial at M.D. Anderson for Pirtobrutinib, Obinutuzumab, and Venetoclax on June 13, 2023. https://clinicaltrials.gov/study/NCT05536349?tab=table In addition to the usual blood tests - CBC, differential, metabolic, electrolyte, and immunoglobulin
I finished Cycle 4 of the fixed duration Pirtobrutinib combo trial at M.D. Anderson for Pirtobrutinib, Obinutuzumab, and Venetoclax on June 13, 2023. https://clinicaltrials.gov/study/NCT05536349?tab=table In addition to the usual blood tests - CBC, differential, metabolic, electrolyte, and immunoglobulin
SeymourB
in
CLL Support
11 months ago
hand pain
the awful pain i had in my hands is just worse by the day, i thought it would go cos maybe gluten related but after setting doc she said she can see joints inflammation. nothing can be done except painkillers. now i’ve realised and admitted to myself that it is arthritis 😢 after all these years of
the awful pain i had in my hands is just worse by the day, i thought it would go cos maybe gluten related but after setting doc she said she can see joints inflammation. nothing can be done except painkillers. now i’ve realised and admitted to myself that it is arthritis 😢 after all these years of
Junny123
in
Gluten Free Guerrillas
10 months ago
post CRR-D procedure
I had a CRT-D procedure test yesterday and all went well the cardiologist and nurses were amazing. I feel as though I can actually breathe normally now which is amazing. My question is how long does the wound take for the pain to ease off where you don’t have to take painkillers? Thank you, Joy
I had a CRT-D procedure test yesterday and all went well the cardiologist and nurses were amazing. I feel as though I can actually breathe normally now which is amazing. My question is how long does the wound take for the pain to ease off where you don’t have to take painkillers? Thank you, Joy
honeybubs
in
British Heart Foundation
10 months ago
Journey Ditty
Twenty twenty was the year all went wrong that's crystal clear. Things had not been going well before that date, just to tell. Ailments I'd not had before taxed me like a plague of yore. Unknown this and unknown that caught me square and laid me flat. Muscles cramping so in pain no relief drove
Twenty twenty was the year all went wrong that's crystal clear. Things had not been going well before that date, just to tell. Ailments I'd not had before taxed me like a plague of yore. Unknown this and unknown that caught me square and laid me flat. Muscles cramping so in pain no relief drove
cycli
in
PMRGCAuk
10 months ago
Dialysis / RLS
Wow, this sub is a lot more active than the Kidney Disease sub, one would think it would be the other way around. I guess RLS is a lot more prevalent than people think? I never experienced or even heard of RLS before starting dialysis but boy did it hit me hard. It's already hard to sleep while doing
Wow, this sub is a lot more active than the Kidney Disease sub, one would think it would be the other way around. I guess RLS is a lot more prevalent than people think? I never experienced or even heard of RLS before starting dialysis but boy did it hit me hard. It's already hard to sleep while doing
bumblebee_tuna
in
Restless Legs Syndrome
9 months ago
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