Search
Search
About
Log in
Join
Experiences with
Chorionic villus sampling (CVS)
Posts
Communities
6,452 public posts
Filter results
Chronic Fatigue Syndrome and Fibromyalgia treatment with B12 injections and oral folate
In the category of "not helpful but interesting", I am sharing this paper decribing a research project which treated patients with Chronic Fatigue Syndrome and Fibromyalgia with B12 injections and oral folate. One interesting facet is that dose of B12 and folate is based on symptoms as reflected in clinician
In the category of "not helpful but interesting", I am sharing this paper decribing a research project which treated patients with Chronic Fatigue Syndrome and Fibromyalgia with B12 injections and oral folate. One interesting facet is that dose of B12 and folate is based on symptoms as reflected in clinician
WiscGuy
in
Pernicious Anaemia Society
2 years ago
To remove my port or not?
Hello, I am a 66 year old male, CLL for about 10 years, was in W &W until Feb, 2021, then completed 6 months treatment with Bendamustine and Rituximab in July 2021, two follow up appts. since then both went well with MRD at 0.07%. I had a Infusaport (port) placed for my treatment. My question is for
Hello, I am a 66 year old male, CLL for about 10 years, was in W &W until Feb, 2021, then completed 6 months treatment with Bendamustine and Rituximab in July 2021, two follow up appts. since then both went well with MRD at 0.07%. I had a Infusaport (port) placed for my treatment. My question is for
napa
in
CLL Support
2 years ago
*sensitive* 10dp5dt - BFP - advice on how to deal with the anxiety?
Hello to all the amazing ladies. So first of all I want to say that I don’t want to sound ungrateful about a BFP at all because we are excited but ooh boy the other feelings… So I caved and tested early from 8dp because I had a chemical last FET and wouldn’t want to ‘miss’ it. See image for the tests
Hello to all the amazing ladies. So first of all I want to say that I don’t want to sound ungrateful about a BFP at all because we are excited but ooh boy the other feelings… So I caved and tested early from 8dp because I had a chemical last FET and wouldn’t want to ‘miss’ it. See image for the tests
Riri88
in
Fertility Network UK
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Immune System
Since September last year I keep coming down with really heavy coughs and colds that lay me low for up to a couple of weeks at a time. I was In the middle of a bout on the 10th February and I was prescribed antibiotics for it. Now, just over a month later I've come down with it again, but this time I've
Since September last year I keep coming down with really heavy coughs and colds that lay me low for up to a couple of weeks at a time. I was In the middle of a bout on the 10th February and I was prescribed antibiotics for it. Now, just over a month later I've come down with it again, but this time I've
willsie01
in
Thyroid UK
2 years ago
Roof insulation quandry
This is indirectly a concern for those of us with breathing issues , plus your future option for equity release if you own your home. And can inpact on the value of your home. People were told that foam insulation in the loft was the bees knees , it was backed by the government and now it comes to light
This is indirectly a concern for those of us with breathing issues , plus your future option for equity release if you own your home. And can inpact on the value of your home. People were told that foam insulation in the loft was the bees knees , it was backed by the government and now it comes to light
katieoxo60
in
Lung Conditions Community Forum
2 years ago
COVID-19 UPDATES - The latest experimental therapies - not CLL specific, but potential treatment for COVID-19 in many cancer patients
COVID-19 UPDATES Dr. Leyfman Discusses the Increased Risk of COVID-19 and Cancer Patients In our third and final interview with , experimental therapies for COVID-19 are discussed. While not CLL specific, Dr. Leyfman does present potential options for treating COVID-19 in cancer patients broadly.
COVID-19 UPDATES Dr. Leyfman Discusses the Increased Risk of COVID-19 and Cancer Patients In our third and final interview with , experimental therapies for COVID-19 are discussed. While not CLL specific, Dr. Leyfman does present potential options for treating COVID-19 in cancer patients broadly.
