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Chronic pain
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Dipipanone and Cyclizine
Thank you.Best wishes to all of you who are in
chronic
pain
. I sympathise so much.
Thank you.Best wishes to all of you who are in
chronic
pain
. I sympathise so much.
Danni54
in
Pain Concern
10 months ago
uMRD 6
I have been living for the one year point on V plus O to get the clonal sequence uMRD6 bone marrow test done so I could decide if I wanted to continue with a Venetaclax. Technically, I consider myself partially treated rather than relapsed or refractory, because I only received three of the six cycles
I have been living for the one year point on V plus O to get the clonal sequence uMRD6 bone marrow test done so I could decide if I wanted to continue with a Venetaclax. Technically, I consider myself partially treated rather than relapsed or refractory, because I only received three of the six cycles
skipro
in
CLL Support
1 month ago
Bilateral back thigh and leg pain associated with chronic pelvic pain??
Just had a lumbar MRI to make sure none of my
chronic
pelvic
pain
was coming from my back. Results were negative. I am having severe bilateral back and leg nerve pain. I have been able to control this with 300 mg of pregabalin, but it doesn’t seem to be working now.
Just had a lumbar MRI to make sure none of my
chronic
pelvic
pain
was coming from my back. Results were negative. I am having severe bilateral back and leg nerve pain. I have been able to control this with 300 mg of pregabalin, but it doesn’t seem to be working now.
Rocky68
in
Pelvic Pain Support Network
28 days ago
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Background
I appreciate the interest in knowing more of my "back story" and my CLL "markers" history. What bothers me is a bias toward the pharmaceutical approach to treating CLL that is characterized as the "best" approach despite failed and incompetent pharmaceutical interventions, highlighted in the incompentently
I appreciate the interest in knowing more of my "back story" and my CLL "markers" history. What bothers me is a bias toward the pharmaceutical approach to treating CLL that is characterized as the "best" approach despite failed and incompetent pharmaceutical interventions, highlighted in the incompentently
leftysfsl1945
in
CLL Support
1 month ago
Lefty
I earned a degree in Electrical Engineering from the University of California, Berkeley. Worked in Silicon Valley for several years and managed to join a start up company prior to it going public that was very successful. During 2015 I started seeing a Naturopathic doctor and became impressed with
I earned a degree in Electrical Engineering from the University of California, Berkeley. Worked in Silicon Valley for several years and managed to join a start up company prior to it going public that was very successful. During 2015 I started seeing a Naturopathic doctor and became impressed with
leftysfsl1945
in
CLL Support
1 month ago
first line treatment with bendamustin and rithoximab
I had 6 month first line treatment with bendamustin and rithoximab in 2022 september ended. .when i start my treatment my numbers was very high wbc 146 rbc was low in 2022 janeuary the numbers was wbc126 rbc 3.23 hgb 10.9 plt 135 LDh 920. because of high in ldh one of recent doctor said may be
I had 6 month first line treatment with bendamustin and rithoximab in 2022 september ended. .when i start my treatment my numbers was very high wbc 146 rbc was low in 2022 janeuary the numbers was wbc126 rbc 3.23 hgb 10.9 plt 135 LDh 920. because of high in ldh one of recent doctor said may be
09123836306
in
CLL Support
1 month ago
Chronic upper body pain
hi everyone, I’m suffering with
chronic
upper body
pain
and looking for others who have similar symptoms. It’s been on and off for a few years but the last 6 months have been particularly bad.
hi everyone, I’m suffering with
chronic
upper body
pain
and looking for others who have similar symptoms. It’s been on and off for a few years but the last 6 months have been particularly bad.
Polnish841
in
Pain Concern
25 days ago
Alverine and/or Simalvia - (which is alverine citrate with simethicone.) Side effects.
I have recently been put on these. I have found that both the standard alverine citrate, which I had tried first, now the Simalvia, cause feelings of extreme anxiety about an hour after taking the tablet! Weird and not listed in the side effects. So far it seems ineffective on the pain anyway. Would
I have recently been put on these. I have found that both the standard alverine citrate, which I had tried first, now the Simalvia, cause feelings of extreme anxiety about an hour after taking the tablet! Weird and not listed in the side effects. So far it seems ineffective on the pain anyway. Would
emmjay77
in
IBS Network
4 months ago
Understanding PET Scan Results with CLL
Hello! I was diagnosed with CLL (11Q) in 2013. On Ibrutinib since 2015 and have very thankfully done very well with basically zero problems. CT scans have showed some mild increase in nodes over the last several years. Doctor ordered a PET Scan. I have the results. What would indicated Richter's
Hello! I was diagnosed with CLL (11Q) in 2013. On Ibrutinib since 2015 and have very thankfully done very well with basically zero problems. CT scans have showed some mild increase in nodes over the last several years. Doctor ordered a PET Scan. I have the results. What would indicated Richter's
FlaKeys
in
CLL Support
2 months ago
bungi61
as I had 2 as it got stuck and that was the only way I could get any relief from it and I was sat on the toilet trying 2 force it out 4 a good 15/20 minutes and once again SORRY about such a sensitive matter and just hope you are not trying 2 eat and I was in
chronic
pain
before and now I've made myself
as I had 2 as it got stuck and that was the only way I could get any relief from it and I was sat on the toilet trying 2 force it out 4 a good 15/20 minutes and once again SORRY about such a sensitive matter and just hope you are not trying 2 eat and I was in
chronic
pain
before and now I've made myself
bungi1961
in