lankisterguy
Volunteer
in
CLL Support
2 years ago
Hysteroscopy Results
Hi, Not sure if anyone can help or give a little bit more information but I recently had a Hysteroscopy in January and has taken 7 weeks to get the results (they had to get a 2nd opinion) Basically they have come back to say the found a Placental site nodule. Not much else was said on the call apart
Hi, Not sure if anyone can help or give a little bit more information but I recently had a Hysteroscopy in January and has taken 7 weeks to get the results (they had to get a 2nd opinion) Basically they have come back to say the found a Placental site nodule. Not much else was said on the call apart
Aame7800
in
Fertility Network UK
2 years ago
Odd question on pneumonia recovery
So, funny one this in a way. I'm 5 months into recovering from covid pneumonia. I was told at the time I have some lung scarring too. I'm more mobile and can even manage short bursts of jogging now and again. but still get very tired. My lungs feel tired too, but after I eat can feel tight. I can breath
So, funny one this in a way. I'm 5 months into recovering from covid pneumonia. I was told at the time I have some lung scarring too. I'm more mobile and can even manage short bursts of jogging now and again. but still get very tired. My lungs feel tired too, but after I eat can feel tight. I can breath
natswright
in
Lung Conditions Community Forum
2 years ago
Pneumonia With ET
Hi all, hope you are all doing well. Last week I had the most horrendous chest pains, but didn't feel cardiac related so I ignored it, then this Monday, I was finding it hard to breath, I phoned 111 and they booked me in to A&E. They did some X-Rays & tests and said I had Pneumonia. They gave me IV
Hi all, hope you are all doing well. Last week I had the most horrendous chest pains, but didn't feel cardiac related so I ignored it, then this Monday, I was finding it hard to breath, I phoned 111 and they booked me in to A&E. They did some X-Rays & tests and said I had Pneumonia. They gave me IV
Raphael_UK
in
MPN Voice
2 years ago
Chronic Fatigue Syndrome
The largest ever DNA study of ME/CFS is available to register online. ME/CFS and FMS are similar in symptoms. Some people may suffer from both or all. This study is interesting to us Fibromyalgia individuals as the study looks at fatigue a major symptom of Fibro, the trial, Yes a trial! is looking at
The largest ever DNA study of ME/CFS is available to register online. ME/CFS and FMS are similar in symptoms. Some people may suffer from both or all. This study is interesting to us Fibromyalgia individuals as the study looks at fatigue a major symptom of Fibro, the trial, Yes a trial! is looking at
does-the-NHS-work
in
Fibromyalgia Action UK
2 years ago
Introduction: I'm new here
Hi my name is Jay and I just wanted to introduce myself. My husband has vasculitus which has aggressively attacked his kidneys so he will need a kidney transplant once the condition is under control. At the moment he is on dialysis 3 times a week. We only found out how ill he was in November 2021 so
Hi my name is Jay and I just wanted to introduce myself. My husband has vasculitus which has aggressively attacked his kidneys so he will need a kidney transplant once the condition is under control. At the moment he is on dialysis 3 times a week. We only found out how ill he was in November 2021 so
Kanjee18
in
Vasculitis UK
2 years ago
Faint line on pregnancy test?!
Please help! I’ve been feeling extremely nauseous for about 4 days now, it’s at its worst in the morning and comes and goes throughout the day, the smell of any meat being cooked is seriously disgusting me and making me gag but i haven’t thrown up. I should be having my period in a couple days, usually
Please help! I’ve been feeling extremely nauseous for about 4 days now, it’s at its worst in the morning and comes and goes throughout the day, the smell of any meat being cooked is seriously disgusting me and making me gag but i haven’t thrown up. I should be having my period in a couple days, usually
beebop5
in
Fertility Network UK
2 years ago
Slow beta hcg and low progesterone. Worried🥺
Dear ladies, I need your help, thoughts…opinion. So grateful in advance. I’m trying to understand what happens. I had FET with donor eggs. Beta is low. I’m worried because dr from Greece told me to stop Progesterone injections, and to stay with pessaries (3x1) and other therapy. I just don’t understand
Dear ladies, I need your help, thoughts…opinion. So grateful in advance. I’m trying to understand what happens. I had FET with donor eggs. Beta is low. I’m worried because dr from Greece told me to stop Progesterone injections, and to stay with pessaries (3x1) and other therapy. I just don’t understand
Pigi
in
Fertility Network UK
2 years ago
Night sweat relief?
I am new to CLL having been diagnosed in Jan. 2022. I had no symptoms until recently experiencing night sweats. I am wondering if there is any treatment for this and also wonder if it means my condition is advancing quickly. I have an appt with the hematologist/ oncologist in May. He said I am on a watch
I am new to CLL having been diagnosed in Jan. 2022. I had no symptoms until recently experiencing night sweats. I am wondering if there is any treatment for this and also wonder if it means my condition is advancing quickly. I have an appt with the hematologist/ oncologist in May. He said I am on a watch
9RGBZ
in
CLL Support
2 years ago
Working with CLL!