IBS Network
7 months ago
Detected with CLL
Hi , i was detected with cll in march 2021 at that time my wbc was 30k but with no symptoms so i was on wait and watch,after few months i got brain hamerroage and i was in hospital for 1 month after that i recovered but still my left side is weak , my wbc increased gradually and after 3 years it has
Hi , i was detected with cll in march 2021 at that time my wbc was 30k but with no symptoms so i was on wait and watch,after few months i got brain hamerroage and i was in hospital for 1 month after that i recovered but still my left side is weak , my wbc increased gradually and after 3 years it has
Kkkaaarrr
in
CLL Support
2 months ago
Quercetin
I am taking Vimerson Health's Tumeric/Quercetin/Bromelain combination. Presently only taking the recommended two capsules per day in the morning. Been on Watch and Wait since 2019. White count is slowly creeping up (now at 30.8 - a year ago I was at 20.9). Other numbers Lymphs at #25, MCV at 96.9
I am taking Vimerson Health's Tumeric/Quercetin/Bromelain combination. Presently only taking the recommended two capsules per day in the morning. Been on Watch and Wait since 2019. White count is slowly creeping up (now at 30.8 - a year ago I was at 20.9). Other numbers Lymphs at #25, MCV at 96.9
CBME
in
CLL Support
2 months ago
The 2024 Global Patient Survey invites CLL patients and caregivers to share their experiences
Every two years, the Lymphoma Coalition, a worldwide network of patient groups with a full or partial focus on providing support to lymphoma patients, including those with CLL, undertakes a
Global Patient Survey
. The 2024 survey gives you
an opportunity to share your experience with CLL
Every two years, the Lymphoma Coalition, a worldwide network of patient groups with a full or partial focus on providing support to lymphoma patients, including those with CLL, undertakes a
Global Patient Survey
. The 2024 survey gives you
an opportunity to share your experience with CLL
CLLerinOz
Volunteer
in
CLL Support
2 months ago
Support: Anxiety about having a baby
Hello everyone, I've been suffering from
chronic
pain
for about fifteen years now (half of my life) and it's really taken its toll.
Hello everyone, I've been suffering from
chronic
pain
for about fifteen years now (half of my life) and it's really taken its toll.
Resqc
in
Pain Concern
8 months ago
watch and wait.
Hi all, I haven’t posted in a while. I am after some thoughts on results really.. I am based in the UK. Diagnosed in Oct 2022 after a chance blood test for something else. A familiar story from what I have read. A specialist at the time said I was a bit early for the disease! I’m now nearly 50. I
Hi all, I haven’t posted in a while. I am after some thoughts on results really.. I am based in the UK. Diagnosed in Oct 2022 after a chance blood test for something else. A familiar story from what I have read. A specialist at the time said I was a bit early for the disease! I’m now nearly 50. I
T7374
in
CLL Support
2 months ago
Beta 2 Microglobulin
Hi. I'm considering getting a Beta 2 Microglobulin blood test done. I have CLL and on W&W. Has anyone else had this done?
Hi. I'm considering getting a Beta 2 Microglobulin blood test done. I have CLL and on W&W. Has anyone else had this done?
ColSte
in
CLL Support
2 months ago
A potential game-changer for CAR T cell therapy: mutations in cancer engineered to beat cancer
CAR T therapy has been successful in some acute blood cancers. Response rates, however, are considerably lower in CLL and solid tumours, with T cell exhaustion and antigen escape being shared issues. A potentially game-changing advance in solid tumour CAR T technology may therefore be relevant to CAR
CAR T therapy has been successful in some acute blood cancers. Response rates, however, are considerably lower in CLL and solid tumours, with T cell exhaustion and antigen escape being shared issues. A potentially game-changing advance in solid tumour CAR T technology may therefore be relevant to CAR
bennevisplace
in
CLL Support
3 months ago
CLL diagnosis
Hello all, I have just been diagnosed with CLL, because of a blood test in preparation for knee replacement surgery! I have a no symptoms other than mild fatigue. The encologist said this disease doesn’t mean that it’s the end. Some people go for years without symptoms. I am in good health and stay fit
Hello all, I have just been diagnosed with CLL, because of a blood test in preparation for knee replacement surgery! I have a no symptoms other than mild fatigue. The encologist said this disease doesn’t mean that it’s the end. Some people go for years without symptoms. I am in good health and stay fit
Tonightweride
in
CLL Support
3 months ago
Hematocrit and CLL
Is it typical to have high hematocrit with CLL?I was diagnosed in 2020 with a favorable prognosis. I see oncologist each 4 months. It's the longest interval she permits. My last appointment I had: WBC 15.0 HCT 51% My MD has suggested possibly (about a year ago but nothing since then) taking hydroxyurea
Is it typical to have high hematocrit with CLL?I was diagnosed in 2020 with a favorable prognosis. I see oncologist each 4 months. It's the longest interval she permits. My last appointment I had: WBC 15.0 HCT 51% My MD has suggested possibly (about a year ago but nothing since then) taking hydroxyurea
Jessielab
in
CLL Support
3 months ago
History of Hypothyroidism on Maternal Side (Gma, mom, aunt, sister). HELP! Should I get tested?
All soft tissue, bones and muscle have
chronic
pain
. Especially during flare ups. It happens on my spine as well. Lately, I wake up w/ horrible pain followed by burning painful rash on chest and sometimes it moves to my neck. I often feel like I just did a workout and need to rest. I sleep early.
All soft tissue, bones and muscle have
chronic
pain
. Especially during flare ups. It happens on my spine as well. Lately, I wake up w/ horrible pain followed by burning painful rash on chest and sometimes it moves to my neck. I often feel like I just did a workout and need to rest. I sleep early.
Chronichives
in
Thyroid UK
13 days ago
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