Hello all, I'm new to this site but have already gained a vast amount of knowledge and feel a sense of support from reading the posts and engaging with your stories. I received all my test results, genetic/bloods etc and confirmation of CLL back in Dec 2021. I'm on the Watch and Wait journey! I work
Hello all, I'm new to this site but have already gained a vast amount of knowledge and feel a sense of support from reading the posts and engaging with your stories. I received all my test results, genetic/bloods etc and confirmation of CLL back in Dec 2021. I'm on the Watch and Wait journey! I work
MDcard
in
CLL Support
2 years ago
What does curing CLL mean?
This is a question I often wonder about but have never asked my doctor. When we hear about a cure for CLL what we really mean is a way to live with it, correct? The existing treatments and treatments on the horizon won't necessarily eliminate CLL altogether or the associated risks of secondary cancers
This is a question I often wonder about but have never asked my doctor. When we hear about a cure for CLL what we really mean is a way to live with it, correct? The existing treatments and treatments on the horizon won't necessarily eliminate CLL altogether or the associated risks of secondary cancers
CoCoLuna11
in
CLL Support
2 years ago
"Sailing with CLL" - a sense of humor may help....
"Aboard" and "Port" are two terms which I heard in past days during my medical care: Routinly I am asked by the Cancer Clinic lab technician: "Do you have a port?" I do not. But at this moment I smile and I am tempted to say: "Yes, my port is Santo Domingo!" and I sense a bit euphoria: When I retired
"Aboard" and "Port" are two terms which I heard in past days during my medical care: Routinly I am asked by the Cancer Clinic lab technician: "Do you have a port?" I do not. But at this moment I smile and I am tempted to say: "Yes, my port is Santo Domingo!" and I sense a bit euphoria: When I retired
janvog
in
CLL Support
2 years ago
PMR after Flu Vaccination
I'm new here, just joining this week, I'm 70 years old. I developed PMR in 2020 after my first FLU vaccination in 44 years, I had the Swine FLU vaccination in 1976 which also made me very sick. Has anyone else experienced this? In 1976 very few virus strains, in 2020 multiple virus strains in the vaccination
I'm new here, just joining this week, I'm 70 years old. I developed PMR in 2020 after my first FLU vaccination in 44 years, I had the Swine FLU vaccination in 1976 which also made me very sick. Has anyone else experienced this? In 1976 very few virus strains, in 2020 multiple virus strains in the vaccination
Me_2
in
PMRGCAuk
2 years ago
Did anyone have MGUS progress into CLL, and after treatment for CLL, did your MGUS improve or no longer exist?
Hi I'm new to the CLL community. My name is Vicki. I was diagnosed with M.G.U.S. (Monoclonal Gammopathy of Undetermined Significance) 15 years ago. It is an abnormal protein (M protein) in the blood and a precancerous condition to Multiple Myeloma, Lymphoma, CLL etc. I was diagnosed in October 2021
Hi I'm new to the CLL community. My name is Vicki. I was diagnosed with M.G.U.S. (Monoclonal Gammopathy of Undetermined Significance) 15 years ago. It is an abnormal protein (M protein) in the blood and a precancerous condition to Multiple Myeloma, Lymphoma, CLL etc. I was diagnosed in October 2021
Luv2Craft
in
CLL Support
2 years ago
To continue or not....that is the question
I started treatment in July 2021 after 18 months on W&W. Initially I was treated with Obinutuzumab but I had a severe reaction to the first 20mg and ended up in the A&E resuscitation ward. I was then swopped to Rituximab and Venetoclax, which was explained as normally being a second line treatment which
I started treatment in July 2021 after 18 months on W&W. Initially I was treated with Obinutuzumab but I had a severe reaction to the first 20mg and ended up in the A&E resuscitation ward. I was then swopped to Rituximab and Venetoclax, which was explained as normally being a second line treatment which
Dawson21
in
CLL Support
2 years ago
1
...
51
52
53
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Fertility Network UK
1575 results
CLL Support
1565 results
Lung Conditions Community Forum
383 results
View top 10 communities
Sort by
Most Relevant
Newest